 |
 | Home | Contact Us | FAQ | Search & Site Map | Link to Us |
 | Sign In | Join | Other 45 Sites in Network |
Medical Forum / Diseases and Disorders / Tinnitus / November 2004just wondering
Even tho I have been told my the neurologist I dont have menieres, today I am having what I call an "Ear attack" besides my ears being really loud I have a really weird feeling, its hard to explain, its like my jaw on both sides is really tight andI have a headache and a stiff neck, but the worst thing is...now this will sound weird but it has happened to me heaps of times before...it is like I will just be sitting here and BANG it feels like someone has hit me in the head. Not hard but enough to stop me doing whatever I am doing. I just cant cope with this....i Thought tinnitus was just a noise in the ears or the head, not all these other things, this is just ttally debilitating, and where do I turn to? How the hell do I explain to a DR what I just explained to you..they just look at me like I'm silly, I have tried. Something is wrong here and I don't know what! First step: Go and have a massage, and get rid of some of the tension. Tinnitus is a pain in the neck Elly's Tinnitus Resources http://eebee.net/ >Even tho I have been told my the neurologist I dont have menieres, today I >am having what I call an "Ear attack" [quoted text clipped - 10 lines] >look at me like I'm silly, I have tried. >Something is wrong here and I don't know what! having a massage at 12 today, hope it works, I just sat back in my chair here to log on and I got the weirdest noise and senstaion in my ear one I havent had before..I just wish this T would settle down to one thing and stay there!!! Elly Byrne wrote in message ... >First step: > [quoted text clipped - 18 lines] >>look at me like I'm silly, I have tried. >>Something is wrong here and I don't know what! > Even tho I have been told my the neurologist I dont have menieres, today I > am having what I call an "Ear attack" [quoted text clipped - 10 lines] > look at me like I'm silly, I have tried. > Something is wrong here and I don't know what! I am with you. Anyone who tells you to 'habituate' the whole thing away is like telling you to suffer in silence. I think you are suffering from more than tinnitus. I used to suffer from a combination of head pressure and noise and was constantly told to 'habituate'. It was only after I had that pressure taken care of then habituation came into being as an natural extension of my daily routines. If your neurologist still can't take care of you, then try an 'alternative' doctor. It was finally an acupuncturist that took care of my head pressure problem. I should have gone to one of them while I was in China but i was constantly under the influence of the 'scientific people' here in alt who kept quoting all sorts of 'controlled' studies. FP Anyone who tells you to 'habituate' the whole thing > away is like telling you to suffer in silence. I think you are > suffering from more than tinnitus. You don't understand habituation Francis. Those of us who have habituated our tinnitus don't suffer it. In fact, we don't even notice our tinnitus unless we pause to listen. The only reason we hang around this Usenet group is to help others achieve the same thing. Now why don't you explain precisely what "suffer in silence" means to a tinnitus victim? Bill Its not the noise I cant get used to..its the sensations like pressure, dizziness etc that come with it. Bill wrote in message ... >Anyone who tells you to 'habituate' the whole thing >> away is like telling you to suffer in silence. I think you are [quoted text clipped - 9 lines] > >Bill > Its not the noise I cant get used to..its the sensations like pressure, > dizziness etc that come with it. (snip) Hi, Jenny, You know, I was completely unaware of my tinnitus until I read the above sentence. Wow, is it ever loud. This is the first I've heard it in weeks. All YOUR fault, Jenny. HAHA!! Just kidding. Yes, you are correct, you can get used to the noise. This is habituation. It is still there, but you don't hear it, as contradictory as that sounds. You know, it's a little like walking about with a piece of paper taped on your back by a joker that says, "Kick Me". You are unaware of the note but occasionally feel a kick. My tinnitus is simply noise in my ears. I have no other symptoms. I am concerned that symptoms such as pressure and dizziness may indicate other underlying medical problems. Have you been worked up by physicians? And, forgive me for my prejudices, but naturopaths and homeopaths and chiropractors and herbalists are not the ones you should be seeing for pressure and dizziness. This is a time for serious science and serious testing, not feel-good new age nostrums. Have you seen a medical doctor about this pressure and dizziness? Pressure can be relieved. Dizziness