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Medical Forum / Diseases and Disorders / Sinusitis / September 2004

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My Sinus Surgery--Progress Report

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Steven D. Litvintchouk - 23 Sep 2004 19:02 GMT
Well, I had my revision sinus surgery yesterday, 22 September.

The closest thing to a "smoking gun" yet was a pus-filled mucocele in
the one ethmoid on my left side that had not been operated on in my
prior surgery.  My surgeon removed it and cleaned away all the swollen
tissue around it.  That ethmoid is separated from my brain by only a 1
mm wide layer of bone, so I'm glad that it's gone.

I also had a big fluid-filled cyst removed from my left maxillary and a
widening of that maxillary ostium (duct).

Once again, I turned out to be right, and the doctors turned out to be
wrong.  I had predicted in advance that the most interesting problem
would turn out to be in that ethmoid, not the big maxillary cyst that
the surgeon said was a likely cause of infection.

I had a couple of interesting after-effects:  an allergic reaction to
the morphine painkilller, and inability to urinate caused by the
anesthesia numbing my bladder (which may be worse in my case because of
my enlarged prostate).

Otherwise, so far, so good.  Now we'll see how healing progresses.

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iamthezookeeper - 23 Sep 2004 19:44 GMT
Steve...glad everything is going okay. Did you get the lab back yet on your
mucocele? They can be quite the nasty buggers as they wear away bone and
can come back with a vengence so keep that is check. Sorry about the
painkiller reaction...did they find something else that works instead?
Trudy.
Steven D. Litvintchouk - 24 Sep 2004 15:43 GMT
> Steve...glad everything is going okay. Did you get the lab back yet on your
> mucocele? They can be quite the nasty buggers as they wear away bone and
> can come back with a vengence so keep that is check.

And my mucocele was separated from my brain by only 1 mm of bone.  The
good news is that it may have been a major contributor to my symptoms,
so maybe now that it's gone my symptoms will improve.

The lab work hasn't been completed yet on anything.  I will be seeing my
ENT for a followup next week and hopefully the lab results will be done
by then.

> Sorry about the
> painkiller reaction...did they find something else that works instead?

Fortunately, the pain subsided so quickly that after just 5-6 hours, I
didn't need any painkillers at all.  I haven't even needed to take Tylenol.

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Tony Banana - 23 Sep 2004 20:05 GMT
Were you awake during surgery ?

Were you able to drive yourself home?

Just wondering in case I ever need endoscopic surgery.

Thanks,

Tony
Steven D. Litvintchouk - 23 Sep 2004 21:07 GMT
> Were you awake during surgery ?

No, both my surgeries were done under general anesthesia.

> Were you able to drive yourself home?

No way!  You're much too groggy and dizzy from the anesthesia to be
allowed to drive yourself!

Hospital policy is that you must have a friend or relative take you
home, and it is recommended that the friend or neighbor stay with you
overnight to be sure you don't have any problems the first night.  They
won't even let you take a taxi home the first night.

If that's not possible (and this time for me, it wasn't), they let me
stay overnight at the hospital in case there were any problems.  And in
both my surgeries, there were problems.  In my first surgery, I had an
unexpectedly large amount of post-op bleeding.  In this latest revision
surgery I just had, I had some unfortunate reactions to the
medications--including an inability to urinate.  So I stayed overnight,
and then they let me take a taxi home the next morning.

As it is, I wish there were someone living with me, just to keep
changing these godawful "moustache bandages."  You wear a "moustache
bandage" of gauze stuck under your nose to catch the bloody drainage
that keeps oozing out of your nose.  It's not easy to change the bandage
yourself, believe me.

But I live alone, so I'll just have to fend for myself.

You also need to keep your head elevated at night, so the bloody crap
doesn't ooze down the back of your throat and get into your airway to
make you cough.  I own a recliner and I'm going to try sleeping on that
tonite instead of my usual bed.

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CanDo - 23 Sep 2004 22:59 GMT
Steve, best of luck and success for the outcome of your surgery. Hopefully
this will be the end to your sinus misery.

