Medical Forum / Diseases and Disorders / Tinnitus / June 2005
Wasting one's time on a Thursday afternoon :)
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Ben - 19 May 2005 20:08 GMT Much as I love our NHS here in the UK it can drive one even crazier at times! I mentioned T being a real nuisance to me to an audiology worker when she took the impressions of my ears for aids back in January. She told me that I must get referred to the Tinnitus Clinic by my GP - fair enough, except I had visited my GP earlier that same day! However, my GP was quite happy to refer me with a 'phone call from me requesting that. Eventually, I got my hearing aids, and today I went to see the consultant at ENT. Besides telling me about tinnitus, which I knew already, he washed out my right ear as he thought I has a bit of wax in it [first time in my life!] and then told me he would refer me to audiology who deal with tinnitus! Blimey! I feel like a yo-yo! I did ask him how long I might have to wait [again - sigh] and he said he would try and get me in as soon as possible due to me feeling suicidal this year. So, after 5 months nearly someone *might* be taking a bit of notice of how I am feeling, but I do wonder how quick my Tinnitus Clinic [which I thought I was attending today] appointment will be. Anyone know if cyanide pills are available on the web? :))
Elly - I tried explaining that my T goes away if I lie on my left side, and could it be muscular-related, but was ignored. I have hearing loss, so that is why I have tinnitus, apparently, yet he told me that *anyone* can get it. Had it been my partner, whose hearing is fine, then maybe he would have listened?
Ben<whose T has been more than tolerable today, even after a very stressful day!>
Elly Byrne - 19 May 2005 21:17 GMT >Elly - I tried explaining that my T goes away if I lie on my left side, and >could it be muscular-related, but was ignored. I have hearing loss, so that >is why I have tinnitus, apparently, yet he told me that *anyone* can get it. >Had it been my partner, whose hearing is fine, then maybe he would have >listened? There were other people answering your questions, and my replies seem to be ignored too, so I give up.
Yes. I think it is most definitely muscular related.
Did you have hearing loss before you had tinnitus. Is there another reason for it?
People who have hearing loss along with tinnitus can be helped. But it takes self help. In that case - when the tinnitus improves so will the hearing loss. But most people want a quick fix
But fixing the muscular problems will help. Do you have jaw problems as well? They can be fixed.
How is the posture? It usually needs attention.
Please read http://eebee.net/TinnitusIsaPainintheNeck.shtml and the rest of the website. There is a lot of information there.
Elly's Tinnitus Resources http://eebee.net/
Ben - 19 May 2005 22:04 GMT > There were other people answering your questions, and my replies seem > to be ignored too, so I give up. PLEASE don't give up on anyone on here Elly! I honestly do believe that there are so many different types of T that one simple solution will never be possible.
> Yes. I think it is most definitely muscular related. I am pretty sure it is, or at least, relieving some of the tension would definitely help. There *has* to be a good reason why my T goes quiet when I lie on my left side about 98% of the time? I just wish someone would listen
:(
> Did you have hearing loss before you had tinnitus. Is there another > reason for it? I don't really know to be honest. The T seemed to appear from nowhere, though I suppose I had been a bit stressed after Christmas '90 and BA degree finals coming up that year. Due to me being so scared when I had the T I even called the GP out to my home! Eventually, it was discovered I had some hearing loss at a high-pitch, so it has always been assumed that it was that that caused the tinnitus too.
> People who have hearing loss along with tinnitus can be helped. But it > takes self help. In that case - when the tinnitus improves so will > the hearing loss. But most people want a quick fix I don't mind trying anything, except a denial of it not being there when it is. I will be printing out most of your website tomorrow and checking as much of it as I can!
> But fixing the muscular problems will help. Do you have jaw problems > as well? They can be fixed. I am a jaw clencher. I do try and relax my jaw muscles as much as possible, but then find I am clenching again. I don't have TMJ - no pain, or other symptoms of that, or teeth grinding, but really need to relax my jaw muscles. I also think I stick my jaw out too much.
> How is the posture? It usually needs attention. A sloucher! I keep trying to remember to sit correctly, but often fail, I have just bought a new high-backed chair which I am finding helps me sit better when watching TV, so that is helping.
Oh well, when I get to the Tinnitus Clinic, one day, I will definitely want to know WHY the T goes quiet when I lie on my left side, because to me, there just has to be a reason for that, and it is about time someone in the profession listened?
Thanks for you help and encouragement.
