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Medical Forum / Diseases and Disorders / Tinnitus / January 2007

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years of tinnitus and only getting worse (recent dx of hearing loss as well)

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screamingears - 18 Jul 2006 23:59 GMT
hello all...I am new here. I have had tinnitus off and on since I was a
kid. About 3-4 years ago it became constant. It was not so bad that I
couldnt tune it out. However, in the past 6-9 mos or so it has become
louder and louder.

I also started to notice a hearing difference. I finally went to the
audiologist and she said I have a significant hearing loss for my age
(only 41) and should really have some hearing aids...however, I
technically only have mild hearing loss at this stage (just significant
for my age, I guess)...however, she also referred me to the ENT b/c even
though my ears are essentially the same on the test, I hear much worse in
one than the other.

I am worried b/c I dont know what has caused the loss, dont know if it
will get worse, and now my DD (only 12) is starting the have intermittent
tinnitus. We have scheduled an appt for her later this month.

No one that I know in my family has had hearing problems (but I dont know
everyone in my family...I have a *couple* grandfathers who went out for a
pack of smokes and never came back, if you know what I mean). I see the
ENT later this month. I fear that I may have otosclerosis or some other
inherited, progressive hearing loss.

I guess my biggest fear is that this nearly unbearable whining in my ears
will get louder than it already is! I hear it constantly now. Nothing
seems to drown it out anymore. Maybe the hearing aids will help (I am
waiting until after I see the ENT to get them).

Anyway, glad I found this board!
D
Skycloud - 21 Jul 2006 14:47 GMT
> hello all...I am new here. I have had tinnitus off and on since I was a
> kid. About 3-4 years ago it became constant. It was not so bad that I
[quoted text clipped - 26 lines]
> Anyway, glad I found this board!
> D

Welcome D.   I myself am only an occcasional poster but I'm sure you'll find
plenty of support here.

Two things to focus on...

First, once you've seen your ENT you'll likely then _know_ the nature of the
problem and what treatments are possible.  At the moment you don't.  Once
you know, a lot of the fear and anxiety will go.

Second, if your experience is anything like mine, using the hearing aids
will give you effective and quick-acting relief.  You'll then know you have
an escape from the tinnitus and this will immediately make you feel better
and you'll relax.  Relaxing in itself will help still further.

Good luck and keep us posted.

Steve
jga.socal - 22 Jul 2006 04:13 GMT
Welcome SE,
On the ENT visit: Read, read and read on this board and others. The
stories are loud and clear.  Most ENTs brush off complaints of Tinnitus
patients with, "there's nothing I can do. You'll just have to live with
it".  You'll find that you will have to challenge your ENT to run tests
to get help. To get the ball rolling, ask for simple blood tests like a
Complete Blood Count screen and Comp Metabolic Panel. Excessive Low or
high levels of various components in your blood may point to a cause.
Get a copy of the report, you may have to do your own research to
interpret them. For instance, use this web site to interpret the Comp
metabolic (CMP) and Blood Count (CBC) panels:
http://www.labtestsonline.org
Your ENT will most likely do nothing without your gentle poking with a
cattle prod.
On the other hand, if you have no health insurance and are paying the
'public' rates for your medical care then you'll prolly find your ENT
is ready to order any and all tests necessary to help you get relief.
Another 2 pieces of advice.
- Keep a journal of your T; Date, time,  severity levels, how you feel
about it, what you are doing to fight it, etc..  The journal will be
your best friend over time.
- Be very wary of people in newsgroups who have their 'no-archive' flag
on like this: "x-no-archive: yes".  This means that they want their
posted messages to disappear in a few days.  In my book that means they
dont want to be held accountable for the (often incorrect and bazaar)
things that they write.  If you see this flag in a post and feel you
*must* reply to them, make sure to quote their text because your quote
of their text *will* be archived.
Good luck.
Jim

> hello all...I am new here. I have had tinnitus off and on since I was a
> kid. About 3-4 years ago it became constant. It was not so bad that I
[quoted text clipped - 26 lines]
> Anyway, glad I found this board!
> D
fyfpoon@gmail.com - 22 Jul 2006 05:04 GMT
Try the simple formula given me by my Cambridge doctor.  You may get
lucky:
(1)Take one tablet of gingko biloba in the morning.
(2)Take one tablet of betahistine before bed time to help with your
sleep.
(3)use a low pillow or a chiro pillow that supports your neck at night.

