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Medical Forum / Diseases and Disorders / Tinnitus / July 2006

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hello...from a newbie

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marrer - 09 Jul 2006 00:14 GMT
 hi.ive just stumbled across this group,an thought i would share my
story-more out of frustration than anything else.
 i have been suffering from tinnitus for about 18months,a constant high
pitched buzz/whistle. this sometimes escalates to the point of being
unbearable within a minute,then subsides as quickly as it came.
it sometimes feels as if my ears are "outside" my head (if this makes
sense) as if they are away from me listening to a sound emanating from
where they should be?sounds daft,i know, but it is difficult to put an
alien sensation into words.
 i work in a noisy environment,using earplugs for around 7.5 hours a
day,and for around 3 years i worked in an excessively noisy
environment.i am in no doubt that this is the cause, but after seeing my
gp and having 2 tests in the hospital,there is no diagnosis!
 my hearing,although i cannnot folow a conversation when more than one
person is talking, is fine according to the N.H.S.....AND THATS IT!
 i am now in limbo,with just the noise to deal with alone .no help.

i find myself drinking more as a means to get off to sleep and i feel
quite isolated.i feel like i am at a dead end,with no finish in sight.

any tips on coping or masking this problem would be gratefully recieved

thanks,
 marrer
Joe Sterling - 09 Jul 2006 04:46 GMT
> hi.ive just stumbled across this group,an thought i would share my
> story-more out of frustration than anything else.
[quoted text clipped - 20 lines]
> thanks,
>   marrer

Marrer

To begin with, please know that you are not alone.  Tinnitus is common,
Many people share your experience and there are ways to cope.

The first thing I would do is to make sure you can get a good night's
sleep.  Background sound helps me, and if that is not sufficient, you
should ask your GP for sleeping medication.

The next thing I would recommend is to do what you can to reduce your
emotional reaction to the tinnitus.  There is a natural process of
habituation whereby the nervous system will adjust to the tinnitus so
that it does not seem so loud and disturbing. For this process to take
place, you need to do what you can to reduce your emotional feelings
about it.  There is an excellent web site that describes the mechanism
of habituation and what you can do to help it along:  www.tinnitus.org.
This process can take a long time, but it is one that happens
naturally.  Some people take much longer than others, but it can happen
for you, as it does for most of us.  You need to understand that the
tinnitus is harmless, meaningless and not a cause for concern.  That is
extremely difficult to do for many of us, but the web site does tell
you how to approach it from the context of what tinnitus really is.
It's worth looking at.

Any kind of relaxation exercises that you can do are worth trying.
Deep breathing, meditation, etc.  Also, avoiding completely quiet
environments (which does not seem to be a problem for you at work :-),
is helpful.  Music that you like, played softly, white noise, and/or a
sound machine (like Brookstone's Quite Moments) can be very helpful.

Finally, I would say you need to keep busy, to the extent you can,
doing things you enjoy.  Even if you feel that your enjoyment is badly
dampened by the tinnitus, do them anyway.  On the other hand, sometimes
it may seem impossible to do anything, impossible NOT to dwell on it,
and in those cases, do not feel badly.  You will get better at this as
time passes.  Time is on your side.

Eighteen months is a long time over which to suffer from this
aggravating and depressing problem, but it can get better if you can
relax and allow more time to pass while getting on with your life as
best you can.  Easier said than done, I know.  But it can and will
happen for you.  Don't give up.

Good luck.

Joe
marrer - 09 Jul 2006 14:01 GMT
>>hi.ive just stumbled across this group,an thought i would share my
>>story-more out of frustration than anything else.
[quoted text clipped - 67 lines]
>
> Joe

thanks joe,it was a great help just stumbling across this group! it is a
help knowing i am not alone.
 i have tried the background noise thing,to try and mask the tinitus
(we normally have a baby listner going!)and it does help a little.the
worst thing for me has been the lack of a definate diagnoses,it is like
the medical profession are backing away because there are no obvious
symptoms.i had an audiogram,and it showed no major hearing loss,but if
it had,i got the impression there would have been a bit more the doctors
could have done.
 i will look at that website and see if anything on there helps,thanks
for taking the time to reply to my post.
:)
Eva Quesnell - 09 Jul 2006 18:45 GMT
> hi.ive just stumbled across this group,an thought i would share my
> story-more out of frustration than anything else.
[quoted text clipped - 5 lines]
> should be?sounds daft,i know, but it is difficult to put an alien sensation
> into words.

Yes, I understand completely what you are saying here.  It is hard to
explain to someone who doesn't have tinnitus what it's like to have this
strange sound in your head.

> i work in a noisy environment,using earplugs for around 7.5 hours a day,and
> for around 3 years i worked in an excessively noisy environment.i am in no
> doubt that this is the cause, but after seeing my gp and having 2 tests in
> the hospital,there is no diagnosis!

I'm sure also that the loud environment has caused this damage to your
ears.  Many people who work around loud machinery end up with tinnitus.  I
would suggest something more than just earplugs.  I wish I knew a source,
but I bet you could google some industrial ear protection that should keep
you from suffering further damage.  It is difficult for doctors to
diagnose the cause of tinnitus.  I'm afraid that their diagnosis would
simply be "noise damage."  Myself -- I can't take wearing earplugs for too
long, or I feel "trapped" inside my head with the noise.

> my hearing,although i cannnot folow a conversation when more than one person
> is talking, is fine according to the N.H.S.....AND THATS IT!
> i am now in limbo,with just the noise to deal with alone .no help.

Yes, I have the same problem.  Restaurants are particularly distressing
with so many conversations buzzing around you.  I find myself saying "huh?" a
lot.

