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Medical Forum / Diseases and Disorders / Tinnitus / July 2005

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Hi! I am desperate!

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daguma - 05 Jul 2005 00:57 GMT
Hello!
I live in Costa Rica and I suffer Tinitus. I am desperate and I need to
find something that helps me at least to reduce this annoying sound. I
have read stuff and i see there´s no cure, but i need something. I am
taking drugs to sleep but i don´t want to become a addicted. If
somebody can tell me something that are not drugs or medicines, I am
listening!
Thanks everybody
Jim Chinnis - 05 Jul 2005 03:52 GMT
"daguma" <daguma2@gmail.com> wrote in part:

>Hello!
>I live in Costa Rica and I suffer Tinitus. I am desperate and I need to
[quoted text clipped - 4 lines]
>listening!
>Thanks everybody

You didn't say what caused your tinnitus. But in almost all cases
there is no way to reduce the sound at present. But most people
get much, much better over time and come not to notice it much.
Avoiding silence can help. Use some sound for sleeping so that you
don't focus on the tinnitus.
Signature

Jim Chinnis / Warrenton, Virginia, USA
Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG

athena - 05 Jul 2005 05:23 GMT
Hi daguma,
    Hope it eases off soon for you.  This is what i used
when mine first started.   The free programs are on the
left side of this web page:

http://www.relaxingsoftware.com/tinmaskerhome.htm

I made some CD's to sleep by also.  put them in my
walkman on repeat all night.
   Good Luck to You,
          athena
--

> "daguma" <daguma2@gmail.com> wrote in part:
>
[quoted text clipped - 15 lines]
> Jim Chinnis / Warrenton, Virginia, USA
> Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG
fyfpoon@gmail.com - 09 Jul 2005 19:50 GMT
> "daguma" <daguma2@gmail.com> wrote in part:
>
[quoted text clipped - 12 lines]
> Avoiding silence can help. Use some sound for sleeping so that you
> don't focus on the tinnitus.

Jim, you never seem to have mentioned the possibility of a pinched
nerve being the cause of T.  NO?

> --
> Jim Chinnis / Warrenton, Virginia, USA
> Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG
Brian K - 05 Jul 2005 18:41 GMT
> Hello!
> I live in Costa Rica and I suffer Tinitus. I am desperate and I need to
[quoted text clipped - 4 lines]
> listening!
> Thanks everybody

The first thing you need to do is find out if there is a specific
medical condition causing your tinnitus. It could be due to an ear,
sinus or tooth infection. It could be due to a pinched nerve or other
neck and spine problems. It could even be a rare type of benign tumor
of the inner ear that can cause permanent damage. First see an Ear,
Nose and Throat doctor. Try to find one that is familiar with tinnitus.
Do this to eliminate some of the possibilities listed above. Do not, in
my unprofessional opinion, get on a drug regimen. Because if he can't
find anything medically wrong with you for him to cure, then he will be
left with only being able to treat the symptom with drugs.

Now, that having been said, I know just how you feel. I have been
there. The worst part about tinnitus is that feeling of desperation,
which for me at times led to outright panic. It's that effect that
tinnitus has on us that makes it so bad. It's not the sound that's
bad per se, it's the effect that it has. When I fist got tinnitus I
thought for sure that it would eventually drive me insane. Now, about
10 weeks later, I still have it (my ears are screaming pretty good as I
type this as a matter of fact) but... I'm no longer being driven
crazy by it. A lot of the time today I haven't even noticed it was
there. Okay, so what is my secret? Well, its called "habituation".
This is a method in which you "retrain your brain" as to how it
reacts to the tinnitus; the desperation find some sort of relief. You
can find out a lot about this by typing "Jastreboff Model" into
your internet search engine, or by going to: www.tinnitus.org

The way the brain reacts to tinnitus is sort of like a really bad
pollen allergy; something harmless is preconceived as a severe threat.
Once you read about how tinnitus effects the mind, which leads to
unnecessary distress, you'll learn about the concept of letting
tinnitus become part of your life rather than something that's
perceived as an unwanted invasion. Then you can actually over a period
of time, fail to be bothered by it most of the time. If you (and your
doctors) can not find a specific curable medical reason for your
tinnitus (which is usually the case), then give habituation a sincere
try. As a matter of fact, you can start putting it into practice right
away while you're seeking out any possible medical causes. The
Jastreboff method, also called Tinnitus Retraining Therapy or more
commonly, habituation, has worked wonders for me. And I didn't have
to go to a clinic or see a specialist to achieve it. I simply
researched how it works, accepted the concept (this is vital) and then
put it into practice. I use no drugs, no herbs, no supplements and no
devises (except a white noise generator while sleeping, which I used
even before getting tinnitus to block outside noises as I'm a light
sleeper). Be careful of those telling you to take this or that, because
I've found out that just about every "remedy" carries one type of
side effect or another. I used to take Zinc supplements as one of many
examples, until I found out that too much Zinc causes copper
deficiencies. Each drug, each supplement, used to treat tinnitus,
usually carries some sort of side effect with it. Some of witch can be
serious or even downright dangerous.

