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Medical Forum / Diseases and Disorders / Sinusitis / September 2004

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iamthezookeeper - 05 Sep 2004 14:25 GMT
I was thinking about all the things that have happened to me in the past
few years when my sinusitis/samters/pain became unmanagable and wondered
if anyone else had these experiences? I was gainfully employed making 40G
a year and had to miss loads of work for repeated surgeries and healing
time. Finally I had to leave my job and when I could work again it lasted
only a year with the same problems...leaving for Ann Arbor or Cleveland
for weeks and then home for recovery. Yes my mucoceles add to the
seriousness of this illness so that takes more time for me. My last job
lasted three months before I was going to Cleveland Clinic every month. I
lost my Blue Cross Health Insurance, I went on Medicaid. I couldn't work
and afford a place to live. I lost my apartment, my car, and had no money
for food. I went on foodstamps and depended on family and friends to help
me...which I have a wealth of luckily and they were glad to support me. I
had to let my bills go and when the collectors started calling I would
explain the situation and thankfully they said if I get on my feet again
start repaying and quit calling. I met a guy that fell in love with me and
my kids and asked us to move in, he bought me a car and I can at least
drive to my appointments now. I am still on Medicaid and my worker thinks
I should apply for disability and if I get the Churg-Strauss or
Fibromyalgia diagnosis my doctor agrees. It is weird to go from being a
"contributor to society" to being a "drain" and it gets me down. On the up
side, I have met some of the greatest medical minds in this country, I
spend loads of quality time with my family and friends and I am learning
to let others help me instead of being the helper. I wonder if anyone else
has lost everything and what they did about it. This is not a spiritual
conversation by far but it has made me closer to "my" higher power whom I
believe to be Jesus Christ. I think he is the only one that truly
understands. Let me know if you can relate. Thanks. Trudy.
iJah - 24 Sep 2004 18:57 GMT
Trudy,

I can empathize with your situation - certainly. I used to go right
out of my mind if I missed like more than one day of work - felt like
I was a slacker, looser, not contributing enough - not to mention just
feeling miserable healthwise. Now, lately, I've been missing days &
days - weeks I haven't been able to actually get to the office
building. But, the fact is, we all have inherent priceless value and
deserve dignity and respect from ourselves and others - period. This
is what needs to be cultivated. Unconditional self respect and a
feeling of self worth - nothing need be done to earn this except to do
the best you can with whatever conditions you have to live with and to
grant others that same respect and treat them with dignity. It's the
golden rule do unto others. But, ya gotta love and forgive yourself
truly to build the rock solid foundation needed. I'm working on it.

So, anyway, yes the emotional worry, stress about the illness, but
even more so finances, etc. is almost harder to handle than the
physical problems. I still have a job - thank god - since I can work
from my home, but I'm finding it hard to keep my energy level and
concentration up to the level it needs to be to pull even that off.

I was asking in another thread how the hell do people with severe
chronic sinus problems manage to survive financially?

Can you get social security disability?, workmans comp? anything like
that? What financial support can you get?

I'm scared. I am single - no wife, children. Everyone in my core
family - father, younger brother has passed away, leaving only my
mother who is quite elderly at this point. And my nearest relatives
are a good 600 miles away from here. I have them and many friends, but
none that I would ever consider as a source of shelter, financial
support, sanctuary if I really got completely financially waxed.

Where it not for the job I'm so tenuously hanging onto and the health
insurance that is part of the benefit package i'd most certainly be a
dead man by now. I do have excellent health insurance now, but about
eight years ago when I felt indestructible and carried minimal
coverage, i had an illness that ate up my entire lifes savings -
everything. All my savings for a home, for retirement, all my stocks,
bonds, CD's - it all went so fast it made my head spin - and that was
a considerable chunk of change. But it went further than that - I went
close to $13,000 in credit card debt on top of it all.

It's frightening - god, you lost your apartment, car, had no money for
food - yikes! - plus you where sick/ill to boot. Damn, how did you
approach getting the help you needed to survive?

> I was thinking about all the things that have happened to me in the past
> few years when my sinusitis/samters/pain became unmanagable and wondered
[quoted text clipped - 24 lines]
> believe to be Jesus Christ. I think he is the only one that truly
> understands. Let me know if you can relate. Thanks. Trudy.
Dreamspinner3 - 25 Sep 2004 02:45 GMT
I've come very close to losing my current job more than once due to my
sinus problems.  I've managed to hang on by the skin of my teeth & the
sympathy of a couple of kind-hearted managers who have stepped up to
bet with me over the years.  

Back in 2000 I missed 16 weeks of work due sinus surgery & infections
plus another type of surgery I had in the same year.  I was using the
protection of the Family Medical Leave Act FMLA)  here in the USA when
in November of that year my employer suddenly decided that they didn't
think chronic sinus problems were something to be covered by FMLA
leave.

I tried to fight it, my doctors wrote me letters saying they felt my
problem qualified for FMLA leave but my employer stood their ground.
I should have hired a lawyer & continued fighting it but at the time I
was just too tired due to sinus problems & other health issues.

Since then it has been a constant battle to stay well enough to go to
work.  Two weeks ago I had another sinus infection, the first real one
I've had since my 2nd surgery this past March, and it was bad.  But I
had to go to work--I almost fainted more than once because I was
feeling so awful.

>> I was thinking about all the things that have happened to me in the past
>> few years when my sinusitis/samters/pain became unmanagable and wondered
[quoted text clipped - 24 lines]
>> believe to be Jesus Christ. I think he is the only one that truly
>> understands. Let me know if you can relate. Thanks. Trudy.

-----
Kim/Dreamspinner3
Visit My Homepage: http://members.tripod.com/dreamspinner3/
 
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