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Medical Forum / Diseases and Disorders / Tinnitus / October 2003

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Concerning the ATA

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John Pellegrino - 06 Oct 2003 13:49 GMT
I've been reading "Tinnitus Today" for many years. Every now and then they
publish pictures of people doing research in the field of tinnitus. Every
year I see promises of new development and getting closer to a cure for
tinnitus. Every year I have become more disappointed. It's gotten to the
point where I feel this whole scenario of a cure is just one big falsehood.

What real progress has been made? Is there even a sign that a cure is in
sight?

JP
John Reinders - 06 Oct 2003 15:23 GMT
I think your right about the makers of any pills (the drug companies). They
hould information for themselves, which could be very helpful for very many
sufferers. They choose the right moment to come with a new drug in such a
way that it gives them the biggest profits!

John

> I've been reading "Tinnitus Today" for many years. Every now and then they
> publish pictures of people doing research in the field of tinnitus. Every
[quoted text clipped - 6 lines]
>
> JP
William Nunn - 06 Oct 2003 19:03 GMT
> I think your right about the makers of any pills (the drug companies). They
> hould information for themselves, which could be very helpful for very many
[quoted text clipped - 14 lines]
> >
> > JP

John P, I feel you are right it is one big falsification. f.ck the big
words, one big lie. You see John everyone even you and me are in Samsara.
Samsara is hell here on earth. Hell is not this abstract place with fire.
You must find your way out of the hell, and make peace with yourself. You
must make ample friends. The ATA or anyone else are not the answer, since
they are motivated by obscurations. Martin, a valued poster imo in here
regularly, summed up the tinnitus world today in four sentences. Ask him to
do it again.
William Nunn - 06 Oct 2003 19:09 GMT
> I think your right about the makers of any pills (the drug companies). They
> hould information for themselves, which could be very helpful for very many
[quoted text clipped - 14 lines]
> >
> > JP

John if you would like some advice on living sucessfully with tinnitus, I'm
happy to help you from my limited knowledge.
John Pellegrino - 06 Oct 2003 20:34 GMT
>> I think your right about the makers of any pills (the drug companies).
> They
[quoted text clipped - 21 lines]
> John if you would like some advice on living sucessfully with tinnitus, I'm
> happy to help you from my limited knowledge.

Oh? Have you made a lot of money because of your tinnitus? :)

I can live with it because I don't have a choice. Well, I do have a choice
but the alternative is not pleasant.

What angers me is reading all that stuff about research every single year
and all these guys with promising theories and no real progress is made.
And they keep asking for money, Why don't they start a telethon on TV with
people like Tony Randall and William Shatner hosting and maybe in 100 years
they'll find a cure.
Signature

JP

Martin - 08 Oct 2003 01:44 GMT
>What angers me is reading all that stuff about research every single year
>and all these guys with promising theories and no real progress is made.

I recall reading something that Nagler said where he was going to have
very good news shortly. I thought he was talking about the world of
research but it might have been about his clinic closing.

Martin Aquinas
BruceMeyerz - 06 Oct 2003 21:49 GMT
> I've been reading "Tinnitus Today" for many years. Every now and then they
> publish pictures of people doing research in the field of tinnitus. Every
[quoted text clipped - 6 lines]
>  
> JP

Hi JP, are you familiar with the concept of "habituation"?

Bruce
BruceMeyerz - 06 Oct 2003 21:49 GMT
> I've been reading "Tinnitus Today" for many years. Every now and then they
> publish pictures of people doing research in the field of tinnitus. Every
[quoted text clipped - 6 lines]
>  
> JP

Hi JP, are you familiar with the concept of "habituation"?

Bruce
John Pellegrino - 07 Oct 2003 00:13 GMT
>> I've been reading "Tinnitus Today" for many years. Every now and then they
>> publish pictures of people doing research in the field of tinnitus. Every
[quoted text clipped - 10 lines]
>
> Bruce

Yes, my sister is a nun.  :-))

Seriously, I am familar with the method you speak about.

Signature

JP

Susan - 07 Oct 2003 00:36 GMT
>Yes, my sister is a nun.  :-))

LOL!!

