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Medical Forum / Diseases and Disorders / Tinnitus / March 2007Noisy newbie here
Hi folks, Well, I'm glad I found this NG. There's no better source of practical answers than from those who've been there. First, let me introduce myself. My name is Mark Mossberg, I live in the Costa Mesa/Santa Ana area of So. Cal. I work as an engineer for a consultancy that specializes in (of all things) the design and development of high tech medical devices. I'm 56 (a young 56) years old. I've had low level (copeable) tinnitus for several years, mostly in my left ear. For the past six months or so, I would have "noisy" days, and quiet (quieter) days. The pattern was, if I woke up quiet, I'd have a quiet day. If I woke up noisy, I'd have a noisy day. By "noisy" I mean a continous tone (left ear only) at between 1.2 to 1.4khz with a percieved volume of 75 to 80db. Again, this is left ear only Two weeks ago today, I woke up "quiet". In the middle of the day I decided to take a nap. I woke up from the nap "noisy", and have been in this condition ever since, 24-7. I had my regular doctor prescribe Xanax so I could sleep I have since seen an ENT doctor. I have also done a heck of alot of research, both online, and utilizing the considerable resources I have at work, in an attempt to connect the dots. The problem is, there's sooooo many dots. From the dots I have been able to connect, it seems quite possible I might have acoustic neuroma. This may sound a bit over the top, but I'm hoping I'm right, these tumors can be removed. I know I should wait for the diagnostic process to play itself out, but this can take months. At this frequency and amplitude, I can't see learning to "live with it" as a viable option. I don't know that I have the inner recources to stay sane during this lengthy process (short of staying doped up all the time). I honestly think I could live with complete deafness, in my left ear, much easier. Which is possible option, according to my ENT. My purpose for posting is mostly to make a connection with someone that has had a similar experience, and maybe gain some measure of "hope" for my future. As you can imagine, my work requires a level of problem solving that's very mentally challenging. This past two weeks, I've had a pretty rough time dealing with problems I already know the answers to, let alone new ones. Kind Regards Mark P.S.,,, This return address is fake to keep the web-bots from harvesting my home email address. If you reply by email, use markm@omnica.com . I have access to this from my home office. TIA Have you had a look at http://eebee.net/TinnitusIsaPainintheNeck.html Putting your email address at the bottom of the page is just as bad as putting it in the header. Change it in some way. Elly. >Hi folks, > [quoted text clipped - 48 lines] > >TIA  SignaturePosted via a free Usenet account from http://www.teranews.com Elly, Thanks for the link, looks like an interesting possibility. I'll give it a good read. The email I posted was from work. We have filters and what-have-ya do deal with the problem Thanks Mark > Have you had a look at http://eebee.net/TinnitusIsaPainintheNeck.html > > Putting your email address at the bottom of the page is just as bad as > putting it in the header. Change it in some way. > > Elly. When your email server collapses from the junk mail you will get you can stand up and tell them you did it. When you wade through the thousands of junk mails you will find the offer you have been waiting for that has expired. I opened a Yahoo account, used the address here once and I get over 100 emails per day now in it. > Elly, > [quoted text clipped - 18 lines] >> >> Elly. >I opened a Yahoo account, used the address here once and I get over >100 emails per day now in it. Try a Gmail account. Supposed to have a very good spam filter. Discovery consists of looking at the same thing as everyone else and thinking something different. Roger von Oech http://eebee.net/ SignaturePosted via a free Usenet account from http://www.teranews.com I opened a new yahoo account and by the end of the week I get 100 spams per day. I have never used the account address anywhere yet. What does that tell you? Yahoo has spam filters also but it doesn;t stop you real mail from being caught in it. My business email has good spam filters and they work very accurately. I find I get about 30 spams at a time once per week all at the same time so I know they are coming from the same place. >>I opened a Yahoo account, used the address here once and I get over >>100 emails per day now in it. [quoted text clipped - 4 lines] > thinking something different. Roger von Oech > http://eebee.net/ > >I opened a Yahoo account, used the address here once and I get over > >100 emails per day now in it. [quoted text clipped - 4 lines] > thinking