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Medical Forum / Diseases and Disorders / Tinnitus / September 2007

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Is it possible to be happy in the life with tinnitus ?

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tex - 18 Aug 2007 16:03 GMT
simple question.. I'd like to know.
Gex - 18 Aug 2007 16:35 GMT
> simple question.. I'd like to know.

For me, not anymore. It's too loud and it distracts me in everything I do.
Plus problems with my jaw, when I eat, kiss my girlfriend hurts like hell,
tried many things, nothing helps. That's why you can find me on
alt.suicide.holiday also. Do you have TMJ also?
tex - 18 Aug 2007 17:22 GMT
>> simple question.. I'd like to know.
>
> For me, not anymore. It's too loud and it distracts me in everything
> I do. Plus problems with my jaw, when I eat, kiss my girlfriend hurts
> like hell, tried many things, nothing helps. That's why you can find
> me on alt.suicide.holiday also. Do you have TMJ also?

No TMJ for me..
Did you try to take Rivotril ?
Gex - 18 Aug 2007 17:52 GMT
> No TMJ for me..

Ok, so you don't know what causes your tinnitus.

> Did you try to take Rivotril ?

No, why? That is some antiepileptic or antipsyhotic, or both. How could that
help?
tex - 18 Aug 2007 18:49 GMT
>> No TMJ for me..
>
[quoted text clipped - 4 lines]
> No, why? That is some antiepileptic or antipsyhotic, or both. How
> could that help?

Some people say Rivotril can help to stop their tinnitus, your sleep will be
better.
Try to take AOTAL also, it may be effective.
Gex - 18 Aug 2007 19:16 GMT
> Some people say Rivotril can help to stop their tinnitus, your sleep will
> be better.
> Try to take AOTAL also, it may be effective.

Dunno, I'm sceptic about those kind of medicine 'cos the cause of my
tinnitus is TMJ. Nad this rivotril stuff is not a joke. Though, I tried
some, but didn't work. Betaserc and some other sh.t, don't know names. If
somebody could cure my TMJ, I assume that tinnitus would be gone too, or be
reduced...
Janice - 19 Aug 2007 23:46 GMT
Geeesh. TMJ? Find a Chiripractor or more frequently a massage
therapist that has been trained with "cranial misalignment". It's
usually a one hour head massage that about 9 people, I know, swear by
and they have never had a problem with TMJ since.

After it's done, tell your Dentist and watch him swear at you and call
you a liar. They spend years wiring your jaw to make it align the
other way.

Don't sit and suffer...do something about it instead of being
helpless.

>> Some people say Rivotril can help to stop their tinnitus, your
>> sleep will be better.
[quoted text clipped - 5 lines]
> know names. If somebody could cure my TMJ, I assume that tinnitus
> would be gone too, or be reduced...
Gex - 20 Aug 2007 10:28 GMT
> Geeesh. TMJ? Find a Chiripractor or more frequently a massage therapist
> that has been trained with "cranial misalignment". It's usually a one hour
[quoted text clipped - 5 lines]
>
> Don't sit and suffer...do something about it instead of being helpless.

Of course I'm doing something, but I am running out of options. I wish my
TMJ problem was not so complicated. It's not just the muscle problem. Tried
chinese massage, laser treatments, pshysical therapy,  splints but no
improvement. Had a closed lock, and my joint did't come back, it just
streched. And I must admit that healthcare in my country (Croatia) is pretty
much shity and and people are very uneducated when it comes to TMJ.
Janice - 20 Aug 2007 23:13 GMT
It is the same here in N.America. The chemical/cut doctors run the
place and everything else is quackery. Find a sacral/cranial
specialist. Perhaps an Osteopath, I understand, may be related to this
field of problem.

The cranial alignment will reallign the bone in your head to the jaw
bone instead of all the others, trying to do the opposite.

Here come the flames!

>> Geeesh. TMJ? Find a Chiripractor or more frequently a massage
>> therapist that has been trained with "cranial misalignment". It's
[quoted text clipped - 15 lines]
> country (Croatia) is pretty much shity and and people are very
> uneducated when it comes to TMJ.
Gex - 20 Aug 2007 23:55 GMT
> It is the same here in N.America. The chemical/cut doctors run the place
> and everything else is quackery. Find a sacral/cranial specialist. Perhaps
[quoted text clipped - 4 lines]
>
> Here come the flames!