Welcome!  So nice to meet a new wit on ast that's not a mere half.  :-)

Susan
John Pellegrino - 07 Oct 2003 01:17 GMT
> x-no-archive: yes
>
[quoted text clipped - 5 lines]
>
> Susan

Thank you, Susan.

I was, and still am, kind of in a fog as to what is going on here with all
the cursing and anger at Dr. Nagler. Anyway, nice to meet you. And I hope
we can all smile once in a while and relieve the heavy atmosphere I've seen
here recently.

JP
Susan - 07 Oct 2003 13:10 GMT
>Thank you, Susan.
>
>I was, and still am, kind of in a fog as to what is going on here with all
>the cursing and anger at Dr. Nagler. Anyway, nice to meet you. And I hope
>we can all smile once in a while and relieve the heavy atmosphere I've seen
>here recently.

The cursing and anger aren't worth investing any time in understanding.  Just
filter out those folks who don't seem positive and helpful, and this group can
still be a good resource.

There're a few wonderfully warm and witty folks who participate here, too, and
now you're one of them .  :-)

Susan
John Pellegrino - 07 Oct 2003 00:22 GMT
>> I've been reading "Tinnitus Today" for many years. Every now and then they
>> publish pictures of people doing research in the field of tinnitus. Every
[quoted text clipped - 10 lines]
>
> Bruce

Yes, my sister is a nun.  :-))

Seriously, I am familar with the method you speak about.

Signature

JP

BruceMeyerz - 07 Oct 2003 01:47 GMT
On 6 Oct 2003 13:49:14 -0700, BruceMeyerz wrote:

>>> What real progress has been made? Is there even a sign that a cure
is in
>>> sight?
>>  
[quoted text clipped - 3 lines]
>
>> Bruce

>Yes, my sister is a nun.  :-))

>Seriously, I am familar with the method you speak about.

LOL!! The penguin look, eh?
You may closer to a cure than you think. Follow the very looonnng
(sorry Susan)
Google link below to find out why.

Bruce
: ))

http://groups.google.com/groups?hl=en&lr=&ie=UTF-8&oe=ISO-8859-1&threadm=4f6396c
6.0209261139.7511c10a%40posting.google.com&rnum=1&prev=/groups%3Fq%3Dpenguin%2Bg
roup:alt.support.tinnitus%26hl%3Den%26lr%3D%26ie%3DUTF-8%26oe%3DISO-8859-1%26gro
up%3Dalt.support.tinnitus%26selm%3D4f6396c6.0209261139.7511c10a%2540posting.goog
le.com%26rnum%3D1

John Pellegrino - 07 Oct 2003 01:56 GMT
> On 6 Oct 2003 13:49:14 -0700, BruceMeyerz wrote:
>
[quoted text clipped - 21 lines]
>
> http://groups.google.com/groups?hl=en&lr=&ie=UTF-8&oe=ISO-8859-1&threadm=4f6396c
6.0209261139.7511c10a%40posting.google.com&rnum=1&prev=/groups%3Fq%3Dpenguin%2Bg
roup:alt.support.tinnitus%26hl%3Den%26lr%3D%26ie%3DUTF-8%26oe%3DISO-8859-1%26gro
up%3Dalt.support.tinnitus%26selm%3D4f6396c6.0209261139.7511c10a%2540posting.goog
le.com%26rnum%3D1

Yes, laughter is the best medicine. However, sometimes laughter can get you
into trouble. My friend has tinnitus and it got so bad he would walk around
laughing to himself, talking to himself, and eventually they put him away.
Haven't seen the guy in years. Last I heard was he was still laughing in
that padded cell. :)

John Pellegrino
Susan - 07 Oct 2003 13:10 GMT
>Follow the very looonnng
>(sorry Susan)
>Google link below to find out why.

makeashorterlinkmakeashorterlinkmakeashorterlinkmakeashortelinkmakeashorte
rlink...

This subliminal messge brought to you by...

