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Medical Forum / Diseases and Disorders / Sinusitis / June 2008

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Finally, a doc that gets it?

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Susan - 22 May 2008 00:40 GMT
Had my first physical with my new PCP, someone with extraordinarily good
ratings on ratemd.com, a family physician.  I interviewed her first,
last month, to make sure she wasn't overwhelmed by my health history and
its complexity or by my assiduous research and insistence on decision
making partnership.

So, after my physical, we sat in her office and after she got done
rubbing her temples she said, "we're going to have to work on all this
together."  (YESSS!).  Then she went on about how I have so many things
going on and that illness has been controlling my life (YESSSS!) and
that we have to prioritize, and that number one is getting my sinuses
operated on.  :-)  She gave me a name of an ENT (who, btw, does FESS and
the balloon openings of sinuses which she claims has been incredibly
effective for her patients who've had it).  She said to use her name,
not to see anyone in that practice but him.  I looked him up; two rave
reviews, though not very informative ones.

I've now got C-T evidence of mild mucosal thickening in both my frontal
and maxillary sinuses.  A couple of weeks ago, the maxillary was so bad
before I started abx that I got back spasms from the adrenal
insufficiency, a now common sign for me, even when getting blood drawn
or dental work.

So, let's hope he's going to do what needs to be done, clean 'em out and
let me start fresh now that I no longer have inflammation up there due
to allergy desensitization and hope I can keep them clean.

Susan
truehawk - 25 May 2008 19:59 GMT
> x-no-archive: yes
>
[quoted text clipped - 26 lines]
>
> Susan

This is the third time I have tried this post.
A lot of the time i the letters for validation are so smushed together
that it is not clear what they are.

I was much more lucid the first two times.

I have been trying to decide how to respond to your post before it
goes poof.

First I would see about getting vaccinated against HPV and HI. Both
vaccinations are available now and both are known to play a role in
sinusitis.
It really helps if the ENTs know what the problem is. There is a
paradigm that the sinuses swell due to allergic inflammation and
become infected with bacillus due to anarobic conditions created by
the swelling. This theory holds that the only thing that is necessary
to create healthy sinus ecology is to open the sinuses up to O2 again.
The problem is that if a virus kills off the cilia and goblet cells,
the bacteria can do it all themselves, they can cause the inflammation
that closes off the sinuses and they are faculative anarobes, which
means that while they can do without O2 they can do just fine with
it.
I dislodged a peice of biofilm from the area of my adenoids that was .
5 inches thick, .5 inches wide 1.5 inches long and highly elastic.
That is thick enough to block just about anything. If that is all you
have, squishing something like that flat with a balloon is not going
to do much more than waste your time and energy, it just bounces back.
Outside the San Diego Naval Hospital, and Penn I doubt that there 10
ENTs in the country that know the enemy, biofilms and nasal warts,
well enough to guard against post operative reinfection. Most people
that I know who have had surgery have lived life in varying degrees of
relapse.

The exception are a couple of people that I know that had heavy
antibiotics before and after surgery. One I know  had Sproanox for 6
weeks before and after surgery. This guy had radio ablation and was
symptom free the last time I saw him, which was 3 years after the
surgery.

I am not saying that you would not benefit from surgery, especially if
you turn out to have some form of nasal squamous papilloma due to
HPV.
http://www.ncbi.nlm.nih.gov/pubmed/18421612?ordinalpos=1&itool=EntrezSystem2.PEn
trez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum

http://www.ncbi.nlm.nih.gov/sites/entrez
These can turn into some of the most invasive tumors known to man, and
probably need to be cut out pronto.

HPV has a stigma as a social disease, but it is found in the sinuses
of dolphins and whales too, so I hypothesize that it is actually
transmissible in seawater at certain temperatures.

Again, I think the key to your being happy with your surgical results
it finding an ENT who knows what they are up against and has a plan to
keep the bugs at bay long enough for the area to heal after the
surgery.

Oh and you might drink plenty of Welches Concord Grape Juice. The blue
pigment attaches to the bugs. Otherwise the film will just be mostly
clear when the doc looks at it, and he won't see much.
but you could make him mad, as I did with my infectious disease
consult. i had used congo red and methyl blue and victora green and a
yellow dye I can't remember in preparations a various times, looking
for something that would diffuse into the biofilm rapidly and kill it.
Evidently when he looked at my adenoids he saw multicolored patches
and he did not react well.
Susan - 26 May 2008 02:02 GMT
> This is the third time I have tried this post.
> A lot of the time i the letters for validation are so smushed together
[quoted text clipped - 4 lines]
> I have been trying to decide how to respond to your post before it
> goes poof.

Thanks.

> First I would see about getting vaccinated against HPV and HI. Both
> vaccinations are available now and both are known to play a role in
> sinusitis.

Really?  Interesting, I had a small oral papilloma when I saw the last
ENT while infected. What's HI?

