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Medical Forum / Diseases and Disorders / Tinnitus / June 2004

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Does Anything Really Help?

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Patty  Walker - 26 May 2004 21:24 GMT
I am new to this newsgroup. I am seeking help with a severe case of tinnitis
in my left ear. It started many years ago and was only occasional. It is now
a constant, high pitched sound that I hear 100% of the time. The ONLY time I
can not hear it is when I am in the shower and the water is running on my
head. I have seen my ENT and had hearing tests several times over the past
years. I was told by him that it is something that I must learn to live
with. I have an appointment with an audiologist on June 8th to discuss some
kind of device to mask the sound. I am having a very hard time trying to
'learn to live with it' and would rather be deaf in my left ear that to have
to hear this sound for the rest of my life. No one I have talked to, ie:
friends, family seems to understand how annoying tinnitis is. Any
suggestions would be greatly appreciated.
Simon Brightwell - 26 May 2004 21:44 GMT
> I am new to this newsgroup. I am seeking help with a severe case of tinnitis
> in my left ear. It started many years ago and was only occasional. It is now
[quoted text clipped - 8 lines]
> friends, family seems to understand how annoying tinnitis is. Any
> suggestions would be greatly appreciated.

I sympathise with you completely.  I have had severe tinnitus in both ears
since November last year. The shower is also my best part of the day.
However, if it is of any consolation to you, you really do get used to it,
although you might not believe you will at this moment....trust me you will.
You really and honestly do ( I was in the same position as you, and believed
no-one) !!! It becomes easier if you actually accept that you have it, and
as time goes on you just notice it less and less. At first you focus on it
like mad, which is fully understandable, it's like a new fridge in the
kitchen, you don't notice the buzz after a while. When you think about it it
doesn't actually hurt, and there are far worse ailments you could have.

I sincerely hope this helps you, but it is up to you. You either live with
it or you don't. It's your choice, and I know you can...just be patient. I
decided I would chose to live with mine, and you can too.

Just forget all those who don't understand how annoying it is. They will
never understand. Yes, it is frustrating, but don't waste your energy on
them, you can't really blame them. Would you have understood it before you
actually got it yourself? Probably not. It's a waste of your energy getting
angered by them.

All the best.

Cheers,
Simon, The Netherlands
William Nunn - 27 May 2004 01:11 GMT
> I am new to this newsgroup. I am seeking help with a severe case of tinnitis
> in my left ear. It started many years ago and was only occasional. It is now
[quoted text clipped - 8 lines]
> friends, family seems to understand how annoying tinnitis is. Any
> suggestions would be greatly appreciated.

nitrazepam, or clonazepam will help. don't make a habit of it.
Ball 33 - 27 May 2004 04:39 GMT
> I am new to this newsgroup. I am seeking help with a severe case of tinnitis
> in my left ear. It started many years ago and was only occasional. It is now
[quoted text clipped - 8 lines]
> friends, family seems to understand how annoying tinnitis is. Any
> suggestions would be greatly appreciated.

Hi Patty,

Tinnitus on just one side can indicate a benign tumor pressing against the
auditory nerve.  Have you asked and ENT about this?  If not, please do.

Bill
Patty  Walker - 27 May 2004 05:30 GMT
Hi Bill,
No, I didn't ask about that and he didn't mention the possibility of a
benign tumor. All he did was examine my ear, had me go through the hearing
test and told me that it was something that I must live with. I was a little
disappointed with his cavalier attitude about my condition as it has gotten
much louder in the past year. Perhaps I should see another ENT.  Sometimes
it is unbearable. My internist prescribed Xanax for anxiety but it does
nothing for the tinnitus.  It is just about to drive me nuts!  Thanks for
the suggestion.
Patty

> > I am new to this newsgroup. I am seeking help with a severe case of
> tinnitis
[quoted text clipped - 20 lines]
>
> Bill
Ball 33 - 27 May 2004 06:08 GMT
Hi again, Patty

If it isn't caused by a tumor your ENT was correct in telling you to learn
to live with it but it's too bad he didn't tell you how to do that.

Many of us here have learned how to live with tinnitus and you will too.
Ruling out the tumor, which is called "acoustic neuroma", is a good step
because after that you relax in the knowledge that you only have to deal
with the noise.

