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Medical Forum / Diseases and Disorders / Tinnitus / July 2004

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labrynthitis / vestibular neuronitis ???

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ChuckMSRD - 21 Mar 2004 22:33 GMT
I have a question, preferably for a physician who may visit this group (or
anyone who may have experience). I suffer from mainly nausea with some ear
pressure and forehead pain. This is the 3rd time in about 4 years I have had
this problem. First time lasted about a year, 2nd time a month - now im going
on a month again. I saw an ENT the first time and he disappointed me with
saying I should get a GI workup. I told him *even I* know vestibular
abnormalities can cause nausea that it is not GI. I dont know if it is viral,
bacterial, allergies, MS, tumor..... either way im getting tired of feeling
like this. Low grade chronic nausea is a horrible feeling. Perhaps I get some
slight relief with antivert, nasal steroidals and saline sprays but certainly
nothing major. Seems to get better as the day progresses. What should I do and
what discipline is best to get advice from? ENT, Neurologists...? Thank you for
any insights and advice

Chuck
ChuckMSRD@aol.com
Jim Chinnis - 22 Mar 2004 02:56 GMT
chuckmsrd@aol.com (ChuckMSRD) wrote in part:

>I have a question, preferably for a physician who may visit this group (or
>anyone who may have experience). I suffer from mainly nausea with some ear
[quoted text clipped - 12 lines]
>Chuck
>ChuckMSRD@aol.com

You should find an otologist (ENT who specialized in the ears) and who mainly
works with vestibular patients. Such specialists are not easy to find but do
exist. I assume you have had a workup by a family doctor or internist.

If you can't get a diagnosis that makes sense) from an otologist, you might
want to see a neurologist and maybe an infectious disease specialist.

It can take persistence to get to the bottom of a vestibular disorder.
Signature

Jim Chinnis / Warrenton, Virginia, USA
Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG

Elly Byrne - 22 Mar 2004 20:42 GMT
You might like to read the following page:
http://meniere.eebee.net/vertigo.html

Tinnitus is a pain in the neck
Elly's Tinnitus Resources
http://eebee.net/
http://meniere.eebee.net/

For email: elly at eebee.cjb.net

>I have a question, preferably for a physician who may visit this group (or
>anyone who may have experience). I suffer from mainly nausea with some ear
[quoted text clipped - 12 lines]
>Chuck
>ChuckMSRD@aol.com
KrisK - 10 Jul 2004 07:33 GMT
Chuck:
 I certainly have no answers for you but wanted to tell you I can
sympathize.
 I have not been officially diagnosed but have read everything I can get
my hands on and have been going thru testing and figure that's what I
have. 25 years ago I woke one day dizzy and it lasted for years. I had
scans, spinal taps and other various testing and the only diagnosis they
could come up with was labrynthitis, go home and someday you'll feel
better. One day it left as quickly as it came. Here we are 25 years later,
I had the stomach flu and a week later was sick with something else. I
have seen 2 ENTs, have had a recent balance study and a brain scan. I have
taken antibiotics of all sorts for the last 10 weeks, nasal sprays,
allergy medicines, antihistamines and prednisone. I felt better when I
took the prednisone but after the dosing ended (12 days) my symptoms
returned and have grown each day. I still take antibiotics, nasal sprays
and antihistamines. I do have sinus problems and that's probably part of
what is going on but certaining not the full story. I have neck and
shoulder pain which I have not read about as being part of any of the
labrynthitis symptoms so I was reading posts to see if anyone mentions it.
I have another appointment next Friday with a very good ENT and have MRIs
and a copy of the balances studies to take with me. I'm wondering what
testing you have had done. You mention MS, tumors, bacterial and viral
concerns. You need a MRI to diagnose MS. Lesions will show. If it was
bacterial you'd respond to antibiotic therapy and probably have developed
other symptoms by now. The MRI or a CT scan would diagnose a tumor and as
I understand it, the only way to diagnose viral labrynthitis is to rule
everything else out and take a history to see if you'd recently had
another viral infection or even a family member. There is no treatment for
viral labrynthitis except to stay active. Being still and laying down
makes it worse and delays recovery, that's probably why you feel better as
the day goes on, you've been up and active. The good news is if it's viral
you will more than likely recover completely. Sometimes people can have a
problem with the small vessels that are in the inner ear. Do you have high
blood pressure? Sometimes there can be a clot or some blockage that makes
our symptoms. That's the next thing I'm going to look into and adddress on
my next visit. If I get any good answers I'll repost. Hope you are doing
better.
KrisK
Elly Byrne - 11 Jul 2004 04:54 GMT
>I have neck and
>shoulder pain which I have not read about as being part of any of the
>labrynthitis symptoms so I was reading posts to see if anyone mentions it.

