Medical Forum / Diseases and Disorders / Tinnitus / November 2005
testing for eustachian tube problems?
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adamghost - 03 Oct 2005 21:49 GMT Long time reader, first time poster:
I've been suffering from various ear-related symptoms, including a peculiar form of tinnitus (partly reactive and possibly objective -- at least one person claims to have heard it when it was particularly loud), for the last 4 1/2 months. I've tried various treatments including decongestants, but the only one that seems to be working for certain is my own immune system.
I was diagnosed with eustachian tube dysfunction by the gang at House Ear Clinic in L.A. where I live, but the symptoms seem to be more indicative of a eustachian tube that wouldn't close properly. Because I've had to live with this and have tried actively to get well, I've also cataloged the symptoms pretty well, but all I get for my trouble from the docs is the implication that I'm a hypocondriac!
The symptoms -- which include autophony, (formerly severe, now mild) hyperacusis at certain frequencies, distortion of some incoming sound (but not all the time), tinnitus that tracks inward and outward sound (it's more like the sound of a speaker with a faulty wire -- sometimes white noise, static, or "tingle"), a sensation of the eardrum being too "loose" and moving too easily, reactive pressure and muscle tension in the head to sound, ear pain, and constant clicking in the affected ear.
Oddly, after about two months I started having ETD symptoms in the other ear too, though not nearly as bad.
I don't think hearing damage is a likely culprit because all the symptoms clearly fluctuate and seemed to be related to the state of the eustachian tube. There are times the ear is almost normal. I first caught on to the possibility of the patulous eustachian tube when wearing earplugs and noticed the sound was reverberating inside my head on the affected side, and the sensation of sound passing directly from the nose to the ear.
On the other hand, I haven't had much in the way of hearing my own breath or blood sounds, which are two hallmarks of the patent eustachian tube. And sometimes things do feel blocked in there.
So here's my dillemma: I do believe this thing will go away eventually, because it has been slowly improving over time, but it's really been a pain in the neck to live with, and I'd like to hasten the recovery, but I don't have a solid diagnosis of this thing.
None of the ENTs I have seen have done any kind of testing other than a standard hearing test (which was normal). What I would like is to get some other tests, specifically on the eardrum, because I am absolutely positive that the eardrum is not reacting normally to incoming sound. That way I can take the results back to an ENT and have some sort of a benchmark for further treatment and not get at pat on the head. It's clear that there's a eustachian tube problem, but the treatment for a blocked ET or one that's open are completely different.
I'm scheduled to have a typanometry done and a few other tests, but I'm concerned about the effect of it on the hyperacutic ear. The noise sensitivity is now pretty mild, but still, I was wondering if anyone knew of any audiologists in the Los Angeles area that specialized in this kind of testing, and would be sensitive to the problems with hyperacusis-tinnitus sufferers, or had any suggestions otherwise for treatment?
Elly Byrne - 04 Oct 2005 21:15 GMT Why not go here and see if anything resonates with you. http://eebee.net/TinnitusIsaPainintheNeck.shtml
Elly's Tinnitus Resources http://eebee.net/
>Long time reader, first time poster: > [quoted text clipped - 56 lines] >hyperacusis-tinnitus sufferers, or had any suggestions otherwise for >treatment? John - 05 Oct 2005 00:53 GMT Hi Adamghost
Let me guess,, have you had any isolated ticklish pain in the top or sides of your head, now or in the past ? Any numbness in the surface of the head or ear ? Or one ear feels hotter than the other .
It would seem to me that Eustachian Tube Dysfunction, simply means, one thats not working properly. Which would include your self description of the tube not closing properly. The E.Tube is normally closed and only opens when you swallow.
Read my reply to How I got Tinnitus -- Part 2 9/24/2005 Foriegn compounds getting into the Eustachian can cause all the symptoms you decsribe. They can affect the suppleness of the tube and the eardrum, so they are no longer pliant. Or in the case of the eardrum can lose it's tension and becomes a slack drum. Hopefully over time, (2-3 years) your immune system will repair the damage, as long as you are no longer exposed to the offending environment ... . . . ... I am not one of medical knowledge, and there are many other factors that could cause a loss of suppleness to the Eustachian tube and the eardrum. I only speak from my own time frame and experience ... . . . ...
John. T ^^^^^^^^^^^^^
> Long time reader, first time poster: > [quoted text clipped - 4 lines] > including decongestants, but the only one that seems to be working for > certain is my own immune system. adamghost - 10 Oct 2005 19:07 GMT John...thanks so much for the reply.
Your experience does not seem to relate to mine very much...the onset of the problem isn't much of a mystery...there were probably factors of allergy, an infection, dehydration, an ET prone to patency and the use of in-ear headphones messing with the pressure in my head, any one of which can make problems happen.
