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pianomale - 08 Nov 2004 01:50 GMT

My Tinnitus started about a month ago and since it's not going away
I've made an appointment to see my doctor, but i have some questions
and would deeply appreciate any insight anyone here has.
My T comes on at night only after I've slept for several hours
(ringing with crickets mixed in and is pretty loud). I can make it
temporarily disapear by opening my jaw wide and totally relaxing it,
but as soon as I close my jaw it comes back. I tried sleeping without
a pillow with no luck. (I just bought a mouth sleep guard) During the
day the ringing seems to get much better and sometimes I test my T by
going to a very quiet place and placing my fingers in my ears to block
out sounds and a few times I seem to be either T free or it's become
very very quiet. My questions are:
1 Does Tinnitus usually get worse, better, or stay the same?
2 Is it usual to have intermittent Tinnitus?
3 What, if anything, does having my ringing disappear when I open my
jaw mean?
4 Does TRT work?
I'm grateful for any insight or advice. I'm 51 yrs old. Normal
bloodpressure.
Pianomale

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Elly Byrne - 08 Nov 2004 19:10 GMT

Tinnitus did not arrive out of the blue from nowhere. Something was
already happening in your life. Something in your lifestyle had
already started to set up the muscle tension. Then one day something
happened to send the tension over the edge.
It could be computers, excessive telephone use, study in bad
conditions and with a bad posture, driving in an uncomfortable car,
bad seating in the house or at work, etc. Even a sudden loud noise
could do it.

Come and have a look at this page and see if any of it resonates with
you.
http://eebee.net/TinnitusIsaPainintheNeck.shtml

Tinnitus is a pain in the neck
Elly's Tinnitus Resources
http://eebee.net/

>My Tinnitus started about a month ago and since it's not going away
>I've made an appointment to see my doctor, but i have some questions
[quoted text clipped - 16 lines]
>bloodpressure.
>Pianomale

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francispoon - 08 Nov 2004 20:59 GMT

> My Tinnitus started about a month ago and since it's not going away
> I've made an appointment to see my doctor, but i have some questions
[quoted text clipped - 12 lines]
> 3 What, if anything, does having my ringing disappear when I open my
> jaw mean?

I am no doctor but it seems to me you have somatic tinnitus or
tinnitus created by tensed muscles either in the neck or the jaw or
somewhere. I say that because you could manipulate your t sound by
opening your jaw wide.

Again, my advice to you is that simple program which my doctor
prescribed to me:
(1)Sleeping with a towel so that it enables your side sleep. Do away
with a high pillow.
(2)Chiropractic treatment once every other day to begin with and then
once a week as the maintenance dose. Tell the doc to have relax your
neck muscles.
(3)BUy a massaging machine so that you could have your overall body
muscles relaxed, in particular your neck part. Do this daily.
(4)talk to a dentist if you have clenching or grinding at night.
(5)one tablet of gingko biloba right before breakfast and one tablet
of betahistine after dinner. Stick to this for at least 3 months
unless something uncomfortable occurs.

Some people are lucky to have their t gone over time while others who
are less lucky could have their t increasing to be a maddening ill.

FP

> 4 Does TRT work?
> I'm grateful for any insight or advice. I'm 51 yrs old. Normal
> bloodpressure.
> Pianomale

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pianomale - 10 Nov 2004 18:30 GMT

I now have a subtle ultra high pitched ring mixed along with my other
crickets sound - this sound is always on and doesn't diminish when I
relax my jaw nor 'disapear' until I wake up from sleep like my other
sound. I'm hoping it's just stress and not another 'player'. Is it
common to have more than 1 sound? I'm still holding out hope that
since my 'main' sound is zero db sometimes (like when I first lay down
to sleep) that maybe it will go away sometime. Am I in denial?

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francispoon - 08 Nov 2004 21:05 GMT

> My Tinnitus started about a month ago and since it's not going away
> I've made an appointment to see my doctor, but i have some questions
[quoted text clipped - 3 lines]
> temporarily disapear by opening my jaw wide and totally relaxing it,
> but as soon as I close my jaw it comes back.

Write to this Sweden dentist http://eebee.net/

FP
============================

I tried sleeping without

> a pillow with no luck. (I just bought a mouth sleep guard) During the
> day the ringing seems to get much better and sometimes I test my T by
[quoted text clipped - 9 lines]
> bloodpressure.
> Pianomale

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Elly Byrne - 09 Nov 2004 19:30 GMT

>Write to this Sweden dentist http://eebee.net/
>
>FP
>============================

http://meniere.eebee.net/
This is one step closer to the dentist.

Tinnitus is a pain in the neck
Elly's Tinnitus Resources
http://eebee.net/

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pianomale - 10 Nov 2004 02:05 GMT

Went to see the doctor today - he has tinnitus also. He prescribed
Paxil. I deeply apreciate all the insights posted - somatic tinnitus
sounds like what I have - the sound (when I have it) changes with head
movements and jaw movements. I'm scheduled to see the chiropractor
tomorrow.

