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Medical Forum / Diseases and Disorders / Sinusitis / August 2007ENT today
I guess the good news is he didn't just blow off my concerns. He freely stated that with my clean C-T scan, except for a small spot in the frontal sinus, his unwillingness to do FESS with such a clean scan to look around is purely a liability decision. He did a mid meatal culture (I know, I know, but my ID doc at least wanted to try) and will do sensitivity if anything grows out. He didn't argue about the controversy over C-T and symptoms, just has made a decision that he won't operate where the C-T is clear. I brought him the article on enzymes/phages to clear up biofilms from Harvard with a note on it; "this worked GREAT on my hot tub lines, why not my nose???" He asked to keep the C-T article. He was sympathetic to the adrenal suppression symptoms that even teensy bits of infection cause me. He asked if I'd be in his office talking about surgery if I weren't facing transsphenoidal sinus surgery. That was a GREAT question. The answer was "no." Susan > I guess the good news is he didn't just blow off my concerns. He > freely stated that with my clean C-T scan, except for a small spot in [quoted text clipped - 20 lines] > > Susan Did you say you already had a complete immunological workup? If your immune system is being suppressed by adrenal insufficiency, then it ought to show up as poor response when you're challenged with pneumovax and the like. Since you have a history of chronic sinusitis, and your cultures have sometimes been positive, a good modern immunologist can order up special vaccines made of killed versions of those microbes to see how your immune system reacts when challenged. My immunologist zapped me with both pneumovax and a specially prepared serum of killed H. influenzae, since I was a sinus sufferer and my blood showed antibodies for past H. influenzae infections I had earlier in my life.)  SignatureSteven L. Email: sdlitvin@earthlinkNOSPAM.net Remove the NOSPAM before replying to me. > Did you say you already had a complete immunological workup? Many years ago. Recently only allergy testing. >> If your immune system is being suppressed by adrenal insufficiency, then it ought to show up as poor response when you're challenged with pneumovax and the like.<< I'm a mixed bag, and in my case, my immune response is pretty robust. Since quitting the vitamin D analog topical, I've stopped getting numerous opportunistic infections and my sinuses are better, with mostly less aggressive management than before. I never catch flu or bad colds or things my husband has. If he gets sick, my sinuses get worse, I feel like I'm fighting something, but I never get it full blown. Even when I was more immunse compromised, I had robust natural killer cell function (typical of Lyme disease) and some down regulated and some up regulated Ig subsets. I experience both highs and lows adrenally. I feel AI with normal cortisol numbers because my cells are accustomed to excess. > Since you have a history of chronic sinusitis, and your cultures have sometimes been positive, I've never had a culture. Yesterday was my first, and it was just mid meatus. >>a good modern immunologist can order up special vaccines made of killed versions of those microbes to see how your immune system reacts when challenged. My immunologist zapped me with both pneumovax and a specially prepared serum of killed H. influenzae, since I was a sinus sufferer and my blood showed antibodies for past H. influenzae infections I had earlier in my life.) Did that change your treatment or improve your sinusitis or health generally? Thanks. Susan > x-no-archive: yes > [quoted text clipped - 22 lines] > > Susan susan, i haven't responded to this prior because i haven't had anything useful to add. but i am wondering how you are & what the next step is for you. best, ellen > susan, > [quoted text clipped - 4 lines] > best, > ellen Hi, Ellen, I'm waiting for the expected negative culture results, and my sinus infection has kicked up a bit the past two days. I'm in an adrenal low, just coming off of two bedridden days but on the upswing to half normal now. My sinuses were feeling better than they had in years until I resumed irrigation after a couple of days off, even though I cleaned the irrigator first. I'm thinking that the tubing of the Grossan harbors pathogens no matter what, and I'm thinking of using my much more cleansable NeilMed bottle from now on, instead. Susan >I'm waiting for the expected negative culture results, and my sinus >infection has kicked up a bit the past two days. I'm in an adrenal low, >just coming off of two bedridden days but on the upswing to half normal now. I'm sorry for the low, and hope the high has some staying power ;-) >My sinuses were feeling better than they had in years until I resumed >irrigation after a couple of days off, even though I cleaned the >irrigator first. I'm thinking that the tubing of the Grossan harbors >pathogens no matter what, and I'm thinking of using my much more >cleansable NeilMed bottle from now on, instead. This is one of the other things that seems like an unmitigated plus for some H2O2 use..... After I do the irrigation solution, I run a full reservoir of water through the machine (desalination) WITH a bit of the H2O2 AND a bit of the grapefruit seed extract. Feel better! > I'm sorry for the low, and hope the high has some staying power ;-) Thanks, Neil. Problem is that the highs are very damaging, in the same way that, say, long term Prednisone or dexamethasone usage is. If I can just manage to get my pee/spit/blood tests on the high cycles, I can get my chance at a cure through pituitary surgery. > This is one of the other things that seems like an unmitigated plus > for some H2O2 use..... I use it, twice in the past week. In fact, when my husband had a bad cold that made my sinuses smell and feel bad, I used enough to make me feel like the back of my head might blow off. It worked incredibly well. Can't recommend it as a cheap thrill, though. :-) > After I do the irrigation solution, I run a full reservoir of water > through the machine (desalination) WITH a bit of the H2O2 AND a bit of > the grapefruit seed extract. > > Feel better! I have bleach solution in it now. I'm going to get into the habit of doing this right before I use it each day, I think. I wish the tubing were replaceable, though. Fatal design flaw, IMO. Susan http://www.stopsnoringnewyork.com/nyc_snoring_doctor/sinusitis_treatments_newyork.htm He has a biofilm piece on his web site, so he might be worth a look. |
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