Hello all. I just discovered this newsgroup.
I am starting to have worsening problems with my tinnitus. Four years
ago I had an acoustic neuroma removed on the left side, which left that
side completely deaf. SInce then, but mostly recently, the tinnitus has
been getting worse and worse on that side, and am now developing it on
the other side. The worst thing about the left side is that it is ALL
THAT I CAN HEAR on the left. It's not covered up by ambient noises.
Even on the right side, with noises from driving the car down the
turnpike at 80 MPH, those ambient sounds are not enough to cover the
tinnitus on the 'good' side.
Recently went to the neurologist that performed the AN removal who did
an MRI to check for a recurring or developing tumor, which it is NOT
(so that's good news). I told him about the increasing tinnitus on the
left and newly developing tinnitus on the right. He sent me to the ENT
(who teamed with the neurologist in the brain surgery). He too said the
MRI looked 'acceptionally well' ... (don't mean to ramble, sorry) ...
so ...
They did a couple of hearing tests, and I was told "You have
considerable hearing loss in the good ear. Much more than I prefer to
see in a man of 49..." and are now talking about doing a 'BAHA
implant'. Looks like an interesting procedure but I am going to have to
think about it.
He tried to explain what tinnitus is, however offered no explanation as
to where it is coming from or why it is increasing and developing on
the other side.
[Side story - he kind of shrugged his shoulders as he equated tinnitus
to 'phantom pains', thinking I migh understand that analogy as I also
had a leg amputated in 2001 due to a cancerous tumor. THat was the
response I would usually get from doctors when I asked about phantom
pains after that surgery - a shrugging of the shoulders and "we really
don't know how to treat phantom pains effectively"]
I will be going to a local doctor for a physical (last physical was
fine), but in the mean time, the ENT suggested melatonin. From what I
am reading, that seems to be the thing to try if/when I am having
trouble sleeping - which I am not. My problem is that it is getting
very distracting and beginning to effect both my personal and
professional life. The ENT also said that "if the tinnitus gets bad
enough, what we usually do is send you to a psychologist" then made
some mention about drugs (which I would assume meant anti-depressants)
which at this point in the game I would prefer to NOT do as well. I
have absolutely NO issues taking drugs, I just don't like taking drugs
that effect my thinking. My biggest fear about the AN surgery was that
something would happen to my ability to think logically (yes I am a bit
of a nerd).
[right now the ringing is so bad on both sides that I am using some
creative cursing in my mind]
So I am presently in a state of WHAT THE F***, at a crossroads AGAIN in
my life it seems, and don't quite know which way to turn.
If I do get the BAHA Implant I am going to be calling my self 'The Bionic Man'.
Thanks for listening (reading).
-John
Elly Byrne - 12 Apr 2008 21:19 GMT
That is SOME story you have just told us. I am so sorry for all your
misfortunes.
See if reading the following webpage gives you any ideas.
http://eebee.net/TinnitusIsaPainintheNeck.html
Elly.
>Hello all. I just discovered this newsgroup.
>
[quoted text clipped - 58 lines]
>
>-John
** Posted from http://www.teranews.com **
Cosmotcat - 13 Apr 2008 14:58 GMT
Thank you, Elly, I will check it out.
-John
> That is SOME story you have just told us. I am so sorry for all your
> misfortunes.
[quoted text clipped - 67 lines]
>
> ** Posted from http://www.teranews.com **
arthur - 13 Apr 2008 00:04 GMT
I was just passing through, and thought I would respond - dont do
thisoften.
My "T" is fairly heavy right now...some would say its the weather
changing.
We have a support group in London ontario every month, and although we
dont come up with ways to cure this problem, it is nice to know you
are not alone.
The main thing is to keep active, and trick the brain into thinking
about other things, and of course doing without silence.
Some have tried Lipoflavanoids and say it helps. I do get some relief,
but really cant trace it to he flavanoids.
Am now going to watch the ball game on the internet...that should
distract me a bit
All the best
Frank M
Cosmotcat - 13 Apr 2008 15:01 GMT
Thank you, Frank
at this point I ready to try alcohol and heroin
(I am TOTALLY kidding)
> I was just passing through, and thought I would respond - dont do
> thisoften.
[quoted text clipped - 18 lines]
>
> Frank M
Gregory Baxter - 17 Apr 2008 14:00 GMT
> Hello all. I just discovered this newsgroup.
>
[quoted text clipped - 56 lines]
>
> -John
It's unfortunate that many doctors just blow you off when you say Tinnitus.
I would like to give it to them for a day, just to see what it is like. They
go through the motions but have no real interest in helping. I have always
heard that you just have to learn to live with it (which up to this point is
pretty much true because they can't do anything about it anyway). I did
start taking anti-anxiety medication, and it does help, don't rule it out.
Good luck and I hope that you find some peace.
GregB
fyfpoon@gmail.com - 19 Apr 2008 04:49 GMT
> Hello all. I just discovered this newsgroup.
>
[quoted text clipped - 58 lines]
>
> -John
Now you have tried everything there is to try in the front edged
technology of tinnitus treatment. If you still held some hope to what
you have not tried in this high-tech area, you should go ahead to
exhaust them all.
In case you want to try other alternatives, start with ginkgo biloba
first. Give it a month in exact accordance with the instruction on the
label. Never mind what those high tech 'controlled' studies have to
say. You are the only person who can tell.
Try anything as long as it does not have any _irreversible_
consequences.
Bluto - 19 Apr 2008 13:22 GMT
>> Hello all. I just discovered this newsgroup.
>>
[quoted text clipped - 71 lines]
>Try anything as long as it does not have any _irreversible_
>consequences.
What? No acupuncture? Give up your GB and acupuncture pushing fyfpoon.
You always post that garbage after smoking several bong fulls of
crack. Whatta burnout!
r - 20 Apr 2008 05:07 GMT
> Hello all. I just discovered this newsgroup.
>
[quoted text clipped - 56 lines]
>
> -John
Sorry about all of this, John. My T varies in loudness and frequencies, but
it
is usually loud enough that no ambient noise masks it. Not even a shower
or flying downhill on a bicycle. It doesn't bother me much during the day
other than it's hard for me to understand what someone is saying if they are
speaking softly. My problem is sleeping. I am not sure it it's the T or
that
my mind just races, but I'm sure that it doesn't help. I started listening
to
book tapes and that completely solved the problem.
-
Robert