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Medical Forum / Diseases and Disorders / Tinnitus / September 2004Wits end
Hi I have had problems with my ears for some time ie radio tunning sound that lasted for several hours once or twice a week also severe balance problems - very dizzy when i look down. The approx 3 months ago woke up with a high pitch fuzzy whistling in my ear (left only?) which just hasnt gone away Doc says nothing to be done apart from cutting the nerve to the ear which will leave me stone deaf- this seems a LITTLE draconian. I realise that there will be people out there who have been suffering from this for years , I ve just started to do a little research of my own with the Royal National Institue for the Deaf - They suggest I try a "sound Pacifier" or a white noise tape - are they of any benefit Is there any hope that this will stop as suddenly as it started -I honestly think itll drive me mad if it dosent I am sleeping all night with the wireless on at the minute but im afraid i might be damaging my earing further. Any words of comfort about Anything i can do to help this lessen would be of most welcome ie should I change my diet less salt etc It was suggested that I might have menieres (prob spelt it wrong sorry) is this type of tinnitus associated with that - i thought it was just the intermitent radio tunning kind) Thanking you kindly T K Wilton-Dowding PS im 38 - is this a typical age for this to start - i always associated earing loss etc with people a couple of decades older than me > Is there any hope that this will stop as suddenly as it started -I honestly > think itll drive me mad if it dosent It has been known to stop suddenly, I believe, though not too common :( My son told me I would get used ot it - Hah, I thought! However, you do, and can, learn to live with it. > I am sleeping all night with the wireless on at the minute but im afraid i > might be damaging my earing further. As long as you haven't got it on too loud, I wouldn't think it would hurt your hearing. > Any words of comfort about Anything i can do to help this lessen would be of > most welcome ie should I change my diet less salt etc I know how desperate you must be feeling, and it is always a good thing to cut down on salt, but I ain't sure that would help the dreaded T :P > It was suggested that I might have menieres (prob spelt it wrong sorry) is > this type of tinnitus associated with that - i thought it was just the > intermitent radio tunning kind) If you have Meniere's disease I am sure your GP can help - beta-histine for starters! > Thanking you kindly No hope of you being a Due South fan is there? :) Take care, and chin up! Ben > PS im 38 - is this a typical age for this to start - i always associated > earing loss etc with people a couple of decades older than me My daughter must have been born with a slight hearing problem, and until I broke out into hysterics [nearly 14 years ago]she thought her tinnitus was a normal thing that everyone had ! It still doesn't worry her at all. > Hi > [quoted text clipped - 7 lines] > Doc says nothing to be done apart from cutting the nerve to the ear which > will leave me stone deaf- this seems a LITTLE draconian. Some patients have reported the tinnitus still there after the nerve has been cut. The overall effect was that it became a much worse problem for them and if I remember correctly some of those patients committed suicide because it had become so bad. Just imagine, loud tinnitus with no possibility of acoustic distraction! It must be terrible. Don't do it. > I realise that there will be people out there who have been suffering from > this for years , I ve just started to do a little research of my own with [quoted text clipped - 20 lines] > PS im 38 - is this a typical age for this to start - i always associated > earing loss etc with people a couple of decades older than me Hi > I have had problems with my ears for some time ie radio tunning sound that > lasted for several hours once or twice a week also severe balance problems - [quoted text clipped - 5 lines] > Doc says nothing to be done apart from cutting the nerve to the ear which > will leave me stone deaf- this seems a LITTLE draconian. Doctors on the whole don't know as much about tinnitus as they or you would like. However, if you do have Menieres or an Acoustic Neuroma, these can be treated. For most of us though the situation isn't so clear... > I realise that there will be people out there who have been suffering from > this for years , I tell you honestly: 'suffering' is not a word I would choose after having had tinnitus for 2 years. By this time the brain pulls off a wonderful trick called 'habituation'. It blanks the tinnitus out so well that you only can hear it when you decide to listen for it. And when you do hear it it doesn't worry you; it's more a simple object of curiosity. Don't believe me ? Wait and see. >I ve just started to do a little research of my own with > the Royal National Institue for the Deaf - They suggest I try a "sound > Pacifier" or a white noise tape - are they of any benefit With some 'tinniti' they can be. Wearing a low-amplification hearing aid can also help, and can push the tinnitus down to near-inaudibility. > Is there any hope that this will stop as suddenly as it started -I honestly > think itll drive me mad if it dosent Tinnitus can sometimes stop, though more commonly your brain will 'stop' it - see above. > I am sleeping all night with the wireless on at the minute but im afraid i > might be damaging my earing further. Doubt it. > Any words of comfort about Anything i can do to help this lessen would be of > most welcome ie should I change my diet less salt etc Yes, try cutting the salt. I've found 100mg of Ginkgo Biloba extract per day (stocked by supermarkets) seems to quieten the tinnitus but this doesn't work for everybody. > PS