can often be controlled. Have you seen a medical doctor specializing in Meniere's? Tinnitus is very frustrating. It disturbs me that many who suffer stumble around ineffectually in great worry and anxiety, but never seem to do what is needed to assess the condition. See your ENT, a scientist with current knowledge about pressure and dizziness. In my case, tinnitus causes no other symptoms, except perhaps anxiety. I suspect the tinnitus you suffer is a byproduct, an indication, caused perhaps as a result of pressure and dizziness, not the other way around. Indeed, your tinnitus may be completely unrelated to your pressure and dizziness, but just happens to be there at the same time. You'll never know until you find out the reasons for the pressure and dizziness. One logical step at a time, Jenny. We'll figure this out, and I promise you, you'll feel better. There is hope. Best wishes, scp The sensation of pressure and dizzyness is often associated with increased fluid pressure in the innner ear. This is a treatable condition. Murray Grossan, M.D. http://www.ent-consult.com > The sensation of pressure and dizzyness is often associated with increased > fluid pressure in the innner ear. This is a treatable condition. > Murray Grossan, M.D. > http://www.ent-consult.com Exactly. First things first, then address the tinnitus. Thank you, Dr. Grossan. Best wishes, scp don't you think I havent tried? The Drs and ENT just brush me aside. >> The sensation of pressure and dizzyness is often associated with increased >> fluid pressure in the innner ear. This is a treatable condition. [quoted text clipped - 7 lines] > >scp > don't you think I havent tried? The Drs and ENT just brush me aside. Pressure and dizzyness is often associated with increased fluid pressure in the inner ear. (Says an ENT who treats these conditions every day.) This is true. If you went to doctors who refused to listen to your complaints of pressure and dizzyness, you must take your own future in your own hands and find an ENT who will listen to your complaints. We've all had bad experiences with doctors. Sometimes it is the doctor's fault (arrogant bastards that they are - Hi, Murray! :-)), and sometimes it is the patient's fault (allowing themselves to be "brushed aside".) Jenny, do you think your presure an dizzyness is caused by your tinnitus? Are you seeking treatment for the tinnitus, hoping if you cure that the pressure and dizzyness will go away? That is backwards. We all pretty much agree here that few doctors and ENTS understand or care about tinnitus, except in cases where there is evident relation to the noise (pressure and dizzyness or tumor). They conclude, as do most of us on this forum, little can be done for tinnitus. I suggest you make an appointment with another ENT, and this time search and interview for the right one, one who will listen to your complete history, and take a printed copy of this specific conversation between you, me, and Dr. Grossan, and read it to him. Look him in the eye and tell him you want to be worked up for PRESSURE AND DIZZYNESS, not tinnitus. Work to cure what ails you, and if you are able to cure what ails you, the tinnitus will either disappear because it was caused by the pressure and dizzyness (unlikely), or you will finally be able to put it behind you and allow yourself to habituate to the noise. I know it is counterintuitive that you can learn not to hear a loud and extremely upsetting noise in your head, but I testify exactly that can be done. My tinnitus absolutely roars at all times, a thousand tuning forks struck hard pressed to my temples. It is unrelenting, varies only to a much louder state, but never lessens. I have reconciled myself to it being there, but I don't give a damn. I have put it behind me, and never hear it unless I listen for it. I'm a forty-year veteran of tinnitus. Don't give up. Seek treatment for your pressure and dizzyness. Those, it seems, are treatable, and simple things. You must assert yourself, take your doctors by the reins, and demand workup and treatment. I get everything I need from my doctors. They never fail to take everything I say into account, and investigate my every complaint. Occasionally there are false starts, and it takes a time to get the therapy right, but when I assert myself they obey. Doctors are hired men. We pay them for service. Demand service for your money, don't ask for it. I'm not picking a fight, and I worry that you suffer. Go get 'em, and don't give up. There is hope. Sorry for this long response, but you've got me all worked-up. Now, you get worked-up, OK? Best wishes, scp >>>The sensation of pressure and dizzyness is often associated with > [quoted text clipped - 10 lines] >> >>scp lol thaNks for your reply, I have seen 2 ENTS so far..not necasarily to treat the T just to find out whats going