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Medical Forum / Diseases and Disorders / Tinnitus / June 2004What happened to TRT?
After a period of lurking and then returning to this site, it seems to me that a lot of the same people are still contributing. With the advent of TRT why is tinnitus still such a problem for some? Can one conclude that TRT was just another flavour of the month and has now gone away to be replaced by some other folk-remedy (only my opinion). Don't see much discussion about it any more so assume it has died a death. John > After a period of lurking and then returning to this site, it seems to >me that a lot of the same people are still contributing. With the advent of [quoted text clipped - 4 lines] > >John We can only hope, John. Terri >We can only hope, John. > >Terri Why would you hope for the disappearance of a therapy that so many have reported relief from, especially when so few effective means of treatment exist? Spite isn't an acceptable answer, here. Folks with T who come here are entitled to hear about all options, then make their own informed decisions. Susan >x-no-archive: yes > [quoted text clipped - 10 lines] > >Susan There is plenty of information available on TRT from the archives. There is nothing new to discuss so we are better off without the debate that inevitably turns to something else. Terri >There is plenty of information available on TRT from the archives. >There is nothing new to discuss so we are better off without the >debate that inevitably turns to something else. > >Terri Not every new poster reads the archives. There's nothing wrong with mentioning or discussing TRT as one of the approaches some folks have tried with success. I'm in complete agreement about the length and character of previous debates, but the subject of those wasn't really TRT, IMO. Susan "John Goddard" <john.goddard4@virgin.net> wrote in part: > After a period of lurking and then returning to this site, it seems to >me that a lot of the same people are still contributing. With the advent of [quoted text clipped - 4 lines] > >John I think it is the best treatment going for most people with tinnitus, though I think it will very soon be eclipsed by better versions of sound-enrichment based treatment. In any case, there are some large-scale controlled studies that should finally report results soon. I hope they show a significant positive effect of TRT, since we sure need some treatments that have been shown to work.  SignatureJim Chinnis / Warrenton, Virginia, USA Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG Jim, can you elaborate on the large scale studies regarding TRT mentioned in your post. Who, where, when, etc. Thanks. Eric > "John Goddard" <john.goddard4@virgin.net> wrote in part: > [quoted text clipped - 14 lines] > report results soon. I hope they show a significant positive effect of TRT, > since we sure need some treatments that have been shown to work. >better versions of sound-enrichment >based treatment Have you a ref for these Jim? SignatureAC AC <aec$news@candt.demon.co.uk> wrote in part: >Jim Chinnis <jchinnis@SPAMalum.mit.edu> writes >>better versions of sound-enrichment >>based treatment > >Have you a ref for these Jim? There are a bunch. One example is an Australian group that has a retraining/conditioning program that is quite different from TRT. Let's see...they have a website at http://www.neuromonics.com/ Abe Shulman is working on a different approach. He is in NYC. And there's the folk's playing with ultrasound for tinnitus masking/inhibition. An example is the product by Hearing Innovations. I think they have a website. There's a Canadian audiologist with an approach that's a bit like the Australian group, but different. He's in BC. (My memory for names and such isn't good enough for me to reply with references to all these things!) There's a group in San Diego with a novel sound enrichment approach. Most of these have been mentioned or reviewed in recent issues of Tinnitus Today, the American Tinnitus Association's "journal." Sorry, I'm a bit pressed for time these days. SignatureJim Chinnis / Warrenton, Virginia, USA Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG WELL. I am still plugging away, here in Oregon, providing TRT for patients from all over. This is my seventh year and what I perceive is that there are more patients than ever! More MDs are referring to my clinic, more audiologists, more respect from insurers who are wiling to pay for it, and more success stories that I could ever write about here. There are always people looking for a magic pill. I don't blame them. But the average person who is willing to follow the program will be astonished at the end result. I have to say, every single time I work with patients who find recovery, and that is about 85%, I am thrilled myself. From age 7 to 93. I see them all, write about it, work on it, improve my skills, and those of you who know me, will also know that I don't do any other audiology work or sell heairng aids. I just do TRT, full time, here in Oregon. And yes, I see people taking and making variations of Jastreboff's work. Little changes or choices to make another 'method'. But I would say to you that the basic TRT program works for nearly everyone who comes to my clinic. I use a family approach, working with signfiicant others like husbands and children. Tinnitus is a family condition as far as I am concerned, as is hyperacusis. And I also take a global approach and advise my patients to other medical providers or legal counsel, depending on what I see. Often patients feel so ignored by the medical community, they are glad just to talk to someone who knows something and will take time to listen. Another interesting aspect of my own way of doing things is to spend many hours with people on thier visits: one couple spent 13 hours with me over 3 days! Another just last week spent 11 hours over 2 days. I take the time that isneeded to find out what is needed. Sounds like I am tooting my own horn, and I guess maybe I am. I don't argue about TRT. If people feel they want something else, I support that, too. However, I think the reason you don't hear about it much is that the TRT people 'used' to have bad tinnitus, now they are thinking about other things and moving on. To the future. Marsha Johnson, M.S. What is your address or link? I will be living in BC of Canada. Thus I could drive down to visit you one of these days. Do you have other kinds of physicians