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Medical Forum / Diseases and Disorders / Tinnitus / October 2004Don't allow your T to get old!
To all the t newbies out there: do NOT allow your t to get old. Once your t gets old, it becomes harder to treat! The moment when you discover you have a t, immediately go to see an experienced doctor. I have *personally* seen several cases in which the t was _cured_ of the patients who rushed to hospital quickly. I no longer need to tell you where to go and who to see. I have repeated that many times in this ng to the point of being redundant. Just go and visit a doctor who is in great demand by patients! Forget about your medical coverage which might require you to wait for ages before getting to see a specialist. Just use your own money and pop into a _private_ clinic that is in great demand by many patients. NO doctor anywhere in the world would spend his own capital in setting up a clinic in order to fool some of the people all the time or all the people some of the time. FP > To all the t newbies out there: do NOT allow your t to get old. Once > your t gets old, it becomes harder to treat! So - what do they treat new T with then? Ben > > To all the t newbies out there: do NOT allow your t to get old. Once > > your t gets old, it becomes harder to treat! > > So - what do they treat new T with then? I suppose this *they* you talk about is referred to as your doctor. If your doctor does not know how, go with another one. > Ben >> > To all the t newbies out there: do NOT allow your t to get old. Once >> > your t gets old, it becomes harder to treat! [quoted text clipped - 3 lines] > I suppose this *they* you talk about is referred to as your doctor. > If your doctor does not know how, go with another one. He was asking you what NEW T should be treated with in order that in not get old, Francis. After all, you did say "do NOT allow your t to get old". "They" would be whoever administers the treatment you believe will nip T in the bud. I certainly would like to know what that is. After all, there is no known cure for tinnitus so it would seem difficult for a person to not allow it to get old. "Bill" <Bill@myplace.now> wrote in message news:<CX%ed.229 snipped... > "They" would be whoever administers the treatment you believe will nip T in > the bud. I certainly would like to know what that is. After all, there is > no known cure for tinnitus This is that kind of negativism permeating in alt that discouraged a lot of newbies to seek medical help when they should. While most doctors do NOT know how to treat tinnitus, some do and do it very well. You may not be able to make it completely go away but many people do experience improvement by which they find their t to be quite livable. I have been telling the group to check out with the licensed doctors here in alt but they just want to go back into their room and become sicker! FP ================================ so it would seem difficult for a person to not > allow it to get old. > "Bill" <Bill@myplace.now> wrote in message news:<CX%ed.229 > snipped... [quoted text clipped - 16 lines] > > FP The question was, Francis, how do we NOT let our tinnitus get old. You position was framed to imply there IS a cure for tinnitus IF the condition was addressed early-on. It would be of great benefit to the people here to know what treatment they should request as they move from doctor-to-doctor as you suggest above. Many of us, certainly not me, don't have the benefit of seeing the dozen or more doctors who have treated your tinnitus, nor do we have the benefit of having tried all of their treatments. Although I have habituated my tinnitus and don't care to experiment with drugs and procedures that have dangerous side effects, some may be willing to do that. You have managed to eliminate roughly 99% of your tinnitus and only hear what little noise remains 3 or 4 days a week. That is admirable and I once again ask you to summarize those treatments and the percentage of benefit received. The ones I recall are black beans, Zanax, intravenous injections of some concoction of herbs, ginkgo, the hyperbaric chamber, massage, meditation, switching blood pressure medication, dietary modification, and sleeping without a pillow. > > "Bill" <Bill@myplace.now> wrote in message news:<CX%ed.229 > > snipped... [quoted text clipped - 20 lines] > position was framed to imply there IS a cure for tinnitus IF the condition > was addressed early-on. Let us use the word 'treatment' instead of 'cure'. The word 'cure' implies total silence while the word treatment refers to a state that is a lot improved from the days of the onset. It would be of great benefit to the people here to > know what treatment they should request as they move from doctor-to-doctor > as you suggest above. There