Medical Forum / Diseases and Disorders / Tinnitus / July 2006
hello...from a newbie
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marrer - 09 Jul 2006 00:14 GMT hi.ive just stumbled across this group,an thought i would share my story-more out of frustration than anything else. i have been suffering from tinnitus for about 18months,a constant high pitched buzz/whistle. this sometimes escalates to the point of being unbearable within a minute,then subsides as quickly as it came. it sometimes feels as if my ears are "outside" my head (if this makes sense) as if they are away from me listening to a sound emanating from where they should be?sounds daft,i know, but it is difficult to put an alien sensation into words. i work in a noisy environment,using earplugs for around 7.5 hours a day,and for around 3 years i worked in an excessively noisy environment.i am in no doubt that this is the cause, but after seeing my gp and having 2 tests in the hospital,there is no diagnosis! my hearing,although i cannnot folow a conversation when more than one person is talking, is fine according to the N.H.S.....AND THATS IT! i am now in limbo,with just the noise to deal with alone .no help.
i find myself drinking more as a means to get off to sleep and i feel quite isolated.i feel like i am at a dead end,with no finish in sight.
any tips on coping or masking this problem would be gratefully recieved
thanks, marrer
Joe Sterling - 09 Jul 2006 04:46 GMT > hi.ive just stumbled across this group,an thought i would share my > story-more out of frustration than anything else. [quoted text clipped - 20 lines] > thanks, > marrer Marrer
To begin with, please know that you are not alone. Tinnitus is common, Many people share your experience and there are ways to cope.
The first thing I would do is to make sure you can get a good night's sleep. Background sound helps me, and if that is not sufficient, you should ask your GP for sleeping medication.
The next thing I would recommend is to do what you can to reduce your emotional reaction to the tinnitus. There is a natural process of habituation whereby the nervous system will adjust to the tinnitus so that it does not seem so loud and disturbing. For this process to take place, you need to do what you can to reduce your emotional feelings about it. There is an excellent web site that describes the mechanism of habituation and what you can do to help it along: www.tinnitus.org. This process can take a long time, but it is one that happens naturally. Some people take much longer than others, but it can happen for you, as it does for most of us. You need to understand that the tinnitus is harmless, meaningless and not a cause for concern. That is extremely difficult to do for many of us, but the web site does tell you how to approach it from the context of what tinnitus really is. It's worth looking at.
Any kind of relaxation exercises that you can do are worth trying. Deep breathing, meditation, etc. Also, avoiding completely quiet environments (which does not seem to be a problem for you at work :-), is helpful. Music that you like, played softly, white noise, and/or a sound machine (like Brookstone's Quite Moments) can be very helpful.
Finally, I would say you need to keep busy, to the extent you can, doing things you enjoy. Even if you feel that your enjoyment is badly dampened by the tinnitus, do them anyway. On the other hand, sometimes it may seem impossible to do anything, impossible NOT to dwell on it, and in those cases, do not feel badly. You will get better at this as time passes. Time is on your side.
Eighteen months is a long time over which to suffer from this aggravating and depressing problem, but it can get better if you can relax and allow more time to pass while getting on with your life as best you can. Easier said than done, I know. But it can and will happen for you. Don't give up.
Good luck.
Joe
marrer - 09 Jul 2006 14:01 GMT >>hi.ive just stumbled across this group,an thought i would share my >>story-more out of frustration than anything else. [quoted text clipped - 67 lines] > > Joe thanks joe,it was a great help just stumbling across this group! it is a help knowing i am not alone. i have tried the background noise thing,to try and mask the tinitus (we normally have a baby listner going!)and it does help a little.the worst thing for me has been the lack of a definate diagnoses,it is like the medical profession are backing away because there are no obvious symptoms.i had an audiogram,and it showed no major hearing loss,but if it had,i got the impression there would have been a bit more the doctors could have done. i will look at that website and see if anything on there helps,thanks for taking the time to reply to my post.
:) Eva Quesnell - 09 Jul 2006 18:45 GMT > hi.ive just stumbled across this group,an thought i would share my > story-more out of frustration than anything else. [quoted text clipped - 5 lines] > should be?sounds daft,i know, but it is difficult to put an alien sensation > into words. Yes, I understand completely what you are saying here. It is hard to explain to someone who doesn't have tinnitus what it's like to have this strange sound in your head.
> i work in a noisy environment,using earplugs for around 7.5 hours a day,and > for around 3 years i worked in an excessively noisy environment.i am in no > doubt that this is the cause, but after seeing my gp and having 2 tests in > the hospital,there is no diagnosis! I'm sure also that the loud environment has caused this damage to your ears. Many people who work around loud machinery end up with tinnitus. I would suggest something more than just earplugs. I wish I knew a source, but I bet you could google some industrial ear protection that should keep you from suffering further damage. It is difficult for doctors to diagnose the cause of tinnitus. I'm afraid that their diagnosis would simply be "noise damage." Myself -- I can't take wearing earplugs for too long, or I feel "trapped" inside my head with the noise.
> my hearing,although i cannnot folow a conversation when more than one person > is talking, is fine according to the N.H.S.....AND THATS IT! > i am now in limbo,with just the noise to deal with alone .no help. Yes, I have the same problem. Restaurants are particularly distressing with so many conversations buzzing around you. I find myself saying "huh?" a lot.
