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Medical Forum / Diseases and Disorders / Tinnitus / August 2007patulous eustachian tube
Hi to everyone. I also have PET, and I know how unbearable it can be. But I want to tell you that I have found a cure that works for me!It is a product you can buy from a place in California....but I know these sites have rules, and I'm not sure what I can say. Does anyone know if we can list a phone number (so the rest of you can order this?)It's nothing short of a miracle -- it is a nose drop that stops the PET symptoms within 2 minutes and lasts almost all day. I got the info on it from Dr. Poe, in Boston.I began using it 2 weeks ago, and I feel like a new person. The wierd thing is that no one else seems to know about it. Someone tell me what I'm allowed to say, and I'll gladly give you the info I got!! ~LynneR~ It is perfectly fine for you to give the name of the product youj are using and any infromation you care to give. Glad you are helped. Murray Grossan, M.D. http://www.ent-consult.com > It is perfectly fine for you to give the name of the product youj are using and > any infromation you care to give. Glad you are helped. > Murray Grossan, M.D. > http://www.ent-consult.com Some proprietary "treatments" are held closely secret as you know and seem to be trying to discourage. This person probably had to sign their life away just to take the treatment. BUT KNOW ONE WILL HARM THEM BY CONFIDING WITH AN ANONYMOUS HANDLE. (statement for patient) GWY I totally disagree that one shouldn't tell of his success or failure with a "proprietary " product. Anyone here can tell that they were helped , whether by voodoo doll or extract of beetle juice. Frankly, I often pick up good ideas here myself. a healer may be getting fabulous results with some unique treatment, but unless he can do a full clinical study, it doesn't get published. There is a lot of serendipity in medicine. Once upon a time Lithium was just another paint product, now its used for serious mental illness. Keep the information coming. Murray Grossan, M.D. http://www.ent-consult.com > I totally disagree that one shouldn't tell of his success or failure with a > "proprietary " product. Anyone here can tell that they were helped , whether by [quoted text clipped - 7 lines] > Murray Grossan, M.D. > http://www.ent-consult.com Actually we "agree" that one should tell of success and not hide it. WE AGREE but I probably stated it poorly. I was explaining the proprietary "garbage" for the sake of the poor souls who often fall for things without much evidence. And my post was on their behalf, not really as a response to your very correct statement. We do agree that if something has worked for someone' they should share the info with others for their consideration. G. Yeatman MD what is Pet? LynneR wrote in message <0c8a96b30cef452510391bd45e890877@localhost.talkaboutsupport.com>... >Hi to everyone. I also have PET, and I know how unbearable it can be. But I >want to tell you that I have found a cure that works for me!It is a product [quoted text clipped - 6 lines] >is that no one else seems to know about it. Someone tell me what I'm >allowed to say, and I'll gladly give you the info I got!! ~LynneR~ Pet is patulous eustachian tube - as it is used here. The eustachian tube is supposed to close except on swallowing. If it remains open all the time the voice sounds hollow. Murray Grossan, M.D. http://www.ent-consult.com Product endorsement is really tricky on newsgroups. It should raise a red flag with all readers. There is obviously the opportunity for monetary gain by product manufacturers (with zero advertising cost), to pitch their often unproven products here. Its the wild wild west snakeoil show. It'd be great if there was some kind of resource to check a product. Anyone know? >Product endorsement is really tricky on newsgroups. It should raise a >red flag with all readers. There is obviously the opportunity for >monetary gain by product manufacturers (with zero advertising cost), to >pitch their often unproven products here. Its the wild wild west >snakeoil show. It'd be great if there was some kind of resource to >check a product. Anyone know? One has to consider a lot of things in determining the reliability of a product review. If the poster has never been part of this group before, then comes here touting a product, it's likely just a scam or spam or less than reliable for some reason. If a poster has been with us a while, we can make our own evaluation about his/her accuracy and/or reliability. Anytime any of us makes a claim, reports a success or shares a treatment experience, I think that should be a sign to the rest of us that some investigation and research on our part is in order. None of us should take anyone's word as a solid fact. I think that, as a rule, those who *tell* others what they have or what causes *their* tinnitus and *tells* them how to treat it should be taken with a grain of salt; they usually have only a hammer, and everything looks like a nail to them. There are a lot of different causes of tinnitus, cure (or near cure, as in my case) is possible for some, unlikely for most. Once all curable/treatable conditions have been addressed, habituation becomes the critical next step, if treatment fails. Susan Products should be judged on how they compare in effectiveness to EERIE Wax. Murray Grossan, M.D. http://www.ent-consult.com > Product endorsement is really tricky on newsgroups. It should raise a > red flag with all readers. There is obviously the opportunity for > monetary gain by product manufacturers (with zero advertising cost), to > pitch their often unproven products here. Its the wild wild west > snakeoil show. It'd be great if there was some kind of resource to > check a product. Anyone know? There are several. Go to www.quackwatch.com and then pull down the "affiliated sites" list. Quackwatch is very biased. It is written by a medical person. Tinnitus is a pain in the neck Elly's Tinnitus Resources http://eebee.net/ >> Product