Ben
Elly Byrne - 20 May 2005 21:26 GMT Hi Ben,
> There *has* to be a good reason why my T goes quiet when I >lie on my left side about 98% of the time? I just wish someone would listen I am listening even though nobody else is. The T goes goes quiet because somewhere in your body a muscle is more at ease than it was before.
> Eventually, it was discovered I had >some hearing loss at a high-pitch, so it has always been assumed that it was >that that caused the tinnitus too. Is your tinnitus at a high pitch also? There is a possibility that the hearing loss did not actually cause the tinnitus - but many people with tinnitus have hearing loss at the same time and at the same pitch as the tinnitus. When the tinnitus is eased so will the hearing loss.
>I am a jaw clencher. I do try and relax my jaw muscles as much as possible, >but then find I am clenching again. The problem is not the jaw muscles themselves. The tension originates somewhere else and then affects the jaw muscles. But it shows there is a lot of tension in your body.
>> How is the posture? It usually needs attention. >A sloucher! A Lot of your problems are there. The body can absorb a lot of misuse. Then one day something sends it over the edge. It is not the last thing that needs fixing - it is the whole body.
>Oh well, when I get to the Tinnitus Clinic, one day, I will definitely want >to know WHY the T goes quiet when I lie on my left side, The tinnitus clinic will have no idea. They do not subscribe to the muscle tension theory. They will suggest some kind of sound therapy most likely.' ' Go and have a massage somewhere! That will ease some of the tension. It will also confirm to you that there is indeed tension. That is not the whole answer - it is just the first step.
Tinnitus is pain in the neck. Elly's Tinnitus Resources http://eebee.net/
>> There were other people answering your questions, and my replies seem >> to be ignored too, so I give up. [quoted text clipped - 50 lines] > >Ben Brian K - 23 May 2005 17:31 GMT > I don't mind trying anything, except a denial of it not being there when it > is. No Ben, habituation is not a matter of denial. It is a matter of indifference, of apathy. Over the weekend my ringing completely disappeared, now it's back and I don't care. It meant nothing to me that it went away, and it means nothing to me now that it's back. That's why I fail to notice it most of the time now. I don't know why I'm still hanging out here, I doubt I'll be dialing up this group much longer... YAWN.
Brian
Ben - 23 May 2005 21:22 GMT I realy don't know why you were on here at all then? You certainly don't need support if you couldn't care less about the racket. I simply find it almost impossible to believe that your T went away, then came back, and you didn't mind! Blimey! Are you Saint Brian, or something? :O
Ben
> > I don't mind trying anything, except a denial of it not being there > when it [quoted text clipped - 11 lines] > > Brian Brian K - 25 May 2005 19:18 GMT I realy don't know why you were on here at all then? You certainly don't need support if you couldn't care less about the racket. I simply find it almost impossible to believe [As Yoda would say; "That's why you fail".] that your T went away, then came back, and you didn't mind! Blimey! Are you Saint Brian, or something? :O --- I came here at first seeking information and remedies regarding tinnitus, most of which I found in the Google archives and links provided by subscribers. As I've stated in other threads, I was at first extremely distressed over my tinnitus and was quite sure that it would eventually drive me insane. Fortunately for me, I happened to already have a prescription for Xanax for occasional anxiety attacks, which I finally took due to enormous distress caused by the tinnitus. What Xanax did for me, was to give me an emotionally detached feeling regarding the ringing. It was there, but due to the inhibitors provided by the Xanax, I was basically incapable of being distressed by it. I remember saying to myself; "Now if only I could accomplish this same detached feeling on my own..." With all my archive digging and link clicking, I found out that the concept of habituation would let me achieve that very thing. When reading about the concept of habituation one author stated that there were those who would find it completely unbelievable that one could accept the ringing as part of ones environment and therefore something that could go unnoticed; just like the refrigerator running, the air conditioner or heater blowing, the wind rushing/howling, trains, planes, automobiles going by etc. I however, having already experienced a detached interest regarding my tinnitus with the help of chemicals, and already wanting to be able to do so on my own, was quite able and willing to accept the concept of habituation and put it into practice.
When I woke up that day with absolutely zero ringing, I of course began to feel both elated and relieved. But then I said to myself "don't you dare". I knew from my understanding of habituation both through research and having a personal grasp of the concept, that I needed to remain steady regarding my reaction/attitude toward my tinnitus at all times, quiet or noisy. There's nothing magical or saintly about any of this, simply the willingness to accept a concept that works. I'm still here in AST these days more to offer support, than to gain it. I'm not just writing about my discoveries and experiences for your benefit, but for the benefit of anyone else who is reading this either now, or via an archive sometime in the future. Also, as I'm still a relative newbie, I find writing my experiences out to be somewhat cathartic. Even though I've come a long ways, I'm not completely out of the woods yet, I still have my moments. But I know that I'll eventually forget that I have tinnitus, and therefore I'll forget about lurking and occasionally posting here. It will simply no longer be a subject that I have any personal interest in.
