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Medical Forum / Diseases and Disorders / Tinnitus / April 2004

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tinnnitus support

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Rolando - 13 Apr 2004 19:06 GMT
Since December 16, 2003 I've had a constant ringing in my ears.
Annoying to say the least. I delayed going to bed until I could barely
keep my head up hoping that I would fall asleep quickly. If I lay in
bed for just a few minutes I started to panic.

I later discovered this board and am turning to its contributors with
a few questions

1. Why is there so much cross-posting with a cardiology board? What is
the connection?

2. What do some posters say little or nothing about tinnitus but much
about Jesus? I'm missing how this is helpful.

3. Why is there so much hate and sarcasm?

4. How do some people manage to post literally thousands of Usenet
messages in a year? Why do some people post literally thousands of
Usenet messages in a year?

5. Why, when I was looking for help did I have to wade through so much
that was not pertinent? My ears provide enough unwanted noise that I
often find it difficult to concentrate on reading a book in the quiet
of my living room.

If any of you can help my with any of these questions I'll be quite
appreciative.

Respectfully,
Rolando
Susan - 13 Apr 2004 19:57 GMT
>5. Why, when I was looking for help did I have to wade through so much
>that was not pertinent? My ears provide enough unwanted noise that I
>often find it difficult to concentrate on reading a book in the quiet
>of my living room.

Do you have a tinnitus question, Rolando?

Susan
Libido ? - 14 Apr 2004 01:14 GMT
Do you have a tinnitus question, Rolando?

>Susan

Would you answer to a tinnitus question with the same sarcasm or
coldness ?

>x-no-archive: yes
>
>>5. Why, when I was looking for help did I have to wade through so much
>>that was not pertinent? My ears provide enough unwanted noise that I
>>often find it difficult to concentrate on reading a book in the quiet
>>of my living room.
Susan - 14 Apr 2004 01:20 GMT
>Would you answer to a tinnitus question with the same sarcasm or
>coldness ?

My question and interest was genuine.

Susan
Susan - 14 Apr 2004 01:29 GMT
>My question and interest was genuine.

WERE genuine.

Sheesh.

Susan
PaulS - 14 Apr 2004 04:13 GMT
> x-no-archive: yes
> >My question and interest was genuine.
>
> WERE genuine.

Gee whiz.What could someone with such poor grammar have to offer?

PaulS
Rolando - 15 Apr 2004 05:20 GMT
Thank you for your responses. I found the to be genuine and helpful. I
also see, in my first attempt to post a reply, that it is easy to put
something into a message that wasn't meant to be there.

Also, you've shown me that tinnitus is more than just ringing in the
ears. That's the symptom. My ear doctor, to whom I went because I have
vertigo (BPPV) which predates the tinnitus by many years, shrugged his
shoulders and said there was nothing to be done.

If anyone has suggestions on books to be read, websites to be visited,
specialists to consult with, I'd really appreciate the information.

Thanks for taking the time to respond to my questions.
Stephen Nagler - 15 Apr 2004 05:37 GMT
>If anyone has suggestions on books to be read, websites to be visited,
>specialists to consult with, I'd really appreciate the information.

..............

I think that the best book ever written for the "tinnitus newbie" is
"Tinnitus - Questions and Answers" by Jack Vernon and Barbara
Tabachnick Sanders.  It's readily available at amazon.com

As far as websites go, I'll suggest two - I am sure others will have
their preferences.

www.ata.org - the American Tinnitus Association website

www.tinn.com - my (non-commercial) website

Good luck to you, Rolando.  The solution is out there; you just need
to find the path that is right for you.

smn
terri231@knowsspam.mam - 15 Apr 2004 23:07 GMT
>>If anyone has suggestions on books to be read, websites to be visited,
>>specialists to consult with, I'd really appreciate the information.
[quoted text clipped - 16 lines]
>
>smn

Don't take the bait, Rolando.

Terri

http://pub219.ezboard.com/btinnitusactivismandsupport
PaulS - 16 Apr 2004 02:23 GMT
> Don't take the bait, Rolando.

