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Medical Forum / Diseases and Disorders / Tinnitus / December 2004

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Is this normal?

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Jennifer Bell - 07 Dec 2004 04:35 GMT
Is it normal for T to get progressivley worse? I have had mine for 2 years
the noises have worsened and the hearing going down and still going
lower......I haven't got menieres. (so neurologist says)
All this to makes me anxious for what lays ahead, with the hearing
diminishing the way it is, and the T worsening.

Jenny
Simon Brightwell - 07 Dec 2004 06:06 GMT
> Is it normal for T to get progressivley worse? I have had mine for 2 years
> the noises have worsened and the hearing going down and still going
[quoted text clipped - 3 lines]
>
> Jenny

Jenny,

Although I honestly don't know, I don't think it's normal, BUT  I do NOT
think you have any reason to be anxious. I know it's easy for me to say from
here, but please try and focus on the fact it might also get better. Try not
to think so far ahead as your anxiety, whilst fully understandable, is not
actually helping your T. I believe you will be fine, and no matter how you
feel you will cope. In fact if you do want to look ahead, the longer you
have T the better you are at dealing with it. Keep positive, Jenny.

Please don't take this is a personal attack on you, but I am just tying to
help you stay positive.

All the best,
Simon.
Jennifer Bell - 07 Dec 2004 06:27 GMT
Hi Simon, don't worry I am still positive and the kids are noticing that Im
not complaining about my ears half as much as before.

It's just that I still have this underlying fear, (because I know a few ppl
with T and none of theirs is like mine) that there is something causing
mine, like an acoustic neuroma, considering all the health problems I am
having along with my T. ( I know they are not all caused by anxiety, I have
had anxiety since I was 17..and that's 20 years ago) even though my MRI
which I had done 5 months after this started was clear...anyway I can voice
all these fears I guess on Thursday when I go to have my tinnitus
assessment....I will let you know how it goes..and don't sorry about me
taking what you write as a personal attack, I don't..I can tell your a nice
person.
I am owever in the process of "trying" to give up smoking, so if my posts
start getting a tad touchier..you'll know why.

Thanks for your input Simon.

Jenny

Simon Brightwell wrote in message
<41b5484d$0$45969$a344fe98@news.euronet.nl>...

>> Is it normal for T to get progressivley worse? I have had mine for 2 years
>> the noises have worsened and the hearing going down and still going
[quoted text clipped - 19 lines]
>All the best,
>Simon.
Simon Brightwell - 07 Dec 2004 20:17 GMT
> Hi Simon, don't worry I am still positive and the kids are noticing that
> Im
> not complaining about my ears half as much as before.

Excellent!

> It's just that I still have this underlying fear, (because I know a few
> ppl
[quoted text clipped - 7 lines]
> all these fears I guess on Thursday when I go to have my tinnitus
> assessment....I will let you know how it goes.

Excellent!

> I am however in the process of "trying" to give up smoking,

Fantastic!

> Thanks for your input Simon.

Any time.

Take care,
Simon.
hvas456@Aol.com - 07 Dec 2004 06:26 GMT
> Is it normal for T to get progressivley worse? I have had mine for 2 years
> the noises have worsened and the hearing going down and still going
[quoted text clipped - 3 lines]
>
> Jenny

Jenny,  if you dont mind, how old are you?
How is your hearing?  Have you had are recent hearing test?

Larry
Jennifer Bell - 07 Dec 2004 06:29 GMT
Im 38 on Friday, my first hearing test after the T was slightly down, my
2cnd hearing test about 11 months later was slightly better, but the got me
on a good da..it fluctuates...I have it tested again on Thursday.
hvas456@Aol.com wrote in message
<1102400815.564826.3860@z14g2000cwz.googlegroups.com>...

>> Is it normal for T to get progressivley worse? I have had mine for 2
>years
[quoted text clipped - 9 lines]
>
>Larry
Jim Chinnis - 07 Dec 2004 16:48 GMT
"Jennifer Bell" <starwood@iprimus.com.au> wrote in part:

>my first hearing test after the T was slightly down, my
>2cnd hearing test about 11 months later was slightly better, but the got me
>on a good da..it fluctuates...I have it tested again on Thursday.

