Hi all,

My wife was just diagnosed with a Glomus Jugulare Tumor and I am not sure if
this is the right spot to ask the question.

We have searched far and wide on the internet and found many definitions and
even found a little (VERY LITTLE) information in the newsgroups areas.

We live on Long Island and of course very few doctors have even heard of this
tumor.  Thank god there are docs in Manhattan that deal with this.  We
currently have an appointment with Dr. Linstrom (sp?) scheduled at NY Eye and
Ear.  I also saw there is a group at NYU that deals with Glomus
Tumors--obviously both are very reputable.

Does anybody have a recommendation on any of these doctors or current treatment
preferences (we have seen everything from surgery to radiosurgery) but we won't
know much until we speak with a doctor that has actually dealt with this type
of tumors.

As always with a tumor we are scared, but glad to hear they are generally
benign, however, we are noticing there could be side effects to the surgery or
leaving the tumor (of course too much information is concerning us at this
point and we have not even had the appointment yet.)

We would love to hear from somebody who has been through this and can give us
some guidance.

Thanks in advance.

Jon