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Medical Forum / Diseases and Disorders / Tinnitus / January 2007fluctuating T
My E.N.T. said my T was caused by damage to my inner ear's hair cells. Around ten years ago I was diagosed with Meniere's but I suspect AIED as I haven't had vertigo for several years but do have the fullness,T and hearing damage(which does not appear to be fluctuating). My T was an interesting blend of distinct insect sounds as one would hear on an August night in the Midwestern U.S.A. Crickets and tree frogs, at least ten seperate sounds, each with their unique rythyms. I learned to ignore it by wearing a foam earplug in that ear 24/7. Unfortunatly, the T sounds have degenerated into less distinct "reproductions" of what they sounded like before; ringing sounds of varying pitches and lengths. The extent of the T volume is cyclic lately, some days being almost silent. I think the sound is being generated in my brain but the Doc said the hair cells are vibrating in a damaged fashon and the brain is just trying to match audio to the bad signals. Can anyone elaborate on this and do you know why it fluctuates? P.S. the only other thing I might add to this is that the variation of the T seems to be connected to episodes of heavy fatigue, or "brain fog". Regards, H On 1/24/07 10:29 AM, in article 45b7a583$0$28101$4c368faf@roadrunner.com, > My E.N.T. said my T was caused by damage to my inner ear's hair cells. > Around ten years ago I was diagosed with Meniere's but I suspect AIED as [quoted text clipped - 14 lines] > the T seems to be connected to episodes of heavy fatigue, or "brain fog". > Regards, H In theory you are supposed to have fullness, tinnitus, hearing loss and vertigo with Meniere's but that is all a matter of how high the pressure in the inner ear gets to. You can have only one or two. Or 3 its all fluid pressure in the inner ear. Why does it recurr? I often hear my patients are doing fine, they go to a party, have drinks and without realizing it eat everything salty. Then the symptoms come back. Some feel there is an allergic element MSG or ? ?Try to keep a diary of possible foods. About one thing in Tinnitus we do know, anxiety reinforcement makes it worse. Or makes the "response" worse. > On 1/24/07 10:29 AM, in article > 45b7a583$0$28101$4c368faf@roadrunner.com, [quoted text clipped - 47 lines] > it > worse. > Or makes the "response" worse. I'm not worried about it getting "worse'. I wear a foam earplug 24/7 and somehow that reduces the awarness of the T. I was wondering about the mechanics of T and for that I could have just as well used Google considering the few people here and the vast amount of info there.. Thanks On 1/26/07 12:56 AM, in article 45b9c246$0$28149$4c368faf@roadrunner.com, >> Or makes the "response" worse. >> [quoted text clipped - 3 lines] > considering the few people here and the vast amount of info there.. > Thanks Curious as to what condition you do have since it isn't what is seen. For tinnitus patients wearing an ear plug makes it worse by blocking out the outer sounds that distract and mask the tinnitus. > On 1/26/07 12:56 AM, in article 45b9c246$0$28149$4c368faf@roadrunner.com, > [quoted text clipped - 9 lines] > tinnitus patients wearing an ear plug makes it worse by blocking out the > outer sounds that distract and mask the tinnitus. Indeed. I have Meniere's, and I only wear ear plugs when it's absolutely necessary. If you insulate yourself from sounds, they will always sound louder to you than they need to. Besides, when I have ear plugs in, I feel like I'm trapped in there with all that noise. Just my take on it. Eva > > On 1/26/07 12:56 AM, in article 45b9c246$0$28149$4c368faf@roadrunner.com, > > [quoted text clipped - 16 lines] > > Eva I have meniere's. My hearing loss is in the low bass range. Whether or not it has any effect on my T, I wear the plug because I also have hypercusis. The main reason is that I just couldn't stand the damaged sound and especially the feeling of fullness. It was very annoying, like cotton stuffed deep in my ear. The earplug eliminates that discomfort. I also believe that sound itself is partly the cause, as if i were "allergic' to sound. Possibly an immune reaction to sound somehow. The less going into my ear, the better. Think what you will of my soundness of mind, but i couldn't take any more of the vertigo attacks. I have not had vertigo in 8-9 years of wearing the plugs. Regards, H >>> On 1/26/07 12:56 AM, in article 45b9c246$0$28149$4c368faf@roadrunner.com, >>> [quoted text clipped - 28 lines] > more of the vertigo attacks. I have not had vertigo in 8-9 years of > wearing the plugs. Regards, H I understand. We all have to do whatever it takes to make it through. At first, I couldn't stand to listen to any sounds because of the hyperacusis. But I learned to expose myself to sounds a little at a time, and it doesn't bother me as much anymore. But yours might be worse than mine. The worst thing for me is a really noisy restaurant. Eva > >>> On 1/26/07 12:56 AM, in article 45b9c246$0$28149$4c368faf@roadrunner.com, > >>> [quoted text clipped - 36 lines] > > Eva Actually, it's only been around 6 years with no vertigo attacks. Just episodes of fatigue followed by reduced T for awhile. Perhaps my T isn't as loud as some people's, though it does get louder sometimes. I used to leave the earplug out often but it would seem that as soon as I would do that, one of the dogs would bark right in my ear and before I would know it, i'd bve getting sick again. hiThere <hi@there.here> wrote in part: >Actually, it's only been around 6 years with no vertigo attacks. Just >episodes of fatigue followed by reduced T for awhile. Perhaps my T isn't >as loud as some people's, though it does get louder sometimes. I used to >leave the earplug out often but it would seem that as soon as I would do >that, one of the dogs would bark right in my ear and before I would know >it, i'd bve getting sick again. If you have "sub-clinical" vertigo, it can result in fatigue.  