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Medical Forum / Diseases and Disorders / Tinnitus / September 2005

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My story

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TWCrew - 30 Aug 2005 05:26 GMT
I'm not sure where to begin...

In July of 04, my uncle moved in with us when he was diagnosed with lung
cancer.  It was a very stressful time.  I changed jobs, we had to move
my mom and him into a new apartment, and he passed away in January.  In
March we bought a house, and in the first week of April we moved in.  It
should have been the end of a very stressful time.  And in many ways it
was.  But health-wise, it wasn't.

March was spent fighting severe allergies, an allergy infection, and
frequent headaches... mostly from the dust and general crud of moving,
packing, boxes, storage units, etc.  The first week of April was the
beginning of intense, daily headaches... almost migraine in nature.  By
the middle of April I was sent for an MRI and during that scan was when
I felt pain in my ears and became aware of the "ringing" (for lack of a
better word... but it sounds like more the hum of high voltage power lines).

I was referred to a neurologist for the headaches, who told me to
"meditate and see Jesus on my forehead" (that is not a joke).  He also
told me that he was against medications.  I left his office in tears.
My family doctor sent me to an ENT for the ears, and he found nothing
(no infection, no water, no hearing loss).  He told me to come back in
three months if the noise was still bothering me.

After struggling on my own, and ending up in the ER a few times, I broke
down and entrusted myself to another neurologist.  I was very grateful
that he didn't mention meditation, Jesus, or an aversion to medications
(I mean, that's like a therapist being against talking about emotions...
isn't it?!?!).  He tried me on Pamelor daily, and Midrin as needed.  The
headaches and tinnitus were getting worse, and I was getting more
depressed.  I was missing 1 to 2 days a week of work.  He did another
exam and noticed swelling in my optic nerve and referred me to an
opthamologist.  The opthamologist said she didn't notice swelling, but
that there might be signs of increased intracranial pressure.  Next came
the two hour spinal tap ordeal.  My reading for pressure came out right
at the dividing line between normal and abnormal.  So the neurologist
changed me to Topamax daily and Ultracet as needed, to help with the
headaches (Topamax has supposedly also been used successfully with
people with intracranial hypertension).

Anyway... I'm now waiting to see if the Topamax is going to work...
while I eat 8 Ultracets a day and try to keep up enough productivity at
work to hopefully not get fired.  I'm wondering if something in the new
house is making me sick.  I can't imagine that it's stress, since so
much stress was already ended (quit awful job in July, finished MS
degree in July, got new job in Aug).

There have been days that I've been really close to being suicidal.  The
noise is so intense at night.  I've always had a fan running in the
room.  Now I've added an air filter (in case it's the new carpet or
something else in the house).  And when that's still not enough, I have
a thunderstorm on my MP3 player.  I still haven't found headphones or
earbuds that are comfortable to sleep with (I'm a side sleeper).

So, that's my story... constant headache and nonstop tinnitus in both
ears since April.  No firm diagnosis, but some interesting docs along
the way...

Selah
fyfpoon@gmail.com - 30 Aug 2005 05:35 GMT
Oftentimes it is difficult to find the cause of t but it seems to be
you have been stressed out, and in the process have had your nerve
damaged.

Why not move to a simpler house and learn to relax?  Visit a massager
every other day for a couple of weeks and see if things calm down.
TWCrew - 31 Aug 2005 04:33 GMT
> Oftentimes it is difficult to find the cause of t but it seems to be
> you have been stressed out, and in the process have had your nerve
> damaged.
>
> Why not move to a simpler house and learn to relax?  Visit a massager
> every other day for a couple of weeks and see if things calm down.

What constitutes a "simpler house"?

I have cut a lot of stress out of my life, and have changed some things
to be less stressfull (such as new location for job to cut down commute).  
My husband sees a massage therapist for lymphedema massage three times a
week.  She has been kind enough to work on my head, neck, and shoulders
a few times.  It has felt nice, but has not relieved my headaches or
tinnitus.  I do use hotpacks on my shoulders and neck when I feel tensed
muscles back there, but sometimes they are caused in reaction to the
headache and not prior to the headache.  My mom and I have just found a
place that does hot rock therapy for $35/hour, and that sounds kind of
neat... so we're going to do that as a pampering weekend treat soon.

