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Medical Forum / Diseases and Disorders / Tinnitus / December 2003Follow up report after seeing ENO specialist
Firstly Merry Christmas to all fellow sufferers and their families. I came to this NG about 3 weeks ago following the start of ringing in my ears after a rock concert. One of you kindly asked me to report back after I had seen a specialist. The ENO specialist didn't help much. He just told me that my normal hearing was not affected after I did the hearing-test (which I more or less knew anyway), and that my inner ear was damaged and consequently could hear a high-pitched ringing tone 24/7. After I prompted him, he said it might just suddenly dissappear, or stay with me forever, but will most likely very slowly disappear into the background as the years go by!! Apart from that he said very little, except that he wanted me back in 6 weeks for another hearing test. I'm not too sure that I see the point in that. He gave me no tips about lowering stress levels, diet, or listening to white-noise, all thing which I have picked up from this NG. Maybe I should try and find a real "tinnitus" specialist if there is such a thing here in Holland. Just for the record, the ringing has stayed there for about 5 weeks now since the concert. I would say that the pitch is more or less constant and extremely annoying. The initial anxiety has died down, and I have noticed that when I am feeling down in general, the tinnitus is more noticeable, but on days in which I am in good spirits I can go hours without thinking about it. I get the impression that thinking about the T is worse than T itself, if you know what I mean.!!! A couple of times when I was really down and fealing sorry for myself I resorted to standing in the bathroom for 10 minutes, running the shower to counteract the noise in my head. I have every sympathy for you all in this NG, as you most of you are long-term sufferers. Just think I've only gone 5 weeks so far!!! Is it worse in the beginning ?? I look forward to your reactions. Best wishes, Simon, Rijswijk, The Netherlands. Hi again. I meant ENT, of course, (Ear Nose & Throat). I mixed it up with the DUTCH (KNO = keel, neus & oor). Silly me! Simon. > Firstly Merry Christmas to all fellow sufferers and their families. > [quoted text clipped - 32 lines] > Simon, > Rijswijk, The Netherlands. > Hi again. I meant ENT, of course, (Ear Nose & Throat). I mixed it up with > the DUTCH (KNO = keel, neus & oor). Silly me! [quoted text clipped - 27 lines] > > extremely annoying. The initial anxiety has died down, and I have noticed > > that when I am feeling down in general, the tinnitus is more noticeable, When you have good sleep, the ringing could be reduced to a very tolerable level. FP ============================= but > > on days in which I am in good spirits I can go hours without thinking > about [quoted text clipped - 12 lines] > > Simon, > > Rijswijk, The Netherlands. >I have every sympathy for you all in this NG, as you most of you are >long-term sufferers. Just think I've only gone 5 weeks so far!!! Is it >worse in the beginning ?? It's much worse in the beginning, when it's so difficult not to focus on it. Over time, most folks kind of forget it's there unless they listen for it. Susan > Firstly Merry Christmas to all fellow sufferers and their families. Hi Simon - and to you too ! > The ENO specialist didn't help much. He just told me that my normal hearing > was not affected after I did the hearing-test (which I more or less knew > anyway), and that my inner ear was damaged and consequently could hear a > high-pitched ringing tone 24/7. After I prompted him, he said it might just > suddenly dissappear, or stay with me forever, but will most likely very > slowly disappear into the background as the years go by!! Ah yes - 'habituation'. > Just for the record, the ringing has stayed there for about 5 weeks now > since the concert. I would say that the pitch is more or less constant and [quoted text clipped - 3 lines] > it. I get the impression that thinking about the T is worse than T itself, > if you know what I mean.!!! This is very true. When you're not aware of it it's as good as it's not there at all. I call this 'virtual silence'. During these periods you discover your life goes on, just as it always did. :o) > I have every sympathy for you all in this NG, as you most of you are > long-term sufferers. Just think I've only gone 5 weeks so far!!! Is it > worse in the beginning ?? I've had mine for 8 months now. In the beginning it was a complete misery and fluctuated widely but now it has settled down. It's still highly annoying when I'm in bed at night or if I'm feeling low during the day. I have tried Ginkgo Biloba but with inconclusive results. The only thing I find which really _does_ work is to wear earphones connected to a little amplifier which has been modified to emphasise the high (tinnitus) frequencies, and thus replace the T with information-bearing sound. This makes the T virtually inaudible. > I look forward to your reactions. > Best