There's no bait Rolando. Jack Vernon's book is a very good resource and Dr.
Vernon is extraordinarily knowledgeable. He is also very compassionate and
that shows in his writings.

All of the websites you will be given, regardless of the source, will be
helpful because you will find the one or two that meet your needs and
disposition.

Good luck,

PaulS
Rolando - 16 Apr 2004 13:52 GMT
> >>If anyone has suggestions on books to be read, websites to be visited,
> >>specialists to consult with, I'd really appreciate the information.
[quoted text clipped - 9 lines]
>
> Terri

What bait, Terri? I Was looking at that very book in Borders last
week. Didn't buy it because I didn't have the time at the time. Uh,
could it have anything to do with Dr. Nagler referring me to Dr.
Nagler's website?
Stephen Nagler - 16 Apr 2004 14:31 GMT
>I Was looking at that very book in Borders last
>week.

...........

I really do think it's terrific, Rolando - and I've read 'em all.  In
fact, I feel that one reviewer's insightful comments that appear on
its back cover sum it up quite nicely:

"In 'Tinnitus: Questions and Answers' Vernon and Sanders join forces
to produce a book that is extraordinarily broad in scope and
meticulous in depth, yet so lovingly composed that it makes for an
'easy read.'  This volume is a must for those affected by tinnitus -
patients, family, and friends - as well as for hearing healthcare
professionals ... whose jobs have just become that much easier."

Incidentally, there's another wonderful book I'd like to recommend.
It was written by Jane Henry (who tragically died from breat cancer at
the age of 42 last year) and Peter Henry, two psychologists from
Australia.  The title is "Tinnitus - A Self-Management Guide for the
Ringing in Your Ears."  I think that the two books complement each
other very nicely.

Here's to silent days ahead for all.

smn
francispoon - 16 Apr 2004 04:33 GMT
> Thank you for your responses. I found the to be genuine and helpful. I
> also see, in my first attempt to post a reply, that it is easy to put
[quoted text clipped - 7 lines]
> If anyone has suggestions on books to be read, websites to be visited,
> specialists to consult with, I'd really appreciate the information.

Yes, ringing in the ear is just a symptom of something else.  I went
through many many ENT doctors and GPs before reaching the department
of neurology for help.  You may want to try that.  If i were you, i
would forget about books or websites but get a doc with whom you could
work.  The last course you should resort to is suffering in silence.
Habituation is fine for some people but for others it means suffering
in silence, as their Ts might be related to causes that could not been
overcome by habituation or meditation or relaxation or biofeedback or
sound masking.  Theirs need _medical_ solutions.

FP
===================

> Thanks for taking the time to respond to my questions.
Elly Byrne - 14 Apr 2004 21:03 GMT
http://eebee.net/TinnitusIsaPainintheNeck.shtml

Tinnitus is a pain in the neck
Elly's Tinnitus Resources
http://eebee.net/
http://meniere.eebee.net/

For email: elly at eebee.cjb.net
Marktvalu - 13 Apr 2004 20:48 GMT
>From: tebusco@aol.com  (Rolando)
asks:

              ...............

Welcome Rolando!

Your 5 questions are valid. No one should have to wade through the nonsense
that's been distributed on this board lately.

If its any consolation it wasn't always like this.

- jean
PaulS - 13 Apr 2004 21:22 GMT
Rolando,

The first 4 questions indicate that the composition of this board is like
society itself. Good news is that there is good advice and help here and, if
tinnitus is a real annoyance then its worth wading through the flotsam.

So, ask away. You questions will receive very serious consideration.

PaulS
Peter Larsen - 13 Apr 2004 22:55 GMT
> I later discovered this board

A board is by definition a one computer system thing, this is a usenet
newsgroup and it is by definition a global thing.

> 1. Why is there so much cross-posting with a cardiology board?
> What is the connection?