Please let us know how you're progressing.
Murray Grossan - 05 Jul 2005 20:12 GMT
On 7/5/05 10:41 AM, in article
1120585263.979165.226760@g14g2000cwa.googlegroups.com, "Brian K"
<bluestucco@hotmail.com> wrote:

>> Hello!
>> I live in Costa Rica and I suffer Tinitus. I am desperate and I need to
[quoted text clipped - 58 lines]
>
> Please let us know how you're progressing.

Brian is right of course.
Another approach, once the medical cause is ruled out, is called cognitive .
You are wired so that sounds in the night - lion's roar - are recognized as
danger so you can get up and climb the tree . That rush of adrenalin helps
you climb faster.
For the initial new tinnitus, the tinnitus is recognized - cognitive - as a
bad, a danger, a lion. At some point, if your body learns that it is not a
bad, not a danger, there will be less "adrenalin" and finally no
reinforcement.
The police get Tinnitus. /they tell "old joe" about it and he laughs and
assures them everyone gets it and just "forget it". So, even though they
have it, they don't recognize it as a bad. If you can recognize your
tinnitus as "not a bad" then the systemic "adrenalin" effect will cease and
you will be like the police officer with T, its there but not worth thinking
about. That's a form of cognitive therapy - re recognize that it is not a
bad.
Brian K - 05 Jul 2005 23:11 GMT
> Brian is right of course.
> Another approach, once the medical cause is ruled out, is called cognitive .
[quoted text clipped - 12 lines]
> about. That's a form of cognitive therapy - re recognize that it is not a
> bad.

I remember reading your "old Joe" analogy during the first desperate
week my tinnitus  manifested, and it really put the whole concept into
a nutshell for me. What's really amazing is that not only is my
tinnitus no longer something that I perceive as bad, I've actually
managed to grow somewhat fond of it. Mine is the kind that goes away
once in a while, only to return full force (like today). I think the
reason why I feel a certain fondness for it now, is because it's
something that I've vanquished, it's a once roaring lion that's
been domesticated. Jastreboff's analogy of perceiving it as the
"music of the brain" adds to this. It's not an intruding sound
like the neighbor's stereo plying too loud, or someone's car alarm
going off anymore. It is MY sound, it's a part of who I am. Instead
of hearing something like a screaming tea kettle or a jet turbine, now
I hear something more like the trilling of cicadas on a warm summer
night. ...Maybe it actually drove me to insanity after all ; )
fyfpoon@gmail.com - 06 Jul 2005 19:36 GMT
> Hello!
> I live in Costa Rica and I suffer Tinitus. I am desperate and I need to
[quoted text clipped - 4 lines]
> listening!
> Thanks everybody

You can listen to all the advices but eventually it is you that suffers
and no one else.

So consider the following steps:
(1)check with an ENT and see if anything is wrong with your ear.
(2)if (1) turns out to be negative, you then proceed to try the
following.
(3)visit a chiro and have your spine relaxed.  mind you, you may have
to visit him once a week for a few weeks before you feel the effect.
so give it a min of 4 treatments before considering a stop.
(4)take a tablet of ginkgo biloba and observe it for a couple of weeks
and see if anything ticks.
(5)take a tablet of betahistine AFTER  dinner daily.

Stay on the above program for at least 3 months.  Habituation is coming
to you as a result of your having no other choices, but is going to be
made easier if only the sound, but no other symptoms, is being
experienced.

FP
Brian K - 07 Jul 2005 16:47 GMT
> (4)take a tablet of ginkgo biloba and observe it for a couple of weeks
> and see if anything ticks.
> (5)take a tablet of betahistine AFTER  dinner daily.

But, do some research regarding ginkgo biloba first, as this seems to
be a very controversial supplement which comes in numerous varieties
and has had reported side effects including causing bleeding. And do
some research on betahistine as well, whatever that is. Consult with
your physician and or a certified nutritionist before experimenting
with various over the counter medications and supplements.

> Stay on the above program for at least 3 months. Habituation is coming
> to you as a result of your having no other choices, but is going to be
> made easier if only the sound, but no other symptoms, is being
> experienced.

In my opinion the practice of habituation should begin at once. I
don't see how or why someone should view tinnitus as something
horrible that one must attempt to remedy utilizing any and all methods,
and then several months of this try accepting it as something
innocuous. Those who are candidates for habituation should be able to
adapt to it quickly and smoothly. If not, only then should one start
taking extreme measures. I wish that I had given habituation just a
little more time before running out and purchasing numerous remedies
suggested in this newsgroup. The more research I did into these
seemingly harmless remedies, the more I found out how much potential
harm they can cause when not taken in the correct dosages and
combinations and what all their individual potential side effects are
etc, etc, etc...
fyfpoon@gmail.com - 07 Jul 2005 18:18 GMT
Brian K wrote:"Consult with your physician and or a certified
nutritionist before experimenting
with various over the counter medications and supplements. "

They were recommended to me by doctors.  I have been taking one gingko
daily and experienced NO bleeding.  I think the 'controlled'
experiments done on ginkgo has its limitations and as such should be
not taken as gospel truth.

