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Medical Forum / Diseases and Disorders / Tinnitus / November 2004

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menieres

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Jennifer Bell - 10 Nov 2004 11:04 GMT
Does anyone else get dizzy all the time with their T?
The ENT said I prob have menieres, but I dont get vertigo, I just feel
lightheaded when I put my head up or down. The Neurologist checked out all
my balance and said I was fine and that he didnt think I have menieres, he
said I just panic too much,the Drs dont think I have it either..just this
one ENT.
But being constantly light headed is very debilitating, I am tired of taking
stemitil.
Paul - 10 Nov 2004 14:36 GMT
> Date: Wed, 10 Nov 2004 19:04:31 +0800
> From: Jennifer Bell <starwood@iprimus.com.au>
[quoted text clipped - 9 lines]
> But being constantly light headed is very debilitating, I am tired of taking
> stemitil.

It's the same story with me: no vertigo, light-headedness,
tinnitus/ear-fullness.  Got Meniere's diagnose as well.
Does your lightheadedness only strike after head movement or are there
other triggers (such as eating certain foods)?
Over the years I found that the best thing during light-headed spells is
just to relax and ignore them, don't try to remedy the situation in any
conscious way because it will be even more taxing for the brain which
needs rest at this time.

Paul>
Elly Byrne - 10 Nov 2004 19:26 GMT
>Does anyone else get dizzy all the time with their T?
>The ENT said I prob have menieres, but I dont get vertigo, I just feel
[quoted text clipped - 4 lines]
>But being constantly light headed is very debilitating, I am tired of taking
>stemitil.

I have Assar Bjorne's permission to quote this:
"You have got the diagnose Meniere´s disease.
That is my speciality. You find my published articles on www.yts.se 
I have examined at least 500 cases having got that diagnosis. In every
case I have found a muscular tension in the jaw and neck causing the
symptoms."

www.yts.se

Tinnitus is a pain in the neck
Elly's Tinnitus Resources
http://eebee.net/
Jim Chinnis - 10 Nov 2004 21:36 GMT
Elly Byrne <elly@eebee.cjb.net.noway> wrote in part:

>>Does anyone else get dizzy all the time with their T?
>>The ENT said I prob have menieres, but I dont get vertigo, I just feel
[quoted text clipped - 8 lines]
>"You have got the diagnose Meniere´s disease.
>That is my speciality.

I assume that Dr. Bjorne doesn't mean that his specialty lies in diagnosing
Meniere's. He's a dentist, for thing. For another, to be able to recognize
meniere's, you need expertise in recognizing a wide range of other vestibular
(and non-vestibular medical) problems so that they can be ruled out.

>You find my published articles on www.yts.se 
>I have examined at least 500 cases having got that diagnosis. In every
>case I have found a muscular tension in the jaw and neck causing the
>symptoms."

I recall looking at the site a year or so ago. It wasn't very clear about how
the patients were chosen. It sort of looked like they might have been chosen
because they had serious dental/jaw/neck problems.

If you read the literature on Meniere's, you are struck by the fact that many
well-respected MDs have declared that they have found the cause/cure for
Meniere's. There's at least one who has pulled that stunt twice! Mostly, this
has been due to doing studies without control groups. Meniere's patients have
a disease that gets really bad and then goes away, sometimes not coming back
for years. They tend to seek medical help when they are really, really bad. If
you treat them by whistling Dixie at them and then see how they are 6 months
later, lots of them will be much better. If you do a shoddy experiment to
start with, you can convince yourself you have the cure.

What Dr. Bjorne should do--in my humble opinion--is to do a properly-powered
study with a proper control group and using carefully defined selection
criteria and symptom measures. Then he can publish it. If he's right that he's
found the cause/cure, he will then be famous and all of us with Meniere's will
thank him.
Signature

Jim Chinnis / Warrenton, Virginia, USA
Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG

Elly Byrne - 11 Nov 2004 19:07 GMT
>I recall looking at the site a year or so ago. It wasn't very clear about how
>the patients were chosen. It sort of looked like they might have been chosen
>because they had serious dental/jaw/neck problems.

Have you ever asked him?

Tinnitus is a pain in the neck
Elly's Tinnitus Resources
http://eebee.net/
Jim Chinnis - 12 Nov 2004 02:24 GMT
Elly Byrne <elly@eebee.cjb.net.noway> wrote in part:

>>I recall looking at the site a year or so ago. It wasn't very clear about how
>>the patients were chosen. It sort of looked like they might have been chosen
>>because they had serious dental/jaw/neck problems.
>
>Have you ever asked him?

No. There seem to be many more interesting approaches to follow up on. Just
not enough time.

But actually I would like to see a peer-reviewed paper.
Signature

Jim Chinnis / Warrenton, Virginia, USA
Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG

Elly Byrne - 12 Nov 2004 19:25 GMT
>No. There seem to be many more interesting approaches to follow up on. Just
>not enough time.