Selah
Murray Grossan - 30 Aug 2005 06:43 GMT
On 8/29/05 9:26 PM, in article
c7-dnZ2dnZ1TSVyfnZ2dnWNCjt6dnZ2dRVn-zZ2dnZ0@comcast.com, "TWCrew"
<twcrew@2multiples.com> wrote:

> I'm not sure where to begin...
>
[quoted text clipped - 55 lines]
>
> Selah
Dear Selah,
Its not unusual to have nasal congestion when you are moving, packing, etc
with all the dust. Also new rugs - formaldehyde. Ask your doctor about using
a cortisone or Astelin spray to see if that helps your headaches. That's
won't cure everything of course, but might reduce your symptoms.
TWCrew - 31 Aug 2005 04:29 GMT
> Dear Selah,
> Its not unusual to have nasal congestion when you are moving, packing,
> etc with all the dust. Also new rugs - formaldehyde. Ask your doctor
> about using a cortisone or Astelin spray to see if that helps your
> headaches. That's won't cure everything of course, but might reduce
> your symptoms.

Is there a way to test formaldehyde levels?  We have just purchased an
air purifier for the bedroom, in case that was an issue.  I was using
Nasacort and Flonase when the allergies were acting up, and they made a
big difference.

Selah
Elly Byrne - 30 Aug 2005 21:15 GMT
You have certainly had a lot of stress in your life lately. Have your
allergies died down now?

Tinnitus, earpain, headaches, stress, the thought of an MRI can become
a stress in itself.

Try looking here first and see if anything resonates.
http://eebee.net/earpain.shtml

Have you been able to reduce the stress at all?  It has almost
certainly left you with very tight muscles all over your body.

Elly's Tinnitus Resources
http://eebee.net/

>I'm not sure where to begin...
>
[quoted text clipped - 55 lines]
>
>Selah
TWCrew - 31 Aug 2005 00:57 GMT
> You have certainly had a lot of stress in your life lately. Have your
> allergies died down now?

Yes, the allergies died down as soon as the move was over and most of
the boxes were gone (about mid April).

> Have you been able to reduce the stress at all?  It has almost
> certainly left you with very tight muscles all over your body.

Except for the last month of intense stress related to the increasing
pain, tinnitus, and frustration with nothing working.... the stress has
been greatly reduced.  I love my job, and just got transfered to an
office much closer to home.  I love my new home, and it's costing about
the same as apartment living, so that's been less stress too since our
apartment was being increased $50 - $100 each year!  My mom has been
doing well since the death of her brother, which was a major concern for
me.  She just got a promotion at work, which was a nice surprise.  I've
got a new boss which I like much better (or click better with) than my
previous boss).  I mean, I'm wracking my brain here and the only stress
I can find *is* the headache and tinnitus!

There isn't much in the way of ear pain.  They've flushed the out,
peeked inside, tested them.  Everything looks good.  I have had a
massage therapist work on my neck, scalp, shoulders, and TMJ areas...
which has helped reduced trigger points that are already tensed up from
the headaches... but the work hasn't helped reduce the headaches
themselves.  I've used all kinds of things on my neck and back to help
muscle tension... but it appears to be tension forming as the body tries
to guard after the headache has already started.  *shrug*  Still feels
nice to have heat on the shoulders after a long day in the car... so
it'll stay on my list of pampering things to do.

One thing I am starting to notice in the past few days is that the
tinnitus is worse on the side of the head that I lay down on... where it
used to be about the same in both ears, no matter what position.  So,
I'm still thinking it's something fluid-related... but no one can seem
to find it.  But from other past medical problems, that's about par for
me.... they don't find problems until something blows up or falls off.

Thanks for your input, and the referral to the website.

Selah
J Willis - 31 Aug 2005 23:40 GMT
Hello Selah,

Sorry to hear of the circumstances prior to the onset of your Tinnitus and
also that you are now experiencing it regularly. I have had Tinnitus for 9
years and like you have it in both ears.When it at its loudest it is as if
the noise extends outside my head, all around I can hear it.Of course this
is metaphorically speaking for Tinnitus is a noise inside an individual's
head.