something different. Roger von Oech > http://eebee.net/ google is already too big and wants to commercialize the entire world. http://www.theregister.co.uk/2006/02/10/google_desktop_privacy_kerfuffle/ To find out why and how google is compromising your privacy, read; http://www.scroogle.org/ > >I opened a Yahoo account, used the address here once and I get over > >100 emails per day now in it. > > Try a Gmail account. Supposed to have a very good spam filter. Just change your email address so a spammer can't harvest it like: me@gmail.ccccoooommmm (correct the last part). So easy. Change it on the reply-to area of your newsreader and you can always remind people of the changes when you post in your signature. Hi Mark, Many of us here went through what you are going through. I did it too. It was acupuncture treatments that progressively cut down the volume. Ginko helped too; it softened the sound and turned a brain ring into ringing on the drum. But then again what has worked for me may not work for you. I should have tried these treatments as soon as it started but I was under the strong influence of those quasi- scientific controlled studies cited around here and as a result delayed the treatments. I am sure your ENT doctors could advise you of his methods of treatment. But as a side note, I want to tell you that in China it is a standard practice in all state hospitals to apply intravenous injection of blood vessel dilating medicine to all tinnitus patients, because the doctors subscribe to the circulatory theory. You may want to talk to your ENT doctor about that. My own experience has been if a treatment does not produce positive response, no matter how slight it is, I will consider writing it off totally! I would not consider going completely deaf as an option to having loud T noise, if that is what I understand your ENT doctor thinks. I think loud sound can be cut down over time and I am an example. The last thing you want to happen is, after going deaf, you can still hear the ringing inside the centre of your brain. That would be ghastly!!! It is like jumping from the frying pan to the fire! ================================== On 3月11日, 上午1时49分, "Mark Mossberg" <Poundsandspamm...@biteme.net> wrote: > Hi folks, > [quoted text clipped - 48 lines] > > TIA On 3/10/07 9:49 AM, in article SaCIh.3395$tv6.1304@newssvr19.news.prodigy.net, "Mark Mossberg" <Poundsandspammers@biteme.net> wrote: > Hi folks, > [quoted text clipped - 48 lines] > > TIA Mark you have to remember that you are born with a fight/flight mechanism and tinnitus is recognized as a "danger" a "bad" that mechanism goes into action. Cognitive therapy is used to train this mechanism that tinnitus is not a "bad' any more than the traffic sounds or the tight bra or tight belt. Yes, that's not easy, but understanding this mechanism helps. It is very important io know if your hearing fluctuates with the T. Murray Thanks for your response, and advice. Like I said, i've been dealing with "moderate" to occoaisional "high" levels of T for many years. I did learn how to cope with that very effectively. This is very different now. It's a continous VERY high decible rate in my left ear. Imagine a smoke alarm inside your head 24-7. I really don't think it's possible to "habituate" to a sound of this magnitude. I find that If I really get mentally involved in something I don't notice it quite as much, but it's still very distracting. Above all, I'm trying to remain objective and logical. This is the way my mind works, and I'm not subject to panic or unreasoning fear. I also have a very open mind with regards to things I have limited knowledge of, and always seek to educate myself. This particular condition has such a vast collection of "theory" vs "fact" it's going to take allot of sifting. The subject also seems have more than it's fair share of "snake oil" salesman. The preditory scumbags that take advantage of desperate people with wild claims and testimonials, but no hard science to back them up. It's a real labrynth of sometimes conflicting information. This is the reason I decided to participate in this forum. To connect with others who have already sifted through the garbage, and hopfully, to contribute in a positive way. I do have allot of recources that many of you don't. We work on about 30 medical projects a year. Lately, most have been DARPA funded projects dealing with automatic detection and analysis of pathogens based on DNA signatures. If someone walks through our door with a viable concept for tinnitus treatment, I can guarentee we'll give it a good hard look. The president of the company is also a fellow sufferer. We do have reason to hope as new sensory technology is being developed all the time. We can already selectively read neural signals and use them to accomplish various tasks. It won't be long before we