> x-no-archive: yes
>> Have you had any other symptoms or illnesses besides the rash and
> tinnitus?
[quoted text clipped - 9 lines]
> things get better. My symptoms got worse due to bacterial die off, then
> better as I stayed on doxy longer.
Back in February or so the dermatologist put me on doxycycline.
Both the rashes and sores (mostly around the ankles) and the ear ringing
came about a few months after, when hiking, I had a lot of bites from what I
took to be chiggers.
I did find one tick on me that day, but it hadn't bitten yet, and as far as
I know, I didn't have any tick bites. Certainly I haven't had the
ring-shaped rashes.
The itching spread to my upper body after the general physican put me on
methylpred, so it seems like I had a reaction to the steroid.
The frustration I've had is my general physician seemed to want to treat the
skin problems and the ear ringing as two unconnected things, and I'm not
convinced that's the case.
Various goops from the dermatologist have kept the skin problems relatively
at bay, but the ear ringing persists.
I've gone to an Ear Nose and Throat doctor, which in my opinion was a waste
of time. He told me I had a deviated septum, blockage in my ears (he told
me to take Sudafed), and, oh yeah, possibly sleep apnia.... none of
which he felt were causes for the ears ringing.
Since I don't see tinnitus as a usual sleep apnia symptom, and since I don't
think I have sleep apnia, I haven't pursued the rather expensive sleep
study. Frankly, I felt that the ENT, unable to come up with a reason for
the ringing ears, was being like a car mechanic who finds everything but
what's causing the clanking noise when you bring your car in.
He eventually sent me to get an MRI, which, from the radiologist's report,
was very alarming, but a followup to a neurologist, he felt everything was
fine on the MRI and the radiologist was an alarmist.
Frankly, I'm sort of stuck on a next step.... I feel to return to my
general physician is just going to end up with me be sent to the wrong
specialists,and more expensive and ultimately useless tests.
Susan - 21 Sep 2005 21:39 GMT
> Back in February or so the dermatologist put me on doxycycline.
>
[quoted text clipped - 5 lines]
> I know, I didn't have any tick bites. Certainly I haven't had the
> ring-shaped rashes.
The vaccine trials proved that ring shaped rashes are the *least* common
among those that cultured positive. There were streaks, rectangles,
clusters of vesicles... few bullseyes. Most with TBD never see the tick
or the rash.
> The itching spread to my upper body after the general physican put me on
> methylpred, so it seems like I had a reaction to the steroid.
It's more likely that the steroid suppressed your immune system,
allowing the tick borne infection to spread.
> The frustration I've had is my general physician seemed to want to treat the
> skin problems and the ear ringing as two unconnected things, and I'm not
> convinced that's the case.
I'd bet my last dollar that it's neuroborreliosis. I don't know of many
folks with disseminated Lyme who don't get tinnitus.
> Various goops from the dermatologist have kept the skin problems relatively
> at bay, but the ear ringing persists.
The ringing will be the least of your problems if an undiagnosed TBD
goes untreated.
> I've gone to an Ear Nose and Throat doctor, which in my opinion was a waste
> of time. He told me I had a deviated septum, blockage in my ears (he told
[quoted text clipped - 14 lines]
> general physician is just going to end up with me be sent to the wrong
> specialists,and more expensive and ultimately useless tests.
Did you tell any of them that the rash and ringing began after having
tick exposure and multiple bug bites with rash? In my area, that would
get you antibiotics for a month from any knowledgable doctor, without
waiting for a blood test.
Susan