What flames, don't be ridicuolus, I appreciate every advice.
I dunno anymore what to do, my face hurts when I smile, eat, kiss, tmj hurts
also, and, bonus on all that is freaking loud tinnitus. I scheduled myself
to chiropractor next week, so we'll see...
Janice - 21 Aug 2007 03:59 GMT
Wasn't you I was referring to. New ideas have never been accepted here
with open arms.

This was the cause of a flame war that lasted about 6 years here . It
started in another group and migrated through about five more until it
finished, here, all around an attention seeking individual with OCD .

>> It is the same here in N.America. The chemical/cut doctors run the
>> place and everything else is quackery. Find a sacral/cranial
[quoted text clipped - 10 lines]
> tmj hurts also, and, bonus on all that is freaking loud tinnitus. I
> scheduled myself to chiropractor next week, so we'll see...
Gex - 21 Aug 2007 08:47 GMT
> Wasn't you I was referring to. New ideas have never been accepted here
> with open arms.
>
> This was the cause of a flame war that lasted about 6 years here . It
> started in another group and migrated through about five more until it
> finished, here, all around an attention seeking individual with OCD .

Ok. I'm new on this group, so...
Susan - 21 Aug 2007 15:32 GMT
>>Wasn't you I was referring to. New ideas have never been accepted here
>>with open arms.
[quoted text clipped - 4 lines]
>
> Ok. I'm new on this group, so...

You want to take anything "Janice" says with a HYOOGE grain of salt.

Susan
Murray Grossan - 20 Aug 2007 15:54 GMT
On 8/19/07 3:46 PM, in article U8ednYfgOIWcVVXbnZ2dnUVZ_hSdnZ2d@golden.net,

> Don't sit and suffer...do something about it instead of being
> helpless.

Good advice, whether its exercise or self stimulation "every day I will get
better" or whatever, taking charge of any illness is therapeutic.

Murray Grossan, M.D.
Www.EarAid.info
Gex - 18 Aug 2007 16:38 GMT
> simple question.. I'd like to know.

It' s not so simple. There are people who are deph and have tinnitus and
they're happy. Others have perfect health, hearing, money, whatever, and not
happy. It's all in your head, how you deal with it and accept thing. I
personally, can not be happy and I doubt i will ever be...
Susan - 18 Aug 2007 16:51 GMT
> simple question.. I'd like to know.

YES, absolutely.  It can take some time, but over the years, I've met
folks on this group and in real life who have tinnitus as loud as a
freight train 24/7 who have habituated and who live very happy,
fulfilled lives.

That's hard to believe in the early going and when it's very intrusive,
but most often, time leads to habituation and it becomes a non issue.

Google this group for the original thread by Bill Gerrells, "Tinnitus
habituation for dummies."

Additionally, some folks have had good results from hypnosis, diet
changes, hormonal evaluations, infectious disease treatment, Xanax, TRT,
masking, etc.

Susan
Gex - 18 Aug 2007 17:13 GMT
> x-no-archive: yes
>
[quoted text clipped - 4 lines]
> freight train 24/7 who have habituated and who live very happy, fulfilled
> lives.

I think it depends from person to person. Somebody can accept it, others
can't. I, personaly don't know how to accept it. As time pasess, it bothers
me more and more..
Susan - 18 Aug 2007 17:49 GMT
> I think it depends from person to person. Somebody can accept it, others
> can't. I, personaly don't know how to accept it. As time pasess, it bothers
> me more and more..

Then you might be a candidate for one of the treatment modalities.

Susan
Gex - 18 Aug 2007 17:57 GMT
> Then you might be a candidate for one of the treatment modalities.
>
> Susan

Sorry, can you explain last two words, I don't understand what you mean? Be
a little more specific?
Susan - 18 Aug 2007 18:06 GMT
>>Then you might be a candidate for one of the treatment modalities.
>>
>>Susan
>
> Sorry, can you explain last two words, I don't understand what you mean? Be
> a little more specific?

I did.  Read earlier in the thread.

Susan
Gex - 18 Aug 2007 18:11 GMT
> I did.  Read earlier in the thread.
>
> Susan

Aaa, sorry, may bad.
fyfpoon@gmail.com - 22 Aug 2007 08:05 GMT
> > x-no-archive: yes
>
[quoted text clipped - 8 lines]
> can't. I, personaly don't know how to accept it. As time pasess, it bothers
> me more and more..

Individuals differ in how they respond to something.  That ABC can do
it does not mean XYZ can do it too.