can selectively manipulate them. This eventuality has many positive applications. The negative ones (mind control for instance) are admittedly pretty scary. Kind Regards Mark > On 3/10/07 9:49 AM, in article > SaCIh.3395$tv6.1304@newssvr19.news.prodigy.net, "Mark Mossberg" [quoted text clipped - 59 lines] > Yes, that's not easy, but understanding this mechanism helps. > It is very important io know if your hearing fluctuates with the T. If you will only listen to "hard science" for tinnitus you may be sufferring for a longggg time with it. > Murray > [quoted text clipped - 171 lines] >> Yes, that's not easy, but understanding this mechanism helps. >> It is very important io know if your hearing fluctuates with the T. > If you will only listen to "hard science" for tinnitus you may be > sufferring for a longggg time with it. ....if people can tell the difference between hard and soft science and the science that is less hard and less soft.. > > Murray > [quoted text clipped - 173 lines] > > - 显示引用的文字 - Janice, Maybe it was a poor choice of words. Perhaps something other than testimonials and claims, at least with regards to supplements. Right now I'm taking mellatonin, B12, and lipo-flavinoid. I would imagine you folks have others that you have had results with. The cynicism just gift/curse depending on your perspective I guess. I can see that you have a fair bit of it too. Peace Mark > If you will only listen to "hard science" for tinnitus you may be > sufferring for a longggg time with it. [quoted text clipped - 174 lines] > >> Yes, that's not easy, but understanding this mechanism helps. > >> It is very important io know if your hearing fluctuates with the T. Just a note about the melatonin. I hope you only take it at night, in tune with your body's melatonin cycles. Melatonin has shown to be a carcinogen if taken during the day out of cycle. Just from testimonials...of course....LOL Also, you will non-chem/cut professionals recommending you do not take B12 or any other isolated B vitamin without a balanced B complex first. You can get seriously out of balance due to your body using up the co-factors with the increased B12 intake. Cynicism? You bet! The chem/cut medical profession cost me a lot of heartaches, headaches, pain time and money until I realized they didn't know what they were taking about when it comes to vitamins, supplementation, inflamations, nutrition, allergies and most other everyday maladities. They sure know about cutting things out, billing and fear mongering though. > Janice, > [quoted text clipped - 229 lines] >> >> It is very important io know if your hearing fluctuates with the >> >> T. Janice, You sure call em like you see em, I gotta respect that. Yes, I take one each night before bed (along with the dopey stuff), but it's mostly by accident I guess. It said it was to help synchronize your normal sleep cycle so I just assumed,,,,,, I'll be the first to admit, I know very little about nutritional supplements. I do try to find out as much as I can befor ingesting stuff. The B12 was for another thing having to do with percieved loss of sensation in my legs and left foot. Went to see a neurologist who spent two hours "tazing" me in various places. He said some of my response times were considerably above normal, even in the areas of the symptoms. (another stray dot maybe ???) Anyway, I was taking a cholesteral med that said it interacted with some of the B's, or I would have taken a complex. Could you please explian this paragraph. I'm not familiar with the lingo, (or maybe a grammatical boo-boo) > Also, you will non-chem/cut professionals recommending you do not take > B12 or any other isolated B vitamin without a balanced B complex > first. You can get seriously out of balance due to your body using up > the co-factors with the increased B12 intake. Later Mark LOL. I missed the word "find". "Non-0chem/cut professionals" are those with professional health care training that try to avoid making money via chemicals and cutting things from your body. Some call them "allopathic" also. (sounds like 'all pathetic') Also, you will **find** non-chem/cut professionals recommending you do not take B12 or any other isolated B vitamin without a balanced B complex first. You can get seriously out of balance due to your body using up the co-factors with the increased B12 intake. > Janice, > [quoted text clipped - 34 lines] > > Mark oooops. Some call this type "Naturopathic Doctors". "Allopathic" are other types. > LOL. I missed the word "find". "Non-0chem/cut professionals" are > those with professional health care training that try to avoid [quoted text clipped - 46 lines] >> >> Mark Janice, If my MRI clearly shows a tumor or growth impinging my audio nerve, don't-cha think it might be a good idea to have it removed ??? My brother had one in the bone around his