Maybe you should. How long does it take?

>But actually I would like to see a peer-reviewed paper.

A peer reviewed paper would be reviewed by more dentists. That would
not impress the medical community.

Ask him.

Tinnitus is a pain in the neck
Elly's Tinnitus Resources
http://eebee.net/
Elly Byrne - 13 Nov 2004 19:25 GMT
>Ask him.

I take that as a NO.

Tinnitus is a pain in the neck
Elly's Tinnitus Resources
http://eebee.net/
Jim Chinnis - 13 Nov 2004 20:16 GMT
Elly Byrne <elly@eebee.cjb.net.noway> wrote in part:

>>Ask him.
>
>I take that as a NO.

Patience, Elly.

I will reread his website/papers so that i can actually write him a sensible
letter. Then i will write him with any questions I have, assuming that the
material I read raises any questions.

This is not really high on my list of priorities, but it will get done.
Signature

Jim Chinnis / Warrenton, Virginia, USA
Want to discuss Meniere's? See http://groups.yahoo.com/group/MenieresDG

Elly Byrne - 14 Nov 2004 19:22 GMT
>Patience, Elly.
>
[quoted text clipped - 3 lines]
>
>This is not really high on my list of priorities, but it will get done.

Thank you Jim, I look forward to your opinion.

Tinnitus is a pain in the neck
Elly's Tinnitus Resources
http://eebee.net/
Elly Byrne - 15 Nov 2004 19:36 GMT
Do most people think that because Assar is a dentist he only treats
TMJ?

This is not the case. He also checks for muscle tension, head posture,
spinal misfunction, stress etc.

All these things work together. Do you know any other dentists that do
this?

If I remember correctly Assar discovered that when he injected his
patients with an anaesthetic in the jaw muscle the tinnitus would go
away. He had the insight to follow that up and formulated his
treatment from that.

Tinnitus is a pain in the neck
Elly's Tinnitus Resources
http://eebee.net/

>>Patience, Elly.
>>
[quoted text clipped - 9 lines]
>Elly's Tinnitus Resources
>http://eebee.net/
francispoon - 16 Nov 2004 20:16 GMT
> >Does anyone else get dizzy all the time with their T?
> >The ENT said I prob have menieres, but I dont get vertigo, I just feel
[quoted text clipped - 11 lines]
> case I have found a muscular tension in the jaw and neck causing the
> symptoms."

I wrote to Dr. Assar several times and he replied.  I think the
biggest benefit I got out from our correspondence was his suggestion
to me to perform chiropractic.  It was through my neck being twisted
that I found a connection between my spine and a particular spot on
the left side of my head.  I used to believe the pressure from that
spot was due to 'hydrop'.  Now i am convinced it is from a compressed
nerve.

FP

>  www.yts.se
>
> Tinnitus is a pain in the neck
> Elly's Tinnitus Resources
> http://eebee.net/
francispoon - 16 Nov 2004 20:20 GMT
"Jennifer Bell" <starwood@iprimus.com.au> wrote in message
snipped...
> But being constantly light headed is very debilitating, I am tired of taking
> stemitil.

I was prescribed stemitil once by a doctor and it worked perfectly.
It stopped the t and produced no side-effects at all.  So I thought I
found the answer.  But the stemitil he gave me from his office did
work while the ones I bought from an outside shop never worked.  At
this moment I am still being puzzled why?

FP
Bill - 16 Nov 2004 20:51 GMT
> "Jennifer Bell" <starwood@iprimus.com.au> wrote in message
> snipped...
[quoted text clipped - 9 lines]
>
> FP

Presuming the formulations were the same, Francis, it was just a coincidence
that your T "stopped" when you took it.  Therein lies the problem with
experimenting on one's tinnitus.  Tinnitus is so variable that an individual
cannot associate typical day-by-day changes with ginkgo, massage,
acupuncture, hyperbaric enhanced infusions of herbs or, for that matter,
black beans.
francispoon - 19 Nov 2004 20:15 GMT
> > "Jennifer Bell" <starwood@iprimus.com.au> wrote in message
> > snipped...
[quoted text clipped - 12 lines]
> Presuming the formulations were the same, Francis, it was just a coincidence
> that your T "stopped" when you took it.

No, I know what I am doing.

Therein lies the problem with
> experimenting on one's tinnitus.  Tinnitus is so variable that an individual
> cannot associate typical day-by-day changes with ginkgo, massage,
> acupuncture, hyperbaric enhanced infusions of herbs or, for that matter,
> black beans.

You sound like a tinnitus authority the world over....
newbie - 19 Nov 2004 01:42 GMT
> "Jennifer Bell" <starwood@iprimus.com.au> wrote in message
> snipped...
[quoted text clipped - 9 lines]
>
> FP

Perhaps it is because, as you mentioned in your previous post, your neck has
been twisted.
 
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