Bad usenet manners. Crossposting can be relevant initially in a thread,
but it is good usenet manners to a) make it obvious that the thread is
cross-posted, b) include a followup-to: header pointing to the newsgroup
a thread is most valid in, and c) in case most of a thread remains valid
in all newsgroups posted to, then at the very least remove newsgroups
that are not relevant for whatever a pro pos that may come up.

There is also the very valid connection that regulating an elevated
bloodpressure may alleviate tinnitus somewhat, apparently because at
least one drug seems to do what gingko biloba does, but more
efficiently.

> 2. What do some posters say little or nothing about tinnitus
> but much about Jesus? I'm missing how this is helpful.

Religion helps people avoid suicide, tinnitus is a known suicide risk
increaser, just disregard religious comments if they are not to your
liking.

> 3. Why is there so much hate and sarcasm?

Because the world is like that. Don't inject more, contribute in a
positive way and the ratio positive to negative will be better.

> 4. How do some people manage to post literally thousands
> of Usenet messages in a year?

10-finger typing.

> Why do some people post literally thousands of
> Usenet messages in a year?

Because it is an ongoing communication, not really writing, not really
talking, but more like talking than like writing.

> 5. Why, when I was looking for help did I have to wade
> through so much that was not pertinent?

The world is not perfect.

> My ears provide enough unwanted noise that I often find
> it difficult to concentrate on reading a book in the quiet
> of my living room.

Don't suppress your tinnitus, the more you try the more annoying it will
get. Welcome it, and listen actively to it, and it will get less
annoying.

> If any of you can help my with any of these questions
> I'll be quite appreciative.

Tinnitus is a symptom that occurs in the recovery phase, it may be
irrecoverable damage, or very slowly recoverable damage, give your
hearing credit for at least trying.

> Respectfully,

Indeed, thank you for asking those very good questions, bear with me for
being terse, provocation is not intended.

> Rolando

  Kind regards

  Peter Larsen

Signature

    *******************************************
    * My site is at: http://www.muyiovatki.dk *
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William Nunn - 14 Apr 2004 00:08 GMT
well Rolando, the past cannot be changed, the future not yet determined, but
at the present I can offer tinnitus support to you. Life with the condition
will become more pleasant and beguiling as time moves on. You can live with
this, and be happy again.
Stephen Nagler - 14 Apr 2004 04:27 GMT
>well Rolando, the past cannot be changed, the future not yet determined, but
>at the present I can offer tinnitus support to you. Life with the condition
>will become more pleasant and beguiling as time moves on. You can live with
>this, and be happy again.

...............

William, your post is like beautiful music to me.

I well remember meeting you in London - hard to believe it's the same
fellow!

I am so very pleased for you - and for your taking the time to share
your sincere words of wisdom quoted above.

smn
terri231@knowsspam.mam - 14 Apr 2004 22:18 GMT
>>well Rolando, the past cannot be changed, the future not yet determined, but
>>at the present I can offer tinnitus support to you. Life with the condition
[quoted text clipped - 12 lines]
>
>smn

Remember when you said this to William about that same visit?

>>Hmm, I had a nice evening that time, as it turns out. Also he patently told
>>me I could come and talk with him at the hotel. I sense sour grapes Kelly.
>>This was before I observed and decided for myself.

>..............

>When I "patently" told you a few weeks before my trip to the UK that
>you could come and talk to me at the hotel, I sort of expected you'd
>call first instead of just showing up one day.

>Bad assumption, I guess.

>And I'm glad you had a nice evening.  I tried my very best to be
>gracious under the rather bizarre circumstances of your unannounced
>visit.

>smn

And then you were reminded how you provided (inaccurate) medical
information about William on this newsgroup as a result of that
meeting after you crowed about how "supportive" you were.

Have you had your long term memory evaluated lately, Stephen?  I
understand that some medications used to treat psychiatric disorders
often shrink the hypothalamus and lead to memory loss.  Not sure if
this applies to you, but I know that you either have a bad memory or a
very selective one.

Terri

http://pub219.ezboard.com/btinnitusactivismandsupport
 
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