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Medical Forum / Diseases and Disorders / Sinusitis / September 2004I'm Heading to Mayo Clinic
I finally made an appointment to see Dr. Freedman at the Mayo Clinic next month. Its probably going to cost me well over 1500.00 but I've had it. I hate having my sinuses dictate my days and if they can help, 1500.00 is well worth it to me. I'll post my experiences after I get back. I'm very curious if you have used the "upsidedown flushing of sinuses with hydrogen peroxide/baking soda/sea salt" as posted here several times in detail and has a web site about this procedure at: http://www.healthboards.com/boards/showthread.php?t=139765 I have used this procedure many times (I use the rightside up procedure because my problem isn't as severe as the original poster) and it works wonderfully for me. Seems to me that before you spend $1,500.00 at Mayo Clinic you might at least try this method or are you just looking for the 'magic bullet' that will heal all in just a few minutes with a couple of pills. Little surprise for you. There is no 'magic bullet' and whatever they do for you at Mayo Clinic I doubt serious that it is going to work easily and quickly without some effort on your part. I also bet you they will want to do surgery on you and I have never seen anyone who had surgery done on them say they are much better off in the long run. Just my two cents worth!!!!!!!!!!!!!!!!!! >I finally made an appointment to see Dr. Freedman at the Mayo Clinic >next month. Its probably going to cost me well over 1500.00 but I've >had it. I hate having my sinuses dictate my days and if they can help, >1500.00 is well worth it to me. I'll post my experiences after I get >back. Wild Bill 2, Marietta, Ga. (^_-) email: poston8 [at] comcast [.] net > I'm very curious if you have used the "upsidedown flushing of sinuses > with hydrogen peroxide/baking soda/sea salt" as posted here several [quoted text clipped - 18 lines] > > Just my two cents worth!!!!!!!!!!!!!!!!!! Surgery made my life many, many times better. I had polyps about 1/4" from coming out my nose. I was 100% blocked all day and night. Fluid drained out my nostril at night, down my face and into my ear. Every night! After surgery my ENT told me that the polyps had eaten through the bone around my eye and was working on puncturing my skull in my ethmoid sinus. He had to do bone grafts around my eye socket. Once punctured the infection would probably have spread to my brain. Not good. I waited too long. Surgery is a must in many cases. Psychotron: Thank you for that post. I thought I was the only one that had it really bad with polyp disease. I have had five surgeries so far because of a mucocele that eroded my orbit floor. I was told the same thing about infection, that I was about 1/2 away from a major brain infection. Surgery saved my life. I still have to have my socket repaired. Where did you go for this and were you 100% happy with the results? Trudy. > Psychotron: Thank you for that post. I thought I was the only one that had > it really bad with polyp disease. I have had five surgeries so far because > of a mucocele that eroded my orbit floor. I was told the same thing about > infection, that I was about 1/2 away from a major brain infection. Surgery > saved my life. I still have to have my socket repaired. Where did you go > for this and were you 100% happy with the results? Trudy. I went to an ENT in Port Huron Michigan. About an hour north of Detroit. > Psychotron: Thank you for that post. I thought I was the only one that had > it really bad with polyp disease. I have had five surgeries so far because > of a mucocele that eroded my orbit floor. I was told the same thing about > infection, that I was about 1/2 away from a major brain infection. Surgery > saved my life. I still have to have my socket repaired. Where did you go > for this and were you 100% happy with the results? Trudy. Oh yeah... I very happy with the results but a year has passed and some polyps are returning. No fault of the surgery though. I'm investigating acetic acid right now. I know a lady who claims her ENT has prescribed it for her and now she has no polyps. She has offered to put our ENT's in touch. I'm going to do it soon. Good luck and let us know how it goes. They are the only ENT place right now that supports candida being a cause of sinusitis so this will be interesting to hear what they have to say and the treatments they recommend. I asked my ENT yesterday (Dr. Terrell at U of M) if they all use different treatments. He said they each have their own way of doing things. He is the first ENT to offer me antibiotic nasal irrigation in 23 years!! He also talked about ASA desensitization which my other ENT's never discussed. It might take a while to find the right person for you, don't give up. As for the nasal irrigation with Saline, Baking Soda, and Peroxide...he said NEVER put any peroxide solution into your sinus as it EATS soft tissue. Yet other ENT's say it is okay. Who really knows? Trudy. Actually I have tried it a few times both upside down and right side up. So far this has not helped me in any way. It only aggrevated my problems with more extreme amounts of moucus day and night. As well each time I tried the updside down irrigation, I was unable to sleep at night due to stuffiness and irritated sinuses from the irrigations. If I thought the irrigations were helping at all I would continue but so far nothing has been the magic bullet that