Home | Contact Us | FAQ | Search & Site Map | Link to Us
Sign In | Join | Other 45 Sites in Network
Home
Discussion Groups
General
GeneralCardiologyVisionDentistryPharmacyLaboratoryNutritionAlternative
Diseases and Disorders
AIDSAlzheimer'sArthritisAsthmaCancerBreast CancerDiabetesEpilepsyGlaucomaHepatitisHerpesLupusProstate BPHProstate CancerProstatitisSinusitisTinnitus

Medical Forum / Diseases and Disorders / Tinnitus / May 2006

Tip: Looking for answers? Try searching our database.

Online Tinnitus Survey

Thread view: 
Enable EMail Alerts  Start New Thread
Thread rating: 
jga.socal - 20 May 2006 19:48 GMT
Anyone know of an online T survey?
Look at the simple online survey at http://www.healthsurvey.org.  This
survey concerns the health benefits of running.  The survey appears to
be hosted by an unbiased party.

If T people were to partipate in a T-specific online survey regarding
the cause and symptoms of their T, maybe even comment on their
treatments & results, and the survey results were available online for
browsing, I would find that extremely useful. Wouldnt you?

Just wondering.
Jim
fyfpoon@gmail.com - 21 May 2006 05:44 GMT
Yes, Jim, it is extremely useful but do something in addition to
talking abou it.

Go for a hot spring soaking and see how it works out.
jga.socal - 22 May 2006 05:00 GMT
No thanks, I'd turn into a prune.  'cides, I have a hot tub in my back
yard.

Regarding the survey, the best thing that could be done at this point
is to talk about it. Someone mentioned how T symptoms can change almost
by the minute.  So, the survey may have to take on the aspects of a
journal.
What questions would the survey have for the new respondant?  This
becomes the respondants baseline.  What is likely cause?  What is the
volume of T? What is the pitch of T?  How long have had?  Etc...
The respondant would then need to become a journalist as they
periodically post new experiences with their T.  For instance, Mr.
Poons 'T' journal may have numerous entries due to all the changes in
his T over the years as he tried treatments.  My own journal would only
have a couple entries because my T hasnt changed much.  I'd have an
entry for my expirement with T-Gone.  The journal would be event
oriented. You'd want to create an entry to report on an expirement with
a new treament or remedy, or, there was a change in your baseline T
data.
Of course, everyones jounal would be anonymous unless they wanted to
divulge their identity.  However, the jounal database would be open to
browsing and data mining by anyone registered in the system. Getting a
clear picture as to what has worked, and not worked, for others may
very well help you find something that will work for you.  The journal
database would not offer any conclusions, it would simply help the user
in drawing their own.
I realize this idea may not sit well with the highly regimented
scientific establishment, but it's really all about people just trying
to help people by sharing their stories. I dont think anyones stories
with their T are pointless, biased and not worth sharing.  A century
ago, undistracted by radio and then TV, people used to spend much more
time sharing stories with their families and neighbors.  This was often
the most effective medicine. Family remedies and treatments for various
ailments were passed along, to everyones benefit.  Things that did not
work simply were not passed on for long. T is one of those ailments
that needs people to keep passing on what they know, what has worked
for them.  The medical establishment is stumped. I feel that the more
stories that can be journaled, the better. Let the reader make sense of
the data.   Just talking.
Jim
jga.socal - 25 May 2006 03:13 GMT
Over at a Yahoo! Groups, http://health.groups.yahoo.com/group/Tinnitus
A graduate student, Melinda S. Morgan from Carleton University, Canada,
has just asked the group to undertake an internet based survey about
their experiences with Tinnitus. She is a MS candidate in the Dept of
Pyschology.
She has had T since she was a teenager. I see no reason why she would
not like to invite ppl in this ng. I will ask her to post an invitation
here.

She was kind enough to publish in the 'files' section of the Yahoo!
group, a paper she did in her undergraduate work on Tinnitus. It is
good reading, focusing on the 'positive attitude' aspects of
successfully dealing with T.  Her current survey will be a follow-up on
her previous work.  What I'd like to mention here is that, in the
Psychology sciences, internet based surveys have become accepted and
even embraced.  Here is a quote from Melinda's 2002 paper.

"Other potential limitations relevant to the use of an Internet based
survey include the limited type of data available and the
sample characteristics. For instance, we were not able to directly
assess tinnitus severity using state of the art acoustic instruments.
Nor were we in a position to obtain behavioral data on coping.
Although the demographic and general characteristics of a sample
that is obtained online versus in the community may at first appear
as an issue regarding the Internet sampling method, we see it as a
potential strength because of the diverse sample of people the
study was able to include. Some had had tinnitus for less than 6
months, whereas others reported that they had had tinnitus for
more than 50 years. Some were from communities without access
to necessary specialists. In fact, the sheer size of the sample that
we obtained is one of this study's strengths because it gave us the
power to detect interaction effects. With respect to our study, we
concur with Krantz and Dalal (2000), who have shown that not
only do Internet studies tend to draw larger samples than those
obtained from the community but that these samples are also more
heterogeneous and in this sense may be more representative than
their community-based counterparts."

The reference to John Krantz is here:
Krantz, J. H., & Dalal, R. (2000). Validity of Web-based psychological
research. In M. H. Birnbaum (Ed.), Psychological experiments on the
Internet. San Diego: Academic Press.

Research led me to his website at the University of Hanover.
http://psych.hanover.edu/research/exponnet.html
This website contains dozens, if not hundreds, of ongoing and completed
surveys on various topics.

In addition, here is a link to a page describing a very informative
book by Edited by Michael H. Birnbaum, "Psychological Experiments on
the Internet". Check out all the links at the bottom of the page.

Regards,
Jim

Rate this thread:






 
Sign In
Join
My Latest Posts
My Monitored Threads
My Blog
My Photo Gallery
My Profile
My Homepage

Start New Thread
Enable EMail Alerts
Rate this Thread



©2008 Advenet LLC   Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.