are licensed doctors here in alt. My point is go and visit them instead of spending a great deal of time searching for the right one. I used to think that the Americans, living in the most affluent country in the world, must be getting the first class medical care. Now i have second thought. > Many of us, certainly not me, don't have the benefit of seeing the dozen or > more doctors who have treated your tinnitus, nor do we have the benefit of [quoted text clipped - 5 lines] > summarize those treatments and the percentage of benefit received. The ones > I recall are black beans, Zanax, Ativan...not Zanax, or it does not go by that name. intravenous injections of some concoction > of herbs, ginkgo, the hyperbaric chamber, massage, meditation, switching > blood pressure medication, dietary modification, and sleeping without a > pillow. What applies to me may not apply to you. Not all the treatments are useful. But you never know until you go through it. Take hyperbaric oxygen treatment, for example. It helps some while some never react to it. Thus they have to move on. My purpose of posting this is to tell the newbies to get to an experienced doctor asap as opposed to doing nothing in the belief that by doing nothing it will go away or the habituation process will be successful. Some might achieve success while others are still very bothered by it. I know a guy whose t went away by itself. But it does not mean this could happen to everybody. FP W "Bill" <Bill@myplace.now> wrote in message news:<iGbfd.238 snipped... That is admirable and I once again ask you to > summarize those treatments and the percentage of benefit received. You continue with your skepticism for reasons i could well understand. I just posted "self-help kit for tinnitus patients' and it pretty well summarized what I have gone through. Practically all the doctors that i have see catered the treatment/medicine around 2 areas: (1)blood circulation (2)inner ear fluid circulation. The treatments/medicines used so far have been named numerous times. I took the ones that are the inexpensive, simple, most effective, and with least side effects. I include them into the 'self-help' kit. In that kit, there is no hyperbaric oxygen treatment, or intravenous injection. The reason is because these two items are expensive and unpleasant, while simple medicines such as gingko and betahistine could do a job just as well or even better. Try it. What have you got to lose? You could discontinue the program at any time. And the program is inexpensive. You are talking about the % of benefit received. Well, pal, benefits are not that quantifiable in terms of %. If you experienced something good on an overall basis, then stick with it. That was how my doctors prescribed to me. If you had not been helped by any doctor you have run into, what have you got to lose? FP The ones > I recall are black beans, Zanax, intravenous injections of some concoction > of herbs, ginkgo, the hyperbaric chamber, massage, meditation, switching > blood pressure medication, dietary modification, and sleeping without a > pillow. > "Bill" <Bill@myplace.now> wrote in message news:<iGbfd.238 > snipped... [quoted text clipped - 27 lines] > > FP The ENT I saw ruled out an acoustic neuroma, told me there was no cure and said I would get used to it after a while. He was right, I did get used to it and it doesn't bother me any more. The information you have posted here contradicts what I learned from my doctor. You posted percentages of improvement for several of your treatments and say you know two people who were cured by their hyperbaric chamber treatments. I have asked you repeatedly to provide the percentage improvement for each treatment and to put those two people who you say were cured in contact with this group. I ask this not as your "pal" but as someone sincerely interested in helping people habituate their tinnitus. Please, Francis, don't keep repeating the same stuff over and over. Just summarize your list and put those folks in contact with us. Fair enough? Shouldn't take you more than a couple of minutes. > > "Bill" <Bill@myplace.now> wrote in message news:<iGbfd.238 > > snipped... [quoted text clipped - 42 lines] > summarize your list and put those folks in contact with us. Fair enough? > Shouldn't take you more than a couple of minutes. These two persons I met are not living in NA. They are the natives of China and could not communicate in English. They were in the same chamber with me while i was working in China as an expatriat. However, I could talk to my friend Brian in HK and he could communicate in English. He got tinnitus and vertigo and they went away with a bit of a medication. So let me talk to him first. OK? However, don't insist on being answered the way you want it to be answered. For example, Brian