>  It really helps if the ENTs know what the problem is. There is a
> paradigm that the sinuses swell due to allergic inflammation and
[quoted text clipped - 16 lines]
> that I know who have had surgery have lived life in varying degrees of
> relapse.

Yes, I agree.  I guess my priority for surgery is cleaning out what's
there and then maintaining the cleaning.  Today, I'm reminded of just
how effective the enzyme path is.  Cleaned the hot tub that we'd purged
last year with enzymatic cleaner, filling it with greasy sewage like goo
from the lines.  This year, today, barely anything with scrupulous
maintenance all these months.  I no longer have inflamed passages, not
remarkably since allergic desensitization, which continues progressively.

> The exception are a couple of people that I know that had heavy
> antibiotics before and after surgery. One I know  had Sproanox for 6
> weeks before and after surgery. This guy had radio ablation and was
> symptom free the last time I saw him, which was 3 years after the
> surgery.

Well, anti fungals are off my menu, way too adrenal suppressive for me.

> I am not saying that you would not benefit from surgery, especially if
> you turn out to have some form of nasal squamous papilloma due to
[quoted text clipped - 3 lines]
> These can turn into some of the most invasive tumors known to man, and
> probably need to be cut out pronto.

I don't think I have any tumors or blockages, I think I have goo up there.

> HPV has a stigma as a social disease, but it is found in the sinuses
> of dolphins and whales too, so I hypothesize that it is actually
[quoted text clipped - 4 lines]
> keep the bugs at bay long enough for the area to heal after the
> surgery.

It's my intention to ask.  I'm not signing up for a procedure without a
plan to do major cleanup and maintenance.

> Oh and you might drink plenty of Welches Concord Grape Juice. The blue
> pigment attaches to the bugs.

First of all, I'm diabetic, I don't drink any juice, ever.  I only
rarely eat fruit.  Second, that much sugar is enough to suppress the
immunity of anyone, diabetic or not.  Irrigate with it, maybe, but drink
it?  Nah.  :-)

 Otherwise the film will just be mostly
> clear when the doc looks at it, and he won't see much.
> but you could make him mad, as I did with my infectious disease
[quoted text clipped - 3 lines]
> Evidently when he looked at my adenoids he saw multicolored patches
> and he did not react well.

I could just stop the Augmentin and bring him my brown, red, green,
yellow morning tissues.  :-)  Within one day, it's back.

My passages look great because I irrigate and stuff, but I now have two
C-T scans, one with frontal mucosal thickening, one with maxillary
thickening.  That article I paid for and sent you seems to say that
mucosal thickening correlates best with symptom severity.  I can't
afford any infection; when my maxillary was sore a few weeks ago, I got
severe back spasms due to the adrenal suppression.  My new PCP gets
this, and she seems to think this guy will be proactive.  I'm hopeful,
but keeping expectations minimal.

Susan
truehawk - 27 May 2008 03:53 GMT
> x-no-archive: yes
>
[quoted text clipped - 106 lines]
>
> Susan

Can you handle beta carotene?
Susan - 27 May 2008 13:52 GMT
> Can you handle beta carotene?

Sure, though not without turning orange, like most folks.

Because I don't eat starch, my diet is LOADED with colorful, leafy stuff
and some berries daily.  Heaps of it by volume, but not as % of calories.

Susan
truehawk - 27 May 2008 04:05 GMT
> x-no-archive: yes
>
[quoted text clipped - 106 lines]
>
> Susan

HI is Haemophilus influenzae, and is the most common cause of ear
infections in children, hence the vaccine (and evidently is still
present in adults.)  Any bug you can knock off the list is one less to
deal with.

http://www.ncbi.nlm.nih.gov/pubmed/18439472?ordinalpos=1&itool=EntrezSystem2.PEn
trez.Pubmed.Pubmed_ResultsPanel.Pubmed_DiscoveryPanel.Pubmed_Discovery_RA&linkpo
s=4&log$=relatedarticles&logdbfrom=pubmed

Susan - 27 May 2008 13:52 GMT
> HI is Haemophilus influenzae, and is the most common cause of ear
> infections in children, hence the vaccine (and evidently is still
> present in adults.)  Any bug you can knock off the list is one less to
> deal with.
>
> http://www.ncbi.nlm.nih.gov/pubmed/18439472?ordinalpos=1&itool=EntrezSystem2.PEn
trez.Pubmed.Pubmed_ResultsPanel.Pubmed_DiscoveryPanel.Pubmed_Discovery_RA&linkpo
s=4&log$=relatedarticles&logdbfrom=pubmed

Of course, thanks!

Susan
Duke - 18 Jun 2008 22:28 GMT
> > x-no-archive: yes
>
[quoted text clipped - 115 lines]
>
> - Show quoted text -

Just FYI to any and all, I showed blood test results a couple years
back indicating I had very little protection to Hi. However, a
physician friend and a pharmacist were unable to get any vaccine for
me. It is not available for adults, nor is there ( tomy knowledge) any
that is not in a cocktail mix dose for kids. Later, I was told I did
not really need any antigen to Hi as adult.
 
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