Medical Forum / Diseases and Disorders / Sinusitis / August 2004
desperately in need of help:
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ApprenticeQ - 29 Aug 2004 15:35 GMT I am soooo miserable. I have a deviated septum, as well as extremely swollen turbinates in my nose. My face has been swelling for sometime, however it has gotten to the point where i feel like a balloon and the slightest puncture from a pin will just pop my face wide open. I go to the doctor and they give me steroidal nasal spray and antibiotics. the spray causes my nose to bleed. The only thing that has helped at all was the antibiotic. It would reduce the swelling for a few days after i've taken it all. Just enough to make me feel a sense of relief, but a few days later i'm right back where i started. I have changed doctors so much i'm sick of it. It's like instead of the doctors trying to find out what's wrong with me they just push these drugs at me, and none of it works. I am desperate, i need some answers. i'm beginning to feel helpless and i don't like that feeling. Someone please help me. I Need answers. Thanks for listening, and i hope someone can help. PS. I also have High blood pressure and a mitral valve prolaspe that regurgitates.
iamthezookeeper - 29 Aug 2004 17:31 GMT I would find the best ENT your area has to offer and if they can't diagnos/treat to your satisfaction I would find the best ENT elsewhere. I live in Northern Michigan and was referred out to either David Kennedy or Donald Lanza, two of the best in this country. One was a 14 hour drive, one an eight hour drive. Now I will be going to U of M Medical Center only four hours away as my ent/surgeon has moved to Florida. It is worth it to find the best and get better. Ask your doctor who he would go to if he had your problems. Trudy.
ApprenticeQ - 29 Aug 2004 19:27 GMT >I would find the best ENT your area has to offer and if they can't >diagnos/treat to your satisfaction I would find the best ENT elsewhere. I >live in Northern Michigan and was referred out to either David Kennedy or >Donald Lanza, two of the best in this country. One was a 14 hour
>drive, >one an eight hour drive. Now I will be going to U of M Medical Center only [quoted text clipped - 5 lines] >find the best and get better. Ask your doctor who he would go to if he had >your problems. Trudy. Thanks Trudy, I am at the point where i am willing to go anywhere i need to get to the root of the problem and get me better. I have been to so many doctors so far that i am beginning to get what i see as doctor blackballing. I pulled some medical records because my friend is encouraging me to go to Mayo clinic., When i looked at my medical records it made me sicker than i have ever been. Some of the doctors that is stopped seeing documented my records to make it appear as though it is all in my head. I really resented that. Some of the records showed ct scans that were not normal, but i could interpret them. Anyone can look at me and tell that it's not in my head. Just imagine medical records going from doctor to doctor with that type of documentation. I question why it was done and if where ever i go from here should i give them access to the records or should i try to get them to start fresh, as though i had never seen a doctor before. This is really difficult for me. What do you think?
iamthezookeeper - 29 Aug 2004 23:30 GMT I question why it was done and if where ever i go from here should i give them access to the records or should i try to get them to start fresh, as though i had never seen a doctor before. This is really difficult for me. What do you think?
I think first you should know there are a lot of us out here with the same symptoms, disease, issues, and fears. I know the depression that comes with chronic illness and inept medical care, so hang in there. Some sinusitis is life long even with the best treatment. Relief can be found even if it is for a shorter period than you would like. That is a tricky situation as far as your records. Starting over is no fun but if you have someone that is superior in the ENT field they will run the right tests and prescribe the right course of treatment for you. I look at medical care like I look at making a major purchase...I am the consumer and I want the best for my money. If you had a child going through the same issues you would seek out and find answers and you would never give up until you found satisfaction. You deserve that for yourself as well. Get online and see who is available in your area that has a great reputation as an ENT and call them and see if they are taking new patients. Good luck and let us know what happens. Trudy.
Susan - 30 Aug 2004 03:26 GMT Hi, When you take records from one doctor to another, you could just have lab results (if any) and copies of scans sent. No need to send notes as that's mainly their impressions, which as you have seen, are not always correct. A new doctor will still want to take his own history and discuss your symptoms and previous treatments with you anyway.
Good luck. I know how frustrating it can be. I hope you find some good help soon. Susan
Steven D. Litvintchouk - 29 Aug 2004 18:09 GMT > I am soooo miserable. I have a deviated septum, as well as extremely swollen > turbinates in my nose. My face has been swelling for sometime, however it has [quoted text clipped - 9 lines] > I am desperate, i need some answers. i'm beginning to feel helpless and i > don't like that feeling. Someone please help me. I Need answers. You need to see an otolaryngologist (ear-nose-throat) (ENT). He will do a CT scan of your sinuses and probably a nasal endoscopy as well, and decide how best to treat your condition.