on. They couldnt help me..just did scans etc said everything was normal. How do I find a good ENT? Trial and error is hard, ENTS are expensive to see, where I don't have a drama about paying to see a good one, its all the quacks in the meantime who get my money. There is one ENT the Dr told me is good who I havent seen yet. Which part of the letter from you and Murray sould take him? And I'm a pretty easy going person I wouldn't think you were picking a fight with me, I get a bit worked up at times with this T crap happening, but I have no qualms with anyone on here. Thanks for the advice. Jenny >> don't you think I havent tried? The Drs and ENT just brush me aside. > [quoted text clipped - 74 lines] >>> >>>scp Oh and can you please tell me what sort of treatment is available for pressure and increased fluid in the inner ear? I seem to have constant mild ear infections too, well for the last 6 months anyway..I have drops or antibiotics for a few weeks and they clear up for about a week and come back. Just bad enough for the Dr to say my ear canal is red or he can see fluid behind my drum. Antibiotics usually help with the T...the high pitched is always there, but after a course of antibiotics the buzzing or hissing really softens, the Dr said he is at a loss to explain why. I just keep seeing the DR for these infections till their has been enough eveidence that some ENT may take me seriously. Jenny >lol thaNks for your reply, I have seen 2 ENTS so far..not necasarily to >treat the T just to find out whats going on. They couldnt help me..just did [quoted text clipped - 93 lines] >>>> >>>>scp >I seem to have constant mild ear infections too, well for the last 6 months >anyway..I have drops or antibiotics for a few weeks and they clear up for [quoted text clipped - 3 lines] >buzzing or hissing really softens, the Dr said he is at a loss to explain >why. This was my pattern in the early years of my illness, too. Susan Hi Susan, I have never mentioned my other symptoms before because being a tinnitus board I never thought it was really the right place..I will tell you my symptoms exactly, in order. Heat palpitations, tinnitus,fatigue but unable to sleep,aches and pains, stiff neck found to be due to calcification,dizzy,head pressure, vagueness. I just know that If I go to any Dr and mention Lyme disease they will tell me to stop being stupid and to stop reading stuff on the internet. It's sad really. Jenny >x-no-archive: yes > [quoted text clipped - 9 lines] > >Susan >Heat palpitations, tinnitus,fatigue but unable to sleep,aches and pains, >stiff neck found to be due to calcification,dizzy,head pressure, vagueness. Memory and concentration problems, attention problems? Spatial orientation off a bit? Weird parasthesias/sensations? Any rashes of any kind ever? Itchiness? >I just know that If I go to any Dr and mention Lyme disease they will tell >me to stop being stupid and to stop reading stuff on the internet. > >It's sad really. And true. That's why you should try to find a referral from a support group. Susan > Oh and can you please tell me what sort of treatment is available for > pressure and increased fluid in the inner ear? Dr. Grossan? > I seem to have constant mild ear infections too, well for the last 6 months > anyway..I have drops or antibiotics for a few weeks and they clear up for [quoted text clipped - 3 lines] > buzzing or hissing really softens, the Dr said he is at a loss to explain > why. > I just keep seeing the DR for these infections till their has been enough > eveidence that some ENT may take me seriously. The failure of your doctors to solve your infection problems absolutely begs for a visit to a specialist. I've never had an ear infection, but I can imagine your discomfort. My father had a Pseudomonas infection in his ear, and the ENT wasn't even considered, but rather he was immediately referred to the Infectious Disease Specialist, who put him in the hospital for three weeks with an antibiotic drip stuck in his arm. Dr. Martin saved Dad's life. There may be alternatives to ENTS, which, we all know, are really just Trees that talk and walk slowly. (Tolkien) Susan should enter this discussion. Best wishes, scp (snip of the above) >Susan should enter this discussion. Did. :-) Her story sounds just like mine. Except she hasn't mentioned extreme fatigue, sleep disturbances and mystery pains, but every illness is different. Most doctors don't want to think this hard. They get paid just the same if they don't. :-( Susan yumm I just went thru 7 months of chronic fatigue, I get weird aches and pains all the time! >x-no-archive: yes > [quoted text clipped - 10 lines] > >Susan lol that was supposed to say umm not yumm >yumm I just went thru 7 months of chronic fatigue, I get weird aches and >pains all the time! [quoted text clipped - 13 lines] >> >>Susan just