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Medical Forum / Diseases and Disorders / Sinusitis / October 2004

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Mega Cyst

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Julie - 24 Oct 2004 04:48 GMT
I have had this cyst growing inside my maxilary sinus for about 3
years now.  Its been getting larger and larger.  My CT scans and MRI's
have shown this. It now almost covers the entire maxilary sinus on one
side. I've been having headaches for almost a year now. I had my 7th
sinus surgery and tubes put into my ears March and May of this past
year,but my sinus pain continued. The doctors are wondering if the
cyst is possibly pressing on the trigeminal nerve and casuing me sinus
pain mostly concentrated in the cheek where the cyst is. I've been on
many different medicines to try to get rid of the pain...Neurontin,
Deprokote (not spelled right).  But my sinus pain is still there.  My
ENT doctor said we will keep checking the cyst to make sure it doesn't
get larger but most likely the only way to remove it is to go through
my mouth, cut through my gums.  This sounds like a horrible procedure.
Your probably going to ask me why they didnt remove it during my last
surgery.  It could not be reached unless this procedure was done.  The
cyst was smaller then too.  It seems it grew alot during the last 6
months. My neurologist is containing to moniter me on the Deprokote
I've been on for a few weeks now. What do you think of all this?  Any
advise?
Steven Litvintchouk - 24 Oct 2004 18:36 GMT
> I have had this cyst growing inside my maxilary sinus for about 3
> years now.  Its been getting larger and larger.  My CT scans and MRI's
[quoted text clipped - 9 lines]
> get larger but most likely the only way to remove it is to go through
> my mouth, cut through my gums.  This sounds like a horrible procedure.

It sounds like they're talking about doing a Caldwell-Luc procedure or
some variant of it.

Caldwell-Luc used to be the mainstay of sinus surgery throughout the
20th century, until they invented endoscopic sinus surgery.  Endoscopic
sinus surgery has eliminated most of the need for Caldwell-Luc, but when
there's a maxillary cyst that's hard to reach endoscopically,
Caldwell-Luc is still used as a last resort.  Particularly when
endoscopic sinus surgery has already been tried but has failed to cure
the sinusitis (which is certainly true in your case).

The rate of complications of Caldwell-Luc is higher than for endoscopic,
and the recovery time is longer, but serious complications are still
uncommon.

I suggest you get a second opinion from a skilled ENT at a major
teaching hospital.

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Steven D. Litvintchouk
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iamthezookeeper - 25 Oct 2004 00:29 GMT
Great post Steve, hopefully he will get another opinion as to what to do.
If he still needs the procedure he can e-mail me as to the experience, I
have had two Caudwell-Luc and gave a eulogy for my best friend two days
after one of them...high doses of painkiller on that one. I don't
understand why his ENT let the cyst go this long but I am not a doctor and
maybe most cysts don't destroy bone tissue like mine did. Trudy.
Steven Litvintchouk - 25 Oct 2004 00:45 GMT
> Great post Steve, hopefully he will get another opinion as to what to do.
> If he still needs the procedure he can e-mail me as to the experience, I
> have had two Caudwell-Luc and gave a eulogy for my best friend two days
> after one of them...high doses of painkiller on that one. I don't
> understand why his ENT let the cyst go this long....

Perhaps the cyst started growing on the wall of Julie's sinus that was
least accessible endoscopically from the sinus duct.  Thus even when the
cyst was small, a Caldwell-Luc might have been necessary to remove it.
Julie was probably reluctant to do it until the cyst grew to the point
that she started experiencing real pain.

In my most recent surgery (last month), I missed getting a Caldwell-Luc
by the skin of my teeth.  My ENT wasn't sure he could remove a big polyp
from my left maxillary sinus with endoscopic surgery, in which case he
told me that a Caldwell-Luc would be needed.  But he tried it
endoscopically anyway, and succeeded.

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dball63 - 25 Oct 2004 17:02 GMT
I have one of these cysts in my maxilary sinus as well. I have been
told by many ENT's that they pose no threat at all. Are they correct?
Steven Litvintchouk - 25 Oct 2004 21:36 GMT
> I have one of these cysts in my maxilary sinus as well. I have been
> told by many ENT's that they pose no threat at all. Are they correct?

Read Julie's original post on this thread.

And consider my experience.  My CT scan showed what looked like a cyst
in an upper ethmoid sinus.  At least, that's how it looked to both my
radiologist and to a couple of different ENTs.

It was only during sinus surgery that my surgeon found out that it
wasn't just a cyst--embedded inside there was an infected, pus-filled
mucocele.  This would never have been discovered without surgery.

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Paminifarm - 28 Oct 2004 23:20 GMT
> > I have one of these cysts in my maxilary sinus as well. I have been
> > told by many ENT's that they pose no threat at all. Are they correct?
[quoted text clipped - 8 lines]
> wasn't just a cyst--embedded inside there was an infected, pus-filled
> mucocele.  This would never have been discovered without surgery.