(1) and (2) are non-addictive and can be very effective to improving
your head circulation.
You may even get lucky and get well..........

FP
==========================================
> hello all...I am new here. I have had tinnitus off and on since I was a
> kid. About 3-4 years ago it became constant. It was not so bad that I
[quoted text clipped - 26 lines]
> Anyway, glad I found this board!
> D
Sandman - 22 Jul 2006 22:23 GMT
Getting hearing aids will definetly help...I did about 2 years ago and
it has made a huge difference.  Obviously the ringing will continue,
but you will be able to hear soooo much better and I think you can
ignore the ringing easier.

Will it get worse?  No one knows.  How did you get it?  No one knows
that answer either, but there are millions and millions of people with
ringing in their ears.

jack

>hello all...I am new here. I have had tinnitus off and on since I was a
>kid. About 3-4 years ago it became constant. It was not so bad that I
[quoted text clipped - 26 lines]
>Anyway, glad I found this board!
>D
screamingears - 23 Jul 2006 08:11 GMT
wonderful and helpful advice!

re: ENT. I am hopeful with this one. She comes highly recommended.
Apparently very patient-friendly and both my PCP and audiologist really
like her. So, while I have read some of the experiences people have had, I
am hoping for a better one. But I will make sure and be a good advocate for
myself.

re: hearing aids. I am actually looking forward to these! Audiologist
recommended Delta 8000. Pretty cool little set up!

Thanks again, and I will let you know how the ENT turns out on the 15th. -
though I imagine there will be more waiting after that (tests, etc).

One last thought...I am beginning to wonder if waiting to order my hearing
aids until after the ENT was a good idea. I mean how much are things really
going to change with the ENT appt? I will still need the hearing aids...it
is not like she will magically reverse my hearing loss. And, if it is
going to get worse, well, I will need them all the more.

What do you all think?
fyfpoon@gmail.com - 26 Jul 2006 04:27 GMT
Give each doctor no more than 3 chances.  If the doctor failed to take
care of you to your level of satisfaction in 3 visits, move to the
next.

=====================================
> wonderful and helpful advice!
>
[quoted text clipped - 17 lines]
>
> What do you all think?
ashlin@hotmail.com - 29 Jul 2006 14:39 GMT
I have suffered for years with off the charts tinnitus, recently even
experience musical tinnitus. I had a toxic heavy metal urine test
performed and the results, according to a phone call, are Lead, score
of 12 with 5 being the reference number, Iron also high, no numbers
yet. Lead accumulates progessively over time in the brain and causes
structural changes to the brain, possibly making the brain a tinnitus
generator ( if it ever gets properly investigated). Try getting a real
toxic metal test or tests. Once a person learns what's causing their
suffering it may be easier to deal with it or accept it.
rich
marrer - 29 Jul 2006 22:56 GMT
> I have suffered for years with off the charts tinnitus, recently even
> experience musical tinnitus. I had a toxic heavy metal urine test
[quoted text clipped - 6 lines]
> suffering it may be easier to deal with it or accept it.
> rich

i agre with your last comment. i am a safety rep at my place of work,and
through my training i have come to realise that it is not going to go
away. this has forced me to confront it and try and manage it.
 once i was sure of the cause and the fact it was staying for the
forseeable future,my outlook changed from trying to fight against
it,totrying to live with it

 you make the point more eloquently than i could have!:)
jack - 07 Jan 2007 00:46 GMT
D,

I've had loud tinnitus for at least 25 years.  No idea why, except I
spent a lot of time at drag strips when I was a teen, and spent 4
years in Naval Aviation flying F-4 Phantoms off of carriers.  
Regardless, two years ago I got hearing aids and it's made a huge
difference in my life.  Before the hearing aids, in a crowd of people
I was reading lips.  My tinnitus changes pitch practically all the
time, and I have buzzing, clicking and some other strange noises.
Doctors havent been any help....none, other then recommending hearing
aids. Ears are down to 24% of normal hearing.  

Try the hearing aids, it won't make the tinnitus go away, but it sure
helps with high pitch hearing loss. (get Digital ones).  

jack

>hello all...I am new here. I have had tinnitus off and on since I was a
>kid. About 3-4 years ago it became constant. It was not so bad that I
[quoted text clipped - 26 lines]
>Anyway, glad I found this board!
>D

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