briefly looking at that site you referred me to, it doesn't really seem to be a major issue in Australia. >lol that was supposed to say umm not yumm >>yumm I just went thru 7 months of chronic fatigue, I get weird aches and [quoted text clipped - 15 lines] >>> >>>Susan >just briefly looking at that site you referred me to, it doesn't really seem >to be a major issue in Australia. Don't believe it. If there are ticks, there are TBDs. Or it could be some other kind of infection. Either way, you need antimicrobials if that's what's causing your T. Do what you will. At least you have the information. Susan "Jennifer Bell" <starwood@iprimus.com.au> wrote in part: >Oh and can you please tell me what sort of treatment is available for >pressure and increased fluid in the inner ear? Sodium restriction, very even consumption of water (possibly distilled) throughout the day. Sometimes a diuretic. The above helps *some* people with pressure and fullness due to inner ear hydrops.  SignatureJim Chinnis / Warrenton, Virginia, USA Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG > lol thaNks for your reply, I have seen 2 ENTS so far..not necasarily to > treat the T just to find out whats going on. They couldnt help me..just did > scans etc said everything was normal. Hmmm.... But, truth is, everything is NOT normal. You feel pressure and are dizzy. > How do I find a good ENT? Golly, I don't know. Turn 'em over and look at their privates? HAHA!! Trial and error is hard, ENTS are expensive to > see, where I don't have a drama about paying to see a good one, its all the > quacks in the meantime who get my money. Yes, avoid quacks. As I said, I have prejudices. I do not believe in spooky action at a distance. I'll walk away from any discussion that involves homeopathic remedies or naturopathy or chiropractors who claim to cure asthma and cancer by twisting the spine. Much of what you read here is quackery and ignorance, and I mean the advice from Francis specifically. There is no substitue for scientific thinking, ever. > There is one ENT the Dr told me is good who I havent seen yet. Make an appointment. > Which part of the letter from you and Murray sould take him? My sterling prose is worth infinite repetition. All of it. :-) He needs to know the depth of your plight, your real and serious concern for your health, he needs to believe you when you describe the feelings of pressure and dizzyness. This conversation emphasizes all of this. > And I'm a pretty easy going person I wouldn't think you were picking a fight > with me, I get a bit worked up at times with this T crap happening, but I > have no qualms with anyone on here. "T crap" is the best definition I've ever heard of tinnitus. HAHA!! > Thanks for the advice. > Jenny We'll solve this together, Jenny. Tell the new ENT you have an angry army of supporters who demand he address the pressure and dizzyness you feel. Tell him we'll toiletpaper his house if he doesn't help you (an old American Halloween prank). There is hope, Jenny. Best wishes, scp >>>don't you think I havent tried? The Drs and ENT just brush me aside. >> [quoted text clipped - 74 lines] >>>> >>>>scp when i did mention the dizziness pressure etc to one ENT he immediatley said it ust be mild menieres...since then the neurologist has assured me it's not. That is what they will say this time again, dizziness pressure and tinnitus..= menieres. >> lol thaNks for your reply, I have seen 2 ENTS so far..not necasarily to >> treat the T just to find out whats going on. They couldnt help me..just did [quoted text clipped - 132 lines] >>>>> >>>>>scp > when i did mention the dizziness pressure etc to one ENT he immediatley said > it ust be mild menieres...since then the neurologist has assured me it's > not. > That is what they will say this time again, dizziness pressure and > tinnitus..= menieres. Has any of these doctors treated you for Meniere's? You have a broken leg. Have a nice day. That is completely unacceptable. You have a broken tooth. Enjoy the pain. The leg should be set, the tooth repaired. Obviously, we need to gather in a mob. I'll bring torches and rotten tomatoes. These doctors we shall beat and beat and beat until they love us. :-) You in Oz or NZ? Someone here must have reference to a doctor who will listen to you. Best wishes, scp I'm in Oz..they said there wasnt anything they could do for menieres except mild diuretic,,I tried that and got such bad cramps in my legs I gave them up straight away. >> when i did mention the dizziness pressure etc to one ENT he immediatley said >> it ust be mild menieres...since then the neurologist has assured me it's [quoted text clipped - 22 lines] > >scp > I'm in Oz..they said there wasnt anything they could do for menieres except > mild diuretic,,I tried that and got such bad cramps in my legs I gave them > up straight