im 38 - is this a typical age for this to start - i always associated > earing loss etc with people a couple of decades older than me Rest assured, if you have to 'learn to live with it' this won't be done by gritting your teeth, but more as an automatic process. Habituation will take 1-2 years. In the meantime, check there's no obvious medical cause (see an ENT) and for relief try using a hearing aid or little earphone amplifier. All the best, Skycloud > I tell you honestly: 'suffering' is not a word I would choose after having > had tinnitus for 2 years. By this time the brain pulls off a wonderful trick > called 'habituation'. It blanks the tinnitus out so well that you only can > hear it when you decide to listen for it. And when you do hear it it > doesn't worry you; it's more a simple object of curiosity. Don't believe me > ? Wait and see Okay, I am still waiting nearly 14 years on! :( Ben <who does regard tinnitus as suffering> . >> I tell you honestly: 'suffering' is not a word I would choose after >> having [quoted text clipped - 10 lines] > > Ben <who does regard tinnitus as suffering> . Ben, mine is really loud right now and consists of what *could* be an irritating mix of frequencies. I used to suffer days like today but now I just ignore it. In a minute or so I'll post this message and go get a cup of coffee. In the process, I'll forget all about the sound and it will be as benign and unobtrusive as my air exchanger or a passing train. That's what learning to live with it or "habituation" is all about. Accepting the tinnitus sound as just another background noise. Bill Wilton, continue to ask these questions, which require answers from professionals, in this ng as you want. But the foremost thing you should do is go to visit a doctor with experience in treating ears. You won't regret having taken my advice. Make an appointment to see Murray of ENT Consul in this ng. He is _licensed_ and has had the experiences. He has been around listening to the descriptions of symptoms from T patients all over the world like myself. Most doctors do NOT know how to treat tinnitus. And that is not an over statement. STOP TREATING YOURSELF WITH WHATEVER ADVICES YOU GET FROM THIS NG. YOU COULD, HOWEVER, BRING THEM TO YOUR DOCTOR AND DISCUSS THE IDEAS WITH HIM. FP =============================================== > Hi > [quoted text clipped - 32 lines] > PS im 38 - is this a typical age for this to start - i always associated > earing loss etc with people a couple of decades older than me Tinnitus is a pain in the neck Elly's Tinnitus Resources http://eebee.net/ For email: elly at eebee.cjb.net > Wilton, continue to ask these questions, which require answers from > professionals, in this ng as you want. But the foremost thing you [quoted text clipped - 15 lines] > FP > =============================================== Great advice, Francis, but very surprising considering you have promoted the consumption of black beans, energizing the kidney, hyperbaric chamber sessions, ginkgo, intravenous injection of herbs, herb teas and acupuncture. Since you still have tinnitus, I suppose you now know none of these treatments work. Of course, there is no cure for tinnitus but the next best thing, habituation, is free and many of those who frequent this group have successfully habituated their own tinnitus. The tips and techniques they offer were a god-send to me and to many others. We try our best to warn people about the various bogus treatments lauded here and I am pleased that you are joining in that effort. Bill > > Wilton, continue to ask these questions, which require answers from > > professionals, in this ng as you want. But the foremost thing you [quoted text clipped - 20 lines] > Since you still have tinnitus, I suppose you now know none of these > treatments work. They were prescribed to me by _licensed_ doctors. Of all these, gingko and acupuncture have proved to work best. They don't cure but have brought about improvement. > Of course, there is no cure for tinnitus but the next best thing, > habituation, is free and many of those who frequent this group have > successfully habituated their own tinnitus. The tips and techniques they > offer were a god-send to me and to many others. We try our best to warn > people about the various bogus treatments lauded here and I am pleased that > you are joining in that effort. *We* don't warn people as few of us are _licensed_ doctors. You are not a doctor and you may not have enough of what it takes to "warn' people. Just who are you to "warn" people? Don't you think you have rated yourself too highly when it comes to "warning" people. FP ================================== > Bill >> > Wilton, continue to ask these questions, which require answers from >> > professionals, in this ng as you want. But the foremost thing you [quoted text clipped - 41 lines] > > FP No, Francis, I don't think I rate myself too highly. I have never promoted the use of any product on a.s.t. You, without any medical credentials whatever, have promoted a wide range of products and procedures, none of which have cured your own tinnitus. Yes, you speak of the credentials of others, but you provide neither names nor verifiable "credentials". I have nothing to sell, Francis. I've been through what you are going through now, trying a myriad of different ways to diminish the sound. It's a waste of money and a waste of time that would be better spent on the road to habituation. When you tell someone how eating black beans, for example, significantly reduces the volume of your tinnitus you create a false hope that prolongs the habituation process. Think about it, Francis, do you really want to do this to other tinnitus victims? I don't think so. Bill Thank you to everyone who responded. Especially thank you to the advice re some people still being able to hear the tinnitus despite sacrificing