What DOES sound on point, though, is the "slack drum." This is EXACTLY what it feels like has happened (probably in addition to the ET problem), but I have not been able to find anything on the internet about such a condition...that's one of the reasons I want to have the typanometry done, to be able to quantify an abnormality and basically force an ENT to acknowledge there's something physically abnormal happening.
Do you (or anyone else) have any information about the condition of lost tension in the eardrum? I would like to know more about it, if only to identify environmental factors that could slow recovery. As I said, it does seem to be healing on its own, but painfully slowly (although I don't think it will take 2 years).
adam
> Hi Adamghost > [quoted text clipped - 34 lines] > > including decongestants, but the only one that seems to be working for > > certain is my own immune system. adamghost - 15 Oct 2005 03:02 GMT Went to the audiologist today and at long last had a typanometry done, and he said that the affected eardrum was so slack that they couldn't even do the test. What a relief to finally have some quantifiable evidence of something wrong as opposed to patronizing and clueless attitudes from doctors. Not really sure if there's much I can do but wait it out (although I've got a follow-up appointment at House in two weeks). The ET function test also suggested that I was right about the abormally patent tube. He found all kinds of things wrong with the ET on both sides and summed it up as "crazy stuff going on in your middle ear."
Why none of the doctors bothered to do a typmanometry, I'll never know. If it's this slack now, God knows how bad it was three months ago.
If anyone has any info on treatment for (or even things to avoid while recovering from) slack eardrum with probably patulous eustachian tube, I'd appreciate hearing it! adam
> John...thanks so much for the reply. > [quoted text clipped - 58 lines] > > > including decongestants, but the only one that seems to be working for > > > certain is my own immune system. Doc-Accumulator - 07 Nov 2005 04:10 GMT Adamghost, hello, I found your postings when searching for information on Patulous Eustachian Tube ( http://www.medkb.com/Uwe/ForumPost.aspx?article=tinnitus:1570:1128372592.278932. 168720%40g43g2000cwa.googlegroups.com ). You write with a clarity that made me decide to A) ask you about one bias that I have regarding a possible etiological factor, and B) to offer in return some possible approaches that I am recommending to a friend who has the condition. I myself have occasional episodes of auditory distortion.
A) First, can you write about how much exposure you have had to heavy metals such as mercury, lead and aluminum? My experience in the last 20 years is that mercury dental fillings have been an unsuspected contributor to health stresses, so I am always curious about how much exposure a person may have had prior to developing chronic, often-puzzling health conditions.
Mercury causes bacterial mutation in the intestines, and there is a biofilm in the mouth that is mentioned on the AltCorp website (ref. Boyd Haley: http://www.altcorp.com/AffinityLaboratory/oraltoxtest.htm ). Mercury had been cited as an instigator of auto-immune processes (ref. Hal Huggins: www.DrHuggins.com).
B) The considerations I am discussing with my friend for his Patulous Eustachian Tube are: 1. Decreasing body burden of mercury. He has had his mercury fillings replaced recently. He will take steps with a medical doctor and naturopathic physician to reduce the mercury level in his tissues. 2. Intestinal probiotics to replenish the "good" bacteria: acidophilus and bifidus. 3. Hydration of the tissues by two methods: i. Intake of purified water with added electrolytes. ii. Daily use of a Hyaluronic Acid supplement (such as Synthovial 7 from www.Hyalogic.com). 4. "Slack" tissues, and prolapse of tissues is found in a condition identified by Traditional Chinese Medicine as "Spleen Chi Deficiency". In western medicine terms the function of the spleen is closely related to the stomach and digestion. This would lead to considering the benefits of either a TCM herbal to treat Spleen Chi Deficiency ( http://web1.incl.ne.jp/ishikawa/PET/ ), or a western natural medicine approach to improve digestion such as betaine hydrochloride, or digestive enzymes, or stimulation of acupoints ST36 and SP6. 5. Electrostimulation with the Biomodulator (a "SCENAR" technology device) may help to improve tissue tone by re-educating the muscle fibers in the area, this is the FDA approved purpose of the device; I own one, it is available from www.sEnergyMedicalGroup.com. 6. The association with prior weight loss may be important; weight gain needs to be done carefully, using organic foods; some writers favor a more primitive diet such as the Weston A Price Foundation (www.westonaprice.org).
AdamGhost, I rarely visit bulletin boards because of the challenges dealing with desperate people who have been trained to look for the correct drug or surgery for the correct diagnostic label. The things I will explore with my friend as mentioned above may be worthwhile for you to discuss with your health care professional. Because I am a graduate of Bastyr University ( www.Bastyr.edu), a four-year naturopathic medical school, I feel good in recommending you locate a graduate of one of that kind of school and asking about these possible options for helping Patulous Eustachian Tube. Keep looking, the answers are out there.
>Went to the audiologist today and at long last had a typanometry done, >and he said that the affected eardrum was so slack that they couldn't [quoted text clipped - 20 lines] >> > > including decongestants, but the only one that seems to be working for >> > > certain is my own immune system.
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