wishes, All the best to you and yours for Christmas and the New Year ! Steve O Listen to the tinnitus. Analyse it and try your hardest to concentrate on making it worse/louder. You will tire of this and shut it out. Sort of a homeopathic style remedy. This works for many people. > Firstly Merry Christmas to all fellow sufferers and their families. > [quoted text clipped - 32 lines] > Simon, > Rijswijk, The Netherlands. I'm new here too. Sorry to hear about your tinnitus. I too have got it. I played a gig earlier this month, and that's all it took. I've played for many years in bands, in bars and at pretty loud levels. I usually experienced some tinnitus, but it would be pretty much gone the next day. So earlier this month, I played a bar that I have played at for years. I don't play as loud as I used too when I was younger, and I didn't that night. But after the gig, my ears were screaming. It hasn't went away. This was three weeks ago. It seemed to get even worse with the cold I just got over. It's very similar to how Ear Rings described his sypmtoms. I'm going to see a doctor tomorrow. I'm not optimistic about it though. Some things I've noticed with my case is, when I open my mouth wider or stick my tounge out, raise my eyebrows or use any muscles in my head, the SOUND gets louder. I had a few drinks last night. Well it was quite a few. I had a good buzz but no loud music or anything to aggravate it {or so I thought}. The SOUND was much more intense. Does it alcohol affect it for you guys? As I said earlier, I have had bad tinnitus before but it was temporary. This time, I don't think so. It is an awful way to live. I can see how some might think extreme, insane things if you concentrate on it. There have been a few times I had to listen to see if it's still there. It is of course, but at least I know I will have to concentrate on not concentrating on it- that may be all I have. > Listen to the tinnitus. Analyse it and try your hardest to concentrate on > making it worse/louder. You will tire of this and shut it out. Sort of a [quoted text clipped - 45 lines] > > Simon, > > Rijswijk, The Netherlands. You are going through what i went through in the beginning. Currently, or at least today, the ringing has come down to a rather tolerable level. The following is what I have been using. I added one by one to the combination in order to find out the cause and effect relationship to my tinnitus of each item added. (1)10 mg of FLUNARIZINE HYDROCHLORIDE. This helps blood circulation in the head. I take it in the morning with my ACE inhibitor but you had better check with your doctor if you had high blood pressure. (2)100 mg of vitamin B1, 50mg each, taken twice a day. But I will slow it down after a few more days of concentrated bombardment to say 60 per day. (3)Herb tea daily but this may be too vague for doctors trained in western medical discipline to understand. The purpose of the herbs is to invigorate your kidney. It does NOT hurt for any man to nourish his kidney even though he does not have tinnitus. As a matter of fact, nourishing the kidney is the foremost step in the nourishing process of the whole body, according to my doctor who was trained in both western and herb medicine. But you have to go to doctors who know what they are doing. (4)2 bodily massages daily, one at 4pm and one at 8pm. The purpose is to break the anxiety cycle. (5)ATIVA as a sleeping pill. 0.5 mg of Ativa helps for only a few hours in a day but when it is supplemented by 3 tablets of herbs, the latter make the sleep longer and sweater. GOOD SLEEP IS ESSENTIAL TO LOWERING THE RINGING! (6)Habituation: assume everyone in the world were born with tinnitus! And therefore you are 'normal'. Go out and do what other 'normal' men do. Hope this could help a bit. FP > Firstly Merry Christmas to all fellow sufferers and their families. > [quoted text clipped - 32 lines] > Simon, > Rijswijk, The Netherlands. I quite agree. Gives the ENT somethign to play with. Gives you the idea that he is doing something. But it will achieve nothing. I went to an ENT in the early days and simply refused to have a hearing test. I considered my hearing perfectly OK. Tinnitus is a pain in the neck Elly's Tinnitus Resources http://www.eebee.net/ http://www.tinnitusrelief.net/ For email: elly at eebee.cjb.net >except that he wanted me back in 6 weeks for another >hearing test. I'm not too sure that I see the point in that. I, like many others, did not really undestand the difference between an ENT and an otologist until I earned my degree as an audiologist and focused on tinnitus some years ago. Otologists are hard to find. I am not sure how many there are in the world, but not too many. They are really the ones that should direct the medical exam of the person who has tinnitus, as they specialize in just the ear.............. ENTs are well educated, too, but must also care for all sorts of other body parts, like tonsils. And noses. And necks.......... I encourage people to visit otologists as they are able........ MJ |
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