Brian wrote:"In my opinion the practice of habituation should begin at
once."

I think anyone who experiences tinnitus should _immediately_ seek
medical treatment unless the medical people do not know what to do
themselves. It does appear that most doctors don't know what to do,
according to the patients' complaints here.  Since they are ignorant of
what to do, they recommend habituation as the only alternative.
Brian K - 08 Jul 2005 18:48 GMT
> Brian K wrote:"Consult with your physician and or a certified
> nutritionist before experimenting
[quoted text clipped - 4 lines]
> experiments done on ginkgo has its limitations and as such should be
> not taken as gospel truth.

Exactly, one should always consult with a doctor first before taking
anything. Ginko works wonders for a lot of people. It might work really
good for my T as well, but I have this rare hereditary condition which
could lead to internal bleeding if I took it. My ENT also was ready to
prescribe ginko, fortunately I had read about the possible side effect
of bleeding and told him about my condition, he changed his mind pretty
quickly. I worry about desperate newbies (like I was myself 10 weeks
ago) running out and grabbing up bottles of ginko, niacin, whatever
etc. and then finding out too late that it caused serious side effects
for them personally. Instead, I think they should give habituation a
try right away after having studied it thoroughly. After three or four
weeks into my habituation, I realized that for me taking remedies was
absolutely pointless.

> Brian wrote:"In my opinion the practice of habituation should begin at
> once."
[quoted text clipped - 4 lines]
> according to the patients' complaints here.  Since they are ignorant of
> what to do, they recommend habituation as the only alternative.

Yes, they should immediately seek a medical examination to eliminate
the possibilities of infections, tumors et al. Once it's been
determined that they have none of the above, there's really nothing
left for the doctors to treat at that point except for the symptom
itself. However, if one is able to habituate right away as I was, and
many others have as well, then the symptom is no longer something that
needs to be treated.
If one can not achieve habituation, then they should start pursuing
other avenues such as chiropractic, acupuncture, hypnosis, various
supplements as prescribed by a physician or a certified nutritionist
and as a last resort, various drugs (like xanax) prescribed by a
physician.

My advice will always be to any new sufferer, to try habituation before
trying anything else. It has no side effects and it's free. It's
also a good way of determining if maybe something unchecked is wrong if
they can't achieve habituation, such as a pinched nerve for instance.
The fact that I was able to take to habituation so smoothly, gave me
reassurance that in all likelihood there wasn't any underlying
medical condition causing or exacerbating my T that the doctors missed.
My ENT and GP concurred. Now I could continue seeking out various
treatments and remedies, but it seems like that would be a complete
waste of time and money at this point since I'm not bothered by my T
90% of the time now. And that's only after approximately 10 weeks of
habituation. A year from now I'll probably have to be reminded of
what tinnitus is and that I have it. It's amazing that something that
started out as an absolute nightmare has become something that I hardly
notice anymore. And when I do occasionally notice it, I'm not bothered
by it.
fyfpoon@gmail.com - 08 Jul 2005 21:55 GMT
snipped...
It's also a good way of determining if maybe something unchecked is
wrong >if they can't achieve habituation, such as a pinched nerve for
instance.

This is the *most* scientifically precise statement I have ever read in
this ng.

About one and a half year ago, I was describing my symptoms and how I
was unable to habituate.  NOT a single doctor ever mentioned the
possibility of a 'pinched nerve'.  It was until by accident that I ran
into an acupuncturist here in Vancouver who took care of my pinched
nerve, and then my t subsided and I have been able to habituate ever
since.

The doctors in alt are from the most pretigious schools in the US.  Dr.
Nagler, for example, is the president of the ATA.  He is from a
pretigious school and suffers from tinnitus himself.  All the time he
lectured harshly on me for not 'habituating' was the time I was
describing to him the symptoms that used to bother me.  He could not
even tell what was wrong! Why?  Well, perhaps in the domain of tinnitus
liternature these doctors studied in US medical schools, there was no
mentioning of a pinched nerve being capable of causing tinnitus.  For
these high-tech people to step out of their professional domain and
explore into the world of chiropractic and acupuncture is as
embarassing and hard to do as for them to take off their pants in the
public.  THEY ARE DOGMATIC PEOPLE BY TRAINING!

FP

> The fact that I was able to take to habituation so smoothly, gave me
> reassurance that in all likelihood there wasn't any underlying
[quoted text clipped - 8 lines]
> notice anymore. And when I do occasionally notice it, I'm not bothered
> by it.
 
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