 Signature Steven D. Litvintchouk Email: sdlitvin@earthlinkNOSPAM.net
Remove the NOSPAM before replying to me.
CanDo - 29 Aug 2004 19:21 GMT Sorry to hear about your misery. Hope that you can find relief somehow, someway.
I've had serious problems with my sinuses, asthma and heart condition for decades. I found out that anything that I breathe, anything that touches my skin, and anything that I eat or drink can cause my allergies to get worse, my blood pressure to increase, or my heart to misfire.
I am very sensitive to allergens and chemicals. It has been extremely difficult for me to get my health problems under control. While I haven't been totally successful, I have made significant improvements in my health by avoiding as many things as I can. I'll post some of the changes here in hopes that it may be of help to you.
I wear gloves when I read to avoid touching the inks.
I wear a dust mask while sleeping, since the bed is the worst place for allergies. I also wear the mask during times of increased symptoms.
I don't use fabric softeners for my clothes. There are many strong chemicals in fabric softeners. The body is then exposed to "trace amounts" of these many chemicals all day long. I also don't use detergents, only baking soda to wash clothes.
I avoid artificial sweeteners.
I avoid cleaning chemicals, and as many other chemicals as I can.
I especially avoid dust.
I got rid of my wall-to-wall carpeting, which significantly improved my asthma.
I got rid of my upholstered furniture. It has helped quite a bit.
I don't eat any gravies or sauces unless home made.
I avoid takeouts.
I avoid lunch meats, or any frozen dinners. In other words, I greatly simplify my diet.
I eat chicken or beef casseroles made of very simple ingredients and bunches of salads with very simple and safe salad dressings.
Of course, I wouldn't expect you to follow all these ideas, if you are even paying attention to this post, but you might read this, get ideas from it, and then start to try to limit contact with as many allergens as you can.
I've also had many allergy shots, and took acupuncture treatments for my sinuses, both of which really helped.
Regards, and best of luck and health to you.
> I am soooo miserable. I have a deviated septum, as well as extremely swollen > turbinates in my nose. My face has been swelling for sometime, however it has [quoted text clipped - 12 lines] > PS. I also have High blood pressure and a mitral valve prolaspe that > regurgitates. iamthezookeeper - 29 Aug 2004 23:36 GMT apprenticeq, where are you located by the way? Maybe we can help you find a competent ENT. Trudy.
ApprenticeQ - 30 Aug 2004 01:10 GMT >where are you located by the way? Maybe we can help you find a I'm in Alabama.
Don Brady - 30 Aug 2004 01:58 GMT >>where are you located by the way? Maybe we can help you find a > > I'm in Alabama. University of Alabama at Birmingham is well-rated in ENT at
http://www.usnews.com/usnews/health/hosptl/rankings/specihqotol.htm
But you would need to call first and find out who is their most experienced sinus specialist. Tell them it is a difficult case. (Often this is the person who you have to wait longest to see so - do not insist on an early date or you will get the least desirable doctor).
Cetainly you could also go to Mayo or to another top place.
Personally I would not hide the existence of prior medical records. It just makes you seem manipulative to them. They do not pay that much attention to them anyway.
Steroid spray should help. Try cutting back the dosage if it bleeds (just spray it once per nostril), or switching brands, and make sure you are aiming right.
Your condition can be brought under control, but one just wants to avoid strong medicine whenever possible to avoid its risks.
Odds are good that allergens and irritants are a strong comnponent of your problems. It will be strarting to cool off soon enough that you can open a window. Try running a fan out another window, drawing in air through the windows where you are, continuously. If this makes things better, then you are sensitive to indoor allregens and irritants (dust, mold).
Pamdomania - 31 Aug 2004 00:48 GMT >I am soooo miserable. I have a deviated septum, as well as extremely swollen >turbinates in my nose. My face has been swelling for sometime, however it has [quoted text clipped - 12 lines] >PS. I also have High blood pressure and a mitral valve prolaspe that >regurgitates. Hello,
University of Alabama, Birmingham, is starting to get into Mayo Clinic stuff, so if you wait long enough perhaps the mountain will come to Mohamad. Such will put the fear of God into all those quacks that are jerking you around. Of course it could just be that they are afraid to touch you because of your high blood pressure and mitral valve prolaspe that regurgitates, and are you dangerously over-weight . . ?