> i find myself drinking more as a means to get off to sleep and i feel quite
> isolated.i feel like i am at a dead end,with no finish in sight.

I dunno if drinking will really help.  Some people find that it does, but
I don't tolerate alcohol well.  Please know that you are not alone, and we
are all here to help you.  There are some real good folks in here who know
a lot more about it than I do.  You might find some help by asking your
doctor about the occasional sleeping pill.  Getting a good night's sleep
is very important.

Relaxation is also very good.  It sounds too simple, but a lot of us can't
really totally relax and need some help with that.  I often listen to
self-hypnosis tapes that slowly and gently ease your body into a relaxed
state.

> any tips on coping or masking this problem would be gratefully recieved
>
> thanks,
> marrer

I've not had luck with masking, but my problem is differnt from yours.  My
tinnitus comes from a disease called Meniere's.  It took many, many tests
to determine I had this condition.

When you find yourself wanting to scream because the noise in your head is
so bothersome and frightening, get in the shower and let the water wash
over your head.  This helps me relax, and I can't hear the tinnitus when
the water is pouring on my head.  It's only a temporary relief, but it's
better than nothing.

Another thing that helps is your attitude.  Try to realize that the
tinnitus is not going to cause any damage to you -- I know it hurts and
it's distressing, but it really won't hurt you.  Try to focus on things
you enjoy doing, and let the tinnitus go to the back of your mind.

I hope this is of some help to you.  Please come back and tell us how
you're doing.  Do check out the industrial ear protection.  I think it's
important for you.  I've been dealing with this since October 4, 1994.  It
came out of the blue for me.  And I'm still alive!  Good luck and bless
your heart.   We do understand.

Eva
marrer - 09 Jul 2006 22:43 GMT
>> hi.ive just stumbled across this group,an thought i would share my
>> story-more out of frustration than anything else.
[quoted text clipped - 75 lines]
>
> Eva
thanks eva!
 just fining this group has been a relief,its good to know i am not alone.
 the noise isnt painfull ,just on the odd occasion when i get a
"screaming peak" as i call them-this tends to happen at work .if i go
for a brak and remove my ear plugs for 10 mins or so,when i put them
back in,the noise rapidly escalates in intensity and volume to the point
where it is both painfull and debillitating ( knocks me right off
balance!) but this almost always starts and finishes within a minute or
two,with a noticable rise in the tinitus that will gradually fade during
the shift.
 the worst thing about this condition for me at present is the feeling
of inevitability,that there is  nothing to make it better,just ways of
coping.
 looking at the site joe pointed me to,it sounds like i may suffer from
symptoms of Hyperacusis also,and i will mention this to my gp next time
i visit.

again,thanks for your reply
it is good to know i am not alone!
Eric J. Scharer - 11 Jul 2006 00:33 GMT
Marrer, I agree with Joe regarding playing music on an MP-3 level at low
volumes for 2 to 4 hours a day. I find that classical music works well for
me.
In laymans terms, the goal is to get the brain to be exposed to wide variety
of frequencies. After a period of time the limbic system will place less
importance on the T  or at least not consider it a "threat".

Eric
Murray Grossan - 15 Jul 2006 17:55 GMT
On 7/10/06 4:33 PM, in article 12b5oua5jrujlc0@corp.supernews.com, "Eric J.
Scharer" <scharer@directcon.net> wrote:

> Marrer, I agree with Joe regarding playing music on an MP-3 level at low
> volumes for 2 to 4 hours a day. I find that classical music works well for
[quoted text clipped - 4 lines]
>
> Eric

I believe you might find listening to Broadway musicals more effective in
distracting from tinnitus.
Eva Quesnell - 15 Jul 2006 19:13 GMT
> On 7/10/06 4:33 PM, in article 12b5oua5jrujlc0@corp.supernews.com, "Eric J.
> Scharer" <scharer@directcon.net> wrote:
[quoted text clipped - 10 lines]
> I believe you might find listening to Broadway musicals more effective in
> distracting from tinnitus.

Wow, I can sure agree with that.  We have a great theater at the
university near here that accommodates traveling Broadway groups.  I never
hear my tinnitus when I am wrapped up in the magic of live theater!  :)

Eva
Eric J. Scharer - 16 Jul 2006 21:52 GMT
Dr. Grossman wrote:

>> I believe you might find listening to Broadway musicals more effective in
>> distracting from tinnitus.
[quoted text clipped - 4 lines]
>
> Eva

   Dr. Grossman, why do you recommend Broadway musicals?
   I assume you mean listening to them on an MP-3 player.

   Eva, I am 59 years old and have gone to probably over a hundred
   concerts. I just don't go anymore, I can't expose myself to excessive
   noise. Yes, even with earplugs, I won't take  the risk.

   Eric
Eva Quesnell - 16 Jul 2006 22:10 GMT
> Dr. Grossman wrote:
>>>>
[quoted text clipped - 15 lines]
>
>    Eric

I couldn't listen to any live music when I first started with tinnitus and
hyperacusis.  As time passed, I found that the quality of the sound made a
big difference.  If it's at all tinny, I can't stand it.  The theater
where I attend these shows has the most wonderful sound system.  I think
I've built up a tolerance, perhaps, over the years.  It has been almost
12 years since my tinnitus began.  But you have to do what's right for
you.

Eva
fyfpoon@gmail.com - 22 Jul 2006 12:47 GMT
Read all my posts...

============================
> hi.ive just stumbled across this group,an thought i would share my
> story-more out of frustration than anything else.
[quoted text clipped - 20 lines]
> thanks,
>   marrer

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