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Medical Forum / Diseases and Disorders / Tinnitus / June 2004Am I the only one?
Hi everyone, I don't know where to begin so I guess I should start out with a brief history. I was born with cerebral palsy. I have been diagnosed with Meniere's disease. I have been diagnosed with Myoclonus. Here is a link for anyone that is interested: http://www.wemove.org/myo/myo_cc.html Everyone has encountered the following type of myoclonic jerk. It's when someone is just about to fall asleep and all of a sudden they wake up with a start. Hiccups are another form. When I'm trying to sleep and there is a noise, like the click of a fan switch on the furnace, the ringing in my ears increases 1000 fold and the muscles in my body contract. When the ringing increases like this, it's like an explosion in my head. Internal sounds in my body can trigger this too. Has anyone else here ever had this happen? Thanks, Ken "Ken McDonald" <kmcdonald22@remo.vethis.neo.rr.com> wrote in part: >When I'm trying to sleep and there is a noise, like the click of a fan >switch on the furnace, the ringing in my ears increases 1000 fold and the >muscles in my body contract. When the ringing increases like this, it's like >an explosion in my head. Internal sounds in my body can trigger this too. There is a phenomenon that occurs in association with tinnitus in some people that a British medical journal (The Lancet) dubbed "exploding head syndrome." It is much as you describe it and can apparently be quite frightening. A few years back, the British Tinnitus Association was tracking reports of EHS. I haven't heard anything in the way of a report from them. In any case, the Lancet article said that there was no evidence that EHS led to any other symptoms or problems, and it often just went away.  SignatureJim Chinnis / Warrenton, Virginia, USA Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG you are born with a mechanism hat allows you to sleep when the only sound is the owl and the wind Wakes you up when the tiger snarls this mechanism is used when mother sleeps through the traffic outside but awakens when baby cries or the baby's snoring stops. Your body has conditioned an exaggerated response of this built in mechanism. You can correct it with medication You can correct it by conditioning. For example, record the fan or switch noise. Now learn to use this as a signal to relax your muscles. Same sort of conditioning in fear of heights, fear of spiders , etc. You can use the suggestions at my web site or almost any book on self hypnosis can give you exercises that will help. the reaction is normal, its just that it is exaggerated. Your body is assuming that noise is a tiger. Another approach is to record the offensive sound and let it play all day. That will teach your body that its not a tiger. Murray Grossan, M.D. http://www.ent-consult.com > you are born with a mechanism hat > allows you to sleep when the only sound is the owl and the wind [quoted text clipped - 14 lines] > Another approach is to record the offensive sound and let it play all day. That > will teach your body that its not a tiger. Hi Murray, I see the "MD" after your name and am assuming it means you are medical doctor. Please allow me to clarify a few things and ask a few questions. I've told this to countless doctors over the past ten years and I've never been given an answer. Mostly, it's been shoulder shrugging. Some of this may be off topic but please bear with me. My doctor told me that my cerebral palsy complicates my meniere's. What do you know about this? I am spastic with involuntary movement mostly in my right leg, but the right side of my body is affected. My right leg drives me crazy sometimes when it slowly writhes. Just so you know, I had surgery twice at age 3 and age 7 so my heel touches the ground and my foot sticks out instead of in. Is it possible for someone to really relax that is spastic with involuntary movement and writhing? I have had this myoclonus problem for as long as I can remember. For the longest time (since childhood), all of a sudden, I would suck in air so fast and hard that it would cause me to snort and my chest would hurt. I never new what was happening until I saw a neurologist about the explosions in my head. He diagnosed me with myoclonus. The myoclonus has affected different parts of my body over the years. While I was awake and moving around, it used to be "shock like" running down my arms with an increase in my T (not an explosion) for a time duration of the snap of a finger. Right now, it seems to have settled in my chest or diaphragm. Before, it was lifting me off my bed and seeming to bend me in half backwards with the explosion. Now it's just stabbing pains in differing areas of my chest. While I'm trying to sleep, it's not just fan clicks that cause the explosions and muscle jerks. It can be the squeaks in my mouth when I'm getting ready to swallow saliva. It can be a creak from the house. Last night, there were no sounds preceding the explosion. It just happens. I've had T since around 1995 and was told that I had T in 1998. I walked around for three years with ringing in my ears and thought I was on the verge of loosing consciousness because of the associated dizziness. For some reason I never think to ask the right questions when I visit the doctor, or I am unable to describe what I'm feeling. Any comments would be appreciated. Ken McDonald > Murray Grossan, M.D. > http://www.ent-consult.com I know of now association between Meniere's and Cerebral Palsy. With CP you can still have an ingrown toe nail or dandruff. I don't treat CP and really don't know much about it but I thought that some of the muscle relants could keep you more comfortable. best to you, Murray Grossan, M.D. http://www.ent-consult.com > I know of now association between Meniere's and Cerebral Palsy. With CP you can > still have an ingrown toe nail or dandruff. > I don't treat CP and really don't know much about it but I thought that some of > the muscle relants could keep you more comfortable. > best to you, Thank you for replying. I don't know what you mean by an ingrown toenail or dandruff, but thanks. Do you mean "muscle relaxants?" Ken McDonald > Murray Grossan, M.D. > http://www.ent-consult.com > "Ken McDonald" writes: >When I'm trying to sleep and there is a noise, like the click of a fan >switch on the furnace, the ringing in my ears increases 1000 fold and the>muscles in my body contract. When the ringing increases like this, it's like>an explosion in my head. Internal sounds in my body can trigger this too. >Has anyone else here ever had this happen? .......................... Hi Ken, My guess - stress reaction! Your central nervous system is oversensitized from the physical/mental stress tinnitus has put you under. You've got that fight/flight syndrome really overburdened. Try to relax more and realize it doesn't get any worse than this. Years ago, we had a thread going about hearing gunshot sounds just before falling asleep. Some psycologists think this is the sound of our overstressed nervous system trying to relax. I concluded that this sound was coming from me grinding my teeth. Whatever, it would provoke the same emotional reaction that your having from these explosions in your head. I dont' know how long youve had T, but you may want to try and antidepressant to help you calm down and feel more chipper while your trying to acclimate the T. - jean
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