You poor child of pain and agony, making lots of cash money for all those Doc?s. Please listen to this: Insist your last ENT give you a fungus going over of, not only the mucus in your nose and sinuses, but your saliva also (i doubt if anyone will know how to do it properly, so you will probably get false readings).
Very important! Read all of this and, to the best of your ability, present it to your Doc:
First thing for anyone with sinus trouble is to use and eat natural, organic yogurt. You cannot handle milk? Tough luck; there is no replacement, so try the trade off, because perhaps you have allergy to begin with because of the fungus.
Here are all the things you need to know to get started:: `````````````````````````````````````````````````````````````````````````````````````````````````````````` Here is some latest coming out of the Mayo Clinic: http://www.drmirkin.com/morehealth/G220.htm http://answers.google.com/answers/threadview?id=340935 http://www.doctorfungus.com/thedrugs/Ampho_Deoxycholate.htm ````````````````````````````````````````````````````````````````````````````````````````` ?Killing Fungi? http://www.mall-net.com/mcs/afung.html Herbs Etc. Products for sinus (self-help): http://www.discount-vitamins-herbs.net/Sinus-allergy.htm More Good Stuff to Know: http://www.candidafree.net/pages/3/ http://www.oralcancerfoundation.org/dental/candida.htm http://www.healthy.net/scr/article.asp?PageType=article&ID=1263 http://www.ars.usda.gov/research/patents/patents.htm?serial_NO=8405109 http://www.panhandle.unl.edu/paa/html/abstracts_3.html http://www.netdoctor.co.uk/womenshealth/facts/genitourinary.htm http://www.ferretlove.co.uk/willow.htm http://fibromyalgia.lifetips.com/faq.asp__Q__SiteID__E__652__A__QuestionID__E__7 5991__A__type__E__0 http://www.pennysaved.com/compoundx.htm http://www.askwaltstollmd.com/archives/lgs/62080.html http://www.baromedical.com/newsletter/bartlettarticle.html http://www.doctorfungus.com/thefungi/Candida_spp.htm Gentian Violet is great for fungus! Yogurt is a must!!!!!!!!!!!!!!!!!!!!!!!
````````````````````````````````````````````````````````````````````````````````````````````````` A neat statement to remember: ?Amphotericin B The studies from the Mayo Clinic found that nasal lavage/wash with Amphotericin B is much more effective than oral amphotericin B, with virtually none of the side effects? ````````````````````````````````````````````````````````````````````````````````````````````````````` Most fungi simply colonise the sinuses and sit there without causing any inflammation. Occasionally the fungi may invade the mucous membranes and provoke intense inflammation and allergic response. Even more rarely the fungi may invade the bones of the facial skeleton and damage blood vessels and nerves, even extending to the eye and brain (Mucormycosis) Continued at: http://www.medicdirect.co.uk/clinics/default.ihtml?step=4&pid=1733. ```````````````````````````````````````````````````````````````````````````````````````````````````````` Researchers at the Mayo Clinic found fungi in 96 percent of people with chronic sinusitis? http://www.drmirkin.com/morehealth/G220.htm ```````````````````````````````````````````````````````````````````````````````````````````````````` Grapefruit seed extracts: http://www.herbalremedies.com/actomayclinm.html ``````````````````````````````````````````````````````````````````````````````````````````````````````` http://www.doctorfungus.com/thedrugs/Ampho_Deoxycholate.htm http://www.emedicine.com/ent/topic639.htm ``````````````````````````````````````````````````````````````````````````````````` Therapy for the Amphotericin B deoxycholate, nose spray is: 3 months; 5 squirts each nostral; 2 times aday; Another Possible Procedure, however using ONLY the 10-squirts worth, and only done twice aday, and remembering this MUST NOT be swallowed; http://www.digitalnaturopath.com/cond/C55833.html The Sinus Flooding Procedure: a. Lay on a bed face up with the head hanging over the edge of the mattress so the nostrils are pointing straight up toward the ceiling. b. Use an eye dropper to fill each nostril with the rinse solution. Keep filling each nostril until the rinse solution starts to drip in the throat. Remain in the same position for 2 to 3 minutes. c. Roll over on the stomach and let the head flop forward over the edge of the mattress. Remain in that position for 2 to 3 minutes then sit up and let the rinse drain out through the nose. (THIS FOLLOWING DOESNOT APPLY TO US AT THE PRESENT AND/OR UNTIL AN ACTUAL "WASH" IS MADE AVAILABLE) d. Important: Repeat this procedure 45 minutes later. The two rinses 45 minutes apart constitute a single rinse session. Perform two or more such rinse sessions per day. Relief will typically be noticeable by the second day. It is not unusual for the sinus infection to be gone within three days. e. Repeat two sessions per day until the infection subsides. Very persistent infections may require five to seven day or more. ```````````````````````````````````````````````````````````````````````````````````````````````````````````````````` Amphotericin B deoxycholate nasal spray/wash is shipped in a cold pack and must be kept refrigerated. Only a one month's supply at a time is available, because it is so perishable, however i finally found a "Dixie" Mayo Clinic near me and am now using the "wash", not "drops", and is $50.00 cheaper than the above-mentioned drugstore. ````````````````````````````````````````````````````````````````````````````````````````````````````````````` Here are interesting statements i saw while rushing through the Internet. It is nice to know if you absolutely must put your life at risk with Amphotericin B, you can quickly get off of it :
?Surgical treatment is mandatory. Initiate medical treatment with systemic antifungals once invasion is diagnosed. Amphotericin B (2 g/d) is recommended; this can be replaced by ketoconazole or itraconazole once the disease is under control?.
AND AGAIN:
?Acute invasive fungal sinusitis Emergent treatment is necessary once this condition is suspected. Initiate systemic antifungal treatment after surgical debridement. High doses of amphotericin B (1-1.5 mg/kg/d) are recommended. Oral itraconazole (400 mg/d) can replace amphotericin B once the acute stage has passed. Treatment of the underlying immune deficiency, if possible, is desirable.?
Picture of chronic sinusitis: http://www.med.sc.edu:1000/chronicsinusitis.htm
A tour of the nose and sinuses: Virtual Sinus Laboratory http://www.entnet.org/healthinfo/sinus/lab.cfm ```````````````````````````````````````````````````````````````````````````````````````````````````````` Here are some interesting things for you to see: http://www.commoncold.org/cmplcatn.htm http://www.commoncold.org/cmplcat1.htm http://www.servier.com/imgs/pro/locabiotal/faq/visu_15.jpg http://home.hawaii.rr.com/dochazenfield/images/tongue3-A.gif ```````````````````````````````````````````````````````````````````````````````````````````````````````````````````` The last thing i must say is unless you are on your death-bed, use Amphotericin B only as a nasal spray/wash, because it can and has caused heart attack when taken internally http://health.yahoo.com/health/ency/adam/003504/treatment http://www.umc-cares.org/health_info/ADAM/Articles/003503.asp Another thing: they say the body doesnot absorb the amphotericin B nasal wash from the nose, however i amnot nursing one hurtfulashell Gout, which i have never had in my life, for nothing. I called the Jacksonville drugstore and asked if Amphotericin B causes Gout, and the liars said, no. Here is your proof that it does (hyperuricemia shows up as Secondary Gout) under "Adverse Reactions" (at the bottom, last line of the fine print): http://www.cancernetwork.com/drugs/Abelcet.htm Here is a picture of what i now look like: http://www.aafp.org/afp/990215ap/925_f1.jpg As soon as i stopped my Amphotericin B nasal wash, my sinuses showed yellow discharge; the Candida/Aspergillus is enjoying the lull, and i have now made an appointment with the Mayo Clinic, since this entire thing is their findings. `````````````````````````````````````````````````````````````````````````````````````````````````````````````````
+ + + + + + + + + + + + + + + + + + + + http://www.biblebelievers.org.au/benjamin.htm MustRead! http://WWW.PAMINIFARM.COM "My people are destroyed for lack of knowledge" Hosea 4:6
ApprenticeQ - 31 Aug 2004 16:20 GMT >it could just be that >they are afraid to touch you because of your high blood pressure and mitral >valve prolaspe that regurgitates, This is a possibility, however i would hope, if this is the situation, that the doctors would be kind enough and professional enough to just inform me that i am in need of a physician that is more equipped to deal with patients that require a more specialized level of care. That would have been better than trying to make it look like it's all in my head. I do appreciate the help and encouragement. It's people like you all in this group that makes me know that there is still a lot of good people in this world.
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