does not necessarily want to put things in percentage. What you want may not be what he wants. And he does not owe you a living. The latter you have to understand. The name of *one* of the solutions I used is DEFIBRINOGENUSE. It does not apply to everyone. If your ENT doctor told you that is the best you could do and you were satisfied with the level of your noise, then either accept it or see another ENT doctor. It is as simple as that. FP <snip> > If your ENT doctor told you that is the best you could do and you were > satisfied with the level of your noise, then either accept it or see > another ENT doctor. It is as simple as that. I believe the ENT I saw did the best he could under the circumstances. There is no known cure for tinnitus. There are a lot of people, you being one of them, who claim to have been helped by all manner of treatments. It is impossible for these people to distinguish between the common day-by-day and hour-by-hour variations in their tinnitus and the effect of these treatments. Moreover, it is impossible for an individual to distinguish between relief from a treatment and spontaneous relief. In fact, almost all tinnitus sufferers spontaneously habituate their tinnitus after a year or so without any treatment whatever. How does one distinguish between a person who did nothing over the course of a year, for example, and one who tried everything over the course of that year when they both end up still having tinnitus but neither being bothered by it? Going to see one ENT after another wastes a lot of money and, in my opinion, only inhibits habituation because acceptance is such a large part of the habituation process. You posted to this group percentage improvements from many of the treatments you experimented with and emphatically claimed they were working. Now, more than a year after you first described your tinnitus to this group, the way you describe it is consistent with the way a typical tinnitus victim who had done nothing would describe it. You are encouraging people to shop for doctors who will experiment on them, and that, Francis, could cause someone serious harm and unnecessary expense. > > "Bill" <Bill@myplace.now> wrote in message news:<iGbfd.238 > > snipped... [quoted text clipped - 42 lines] > summarize your list and put those folks in contact with us. Fair enough? > Shouldn't take you more than a couple of minutes. If you got onto the medical newsgroups in the other parts of the world and ask the same question, you could achieve it even in less than 2 minutes. The world does not dance to your tune at any time. > To all the t newbies out there: do NOT allow your t to get old. Once > your t gets old, it becomes harder to treat! The facts are that most people who get 't' lose it within a short time whether they get treatment or not. My 't' is so old and feeble that it can't squeek well enough to get my attention much anymore. I guess my old 't' is harder to treat simply because I notice it so rarely that I'm no longer willing to seek 'treatment'. There was a time, two years or so, when my 't' was new and always on my mind. I sought treatment, constantly montored when it was louder or softer. I was focused on that 't' but good. There came a time I decided that I no longer would be a 't' sufferer. Quit focusing and decided to do other things besides sufer with 't'. It worked. Barely notice it and it is much quieter when I do stop to hear it now that I no longer focus on it and worry it. Bruce > > To all the t newbies out there: do NOT allow your t to get old. Once > > your t gets old, it becomes harder to treat! [quoted text clipped - 14 lines] > it is much quieter when I do stop to hear it now that I no longer focus > on it and worry it. This is a good tip... (I just wrote that and the phone rang) . After finishing the phone conversation I now find the tinnitus is quieter - at least for a while. My T level is determined by what else the brain is doing, and how engaged in the outside world it is. Like with the other senses, what we actually hear is not only determined by the source, but also the value we put on it. Steve O "> "Bruce/Seattle" <EERIEWAX@yahoo.com> wrote in message . My T level is determined by what else the brain is > doing, and how engaged in the outside world it is. How come mine will go quiet if I lie down in the dead quiet of my bedroom on my left side and the T will go away then? I am hardly "engaged" in anything? Ben >> . My T level is determined by what else the brain is > > doing, and how engaged in the outside world it is. [quoted text clipped - 4 lines] > > Ben Ben, thanks for bringing me down to earth - I think we've established already that your tinnitus is _nothing_ like mine :-) In fact, almost the opposite! How I wish I had an 'off-switch' available like you. Lying