away. Jim Chinnis will give you referral to a Meniere's group, won't you, Jim? :-) Do so, or we'll toiletpaper your house. :-) I've got a dozen torches all prepared, and my neighbor promises me three bushels of rotten tomatoes. I've never had to take a diuretic, so I am unable to give even anecdotal advice. I do know coffee makes me pee a lot. :-) We are making great progress here, Jenny. See, there is hope. One step at a time. Best wishes, scp snap_crackle_pop <snap_crackle_pop@inner_ear.org> wrote in part: >> I'm in Oz..they said there wasnt anything they could do for menieres except >> mild diuretic,,I tried that and got such bad cramps in my legs I gave them [quoted text clipped - 6 lines] >dozen torches all prepared, and my neighbor promises me >three bushels of rotten tomatoes. That's a pretty pathetic threat for USENET... :-) Unfortunately, there isn't a whole lot to be done for Meniere's. A lot of people are helped by reducing sodium, keeping evenly hydrated, and maybe taking a diuretic. Severe vertigo attacks sometimes justify destructive procedures where part of the inner ear is weakened or destroyed or the nerve is cut. There are some reports of cases that seem like "classic" Meniere's responding to some of the new biological autoimmune drugs (Disease Modifying Anti-Rheumatic Drugs, or DMARDS). The real difficulty with many vestibular disorders is in getting a correct diagnosis. There are autoimmune diseases, infectious diseases, and other things that can resemble Meniere's. They are not all treated the same. I don't know anything about doctors or support groups in Perth. I do help run an international Meniere's discussion group (an email group) with around 400 members. Anyone can join and post a question about possible resources in Perth or anywhere else in the world. See my sig block below. SignatureJim Chinnis / Warrenton, Virginia, USA Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG > snap_crackle_pop <snap_crackle_pop@inner_ear.org> wrote in part: >>Jim Chinnis will give you referral to a Meniere's group, >>won't you, Jim? :-) >>Do so, or we'll toiletpaper your house. :-) I've got a >>dozen torches all prepared, and my neighbor promises me >>three bushels of rotten tomatoes. > That's a pretty pathetic threat for USENET... :-) I'm a pretty pathetic kind of guy. :-) Thank you, Jim. scp >don't you think I havent tried? The Drs and ENT just brush me aside. I'm not saying that you have what I have, but in the past, I had all the symptoms you've described. Turned out to be an infection, one that invaded the CNS. In my case, it was from longstanding, undiagnosed and untreated tick borne diseases. You could have that, or you could have something else. Or you may not have an infection. I do think that a thorough evaluation for infectious diseases is wise in cases of acute onset with other, mixed symptoms. I was so dizzy at my acute onset, that I held onto the bed because everything was spinning so fast, I thought I'd fly off. I have experienced extreme skull pressure, snap, crackle, and pop in my eustachian tubes, etc. You name it. Susan That's what I get Susan, snap crackle pop...I work in a nursing home I am subjected to viruses of every kind every day..the day before my T started an old lady wiped poo all over me. ( that kind of thing happens quite often) I do think that a thorough evaluation for infectious diseases is >wise in cases of acute onset with other, mixed symptoms f I said to my Dr or any Dr I can think of here that I wanted a thorough evaluation for infectious disease they would think I was a hypochondriac and probably write me a a referal to see a shrink. you should have seen the look on the DRS face when I mentioned TMJ..it was like there was no such thing, and that I was an idiot....The medical sustem is pretty crap here!! I have had a lot of blood tests, full blood counts etc, and they have all been totally normal. Jenny >x-no-archive: yes > [quoted text clipped - 12 lines] > >Susan >That's what I get Susan, snap crackle pop...I work in a nursing home I am >subjected to viruses of every kind every day..the day before my T started an >old lady wiped poo all over me. ( that kind of thing happens quite often) Ewww. That's some occupational hazard! >I do think that a thorough evaluation for infectious diseases is >>wise in cases of acute onset with other, mixed symptoms [quoted text clipped - 3 lines] >they would think I was a hypochondriac and probably write me a a referal to >see a shrink. Sadly, this is all too typical. Thinking and helping don't seem to enter into so many doctors' practices. >you should have seen the look on the DRS face when I mentioned TMJ..it was >like there was no such thing, and that I was an idiot....The medical sustem >is pretty crap here!! Here, too. >I have had a lot of blood tests, full blood counts etc, and they