SignatureJim Chinnis / Warrenton, Virginia, USA Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG > Actually, it's only been around 6 years with no vertigo attacks. Just > episodes of fatigue followed by reduced T for awhile. Fatigue coupled with reduced T is very consistent with adrenal suppression. Do you use any form of steroid nasal spray, ashtma inhalers, skin topical, insulin sensitizer (suppresses cortisol) etc.? Susan > x-no-archive: yes > [quoted text clipped - 6 lines] > > Susan No I don't use any of those things. As far as getting some good help(in the other reply),I seem to have had a damage episode over a period of a few years around a decade ago and the damage is done and the condition is fairly stable. If I Do find someone other than a med filler it'll have to be someone other than my current E.N.T. I mentioned my ideas about CNS-shingles/Herpies variant/immune response possibilities and specifically mentioned A.I.E.D. but he simply had nothing to say about any of that. I have found that people spending hours and days of time and large sums of money to get to the bottom of other people's problems is mostly T.V. fare and not likely to be the case in the real world. I'm not giving out hope for some sort of hair cell replacment procedure in the not too far future but then, anything that may mess with the balance is disturbing to consider. -H > In article <52487qF1mt1k3U2@mid.individual.net>, > No I don't use any of those things. Good! As far as getting some good help(in > the other reply),I seem to have had a damage episode over a period of a > few years around a decade ago and the damage is done and the condition [quoted text clipped - 9 lines] > is disturbing to consider. > -H I hear you. I'm in metro NY with a very complex endocrinological problem, and can't find a doctor at any price competent to actually *think* or know enough to help me. I will end up flying to Los Angeles for diagnostic and treatment help, eventually. Doctors get paid for volume and for procedures, not for the lost art of clinical medicine. You have come up with some interesting potential causes and solutions, but finding a medical person in the current health structure we have in the U.S. is just not in the cards. Susan hiThere <hi@there.here> wrote in part: >I have meniere's. My hearing loss is in the low bass range. Whether or >not it has any effect on my T, I wear the plug because I also have [quoted text clipped - 7 lines] >more of the vertigo attacks. I have not had vertigo in 8-9 years of >wearing the plugs. Regards, H There is a condition where loud sound causes vertigo: Tullio effect. SignatureJim Chinnis / Warrenton, Virginia, USA Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG > There is a condition where loud sound causes vertigo: Tullio effect. Yes! I know of two chronic, CNS Lyme infected people who suffer from it. One is a physician. Susan > x-no-archive: yes > [quoted text clipped - 4 lines] > > Susan I am making a connection in my posts between blocking sound waves from entering my ear and reduction of vertigo/unsteadines(That is my opinion and my experience, I am not a Doctor and did not aquire this information from any medical source). > I am making a connection in my posts between blocking sound waves from > entering my ear and reduction of vertigo/unsteadines(That is my opinion > and my experience, I am not a Doctor and did not aquire this information > from any medical source). Your experience is the most valid thing you have to go on, no matter what anyone else has to say about it. Over years of reading the experiences of others here, usually blocking noise makes one more aware of T loudness. The fact that blocking noise makes your vertigo/unsteadiness better is a clue to possibilities, such as Tullio. I don't know if there are other CNS conditions that can cause this. The folks I know of who have it have to wear hearing protection in public to avoid falling down or other problems when exposed to sound. Susan > x-no-archive: yes > Your experience is the most valid thing you have to go on, no matter > what anyone else has to say about it. [quoted text clipped - 8 lines] > > Susan What I was talking about is noise induced vertigo or dizziness over a period of time. I may be sub-clinical somehow but thankfully not Tullio. -h > What I was talking about is noise induced vertigo or dizziness over a > period of time. I may be sub-clinical somehow but thankfully not Tullio. > -h Like most things, there's a spectrum of severity, not the clearcut black and white demarcations that many medical folks like to pretend exist. If not Tullio, your experience may still be a Big Effing Clue to a CNS process, either infectious or other, that's potentiall treatable if you find someone skilled and caring enough to explore it with you. In any case, good luck. Susan hiThere <hi@there.here> wrote in part: >I wear a foam earplug 24/7 and >somehow that reduces the awarness of the T. I've never heard of that happening. There are some people whose tinnitus is driven louder from even mild sound exposure. Is that what you have? SignatureJim Chinnis / Warrenton, Virginia, USA Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG > My E.N.T. said my T was caused by damage to my inner ear's hair cells. > Around ten years ago I was diagosed with Meniere's but I suspect AIED as [quoted text clipped - 14 lines] > the T seems to be connected to episodes of heavy fatigue, or "brain fog". > Regards, H Going back to your earliest post to this thread: My T has always been episodic or sporadic, intermittent, variable. I suffer from chronic tick borne CNS infection, which brought on the onset of my T, along with severe fatigue and brain fog. I also have a cortisol problem, it fluctuates between adrenal insufficiency and hypercortisolemia, and these fluctuations cause brain fog and increased T without fail. Thyroid patients also experience T, and often, brain fog. So do menopausal women. You may want to ask your doc for a series of 3 24 hour Urinary Free Cortisol collections (serum is very unreliable for detection of problems) and 8 a.m. and 4 p.m. ACTH levels, along with a thyroid panel including free T3 and free T4. You might also consider an infectious diseases consult as part of an overall medical evaluation. Susan
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