You have not read about it? I thought I never stopped talking about
it.
http://eebee.net/TinnitusIsaPainintheNeck.shtml

Have a look at this site and email Assar.
http://www.yts.se/english/index.htm

Tinnitus is a pain in the neck
Elly's Tinnitus Resources
http://eebee.net/

For email: elly at eebee.cjb.net

>Chuck:
>  I certainly have no answers for you but wanted to tell you I can
[quoted text clipped - 34 lines]
>better.
>KrisK
Jim Chinnis - 11 Jul 2004 22:52 GMT
"KrisK" <krisk32816@nospam.aol.com> wrote in part:

>I have neck and
>shoulder pain which I have not read about as being part of any of the
>labrynthitis symptoms so I was reading posts to see if anyone mentions it.

Neck and shoulder/upper back pain and headache often is associated with
vestibular disorders due to the constant working of muscles in response to
vestibular signals. The head is heavy and false signals (even subclinical
ones) about its motion can cause a lot of adjusting of head position to take
place--even though you might be unaware of it.
Signature

Jim Chinnis / Warrenton, Virginia, USA
Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG

snap_crackle_pop - 11 Jul 2004 23:47 GMT
> "KrisK" <krisk32816@nospam.aol.com> wrote in part:
>
[quoted text clipped - 7 lines]
> ones) about its motion can cause a lot of adjusting of head position to take
> place--even though you might be unaware of it.

We weren't meant to sit at desks and bend over our work.  Posture has a
lot to do with how you feel.  Ellie?

I believe any compromise of the nerves of the head, neck, and face,
complicate matters, too, such as Bell's Palsy.  Loss of enervation to
muscles leads to imbalance and struggle to compensate, leading to
fatigue, stress, anxiety, and pain.

My favorite theory of tinnitus is that of an over-stretched spring.
Think of the mechanism as a spring, the louder the sound we hear, the
more the spring is stretched.  As with all springs, they can be
over-stretched, and can never return to their original shape.  When we
hear sounds so loud that the mechanism's spring is stretched too far, it
never returns to zero state, or silence.  The over-stretched string
remains in an on-position, and we hear exactly that.  The switch is
ruined.  And, I think mostly tinnitus is caused by loud noise, when no
physical, medical, or other direct cause can be determined.

Good t-day today.  Haven't heard it at all.  There is hope in habituation.

Is there anyone on this board who has suffered tinnitus for many years
who has NOT habituated?  Just curious.  I've been aware of my tinnitus
for over 40 years, and in perceived loudness it has gotten progressively
louder year after year, but I've been habituated to it for decades.
Susan - 12 Jul 2004 02:21 GMT
>I believe any compromise of the nerves of the head, neck, and face,
>complicate matters, too, such as Bell's Palsy.

Yes, as a matter of fact, my T is caused by the same infection that is a
frequent cause of Bell's Palsy, maybe the most frequent cause; tick borne
disease.

High dose antibiotic therapy initially made my T unbearably loud as the
pathogen died off and released endotoxins, then it quieted down again to a
hiss.

Susan
Elly Byrne - 12 Jul 2004 04:37 GMT
>We weren't meant to sit at desks and bend over our work.  Posture has a
>lot to do with how you feel.  Ellie?

Absolutely. It certainly messes up the muscular system.

Posture has a lot to do with it. But also tension in the muscles which
is mever undeon. Why? Because we may not necessarily feel the tension
which is most certainly there.

And doctors never consider this. They don't even look at it.
So it is no wonder that people end up in the alternative medicine
field. There are more answers there.

So for Tinnitus.
Watch your posture.
Undo the tension in the neck and shoulder muscles.
What caused the tension - phone - computers - you are the best person
to discover that.

Tinnitus is a pain in the neck
Elly's Tinnitus Resources
http://eebee.net/

For email: elly at eebee.cjb.net
 
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