have all >been totally normal. Mine, too, even as I was hospitalized for my severe dehydration, fatigue, dizziness, etc... Unfortunately, there are no good serological tests for tick borne diseases. Go here, read up, and formulate a plan. If there is a Lyme disease support group in your area, try to get a referral. Otherwise, use whatever means you can find (even veterinary supply) to get your hands on some doxycyline. I rarely recommend this, but if you can't get any medical help, having exhausted the possibilities, then you have to act on your own behalf. http://www.geocities.com/HotSprings/Oasis/6455/lyme-links.html Look up your symptoms. And beware of a lot of the Lyme Loonies you can find on the internet. It's not the *only* disease out there, but some don't seem to know it. Susan is doxycyline an antibiotic? Thats another problem..I had an allergicic reaction to anitbiotics a few years back..there are only two types I can take now and thats rulide and klacid..Im pretty limited..sadly. >x-no-archive: yes > [quoted text clipped - 42 lines] > >Susan >is doxycyline an antibiotic? Thats another problem..I had an allergicic >reaction to anitbiotics a few years back..there are only two types I can >take now and thats rulide and klacid..Im pretty limited..sadly. You may not actually be allergic. I had "allergic" reactions to antibiotics that I take now routinely. What appeared to be allergy was actually a die off reaction to toxins produced by dying borrelia. I'm not suggesting you take something without testing, but I had allergy testing to see if I had a reaction to those antibiotics before trying them. Doxy has very good CNS penetration, particularly at high doses, of 400mg per day, divided. Initially made my T LOUD, then it got better, along with the rest of my health. I was diagnosed with chronic fatigue syndrome before my TBDs were diagnosed and treated with antibiotics. HTH, Susan sufein@aol.comnospam (Susan ) wrote in part: >x-no-archive: yes > [quoted text clipped - 19 lines] > >Susan It's also possible to take an antibiotic that you are allergic to. It must be done in a hospital or such. The antibiotic is infused gradually and very slowly ramped up--along with drugs to reduce the allergic response. Lyme patients can be treated with doxycycline even if they are allergic to it. SignatureJim Chinnis / Warrenton, Virginia, USA Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG >It's also possible to take an antibiotic that you are allergic to. It must be >done in a hospital or such. The antibiotic is infused gradually and very >slowly ramped up--along with drugs to reduce the allergic response. Lyme >patients can be treated with doxycycline even if they are allergic to it. This is true. Unfortunately, she has little hope of getting that done without a diagnosis. :-/ Susan Lyme > patients can be treated with doxycycline even if they are allergic to it. __________________ I am severly allergic to Doxy. I would in no way take that drug. I take Zithromax. Kara Tyson Lyme Disease Support Group of AL Director >I am severly allergic to Doxy. I would in no way take that drug. I take >Zithromax. No one is suggesting that you just take it. My infectious diseases doc has patients desensitized in the ICU of a hospital by an immunologist. Zithromax, with or without Mepron does nothing for my infection, nor does it penetrate the CNS like doxy. The combination cured my child of a longstanding TBD illness, though. Susan alabamalyme@usa.com (Kara Tyson) wrote in part: >Lyme >> patients can be treated with doxycycline even if they are allergic to it. [quoted text clipped - 4 lines] >Lyme Disease Support Group of AL >Director If Zithromax works for you, that's great. I didn't mean that people should run out take drugs they are allergic to. I only meant that one should not absolutely rule out taking an antibiotic they are allergic to. If it is really absolutely needed, it can be taken in a hospital under strict control and monitoring. I just wanted people to know that that option now exists. I'm not trying to push it on anyone. SignatureJim Chinnis / Warrenton, Virginia, USA Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG jchinnis@SPAMalum.mit.edu (Jim Chinnis) wrote in message > I didn't mean that people should run out take drugs they are allergic to. I > only meant that one should not absolutely rule out taking an antibiotic they > are allergic to. If it is really absolutely needed, it can be taken in a > hospital under strict control and monitoring. I just wanted people to know > that that option now exists. I'm not trying to push it on anyone. __________________ Jim, You are correct in that many people are sensative to "side effects" of a drug vs. actually being allergic to the drug. On a side note, is Chinnis a version of Chinitz? Kara I had an anaphalactic (spelling) reaction, I