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Jim Chinnis - 10 Nov 2004 02:13 GMT

pianomale@hotmail.com (pianomale) wrote in part:

>somatic tinnitus
>sounds like what I have - the sound (when I have it) changes with head
>movements and jaw movements.

According to research by neurologists, almost everyone with tinnitus can
change it with head and jaw movements. People without tinnitus can temporarily
create it with such movements, if they are in a quiet place.

Signature

Jim Chinnis / Warrenton, Virginia, USA
Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG

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Elly Byrne - 10 Nov 2004 19:21 GMT

>According to research by neurologists, almost everyone with tinnitus can
>change it with head and jaw movements. People without tinnitus can temporarily
>create it with such movements, if they are in a quiet place.

Well Jim,

That should give you a very clear indication that the muscles have
something to do with tinnitus.

Tinnitus is a pain in the neck
Elly's Tinnitus Resources
http://eebee.net/

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Jim Chinnis - 10 Nov 2004 21:20 GMT

Elly Byrne <elly@eebee.cjb.net.noway> wrote in part:

>>According to research by neurologists, almost everyone with tinnitus can
>>change it with head and jaw movements. People without tinnitus can temporarily
[quoted text clipped - 4 lines]
>That should give you a very clear indication that the muscles have
>something to do with tinnitus.

Of course. The connection has been known for decades. Even stimulating the
median nerve (in the wrist) can influence tinnitus.

There's also been very detailed research on the connections to brainstem
auditory areas from somatic inputs, plus the discovery of previously unknown
input from the trigeminal to the inner ear.

Even without all that, most of us know that lifting weights can increase
tinnitus temporarily, probably due to increased intracranial pressure.

I'm not sure I follow your comment to me. I assume you're aware of the
different types of research on somatic influences on tinnitus?

Signature

Jim Chinnis / Warrenton, Virginia, USA
Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG

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Elly Byrne - 11 Nov 2004 19:05 GMT

>I'm not sure I follow your comment to me. I assume you're aware of the
>different types of research on somatic influences on tinnitus?

I am aware of some of them. All of them lead nowhere.

Has anyone done anything that leads to something productive?

Tinnitus is a pain in the neck
Elly's Tinnitus Resources
http://eebee.net/

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Jim Chinnis - 12 Nov 2004 02:22 GMT

Elly Byrne <elly@eebee.cjb.net.noway> wrote in part:

>>I'm not sure I follow your comment to me. I assume you're aware of the
>>different types of research on somatic influences on tinnitus?
>
>I am aware of some of them. All of them lead nowhere.
>
>Has anyone done anything that leads to something productive?

I think the work by Susan Shore is exemplary. The steps along the way to a
cure never look impressive.

Signature

Jim Chinnis / Warrenton, Virginia, USA
Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG

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pianomale - 13 Nov 2004 00:29 GMT

Well - now in addition to my night time crickets in my right ear, I
have an ultra high pitch in my head. Wednesday it was moderate,
yesterday it was totally gone, today it came back full force. My
question is: has anyone with intermittent T had it become permanent?
My other question is: Is there any real genuine medical research
being done to cure this?

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Patty - 13 Nov 2004 17:22 GMT

> Well - now in addition to my night time crickets in my right ear, I
> have an ultra high pitch in my head. Wednesday it was moderate,
> yesterday it was totally gone, today it came back full force. My
> question is: has anyone with intermittent T had it become permanent?
> My other question is: Is there any real genuine medical research
> being done to cure this?

My experience with T started as intermittent about 18 years ago. It is now
permanent. When it became permanent, I was like most everyone
else...devastated, overwhelmed by it. I didn't think I could live with the
constant high pitched noise 24/7. I have since learned to keep my
environment sound rich to distract me from dwelling on it. I also go to
sleep with the radio on and it helps to direct my attention away from the T.
I have garnered a lot of useful information from some of the people that
have been around this group for many years. Simon responded to my first
post with a very kind and understanding email. Paul sent a book for me
read. Bill suggested the radio. snap_crackle_pop gives me HOPE because he
has lived with it for over 40 years. Susan has alerted me to the fact that I
should limit salicylates, whether in the form of medication or that which is
found in food....here's a good place to look for the foods to limit:
http://users.bigpond.net.au/allergydietitian/fi/sal.html
and so many others that have helped in various ways. I don't fall for
gimmicks and refuse to 'experiment' with questionable treatments suggested
by some. I believe there are those that truly do habituate the sound. It
may be that I am one of the people who is super sensitive to sound....I just
don't know.

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(¸.·´ (¸.*´ ¸.·´ `·-* * Patty * `·-*

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