You must have had much misery with those problems in your ethmoid and
maxillary. Do you know why the pus-filled mucocele didn't show up on xrays
or why your doctors were unable to diagnose an ethmoid obstruction?
iamthezookeeper - 24 Sep 2004 13:36 GMT
CanDo...with my first CT Scan that showed the mucocele under my left
eye...poking up through the orbit floor...they missed seeing one on the
right in the lower maxillary. I wonder why they are so hard to spot...I
can see them clearly in the film when I hold it up to the light.
Anyway...now they do CT with contrast and that shows every little problem
quite well. Mine are filled with epithelial cells so they are careful to
keep them under control. Hope Steve's don't come back at all and he
recovers quickly. Trudy.
Steven D. Litvintchouk - 24 Sep 2004 15:44 GMT
> CanDo...with my first CT Scan that showed the mucocele under my left
> eye...poking up through the orbit floor...they missed seeing one on the
> right in the lower maxillary. I wonder why they are so hard to spot...I
> can see them clearly in the film when I hold it up to the light.

In my case, much of the entire ethmoid sinus was filled with swollen
tissue anyway--the mucocele was sort of buried inside there--and maybe
that made it harder to spot?

I should have mentioned that:  my ENT not only removed the mucocele but
he had to scrape away all that swollen tissue around it.

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iamthezookeeper - 25 Sep 2004 01:09 GMT
Steve...you are lucky it could be removed all the way. Mine can't and
therein lies the problem. It keeps filling up and encroaches into my orbit
within weeks of surgery. They are thinking of putting a drainage tube into
the mucocele but that has it's own problems with infections. Sigh. One day
they will find out how to fix me. Soon I hope. Trudy.
Steven D. Litvintchouk - 25 Sep 2004 01:54 GMT
> Steve...you are lucky it could be removed all the way. Mine can't and
> therein lies the problem.

Why can't yours be removed?  Has it invaded the bone?

> It keeps filling up and encroaches into my orbit
> within weeks of surgery. They are thinking of putting a drainage tube into
> the mucocele but that has it's own problems with infections. Sigh. One day
> they will find out how to fix me. Soon I hope. Trudy.

I've seen a zillion ENTs and the one who did my surgery is the best I've
seen--better than the Cleveland Clinic.

If you're ever in Massachusetts, please stop by and see him.

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iamthezookeeper - 25 Sep 2004 15:59 GMT
Thank you. Who is your ENT? One of my first surgeries was done at the New
England Medical Center and for the life of me I can't remember the ENT's
name. He was wonderful and caring...very good. I have been literally from
Coast to Coast and been treated everywhere. (Military) The reason I was at
Cleveland Clinic was Dr. Don Lanza was recommended as the second best
surgeon in the country...Dr. David Kennedy being the first...but as we
know that is a matter of opinion depending on who you ask! Lanza now runs
the Sinus and Nasal Institute in Florida so I was switched to Ann Arbor
with Dr. Jeffery Terrel who seems quite competent so far. Yes, the
mucocele has gotten into the bone...specifically creating a huge hole in
my orbit floor. My eye is stable and sight not affected yet so they are
waiting to create a new eye socket for me as it is quite dangerous. In the
meantime they remove what they can of the mucocele along with taking the
chronic disease out of the other sinuses. Lanza said he had never seen
such severe disease which was pretty depressing. I am being treated now
with high doses of prednisone, sprays, inhalers, antibiotic nasal wash,
painkillers, etc. and have some relief though the meds are making me
"crazy". I fear that 23 years off and on this stuff has damaged my immune
system totally and now have to deal with chronic pain in my joints,
tendons, muscles until they figure out what to do. I am babbling. Sorry.
Make a good day! Trudy...Me You've Seen, Don't Be A Putz, Go See The
World.
Steven D. Litvintchouk - 25 Sep 2004 16:45 GMT
> Thank you. Who is your ENT? One of my first surgeries was done at the New
> England Medical Center and for the life of me I can't remember the ENT's
[quoted text clipped - 3 lines]
> surgeon in the country...Dr. David Kennedy being the first...but as we
> know that is a matter of opinion depending on who you ask!

I saw Dr. Lanza.  He swore that there was nothing in my ethmoid sinus
that needed surgical repair, and sent me on a wild goose chase to find
evidence of recirculation phenomena.  He was wrong.