in the same clinic? Frankly i don;t see how one could habituate while suffering from somatic discomfort in addition to the sound. I don't mind the sound now but it is the somatic discomfort in the head that bothers me. How TRT could make people ignore the discomfort is really beyond me. FP ============================================== > WELL. I am still plugging away, here in Oregon, providing TRT for patients > from all over. This is my seventh year and what I perceive is that there are [quoted text clipped - 40 lines] > > Marsha Johnson, M.S. > After a period of lurking and then returning to this site, it seems to > me that a lot of the same people are still contributing. With the advent of > TRT why is tinnitus still such a problem for some? Can one conclude that > TRT was just another flavour of the month and has now gone away to be > replaced by some other folk-remedy (only my opinion). Don't see much > discussion about it any more so assume it has died a death. Tinnitus has been a beast to me. It somehow finds new ways to circumvent new treatments. Perhaps it is about time to look for a 'spiritualist' solution. I read that the Romans in the old days had ways to get rid of this devil from the heads. FP ========================================== > John I read that the Romans in the old days had ways to get rid of this devil from the heads. I suppose that's where the Al Queda learned about using it on Mr Berg. Murray Grossan, M.D. http://www.ent-consult.com > I read that the Romans in the old days had > ways to get rid of this devil from the heads. > > I suppose that's where the Al Queda learned about using it on Mr Berg. LOL...Well, the world we live in is still full of barbarism, in either ancient or modern version. By the way, I wish you could tell me if Bymeniere tablets could serve the same purpose as carbonic dehydrase inhibitor in getting rid of excess fluid in the inner ear. I wish my Oxford doctor could show me how to use Diamox that you advised me to take. But he said it is pretty difficult to know how much Diamox to take given the nature of how it works. TIA(thank you in advance), FP > Murray Grossan, M.D. > http://www.ent-consult.com I couldn't find what Bymeniere is on internet search. Murray Grossan, M.D. http://www.ent-consult.com > I couldn't find what Bymeniere is on internet search. Really! That means you have never used it on your patients. These are imported pill from either US or UK. The pills were given to me in conjunction with DUXARILL by an ENT doctor in HK (www.ent.com.hk) to treat my tinnitus. I think they are meant to either 'balance' or get ride off inner ear fluid. What I have found of these pills is that they do tend to reduce the shifting discomfort/pressure/tightness in my head but has done little to lower the noise. Lasix has managed to lower the noise, as I have found. I wish my doctor(GP) in HK could show me how to use Diamox, as I seem to have felt that taking Lasix for more than 2 days could produce similar 'stereo effect'(ringing on both ears) like Dyazide. My ENT doctor in Hong Kong never answers phone calls from clients. He lets his receptionists answer questions of a professional nature. And I have given up on the western-trained Chinese doctors in mainland China. They are not knowledgeable in imported drugs. Thanks, FP ================================ > Murray Grossan, M.D. > http://www.ent-consult.com New treatment here: http://www.yts.se/english/index.htm Tinnitus is a pain in the neck Elly's Tinnitus Resources http://eebee.net/ http://meniere.eebee.net/ For email: elly at eebee.cjb.net > After a period of lurking and then returning to this site, it seems to >me that a lot of the same people are still contributing. With the advent of [quoted text clipped - 4 lines] > >John Very interesting Elly. That site describes exactly what I can do with my tinnitus: "Tinnitus caused by muscle tension People who have tinnitus related to muscle tension usually tell us they experience facial pain and pain in their jaws and neck. They experience difficulties opening their mouths wide and their jaws often feel tired. Many have stiff necks. They experience that their tinnitus changes over the course of time and that it increases during stress. Many of them can manipulate their tinnitus by clenching their teeth, opening their mouths wide, moving the jaw to it's outmost right, left or when moving it forward. Some tell us they can change their tinnitus by turning their heads or by pressing down on certain areas of the face, neck or head. The signals to the brainstem increase during these movements." > New treatment here: > http://www.yts.se/english/index.htm [quoted text clipped - 14 lines] > > > >John "Eduardo Garcia-Prieto" <e_garcia_prieto@hotmail.com> wrote in message snipped... > Some tell us they can change their tinnitus by turning their heads or by > pressing down on certain areas of the face, neck or head. The signals to the > brainstem increase during these movements." I experience a change of volume of my T when I turn my neck around. But I also believe that T of causes other than muscle tension could also deliver similar phenomenon. FP ==================================== > > New treatment here: > > http://www.yts.se/english/index.htm [quoted text clipped - 16 lines] > > > > > >John >Can one conclude that >TRT was just another flavour of the month Not for me. It just was not worth posting any more (or even lurking) since there was such a volume of criticism. I might look in every few moths maybe. My life improved greatly when I got the hang of TRT based approach. It was slow, and even a long time following (I have stopped counting by the way) my breakthrough realisations, I would say that things are still improving. I am around retirement age, so my body might be slower than some to respond anyway. But it has been a year or so since I would have answered that 'I had T'. If asked now, I would have to stop and think - do I have it. Yes, if I listen for it. It is simply not a factor in my life anymore. Jastreboff should be given a medal. It is so initially counter intuitive and subtle that even though I went into it with no scepticism at all, and did my own research, it took a *long* time for me to appreciate what it was all about. The main problem might be finding an effective therapist, and possibly the cost to. Unlike many things today, it takes time. Not very fashionable. SignatureAlan C |
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