Hello,
So you didnot have an MRI, only CT scan?
MRI identifies the TYPE  of tissue, where
a CT scan cannot. That is why a CT scan is
no good for sinus pictures. A CT scan is
great for identifying stroke, while the
MRI is a real loser for identifying
stroke.
ENTconsult - 29 Oct 2004 18:54 GMT
Look at it from my point of view. I don't want to do unnecessary surgery. I
believe the cyst that a patient has is harmless. If I do go after the cyst I am
endangering the life of the patient - surgery , anesthesia, etc plus the cost,
pain , loss of work.
Doesn't it make more sense NOT to operate unless you are sure it is necessary?
To do 100 unnecessary surgeries for one possible mistaken dx desn't add up.
It is not that difficult to differentiate a harmless cyst from one that needs
surgery. Yes, once in a while the doctor was "wrong" and surgery would have
been best, but that's true of all of medicine.
Besides, if a doctor does unnecessary cyst surgeries he will shortly not have
privelages at my hospital.  
Murray Grossan, M.D.
http://www.ent-consult.com
Moshup Trail - 26 Oct 2004 02:50 GMT
bottom-posted:
> Great post Steve, hopefully he will get another opinion as to what to do.
> If he still needs the procedure he can e-mail me as to the experience, I
> have had two Caudwell-Luc and gave a eulogy for my best friend two days
> after one of them...high doses of painkiller on that one. I don't
> understand why his ENT let the cyst go this long but I am not a doctor and
> maybe most cysts don't destroy bone tissue like mine did. Trudy.

I had a Caldwell-Luck about 20 years ago and although the procedure sounds
awful, I don't remember it being that bad.  The relief was more than worth
it.  Now, after 20 years I'm facing surgery again - this time the endoscopic
kind.  But I'd go back for a Caldwell-Luc to get the relief again.  Don't
forget that second opinion though!
Paminifarm - 28 Oct 2004 23:11 GMT
> I have had this cyst growing inside my maxilary sinus for about 3
> years now.  Its been getting larger and larger.  My CT scans and MRI's
[quoted text clipped - 35 lines]
> I've been on for a few weeks now. What do you think of all this?  Any
> advise?

Hello,
"Mega Cyst" require megasurgery.
The scariest thing about that kind of surgery
is: will they get your cheek back on straight -
that is what my son said to me when i was to
go in for my surgery.
About 35 years ago i had a surgery where the
Doc sliced open my cheeks at the gum (under
my top lip); went all the way up to my eyes;
all around, and everything - he cleaned out
all pollyps and whatever. Ater the surgery i
was able to smell things, in a manner, that i
hadnot smelled since i was a child that i
could remember. The post surgery pain was
so horrible and lasted for sooooooooooooo
many days, i can assure you i would never do
it again, plus the good effects of that awful
surgery only lasted for about six month. One
of my many recovery days in that hospital,
the Doc came into my room and said, "Every
time i come in here you have an icebag on
your face", which in fact i did 24 hours a day
along with so much percodan i think i
mayhave become allergic to it. Then my boss
came to the hospital, and in a state of
frustration wanted to know when i would be
back to work, so mumbling through my
icebag, i told him to go ahead and hire
someone else. Things may be different now
(35 years later), in that they may be able to
make a smaller hole in your face. The thing
here is you have to have the surgery, so be
brave; thank God it is only on one side; one
cyst; nothing else, and when they ask you
about your tolerance to pain as to 1 to 10,
say, "What do you mean, "1 to 10", what the
h-ll ever happened to 0 to 10; i am a zero". . .
.  Well . . . that was what i said at my last
surgery in July, and i guess it work because
iam still feeling no pain (:
One more thing there are no scars you can
see, it is all done under the cheek from the
mouth. The incision is made under your top
lip. Here are some pictures:

http://www.ghorayeb.com/CaldwellLuc.html

http://www.ghorayeb.com/files/PterygoidFoss
aSchwannomaExcision4Labeled.jpg

http://images.google.com/imgres?imgurl=http
://www.angelfire.com/trek/SouthFaceGuides
Ltd/caldwell-luc1.jpg&imgrefurl=http://www
.angelfire.com/trek/SouthFaceGuidesLtd/fore
ignmedicine.html&h=417&w=303&sz=16&t
bnid=fVT9RoscRvgJ:&tbnh=121&tbnw=88
&start=5&prev=/images%3Fq%3DCaldwell-
Luc%26hl%3Den%26lr%3D%26sa%3DG

http://mamma64.mamma.com/Mamma_pictu
res?qtype=48&query=+Caldwell-Luc&Subm
it=Go+Mamma%21

http://www.sinus-surgery.com/Surgery_Types
/caldwell_luc_operation.html
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