> i find myself drinking more as a means to get off to sleep and i feel quite > isolated.i feel like i am at a dead end,with no finish in sight. I dunno if drinking will really help. Some people find that it does, but I don't tolerate alcohol well. Please know that you are not alone, and we are all here to help you. There are some real good folks in here who know a lot more about it than I do. You might find some help by asking your doctor about the occasional sleeping pill. Getting a good night's sleep is very important.
Relaxation is also very good. It sounds too simple, but a lot of us can't really totally relax and need some help with that. I often listen to self-hypnosis tapes that slowly and gently ease your body into a relaxed state.
> any tips on coping or masking this problem would be gratefully recieved > > thanks, > marrer I've not had luck with masking, but my problem is differnt from yours. My tinnitus comes from a disease called Meniere's. It took many, many tests to determine I had this condition.
When you find yourself wanting to scream because the noise in your head is so bothersome and frightening, get in the shower and let the water wash over your head. This helps me relax, and I can't hear the tinnitus when the water is pouring on my head. It's only a temporary relief, but it's better than nothing.
Another thing that helps is your attitude. Try to realize that the tinnitus is not going to cause any damage to you -- I know it hurts and it's distressing, but it really won't hurt you. Try to focus on things you enjoy doing, and let the tinnitus go to the back of your mind.
I hope this is of some help to you. Please come back and tell us how you're doing. Do check out the industrial ear protection. I think it's important for you. I've been dealing with this since October 4, 1994. It came out of the blue for me. And I'm still alive! Good luck and bless your heart. We do understand.
Eva
marrer - 09 Jul 2006 22:43 GMT >> hi.ive just stumbled across this group,an thought i would share my >> story-more out of frustration than anything else. [quoted text clipped - 75 lines] > > Eva thanks eva! just fining this group has been a relief,its good to know i am not alone. the noise isnt painfull ,just on the odd occasion when i get a "screaming peak" as i call them-this tends to happen at work .if i go for a brak and remove my ear plugs for 10 mins or so,when i put them back in,the noise rapidly escalates in intensity and volume to the point where it is both painfull and debillitating ( knocks me right off balance!) but this almost always starts and finishes within a minute or two,with a noticable rise in the tinitus that will gradually fade during the shift. the worst thing about this condition for me at present is the feeling of inevitability,that there is nothing to make it better,just ways of coping. looking at the site joe pointed me to,it sounds like i may suffer from symptoms of Hyperacusis also,and i will mention this to my gp next time i visit.
again,thanks for your reply it is good to know i am not alone!
Eric J. Scharer - 11 Jul 2006 00:33 GMT Marrer, I agree with Joe regarding playing music on an MP-3 level at low volumes for 2 to 4 hours a day. I find that classical music works well for me. In laymans terms, the goal is to get the brain to be exposed to wide variety of frequencies. After a period of time the limbic system will place less importance on the T or at least not consider it a "threat".
Eric
Murray Grossan - 15 Jul 2006 17:55 GMT On 7/10/06 4:33 PM, in article 12b5oua5jrujlc0@corp.supernews.com, "Eric J. Scharer" <scharer@directcon.net> wrote:
> Marrer, I agree with Joe regarding playing music on an MP-3 level at low > volumes for 2 to 4 hours a day. I find that classical music works well for [quoted text clipped - 4 lines] > > Eric I believe you might find listening to Broadway musicals more effective in distracting from tinnitus.
Eva Quesnell - 15 Jul 2006 19:13 GMT > On 7/10/06 4:33 PM, in article 12b5oua5jrujlc0@corp.supernews.com, "Eric J. > Scharer" <scharer@directcon.net> wrote: [quoted text clipped - 10 lines] > I believe you might find listening to Broadway musicals more effective in > distracting from tinnitus. Wow, I can sure agree with that. We have a great theater at the university near here that accommodates traveling Broadway groups. I never hear my tinnitus when I am wrapped up in the magic of live theater! :)
Eva
Eric J. Scharer - 16 Jul 2006 21:52 GMT Dr. Grossman wrote:
>> I believe you might find listening to Broadway musicals more effective in >> distracting from tinnitus. [quoted text clipped - 4 lines] > > Eva Dr. Grossman, why do you recommend Broadway musicals? I assume you mean listening to them on an MP-3 player.
Eva, I am 59 years old and have gone to probably over a hundred concerts. I just don't go anymore, I can't expose myself to excessive noise. Yes, even with earplugs, I won't take the risk.
Eric
Eva Quesnell - 16 Jul 2006 22:10 GMT > Dr. Grossman wrote: >>>> [quoted text clipped - 15 lines] > > Eric I couldn't listen to any live music when I first started with tinnitus and hyperacusis. As time passed, I found that the quality of the sound made a big difference. If it's at all tinny, I can't stand it. The theater where I attend these shows has the most wonderful sound system. I think I've built up a tolerance, perhaps, over the years. It has been almost 12 years since my tinnitus began. But you have to do what's right for you.
Eva
fyfpoon@gmail.com - 22 Jul 2006 12:47 GMT Read all my posts...
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> hi.ive just stumbled across this group,an thought i would share my > story-more out of frustration than anything else. [quoted text clipped - 20 lines] > thanks, > marrer
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