Mine has fluctuated that way for almost 15 years with no worsening of hearing
or tinnitus. After one test on a bad day, my neurotologist (incredibly)
diagnosed AIED (autoimmune inner ear disease); a later test showed normal
hearing.

Fluctuating hearing is sometimes associated with endolymphatic hydrops. But
I'm not sure that knowing that is much help!
Signature

Jim Chinnis / Warrenton, Virginia, USA
Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG

Jennifer Bell - 08 Dec 2004 00:09 GMT
endolymphatic hydrops is menieres disease?

My neurologist said I havent got that.

Jim Chinnis wrote in message ...
>"Jennifer Bell" <starwood@iprimus.com.au> wrote in part:
>
[quoted text clipped - 12 lines]
>Jim Chinnis / Warrenton, Virginia, USA
>Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG
Jim Chinnis - 08 Dec 2004 03:21 GMT
"Jennifer Bell" <starwood@iprimus.com.au> wrote in part:

>endolymphatic hydrops is menieres disease?
>
[quoted text clipped - 19 lines]
>>Jim Chinnis / Warrenton, Virginia, USA
>>Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG

Well, your neurologist could be right or wrong. But, no, endolymphatic hydrops
is not Meniere's disease. Idiopathic endolymphatic hydrops is Meniere's
disease. There are other forms of endolymphatic hydrops, and they are milder
than Meniere's disease.
Signature

Jim Chinnis / Warrenton, Virginia, USA
Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG

Jennifer Bell - 08 Dec 2004 04:26 GMT
ok..well my 2cns ENT thought I had mild mnieres disease.
Jim Chinnis wrote in message ...
>"Jennifer Bell" <starwood@iprimus.com.au> wrote in part:
>
[quoted text clipped - 29 lines]
>Jim Chinnis / Warrenton, Virginia, USA
>Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG
Jennifer Bell - 08 Dec 2004 11:58 GMT
would you believe tomorrow I am going for my tinnitus assessment, and I have
hardly noticed my T in a week. they'll say tinnitus, what
tinnitus..lol..then as soon as I get home....RRRRRRrrrringgggg.
>ok..well my 2cns ENT thought I had mild mnieres disease.
>Jim Chinnis wrote in message ...
[quoted text clipped - 34 lines]
>>Jim Chinnis / Warrenton, Virginia, USA
>>Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG
snap_crackle_pop - 08 Dec 2004 12:34 GMT
> would you believe tomorrow I am going for my tinnitus assessment, and I have
> hardly noticed my T in a week. they'll say tinnitus, what
> tinnitus..lol..then as soon as I get home....RRRRRRrrrringgggg.

I consider this a success story, Jenny.  When you get home
and hear the RRRRRRrrrringgggg, don't answer it.  :-)

I'm interested in what this "tinnitus assessment" entails,
as I've never had one myself.  My doctors have merely
questioned me briefly and dismissed my complaint, feigning
ignorance and/or indifference, depending on their mood.  If
you would, could you share the experience with us?  I feel
like I'm from California.  How many Californians does it
take to screw in a lightbulb?  Five, one to screw in the
bulb, and four to share the experience.  :-)

Best wishes,

scp
Jennifer Bell - 08 Dec 2004 12:46 GMT
well I dont really know what the tinnitus test entails yet, ut ti think they
measure the frequency of my T etc find out the best ways to mask it and how
much hearing loss there is blah blah..... I too, up till now has been
dismissed by DR'S...will be quite exciting to know that someone is actually
acknowledging that I have noises in my ear and they want to know more about
them..Im ready to spill the beans!!

I will fill you all in tomorrow night.

seeya !!

Jenny

snap_crackle_pop wrote in message ...

>> would you believe tomorrow I am going for my tinnitus assessment, and I have
>> hardly noticed my T in a week. they'll say tinnitus, what
[quoted text clipped - 15 lines]
>
>scp
Oregon7 - 18 Dec 2004 06:58 GMT
There are many forms of Meiniere's, ones that do not include vertigo........

MJ

Look under pseudo-meniere's  
 
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