The surgeon who did my surgery was Dr. Eric Stein.  He's got a practice
in Chelmsford MA.

> Lanza now runs
> the Sinus and Nasal Institute in Florida so I was switched to Ann Arbor
[quoted text clipped - 5 lines]
> chronic disease out of the other sinuses. Lanza said he had never seen
> such severe disease which was pretty depressing.

Any idea how this happened?  I assume you had been treated for sinusitis
all these years.  How do the doctors explain it progressing to this
stage despite treatment?

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Don Brady - 25 Sep 2004 17:06 GMT
>> Thank you. Who is your ENT? One of my first surgeries was done at the New
>> England Medical Center and for the life of me I can't remember the ENT's
[quoted text clipped - 10 lines]
>The surgeon who did my surgery was Dr. Eric Stein.  He's got a practice
>in Chelmsford MA.

I hope this really reinforces to people that they need to get multiple
opinions, especially if the case is difficult, and not choose hastily among
them...
iamthezookeeper - 26 Sep 2004 14:15 GMT
"Any idea how this happened?  I assume you had been treated for sinusitis
all these years.  How do the doctors explain it progressing to this stage
despite treatment?"

That is a good question and one I have never had totally answered by the
experts. They tell me it is from having hypoplastic sinus with no
landmarks resulting from and accident I was in when I was 13 that crushed
the left side of my face and damaged the right. I was put back together
back on the outside but the internal damage was another story. I ended up
with sinusitis/samters triad/asthma when I was 23 and have been treated
since. I had another sinus infection a few years back and went to my
family physician. She was out so they gave me the Nurse Practioner. She
said I was fine even though I had a fever, ached, epithelial cells in my
urine and told her something was wrong. She said I had the flu, go home
and rest. The next day my face started hurting pretty badly and she put me
on a Z-Pack which didn't help. The next day my face was red, hot, swollen.
She said give it time. My doctor was back the next day and when I called
she said get in here. I went and she took one look at me and sent me to
the opthomologist who sent me directly to the hospital. I had periorbital
cellulitis that was 1/2 inch from my brain stem and they put me on IV
Tequin. They did a CT scan and came back in the room, my ENT, Optho,
Infectious Disease...all said you need to go to Ann Arbor right now. The
mucocele had broken the orbit floor and came up through it...which hurt
like hell. Dr. Harris performed the surgery to remove the mucocele along
with polyp disease in all sinuses and I did pretty well until it came back
about six months later. That started a cycle of surgeries that is ongoing.
They can't get all the cells of the mucocele as it grew into the bone and
keeps coming back. They won't repair the orbit floor until we run into
trouble as my eye is stable and my sight not affected. I have to be very
careful about infection as it likes to travel down my optic nerve, so I
try to take care of myself and stay relatively healthy, which lately is
hard as something has happended to my immune system from all of this...but
that is another story.

Trudy...What if the Hokey Pokey really is what it's all about?
iJah - 27 Sep 2004 14:39 GMT
<snip>
>They won't repair the orbit floor until we run into
>trouble as my eye is stable and my sight not affected. I have to be very
[quoted text clipped - 4 lines]
>
>Trudy...What if the Hokey Pokey really is what it's all about?

i'm sure you well know that steroids (prednisone) can suppress your
immune system - maybe you've been using a lot of these? also, no doubt
just the stress and worry caused by the illness itself further
supresses your immune system - it's a vicious circle, no?
iamthezookeeper - 29 Sep 2004 14:26 GMT
iJah...I have been on/off prednisone, prednisolone, medrol for 23 years
now. That is what most likely caused the damage to my immune system along
with the multiple surgeries and stress. The cycle is vicious as you say
but to be alive and breath is better than the alternative...at times.
Trudy.
DreamHarp7 - 25 Sep 2004 16:26 GMT
>I've seen a zillion ENTs and the one who did my surgery is the best I've
>seen--better than the Cleveland Clinic.
>
>If you're ever in Massachusetts, please stop by and see him.

>Steven D. Litvintchouk
>Email:  sdlitvin@earthlinkNOSPAM.net
>
>Remove the NOSPAM before replying to me.

I didn't catch the doctor's name-what
is the doctor's name?  Thanks
 
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