> I've seen three otologists so far and have gotten three different
> answers. I suffered sudden sensorineural hearing loss in April. Most of
[quoted text clipped - 5 lines]
> hearing deteriorates further, then gets better - but never back to
> normal. I have no vertigo or dizziness.
Well, I was diagnosed with Meniere's back in late 1994. The first ENT
gave me (excuse my spelling) promethazine, meclizine, and fiorcet. I was
like a zombie most of the time with all these medicines making me sleepy
and drugged-out feeling. Then they did an electronystagmography -- geez
that's a word I did learn how to spell after having it done three times.
I'm thinking that yours might not be Meniere's if you have no vertigo or
dizziness. I had serious problems with that at first. Plus I had the
fullness in my ears that would not go away. I had a CAT scan, an MRI, and
a posturography. It took several months for them to come up with the
diagnosis of Meniere's.
> Here's the thing: the first doctor prescribed steroids and lost
> interest. The second doctor refused to give me a definition of what I
> actually had, though he said it was not Meniere's. The third doctor
> diagnosed endolymphatic hydrops and said that the likelihood of
> full-blown Meniere's at some point in the future was quite high (i.e.
> onset of the dreaded vertigo)
I wonder sometimes if they really know the difference between Meniere's
and endolymphatic hydrops. I'm sure someone will disagree with me, tho.
> I appreciate any input from anyone suffering similar symptoms or anyone
> with experience with this syndrome. Just interested in others'
[quoted text clipped - 5 lines]
> Thanks
> George
After I complained to the first ENT about feeling so drugged all the time,
she just said there was nothing more she could do for me. So I found
another ENT who gave me a different medicine: xanax. It worked so well
for me, and it lessened the sound of my tinnitus and took the edge off my
hyperacusis. After about 2 years of seeing him, he suddenly started
talking to me about being dependent on the drug he was giving me. He cut
my dose abruptly, and I went into a horrible spiral of withdrawal. I had
to throw up every single morning until I tore a hole in my esophagus.
Then I had to change primary care doctors. The first time I went to see
him, he asked me why I needed a referral to the ENT. He asked me what
this guy did for me, and I told him that he looked in my ears and said to
come back in a year. This primary care doc was the first one to say to
me, "We have a rule in medicine. If we're not doing anything for a
patient, we don't see them anymore." He told me he would put my dose of
xanax back where it should be, and I had an immediate improvement. I've
never gotten quite back to where I was at the beginning when I first
started the xanax, but life is tolerable. I have not since had to change
my dose. I go along just fine with the same dose -- have done since 1996
now. I am not -- repeat NOT -- telling you that you should run out and
get this drug. Some folks think I'm pushing the drug, and I'm not.
What you need is to find a doctor who listens to you and cares about
relieving your symptoms. That's the most important thing. Keep
searching, and don't stay with one who won't help you. You will find one
who can treat you properly.
Good luck! I hope this helps you.
Eva
hanrahanman@hotmail.com - 10 Nov 2006 03:26 GMT
> > I've seen three otologists so far and have gotten three different
> > answers. I suffered sudden sensorineural hearing loss in April. Most of
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>
> Eva
Eva
Really good advice. Xanax helped me, too. My ENT resisted it, but my
primary care physician said "let's try it" when I told him about it and
showed him Dr. Vernon's "Tinnitus: Questions and Answers". The ENTs
may be worth seeing to rule out causes like acoustic neuromas, ear wax,
or infections, but once you've done that, I recommend finding help
wherever you can for tinnitus.
Joe
Everybody who has Meniere's is confused.
Like you I also have Meniere's symptoms with the exception of vertigo, and a
"likely Meniere's" diagnosis.Only my hearing is not variable, it just goes
steadily down over time and I have almost always fullness. It took me 6
years from the first symptoms until becoming mildly dizzy every now and
then. No real vertigo (spinning, drop attacks) though--knock on wood.
Variable hearing loss is typical Meniere, but usually it starts at low
frequencies. Tinnitus often accompanies ongoing hearing loss.
Info on Meniere
(1) (solid, somewhat bleak) : http://www.menieresinfo.com/; they also have
lists of doctors I believe.
(2) Meniere's forum (mainly a support forum, medical advice is of variable
quality): http://www.menieres.org/forum/ There are Canadians over there,
they can help you looking for a doctor.
Look for a _neurotologist _ (That is not a neurologist and not an otologist;
or perhaps it is both).
Bon courage.
Paul
> I've seen three otologists so far and have gotten three different
> answers. I suffered sudden sensorineural hearing loss in April. Most of
[quoted text clipped - 21 lines]
> Thanks
> George
> I appreciate any input from anyone suffering similar symptoms or anyone
> with experience with this syndrome.
I am not a Doctor. I was diagnosed with M in 1996 and suffered many
bouts of 12 hour vertigo which last happened several years ago. It is my
opinion and experience that wearing a soft foam earplug(mine are bright
orange), in the affected ear lessens the discomfort caused by the
feeling of fullness, helps mask the tinnitus(somehow), and may lessen or
prevent further deterioration and dizzyness including attacks of
rotational vertigo. Regards and good luck,
none - 23 Nov 2006 01:32 GMT
In article
<0-DFADE5.12432212112006@network-065-024-007-028.columbus.rr.com>,
> > I appreciate any input from anyone suffering similar symptoms or anyone
> > with experience with this syndrome.
[quoted text clipped - 6 lines]
> prevent further deterioration and dizzyness including attacks of
> rotational vertigo. Regards and good luck,
I failed to mention that the earplug needs to be worn 24/7, changing
every three or four days and perhaps swabbing the ear lightly with
rubbing alcohol to keep it clean. I have blocked off my hearing in my
bad ear for several years now and i don't feel the full feeling or get
depressed by the distorted, bassless hearing, barely notice my bizarre
cricket sounding T, and do not feel the negative effects of the
hypercussis.