Remember that tinnitus is a psycho-neurological phenomenon. There isn't a whole lot that I can do about the neurological part (the actual ringing), the psycho part however (the way I perceive/react to the ringing), can be dealt with by way of accepting and putting into practice the concept of habituation. Right now as I write this, if I pay attention to them, I can hear my computer fan running, the household fan running, birds chirping, traffic off in the distance, the radio playing gently, and my tinnitus.
Brain
fyfpoon@hotmail.com - 21 May 2005 18:40 GMT > Elly - I tried explaining that my T goes away if I lie on my left side, and > could it be muscular-related, but was ignored. Yes, with reference to my own experience, it 'could be' muscle-related or what is called 'somatic tinnitus'. I went through it myself. Mind you, muscle tension can come from many sources. Mine was from a pinched nerve in my spine.
You might want to try out what I tried out. (1)visit a chiropractor to have your spine relaxed once a week. (2)use a lower pillow to help your head blood circulation. Talk to the chiro on the best kind of pillow to be used. (3)make sure you sit up right when you are doing the PC work. Prolonged bending of the neck in front of a computer can do it to you.
Try the above for a couple of weeks and see if you experience anything. Then check out a good acupuncturist and go for a treatment and see how you feel afterwards.
You can do it on your own for the above. It will still take you a while before you could 'heal'. So be patient. In the meanwhile, take the following medicine: (1)one tablet of gingko biloba each morning (2)one tablet of betahistine AFTER dinner
Both of the above med can be purchased OTC in Hong Kong. I took both of them and I experienced no side effect. They were prescribed to me by a Cambridge doc. Both are meant to help out with your circulation in the head. Talk to the doc about it. It looks your doctors have not been of much help.
FP
I have hearing loss, so that
> is why I have tinnitus, apparently, yet he told me that *anyone* can get it. > Had it been my partner, whose hearing is fine, then maybe he would have > listened? > > Ben<whose T has been more than tolerable today, even after a very stressful > day!> jmc - 21 May 2005 20:11 GMT Suddenly, without warning, Ben exclaimed (5/19/2005 8:10 PM):
> Much as I love our NHS here in the UK it can drive one even crazier at > times! Ah, there's your problem right there! I'm an American living here in the UK. I love it here, but I gotta tell you, NHS sucks. Yea, it's free, but as far as I can see, you get what you pay for.
Months to get an appt at the hospital to get a potentially serious condition investigated (3 months one time, 5 the next)? Aargh. The capper: I went to my GP and asked about my almost-crippling headaches, mentioned that they'd been previously diagnosed as probably being tension, due to 'nonspecific soft tissue damage' in my shoulders and neck (I fell off of horses a lot when I was young and immortal), but I'd read recently that some migraines are sometimes mis-diagnosed as tension...
I was told take three ibupropen (which US doctors say don't take, interferes with my BP meds - yes the UK BP knows this). If it helps at all, it's migraine, if it doesn't, it's tension. Wait, it gets worse.
When I asked what I can do to help a tension headache (since nothing OTC touches it), I was told, 'relax!'. Well, DUH! Tension in my shoulders isn't related to how relaxed I am elsewhere, mentally or physically.
Anyway,to stay on topic: No, my neck problems are not the source of my tinnitus, I've had it longer than the neck issues. I would have thought it contributes, but it isn't reactive with a flare-up in problems - for instance, I got a muscle spasm on the side of my neck earlier today, on the same side as my T, but the T hasn't changed at all - still quiet enough I can't hear it over the music playing on my PC. But my neck certainly hurts...
When we get back to the US, there's an excellent chiro there that I'll definitely go see this time, and may look into acupuncture as well.
jmc
William Nunn - 01 Jun 2005 11:52 GMT > Suddenly, without warning, Ben exclaimed (5/19/2005 8:10 PM): >> Much as I love our NHS here in the UK it can drive one even crazier at [quoted text clipped - 32 lines] > > jmc jmc the NHS sucks, I agree.
Ben - 04 Jun 2005 21:09 GMT >> jmc the NHS sucks, I agree. Everything sucks regarding tinnitus, because like the common cold, nothing can be done - excpet the cold usually goes away, and mostly T stays!
Ben
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