their earring - I didn't think it could be worse than it is , but that sounds truly awful. I am going to see my GP tomorrow for a referral to a ENT and then for a referral onto a hearing therapist to have a white noise generator fitted????? Im not a person normally given to alternative /complimentary therapies but i can see how people can be driven to try anything Ill take some hope from the fact that some people do " get used to it" and just pray im in that group of people Thanks again to everyone who took the time and trouble to respond Thanking you kindly Trudy PS My family have been using that expression for at least three generations > >> > Wilton, continue to ask these questions, which require answers from > >> > professionals, in this ng as you want. But the foremost thing you [quoted text clipped - 56 lines] > > Bill > Thank you to everyone who responded. > [quoted text clipped - 19 lines] > > Trudy Trudy, You might be able to save yourself a buck or two by calling an ENT directly. Most likely an ENT will exclude an acoustic neuroma as the cause of your tinnitus and if so, that should bring you some comfort. Jim can tell you more about the particular type of ENT to shop for. Jim? I find interesting talk radio to work much better than white noise. I always go to sleep listening to the BBC which is carried on public radio where I live. The timer on my clock/radio turns it off sometime after I've drifted into never-never land. I believe this works not because the noise masks the tinnitus sound but rather because the content stimulates my intellect thereby drawing my attention away from the tinnitus sound. Best wishes and stay in touch, Bill "Smarty pants" <bushlies@whitehouse.now> wrote in message news:<Zt%1d.4621$> >> > =============================================== > >> Great advice, Francis, but very surprising considering you have promoted > >> the [quoted text clipped - 37 lines] > > Bill Francis, there are many bogus and fradulent therapies out there preying on the desperation and gullibility of people with new found tinnitus. I don't think it out of line for posters to warn others (especially those who are given hope by slick pseudo-science hucksters who portend to know the cure that conventional medicine tries to cover up)and to be skeptical of these so-called cures. frank > "Smarty pants" <bushlies@whitehouse.now> wrote in message news:<Zt%1d.4621$> >> > =============================================== > > >> Great advice, Francis, but very surprising considering you have promoted [quoted text clipped - 45 lines] > portend to know the cure that conventional medicine tries to > cover up)and to be skeptical of these so-called cures. (1)I don't think the word 'cure' is that often used but the word 'treatment' is more commonly understood, though I *personally* do know individuals who have been _totally_ cured in the sense that the noise has not come back after the treatment. Personally, I have managed to transform my T from a maddening ill into a 'managable' ill in about 10 months' time. And I don't think I could have done so without the treatments that I have gone through. Mind you, not all the treatments have been useful, but i found out what has worked for *me* only after trying them. The kinds of treatments that have not worked for me have worked for others. (2)In this group or alt., it is the sharing of ideas among patients. The final verdict is still in the hands of the _licensed_ doctors who are looking after us. Thus it is our job to bring the ideas to our doctors and let them decide for us. For example, for a long long long time I was constantly bothered by some built up pressure in my head. I went to see so many doctors and none of them had any answers. And I was 'persuaded' to give up and go into habituation by so many 'supporters' in this group. Finally Murray from ENT Consul told me to look into the possible area of 'hydrop' and recommended me to apply diuretics. I went to talk to my doctor and I was 'saved'. Murray is a _licensed_ doctor while most of the others in this group are not and have little clue on the use of medicine. I will never go into any TRT program unless the organizer knows something about medicine. I wonder what I would still be feeling if I had not had that good piece of advice from a _licensed_ doctor like Murray. (3)People that 'warn' other people had better know what they are talking about. Otherwise, that kind of 'warning' in terms of NOT trying this and not trying that is as harmful as advocating the use of this and that when their background is hardly related to medicine. (4)The only kind of advice that is worth taking in terms of what to try or what Not to try should be from _licensed_ doctors. The rest should be for reference only. FP > frank > >> > Wilton, continue to ask these questions, which require answers from > >> > professionals, in this ng as you want. But the foremost thing you [quoted text clipped - 46 lines] > which have cured your own tinnitus. Yes, you speak of the credentials of > others, but you provide neither names nor verifiable "credentials". Do you want the names of those doctors in China and their credentials? > I have nothing to sell, Francis. I've been through what you are going > through now, trying a myriad of different ways to diminish the sound. It's [quoted text clipped - 3 lines] > that prolongs the habituation process. Think about it, Francis, do you > really want to do this to other tinnitus victims? I don't think so. If you advocate habituation means doing away without doctors or treatments, you then go ahead for *yourself*. But stop speaking for others. I as one do need to see doctors and need treatments in addition to habituation. So stop telling me how I should have felt in response to various treatments, as you are not me. FP ============= > Bill
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