endorsement is really tricky on newsgroups. It should raise a >> red flag with all readers. There is obviously the opportunity for [quoted text clipped - 5 lines] >There are several. Go to www.quackwatch.com and then pull down the >"affiliated sites" list. > Quackwatch is very biased. It is written by a medical person. > > Tinnitus is a pain in the neck > Elly's Tinnitus Resources > http://eebee.net/ Your statement makes no sense to me. Biased against what?? Exposing fraud?? Exposing scams?? So Quackwatch would NOT be biased if written by a layperson.......?? frank >Your statement makes no sense to me. Biased against what?? Exposing >fraud?? Exposing scams?? It's just biased against anything Barrett doesn't personally believe in. Which is a lot of very important stuff. But it's not because he's an alleged medical person, it's because he's a total jerk. Susan >> Quackwatch is very biased. It is written by a medical person. >Your statement makes no sense to me. Biased against what?? Exposing >fraud?? Exposing scams?? [quoted text clipped - 3 lines] > >frank Biased against anything that is alternative treatment. Biased against anything that is not MEDICAL.. Tinnitus is a pain in the neck Elly's Tinnitus Resources http://eebee.net/ >>> Quackwatch is very biased. It is written by a medical person. > [quoted text clipped - 8 lines] > Biased against anything that is alternative treatment. > Biased against anything that is not MEDICAL.. After reading several reports at quackwatch.com it strikes me that their reporting is in keeping with their stated mission. They report on treatments that fail to meet medical standards for effectiveness. Yes, they are biased against treatments that fail to meet such standards but so am I. Complaining about quackwatch is like saying NPR is "liberal" because they report events that don't flatter conservatives; as if they didn't report on Clinton's behavior. The news is the news. Simple as that. >After reading several reports at quackwatch.com it strikes me that their >reporting is in keeping with their stated mission. They report on [quoted text clipped - 3 lines] >report events that don't flatter conservatives; as if they didn't report on >Clinton's behavior. The news is the news. Simple as that. Well, no, they don't include nor consider any reports that conflict with what Barrett already believes. Cherry picking, I believe it's called. In the case of Lyme disease, for example, Barrett ignored a tremendous body of good, peer reviewed research provided to him. Susan Curious if anyone else has tried these drops and do they work for just anyone? I am to the point of trying anything. Please send me any information available. please email any info on this supposed cure... or post it up many thanks "jganders" <jamesanderson@yahoo.com> wrote in part: >Product endorsement is really tricky on newsgroups. It should raise a >red flag with all readers. There is obviously the opportunity for >monetary gain by product manufacturers (with zero advertising cost), to >pitch their often unproven products here. Its the wild wild west >snakeoil show. It'd be great if there was some kind of resource to >check a product. Anyone know? Common sense can help. In this case, the poster's credibility in the group is unknown; being new, the possibility of a scam runs high. OTOH, the physicians mentioned appear reputable: I know only good things about Poe (who supposedly recommended the drug) and Dr. Grossan has commented on the Dr. who supplies it. Then there is the question of why on earth someone would choose to try to get rich on a scam treatment for patulous eustachian tube!  SignatureJim Chinnis / Warrenton, Virginia, USA Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG > "jganders" <jamesanderson@yahoo.com> wrote in part: > [quoted text clipped - 18 lines] > get > rich on a scam treatment for patulous eustachian tube! My god man. Do you not know that there are millions and millions of people in North Dakota alone who are miserable and absolutely suffer from a patulous eustachian tube. Extend the numbers in North Dakota alone to the rest of the U.S., and you have a pandemic of patulous eustachian tube sufferers. How narrow minded and myopic can you be to have not recognized this! HNG Hi, I suffer from PET for so many years. I really would like to get more information of this treatment. I heard a lot of Dr.Poe, so I think it could help me, too. Lynne, please send that Information to me ! Thanks, mazomatic Lynne, can you tell me the name of the nosedrops that you got from Dr. Poe? I am new to the boards. I have suffered with PET for 20 years. Any information that you could provide would be helpful. Thanks Help: I have been diagnosed with PET after seeing 5 doctors, two months of PT, 6 months of TMJ treatment, etc, I just had surgery on one ear to try to permanently close the eustachian tube. Don't think it worked. Does anyone know if the patient study is still active at Ear Foundation in Santa Barbara? Also please send info on the ear drops. Any other suggestions? The only relief I have is when I am sleeping. FJH I would also like to know the name of the nosedrops that brought you relief from PET. Any information that you can send me would be greatly appreciated. you can read more about this condition at earfdn.org Lynne, I noticed this was posted a number of years ago. I have just recently acuired PET. You spoke of "a nose drop that stops the PET symptoms within 2 minutes and lasts almost all day. I got the info on it from Dr. Poe, in Boston" Do you still endorse this product? And if so, would you please tell me how I could get it, and what the name of it is. Thank you. Kim from Orlando >Hi to everyone. I also have PET, and I know how unbearable it can be. But I >want to tell you that I have found a cure that works for me!It is a product [quoted text clipped - 6 lines] >is that no one else seems to know about it. Someone tell me what I'm >allowed to say, and I'll gladly give you the info I got!! ~LynneR~
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