Do your best to get it treated and in the process learn to habituate.
To habituate T does not mean you don't get it treated.
Patty - 20 Aug 2007 19:06 GMT
> x-no-archive: yes
>
[quoted text clipped - 16 lines]
>
> Susan

If you don't know where/how to find it..........here it is:

Tinnitus Habituation For Dummies

by "Bill" <bill@[EMAIL PROTECTED] > Oct 29, 2003 at 11:17 PM

Hi newbies!  Every year or so I impose on this group with the steps that
led
to my tinnitus habituation hoping someone else can find relief.
Habituation
is a wonderful thing, IMO, considering my T level is probably higher now
that when I regularly posted to this group while, at the same time, I can
completely shut it off for weeks or perhaps months at a time.  Hard to
imagine, I suppose, but the ringing is only present if I pause to listen
for it.  Otherwise... dead silence or the sound of whatever is going on
around
me.

1.  Visit your ENT.  Excluding T caused by an acoustic neuroma at least
brings some peace of mind.  When your ENT says "learn to live with it"
take him/her seriously.

2.  Accept your situation and commit yourself to doing just what the ENT
has told you.  You may need some help but the vast majority of those with T
will successfully adjust.  Yes, this may take a year or more but remember...
there is a strong likelihood you will succeed on your own.

3. Explain your situation to those with whom you live and work.  It is
likely your T will affect your ability to discriminate between multiple
sources of sound.  This is not to say your ability to hear soft sounds has
been diminished but rather that your ability to hear one conversation
while another it taking place nearby may be.  It sure helps if they are
patient
with you as you try to understand them in a noisy environment.

4. You all know how important it is to avoid loud sounds.  During the
habituation period, it is probably more important to avoid silence.  More
about avoiding silence follows.

5. When you are interested in something else, and not concentrating on
your T, notice that you are able to ignore it for that period.  I think it
important that the noise level you choose to mask your tinnitus otherwise
distracts you.  I'm so fortunate to receive Minnesota Public Radio's
all-news broadcast.  Maybe talk radio interests you.  Whatever the source,
it helps if it is intellectually stimulating.

6.  Set your nightstand radio to something both interesting and laid back.
Where I live, the BBC is broadcast around the time I go to bed.  There is
something about the BBC I can't put into words.  It interests me while
lulling me to sleep.  Sometime after I'm in never-never land the timer on
my radio shuts it off.

Learn as much about your condition as you can, at least enough to know
that, aside from EERIE WAX, there is no cure.  Since it won't kill you, you
MUST
learn to live with it.  Forget about herbal remedies, acupuncture,
hypnosis, candles, massage and the rest of the crap out there.  Avoid
ototoxic
drugs.
Just do the six simple things I've outlined above and be patient.  You
will enjoy absolute silence again some day.
fyfpoon@gmail.com - 18 Aug 2007 17:55 GMT
> simple question.. I'd like to know.

It depends on the DEGREE of your tinnitus.  If it does not bother you--
both the noise and whatever discomfort that may come with T-- you can
be as happy as anyone who does not have tinnitus.
ronbon - 19 Aug 2007 05:00 GMT
> simple question.. I'd like to know.

It depends on what choise you take. I've had it as long as I can
remember, possibly thirty or more years. I'm deaf in my left ear
because of the noise. All day every day. Does it control my life, no.
Is it a horrendis pain in the a.s, yes. It all depends on when and
where I choose to let it affect me. Most of the time it is just a
constant that been there so long I can ignore it. If my right ear is
on the pillow and my wife speaks to me, I legitimately can't hear her.
I don't think she believes me. You must think of the alternatives. I
have and none of the other alternatives have any appeal. Personally
and I suppose better for me in a more somber note, there are more
important things to worry about that I have some control over as
opposed to tinnitus which I have absolutely no control over. All I can
do is ignore it as best I can. This may not help you cope but
accepting that it is there and will be there. I can offer you nothing
because I well know how much you suffer. I do know the older I got the
less it intrudes into my life. My sympathy

Ron
no name - 03 Sep 2007 12:07 GMT
I didn't think so initially, but I'm getting there. Amitriptyline really
helps knock down my tinnitus a couple of notches (used for nerve pain and
nerve damage). Also listening to a CD of crickets chirping that I got off
iTunes gives relief. I'm at 3 months now and starting to live a normal life.

Good luck

> simple question.. I'd like to know.

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