ear in his late 20's. I don't remember if he had any ringing, just severe head aches. When he was finally diagnosed and treated, they had to hollow out the side of his head like a gourd. The tumor was benign, but he obviously waited to long to get help. I don't know whether there's a connection or not. Another dot maybe ??? As far as the herbal/botanical stuff, how do "I" tell the phoneys from the real thing ? It seems as if most of them have preditory pricing policies. I've worked on pharmecutical automation projects, and I can tell you for a fact that the most expensive drugs can cost thousands of times less to produce, than they're sold for. Even wholesale. I've seen adds for $100.00 or more for a 30 day supply of some miracle natural cure. Provided the ingredients are genuine, it couldn't cost them more than a couple of bucks to process 20 lbs. Packaging and labeling for a medium size plastic bottle can cost a quarter (for a really good one). Marketing and distribution next to nothing with the internet. No regulatory overhead, clinical trials, or other requiremnts (of course you can't kill people). I'd be willing to bet that $100.00 bottle of pills, on average, cost them about $2.00 ready to ship. Now, I'm not against a guy (or gal) making a decent profit, but if I'm even close, some of them are doing the same type of price gouging the big boys do. Just on a slightly smaller scale. It's diffcult for me to make a considered decision when the first thing I notice is I'm probably being screwed. Knowledge in the wrong area is a bitch That's my "cynical" rant for this evening. (how'd I do?) Anyway, if it comes down to it, I guess I can count on you to point me in the right direction,,,,, right ???? Mark > LOL. I missed the word "find". "Non-0chem/cut professionals" are those > with professional health care training that try to avoid making money [quoted text clipped - 46 lines] > > > > Mark PERHAPS YOU SHOULD SEE A SHRINK. tHIS SOUNDS LIKE AN ANXIETY PROBLEM AND COUNCILLING AND/OR MEDICATION CAN HELP A LOT. ooops. sorry about the caps. > Janice, > [quoted text clipped - 114 lines] >> > >> > Mark Janice, Damn,,, I knew I should have put that little smiley face at the end. here it is ;>) And, you forgot one in "THIS" I thought you appreciated paranoia,,,,,er I mean cynicism Mark > PERHAPS YOU SHOULD SEE A SHRINK. tHIS SOUNDS LIKE AN ANXIETY PROBLEM > AND COUNCILLING AND/OR MEDICATION CAN HELP A LOT. [quoted text clipped - 119 lines] > >> > > >> > Mark > On 3/10/07 9:49 AM, in article > SaCIh.3395$tv6.1...@newssvr19.news.prodigy.net, "Mark Mossberg" [quoted text clipped - 56 lines] > and tinnitus is recognized as a "danger" a "bad" that mechanism goes into > action. What then accounts for napping leading to more tinnitus? Napping is supposed to be a good thing. Right? Then how come a good thing leads to a bad thing? ========================================= Cognitive therapy is used to train this mechanism that tinnitus is > not a "bad' any more than the traffic sounds or the tight bra or tight belt. > Yes, that's not easy, but understanding this mechanism helps. > It is very important io know if your hearing fluctuates with the T.- 隐藏被引用文字 - > > - 显示引用的文字 - > Hi folks, > [quoted text clipped - 48 lines] > > TIA I wear a foam plug in my ear 24/7, 365. I change it every 4 or 5 days. It somehow helps the brain ignore the T. You might think it would increase your perception of it but I believe t is an allergic response to sound, or something like that. Perhaps it will help until you get treatment. -h Thanks for the suggestion, I already do that. Your right, it does help sometimes. Mark > > Hi folks, > > [quoted text clipped - 55 lines] > treatment. > -h On another note, I think you might also be right about the reaction to sound. I've come to the same possible conclusion, at least in my case. I used to have this watch. The alarm would go off at 10:52 every day, and the only way I knew it was someone shouting at me to turn the damn thing off. I was almost completely deaf to that particular frequency. If I held it up to my right ear, I could hear a faint tone thats very similar in pitch to what I'm hearing now (except 100 times less volume). It's just possible that the tone I'm hearing is a short circuited "damaged" portion of my hearing that I'm externally deaf to. Mark > > Hi folks, > > [quoted text clipped - 55 lines] > treatment. > -h The "pressure" inside the ear canal may help re-stimulate the nerve ending involved in tinnitus. >> Hi folks, >> [quoted text clipped - 85 lines] > treatment. > -h Have you experienced: A recent neck injury or jarring or do you have a stiff neck? Does heat on the neck area (like soaking in a bathtub or jacuzzi with your neck immersed) give any relief to your T? Do you grind your teeth? (Bruxism)
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