down for me (on either side) makes it far louder. Using 'detinnitising' sound then reduces it (for me) to help getting to sleep, but in your case I'll bet this would be the worst thing you could do. And also, unlike for you, hearing amplification makes my T better. Just goes to show what a slippery, difficult subject tinnitus is. Your best bet might be to take note of everything I try and then do the opposite! E.g... I'm currently trying a low-salt diet - this seems to be helping - have you considered high salt ? Delicious bags of crisps... (careful....only joking ;o). Talking of crisps, a serious question though...in your case, what are the things that reduce your T (apart from lying on your side) and what things increase it (apart from hearing aids) ? Does the sound of crumpling a crisp packet nearby make it better, or worse, or leave it unaffected ? I think that 'questionaire' idea mentioned on another thread is an excellent one. For a start, let's hear what makes it better and worse for everyone and, even if some of the information is anecdotal or inaccurate, we should start to see some patterns emerge. Steve O www.detinnitiser.com > Ben, thanks for bringing me down to earth - I think we've established > already that your tinnitus is _nothing_ like mine :-) In fact, almost > the opposite! This is why I think when a "cure" is found it will be many cures for different people? >How I wish I had an 'off-switch' available like you. Lying > down for me (on either side) makes it far louder. Using 'detinnitising' > sound then reduces it (for me) to help getting to sleep, but in your case > I'll bet this would be the worst thing you could do. And also, unlike for > you, hearing amplification makes my T better. I usually drop off to sleep if I lie down, and yes, you guessed it, sleep make it worse! :( It is a wonderful feeling to lie down in peace, but it never lasts long due to me dropping off in a happy stupor of silence. > Just goes to show what a slippery, difficult subject tinnitus is. Your best > bet might be to take note of everything I try and then do the opposite! > E.g... I'm currently trying a low-salt diet - this seems to be helping - > have you considered high salt ? Delicious bags of crisps... > (careful....only joking ;o). I love crisps! :) I don't think coffee, which I drink black, or anything I can think of that I eat or drink makes much difference to my T. > Talking of crisps, a serious question though...in your case, what are the > things that reduce your T (apart from lying on your side) and what things > increase it (apart from hearing aids) ? Does the sound of crumpling a crisp > packet nearby make it better, or worse, or leave it unaffected ? Violins seem to make it worse - I love classical music but cannot tolerate Vivaldi's 4 seasons :( Crumpling a crisp back wouldn't make any difference unless I was wearing a hearing aid, then that would just grate on my nerves as opposed to making the T any worse or better. Nothing, other than lying on my side, makes the T go away - so far. I know it sounds great to you, but I can't lie down all day, can I? Can I??? :) Occasionally, the T will go quiet all by itself - oh hapy days, which are few and far between. I also have some days where the T is really loud, then I can have several days where it is almost quiet! No wonder it drives me daft. However, I do realise how very fortunate I am that I do have quiet or quiet-ish days as well as the noisy days. > I think that 'questionaire' idea mentioned on another thread is an excellent > one. For a start, let's hear what makes it better and worse for everyone > and, even if some of the information is anecdotal or inaccurate, we should > start to see some patterns emerge. I am not too sure this would be really helpful, though it would be interesting. As it seems pretty obvious that we are so very different, knowing what makes it better or worse for some, is simply the opposite for others :( Ben >The facts are that most people who get 't' lose it within a short time >whether they get treatment or not. Bruce, how do you know that? Is it assumed because people do not go back to their doctor? Tinnitus is a pain in the neck Elly's Tinnitus Resources http://eebee.net/ >>The facts are that most people who get 't' lose it within a short time >>whether they get treatment or not. > > Bruce, how do you know that? > Is it assumed because people do not go back to their doctor? Elly, I think this is because most people experience tinnitus of short duration immediately following major auditory insults. I probably experienced tinnitus a dozen times during my life until, one day, the ringing came but never went away. I attribute my tinnitus to a lifetime of auditory abuse combined with my own negligence.
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