Susan
BruceMeyerz - 07 Oct 2003 02:11 GMT
From: John Pellegrino <nothanks@nospam.net>  
Newsgroups: alt.support.tinnitus  

>Yes, laughter is the best medicine. However, sometimes laughter can get you
>into trouble. My friend has tinnitus and it got so bad he would walk around
>laughing to himself, talking to himself, and eventually they put him away.
>Haven't seen the guy in years. Last I heard was he was still laughing in
>that padded cell. :)

>John Pellegrino

Now wait a minute... I think when you hear ringing and
you end up talking to someone on the other end....
...it's called a "telephone" and not tin-night-is
: )

Bruce
Oregon7 - 07 Oct 2003 12:17 GMT
Going back to the original thread....or to the original thread of the 'cloth',
to keep in this theme.............it is sad but true that pharmaceutical
companies cannot spend resources on meds that affect only a couple million
people.  That is true.

They can do all the research on medications to interrupt the flow of tinnitus
but they cannot bring products to a market that seems hidden, I guess.

Same goes for surgical procedures.  There was some real promise with deep brain
implants some time ago that were being used for Parkinson's but also affected
tinnitus in about half the subjects.

Then there is the use of 'cocktail' combinations of medications that can be
very helpful for patients who simply cannot benefit from habituation or masking
therapies.  I support these explorations with my patients, as they figure out
sometimes rather slowly, what works. One recent fellow discovered that only a
quarter of a dose of one med and a half dose of another  literally made the
tinn disappear. That worked for him!  And I said, good!

It seems like the research goes in waves: first external methods, i.e., sound
therapies, then internal methods, i.e. chemicals.  If there are really about
ten types of tinnitus, then maybe we need ten types of specific therapies to
meet the needs of everyone.

MJ
John Pellegrino - 07 Oct 2003 14:59 GMT
> Going back to the original thread....or to the original thread of the 'cloth',
> to keep in this theme.............it is sad but true that pharmaceutical
[quoted text clipped - 21 lines]
>
> MJ

All my ENT does for me is remove ear wax. I have not been offered any type
of therapeutic medication. The only 'therapy' I receive is the assurance
from my ENT that no cure will be found in our lifetime.

Cocktail? Does that mean you get them so drunk they don't hear anything but
the impact of their body hitting the floor? :)

JP
Martin - 08 Oct 2003 01:46 GMT
>I have not been offered any type
>of therapeutic medication. The only 'therapy' I receive is the assurance
>from my ENT that no cure will be found in our lifetime.

And he is correct. But Nagler put that type of talk down in the
extreme and advertized his now defunct tinnitus clinic as "TWO DAYS IN
ATLANTA...A LIFETIME of relief."

Now, that should answer why he has made himself some enemies around
these here parts.

Martin Aquinas
Paul - 07 Oct 2003 15:09 GMT
> Going back to the original thread....or to the original thread of the 'cloth',
> to keep in this theme.............it is sad but true that pharmaceutical
[quoted text clipped - 14 lines]
> quarter of a dose of one med and a half dose of another  literally made the
> tinn disappear. That worked for him!  And I said, good!

  News of the elimination of tinnitus symptoms is rare
  enough in these parts that I'm sure many of us would
  like some specifics here  :-)

Paul



> It seems like the research goes in waves: first external methods, i.e., sound
> therapies, then internal methods, i.e. chemicals.  If there are really about
> ten types of tinnitus, then maybe we need ten types of specific therapies to
> meet the needs of everyone.
>
> MJ
John Pellegrino - 07 Oct 2003 14:50 GMT
> From: John Pellegrino <nothanks@nospam.net>  
> Newsgroups: alt.support.tinnitus  
[quoted text clipped - 13 lines]
>
> Bruce

I've heard ringing (called telephone), buzzing (called doorbell), roaring
(called ocean), broken pitch (called crickets), steady high frequency tone
(called TV test signal), and even voices when no one is talking. It's that
last one that has me concerned. :)

JP
PaulS - 07 Oct 2003 22:21 GMT
> >and even voices when no one is talking. It's that
> last one that has me concerned. :)
>
> JP

No problem JP. Quite a few participants hear voices <bg>

PaulS
 
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