I don't take any herbs or drugs and think they are a waste of money and
time.  You have probably noticed that the tinnitus sound varies from
time-to-time, a fact that makes it impossible to associate a change in
volume or pitch with respect to a particular food or drug.  Some drugs will
cause the ringing sound, most notably large doses of aspirin and quinine.

Elly posts a lot of good stuff about muscle tension and tinnitus.  I must
admit that I can make my tinnitus sound change by moving my jaw but I can't
figure out how to make it go away so I quit trying.

If you would like to discuss this privately, let me know if your e-mail
address is real.  I don't post mine.

Bill

> Hi Bill,
> No, I didn't ask about that and he didn't mention the possibility of a
[quoted text clipped - 34 lines]
> >
> > Bill
Patty  Walker - 27 May 2004 13:14 GMT
Yes, my email address is real.
> Hi again, Patty
>
[quoted text clipped - 67 lines]
> > >
> > > Bill
Elly Byrne - 27 May 2004 21:15 GMT
>Elly posts a lot of good stuff about muscle tension and tinnitus.  I must
>admit that I can make my tinnitus sound change by moving my jaw but I can't
>figure out how to make it go away so I quit trying.

But did you do the neck exercises?
Are you holding your head upright?
Have you stopped doing the things that cause the muscle tension?

Tinnitus is a pain in the neck
Elly's Tinnitus Resources
http://eebee.net/
http://meniere.eebee.net/

For email: elly at eebee.cjb.net
francispoon - 27 May 2004 06:42 GMT
> I am new to this newsgroup. I am seeking help with a severe case of tinnitis
> in my left ear. It started many years ago and was only occasional. It is now
[quoted text clipped - 5 lines]
> kind of device to mask the sound. I am having a very hard time trying to
> 'learn to live with it'

I went through the same experience and had a hard time 'learning to
live with it'.  Currently I have been applying a combination of
(1)Lasix in the morning and (2)Bymeniere in the evening and things
seem to be under control.  I used to be on Dyazide and this diurectic
made my both ears ring.

Also, you seem to have given too many chances to your current ENT
doctor to take care of your ill.  You may want to visit the ENT
doctors in this ng.  Jim Chinnis and Murray Grossan do appear to know
what they are talking about.  At least they have helped me where my
ENT doctorS have failed.

FP
=========================

and would rather be deaf in my left ear that to have
> to hear this sound for the rest of my life. No one I have talked to, ie:
> friends, family seems to understand how annoying tinnitis is. Any
> suggestions would be greatly appreciated.
Pete C. - 27 May 2004 20:22 GMT
Please ask your ENT to prescribe a head MRI with/without contrast.  An
acoustic neuroma can present with/without hearing loss.  Sometimes
unilateral tinnitus is the only symptom.  My ENT prescribes audiogram
and MRI for all patients presenting with unilateral tinnitus.

Pete C.
francispoon - 28 May 2004 10:22 GMT
> Please ask your ENT to prescribe a head MRI with/without contrast.  An
> acoustic neuroma can present with/without hearing loss.  Sometimes
> unilateral tinnitus is the only symptom.  My ENT prescribes audiogram
> and MRI for all patients presenting with unilateral tinnitus.

If my tinnitus 'predominantly' stayed on one side (ear and inside the
brain) but sometimes travelled to the other side with a much lower
volume, do you think I would be qualified as having unilateral
tinnitus?

Thanks,

FP
=============================

> Pete C.
Marktvalu - 30 May 2004 23:51 GMT
>Patty Walker" asks: >Does Anything Really Help?

              .....................

Yes Patty.

Acceptance, patience, prayers, letting time pass and encouragement all help.

Trying not to adversely react to the noise when you hear it helps.

Some medications help.

And more than anything having a support group to turn to helps.

- jean
Jesper Buch - 11 Jun 2004 14:31 GMT
my sugestion would be to accept that no one really know if the perception of
the sound can be treated and how.

Doctors tell people to "learn to live with it", but not advicing how.  It's
a way for the doctor to say I don't know enough about it to treat you - go
else where.

I have learned that it's not a matter of how many % of the day you are
aware.  A lot of posts here is about awareness but not about tolerance.

first you have to accept that there is no treatment at the moment and stop
spending time, money and energy on a treatment and live your life staying
out of noisy areas.  Spent time on everything else but tinnitus.
Marktvalu - 14 Jun 2004 02:08 GMT
> Spent time on everything else but tinnitus.

          .................................

So much easier said than done during those early years.

- jean
 
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