wouldnt dare risk taking one again,I almost died last time. >x-no-archive: yes > [quoted text clipped - 19 lines] > >Susan >I had an anaphalactic (spelling) reaction, I wouldnt dare risk taking one >again,I almost died last time. Well, that's serious enough! All I had was giant hives all over, and very swollen lips and fingers. Susan > > Its not the noise I cant get used to..its the sensations like pressure, > > dizziness etc that come with it. [quoted text clipped - 25 lines] > serious science and serious testing, not feel-good new age > nostrums. Most patients start out with real serious ''scientific' doctors until they get disappointed....then they turn to the álternative'. I started out with more than 7 ENT doctors, 5 GPs, and then 4 neurologist...You name it. By the way, how do you define seious science? FP Have you seen a medical doctor about this > pressure and dizziness? > [quoted text clipped - 23 lines] > > scp (snip of the above) > Most patients start out with real serious ''scientific' doctors until > they get disappointed....then they turn to the álternative'. I > started out with more than 7 ENT doctors, 5 GPs, and then 4 > neurologist...You name it. By the way, how do you define seious > science? > FP No belief in spooky action at a distance. You saw 16 doctors? For what? What exactly was your diagnosis, if I may ask? Best wishes, scp > (snip of the above) > [quoted text clipped - 9 lines] > doctors? For what? What exactly was your diagnosis, if I > may ask? For my tinnitus.. I had gone through a list of 'scientific' treatments by these 'serious' science people and found them useless until I ran into a British doctor in Hong Kong that prescribed me gingko biloba, Dr.Assar from Sweden chiropractic, and I found an acupuncturist on my own...then my problem subsided. FP > Best wishes, > > scp You need *medical* treatment. I was thinking of what you said last night. You might be suffering from poor blood circulation in your head for whatever reasons. You may want to talk to your doctor about that. If the doctorS you talk to don;t help, then take a tablet of gingko biloba to help out. You experienced the 'softening' benefit before, right? Why did you stop? FP ============================ > Its not the noise I cant get used to..its the sensations like pressure, > dizziness etc that come with it. [quoted text clipped - 14 lines] > > > >Bill > Its not the noise I cant get used to..its the sensations like pressure, > dizziness etc that come with it. I'm kind of in the same situation with the triad of tinnitus, deafness, and loss of equilibrium (dizziness, lightheadedness,vertigo) due to a blown cranial nerve (acousitic nerve). There are some meds and treatment (such as vestibular rehab) that can help somewhat with the sx's of dizziness and such. Mostly it is habituation and acceptance of the problem(s) such as already been mentioned. All of these alternatives, herbal "remedies", and fanciful pseudoscience treatments just results in chasing one's tail with one false hope after another of a cure. Am I happy about this? Hell no. I just saw a patient about my age who has been recently diagnosed with a malignant, non-operable brain tumor- kind of put's everything back into perspective for me. frank >All of >these alternatives, herbal "remedies", and fanciful pseudoscience >treatments just results in chasing one's tail with one false hope >after another of >a cure. Just be very sure that you aren't including neuroborreliosis on your short list of "pseudoscience" dx or tx. There's no harm in anyone doing an empiric trial of doxycycline for several weeks to see if there's a benefit. As long as their not allergic. Susan > > Its not the noise I cant get used to..its the sensations like pressure, > > dizziness etc that come with it. [quoted text clipped - 9 lines] > treatments just results in chasing one's tail with one false hope > after another of a cure. (1)Jennifer's situation may be different from yours in the sense that hers is treatable while yours is not. (2)*How* could you tell what Jennifer is going through falls into "pseudoscience"? Do you understand how she is being treated? FP > Am I happy about this? Hell no. I just saw a patient about my age > who has been recently diagnosed with a malignant, non-operable > brain tumor- kind of put's everything back into perspective for me. > > frank >> > Its not the noise I cant get used to..its the sensations like pressure, >> > dizziness etc that come with it. [quoted text clipped - 16 lines] > > FP Those of us who read Jennifer's posts do, Francis. Failing to find a cure through conventional medicine she now seeks help through alternative treatments. We've all been there, Francis. Eventually you too will have exhausted the broad spectrum of "fanciful pseudoscience" and then what? Kidney beans? >Those of us who read