Like you I have seen ENT Specialists and tried various things including
relaxation exercises that I found helpful. However, over the 9 years I have
found certain things that I believe has made my Tinnitus more tolerable, and
you might like to try some of them and perhaps you might get some relieve
to.

Tinnitus Retraining Therapy. Also known as TRT. Involves wearing a Tinnitus
Masker in the ear. Sometimes it is called:  White Noise Generator. This
needs to be worn for upto 18months and beyond. TRT helps to retrain the
brain to get used white noise. Your brain never had to cope with Tinnitus
before, so this strange new sound will take time for your brain to get used
to it. In many cases TRT helps the brain to get used the tinnitus and thus
it not so intrusive on our lives. If you decided to try TRT you need to be
referred to an ENT and Hearing Therapist and they will work out a plan for
often you should wear your Masker. TRT is also very good for Hyperacusis
which is sensitivity to sound. With the onset of tinnitus people are usually
hypertensive to certain sounds, washing up the dishes for instance can
induce pain in the ear when cutlery happen to touch! My Hyperacusis
diminished dramatically thanks to TRT, and now I don't experience it at all.

Ginkgo Biloba. This increases blood circulation to the ears and body
extremities and I'm sure you've heard of it.

ST John's Wort   A natural herb available from herbal stores and a good
alternative to antidepressants. Often tinnitus will make a person depressed.

Er Long Zuo O Wan   This is a Chinese herb that specifically treats tinnitus
and it has helped me. Available from good Chinese herbal stores.

I know you use a fan at nights and it is important not to be in a room that
is quiet as your brain will tend to focus on the tinnitus. Also consider a
radio or sound generating machine.

In many cases Tinnitus cannot be cured (sorry to sound so sobering) but as I
said I have found my condition more tolerable using the above.

Best of luck

JM Willis
almostthere@telus.net - 01 Sep 2005 06:16 GMT
I have been using Sony over the ear MDR 201 headphones sleeping on my
side with a very soft pillow (like the kind that are in hotels).   The
white noise CD from www.noiserelief.com has worked well for me.   Also
use the sleep sound generator available from that site.  Normally
sleeping 7 hours straight through.
P T - 04 Sep 2005 15:48 GMT
TWCrew wrote

>... while I eat 8 Ultracets a day...

Just so you know what you've gotten into . . . I've heard that if you
take Ultracet on a prolonged, regular basis, if you stop, you may feel
terrible for a few days.
TWCrew - 04 Sep 2005 18:04 GMT
> TWCrew wrote
>
[quoted text clipped - 3 lines]
> take Ultracet on a prolonged, regular basis, if you stop, you may feel
> terrible for a few days.

Yup... going through that now ;-)  Horrible rebound headaches and
general hung over feeling.  Last time I'll ever take Ultracet!

Selah
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IM ME! No, really, you can find me at Yahoo (TWCDesign),
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Murray Grossan - 04 Sep 2005 22:56 GMT
On 9/4/05 7:48 AM, in article
6286-431B0938-696@storefull-3131.bay.webtv.net, "P T"
<Petepenguin@webtv.net> wrote:

> Just so you know what you've gotten into . . . I've heard that if you
> take Ultracet on a prolonged, regular basis, if you stop, you may feel
> terrible for a few days.
Define Prolonged basis?
This is a very commonly used product because of the lack of complications,
addiction, side effects.  
TWCrew - 05 Sep 2005 02:53 GMT
> On 9/4/05 7:48 AM, in article
> 6286-431B0938-696@storefull-3131.bay.webtv.net, "P T"
[quoted text clipped - 6 lines]
> This is a very commonly used product because of the lack of
> complications, addiction, side effects.  

I was on 6 - 8 Ultracets a day for about 12 - 15 days, and it was enough
to cause serious withdrawal symptoms that are now going on day 4.  
Everyone's mileage may vary.

Selah
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IM ME! No, really, you can find me at Yahoo (TWCDesign),
AIM & MSN (TWCrew), and ICQ (21684653).
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