helps my suffering. I'm tired of waiting for someone to help me. Its been five years and I just keep bouncing back and forth from ENT to Allergy back to ENT and so on with no relief in symptoms yet and no improvement in my lifestyle. I hate living like a hermet. I want my life back. I'm tired of being so secretive. My self image has gotten so bad these last few years I really feel like a differnt person all together. I'm sure some of you know what I mean. Its also for piece-of-mind. I no longer wait for things to happen regarding my health. I take action where I need to and never treat any doctors opinion as final anymore. Take Care and thanks for your post. > I'm very curious if you have used the "upsidedown flushing of sinuses > with hydrogen peroxide/baking soda/sea salt" as posted here several [quoted text clipped - 27 lines] > Wild Bill 2, Marietta, Ga. (^_-) > email: poston8 [at] comcast [.] net It is called daily care of our sinus. My MD advised me to use the saline nasal rinse daily, as I was always there with sinus, inner ear and upper respiratory infections. Somedays I get those sinus headaches and ringing, thumping in my right ear. I know then to use the saline rinse morning and night before sleeping. I sleep with my head on a wedge pillow. shirley > I finally made an appointment to see Dr. Freedman at the Mayo Clinic > next month. Its probably going to cost me well over 1500.00 but I've > had it. I hate having my sinuses dictate my days and if they can help, > 1500.00 is well worth it to me. I'll post my experiences after I get > back. Good luck! As you know, Mayo pioneered the theory of allergic fungal sinusitis. I'm curious as to whether they'll automatically assume that must be the problem with your sinuses--or whether they will continue to consider alternative diagnoses as well.  SignatureSteven D. Litvintchouk Email: sdlitvin@earthlinkNOSPAM.net Remove the NOSPAM before replying to me. >As you know, Mayo pioneered the theory of allergic fungal sinusitis. >I'm curious as to whether they'll automatically assume that must be the >problem with your sinuses--or whether they will continue to consider >alternative diagnoses as well. Me too. I suspect the latter - their educational web site does not even mention the fungal theory..... > >As you know, Mayo pioneered the theory of allergic fungal sinusitis. > >I'm curious as to whether they'll automatically assume that must be the [quoted text clipped - 3 lines] > Me too. I suspect the latter - their educational web site does not even > mention the fungal theory..... I agree. From my experiences at Mayo, they presume nothing, but go where the evidence leads... > I agree. From my experiences at Mayo, they presume nothing, but go where > the evidence leads... I hope that they don't have to do too much more testing than what I will be bringing with my medical records. I'm paying for this out of my pocket so far. DBall Sacramento, CA > > I agree. From my experiences at Mayo, they presume nothing, but go where > > the evidence leads... [quoted text clipped - 5 lines] > DBall > Sacramento, CA If you bring records that are current and on point, they will use them, but be prepared for them to look more deeply and to do more diagnostic testing than you've had. After all, that's why people go there--to have more exhaustive evaluation than they have been able to get locally. They are quite thorough. >If you bring records that are current and on point, they will use them, but >be prepared for them to look more deeply and to do more diagnostic testing >than you've had. After all, that's why people go there--to have more >exhaustive evaluation than they have been able to get locally. They are >quite thorough. Yes as a matter of fact I think that is Mayo's greatest strength - *diagnosis* of difficult conditions. They tend to run far more tests than other places, and also to look more broadly for causes. They will look into possibilties like infectious diseases, anemia, and nutrition that noone else will..... >> I agree. From my experiences at Mayo, they presume nothing, but go where >> the evidence leads... > >I hope that they don't have to do too much more testing than what I >will be bringing with my medical records. I'm paying for this out of >my pocket so far. Watch out on costs then. I think my bill was around $7000 just for tests when I went to Mayo for sinusitis and some other problems 10 years ago. Can't you get insurance coverage? > Watch out on costs then. > > I think my bill was around $7000 just for tests when I went to Mayo for > sinusitis and some other problems 10 years ago. > > Can't you get insurance coverage? Wow. I'm trying to get my Allergist to get a referal for me. Its very tough with an HMO to get refered when there are ENT's already in your plan. The trick is trying to convice them that Mayo is offering something that is not available with doctors in their plan. I really do not want to spend that much but if were to cure me.......then maybe I could swallow it. Its going to cost me 1000.00 just for airfair. David Ball >> Can't you get insurance coverage? > [quoted text clipped - 4 lines] >do not want to spend that much but if were to cure me.......then maybe >I could swallow it. Its going to cost me 1000.00 just for airfair. Mayo's Insurance Departemnt may be able to help if you have not tried that ye. They have execellent relationships with every Insurer in the country. Many HMO's send people there.... |
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