Jennifer's posts do, Francis. Failing to find a cure >through conventional medicine she now seeks help through alternative >treatments. We've all been there, Francis. Eventually you too will have >exhausted the broad spectrum of "fanciful pseudoscience" and then what? >Kidney beans? Well, in Jennifer's case, I have to disagree. Just as I got enormous relief, T so quiet or absent most of the time that you could call it cured, from proper diagnosis and continued antibiotics, Jennifer could. Or others who may be reading this thread and share our history of symptoms. Jennifer's story sounds just like mine, prediagnosis. Susan > x-no-archive: yes > [quoted text clipped - 14 lines] > > Susan Disagree with what? >Disagree with what? I interpreted your post to suggest that you think a continued search for a cause or cure is useless. I'm not sure that's what you meant, and it *probably* wasn't, but that's how the post sounded to me. I agree that at some point, one has to stop obsessing over T, and just get ON with things, but in Jennifer's case, as in my own, it comes with other disturbing signs of a debilitating and progressive illness, potentially. Diagnosis and treatment of the underlying infection, if any, can/may eliminate or greatly reduce the T. Susan > >> > Its not the noise I cant get used to..its the sensations like pressure, > >> > dizziness etc that come with it. [quoted text clipped - 21 lines] > exhausted the broad spectrum of "fanciful pseudoscience" and then what? > Kidney beans? I totally disagree! And I do so with reference to *my* own experience, which may or may not apply to you or others. FP I'm kind of in the same situation with the triad of tinnitus, > deafness, > and loss of equilibrium (dizziness, lightheadedness,vertigo) due to > a blown cranial nerve (acousitic nerve). did you ask your doctor about putting Gentamycin into the middle ear? Murray Grossan, M.D. http://www.ent-consult.com > I'm kind of in the same situation with the triad of tinnitus, > > deafness, [quoted text clipped - 4 lines] > Murray Grossan, M.D. > http://www.ent-consult.com Murray, I had 4 treatments of gent (chemical labrythectomy) a year ago. No help. He suggested surgical destruction, very wary. That sounds scary. Thanks for asking though. frank drfrank21@hotmail.com (drfrank21) wrote in part: >> I'm kind of in the same situation with the triad of tinnitus, >> > deafness, [quoted text clipped - 10 lines] > >frank Frank, do you have real episodes of vertigo or mostly a constant dysequilibrium? If toward the latter, some good vestibular rehab might help. I agree that the chemical labyrinthectomy is probably a good enough try on the surgical front... SignatureJim Chinnis / Warrenton, Virginia, USA Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG > Frank, do you have real episodes of vertigo or mostly a constant > dysequilibrium? If toward the latter, some good vestibular rehab might help. I > agree that the chemical labyrinthectomy is probably a good enough try on the > surgical front... Thankfully, the vertigo is basically gone (the first few months after the original surgery it was constant and crippling) but now it's basically the constant dizziness/lightheaded symptoms. I do get periods of vertigo but I can handle it. I still have nystagmus but that has quieted down as well over the last year. I did go thru vest rehab about the same time as the chem labyrinthectomy and the rehab did seem to help some. I'll tell you though, I don't know how anybody could tolerate constant vertigo- that, with the tinnitus would drive anyone over the edge. frank >I'll tell you though, I don't know how anybody could tolerate constant >vertigo- that, >with the tinnitus would drive anyone over the edge. I agree. During the early years of my disability, when the room spinning was gone, I still had milder vertigo and balance issues. Those alone would've kept me from functioning. Antivert, maximum daily dose, helped, but didn't get rid of it. I know quite a few Lyme/CFS patients who never get rid of the severe vertigo. This site is very helpful, as is their book, "The Balancing Act": Susan > Anyone who tells you to 'habituate' the whole thing > > away is like telling you to suffer in silence. I think you are [quoted text clipped - 7 lines] > Now why don't you explain precisely what "suffer in silence" means to a > tinnitus victim? You are fortunate to have suffered from *just* noise. Others like myself and Jenniffer have been suffering from a mix. You would have understood what we are complaining if you were a doctor. ======================= > Bill
|
Reply to this Message |
 Sign In
 Join
 My Latest Posts My Monitored Threads My Blog My Photo Gallery My Profile My Homepage Start New Thread Enable EMail Alerts Rate this Thread
|
©2008 Advenet LLC Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.