 |
 | Home | Contact Us | FAQ | Search & Site Map | Link to Us |
 | Sign In | Join | Other 45 Sites in Network |
Medical Forum / Diseases and Disorders / Sinusitis / January 2007Fungal Sinus Polyps
Hello, I'm 21 years old and have had three surgery to remove polyps. (2 doctors). My original ENT sent me to a different one in order to try getting rid of the polyps via anti-fungal medicine. He tried amophotecerin and Spornox while I had polyps - could not get rid of them. He then did surgery (3rd one) and after that he tried treating it with anti-fungal medicine again. To No Prevail. My question: I have tried a lot of medice and I have tried anti-fungal medications as well, which is farely new. Does anyone know of any new research on nasal polyps or any new types of medicine to help get rid of them for good. I am starting to lose hope that I will ever get rid of my polyps. Thank you and any response will be appreciated. Alex Alex: I don't have an answer for you but can you tell me: 1) Did the surgery remove the polyps and then they grew back ? 2) How difficult was the surgery/recovery?? 3) What symptoms were caused by the polyps (breathing problems and/or infections??) Mel > Hello, > [quoted text clipped - 13 lines] > > Alex 1. Yes every surgery I had was to remove the polyps. 2. Surgery recovery is not that bad. I didnt have much pain during after any of them. The only bad part is being very uncomfortable after the surgery. 3. My polyps always grow to be very bad. To the point where I cant breath in or out. It doesnt even make a sniffle sound when I try because the polyps seem to cement the openings shut. I also have developed asthma because of them. Still looking for inquiries into my original question please. Alex > Alex: > [quoted text clipped - 25 lines] > > > > Alex > Still looking for inquiries into my original question please. Alex, I've never had nasal polyps, and even though I do think that my major sinus problems were caused by mold (in more ways than one), I think that the antifungal theory is being over exploited in many cases as a "cure all" when in fact there are probably just a minority of us for whom that is the answer (or partial answer) unless you are actually allergic to mold; then desensitization might work. It is my understanding that nasal polyps are caused by inflammation, and that prednisone is effective, but at your age, I don't think you would want to start on long term systemic steroids. Have you used any of the nasal steroid sprays like Nasonex, Flonase, etc.? If they are ineffective, you might try someting like pulmicort respules. You can use it with a nebulizer with a special attachment for breathing through the nose and getting better penetration into the sinuses. I got mine from Sinuneb, but I'm not sure they exist any more. You get more of the steroid into the sinuses this way. I'm always hesitant about advising the use of steroids, but this route is much safer than the oral route. These are just some of my thoughts. Others who have actually had polyps could probably answer your question better. Kathyw Thank you, And yeh... i have been down the oral steroid road. That is the only thing that works, but once off it the polyps come back. alex On 12/18/06 9:06 AM, in article 1166461603.263678.40670@f1g2000cwa.googlegroups.com, "aboryszewski" > Thank you, And yeh... i have been down the oral steroid road. That is > the only thing that works, but once off it the polyps come back. > > alex Do you avoid salicylates? > Thank you, And yeh... i have been down the oral steroid road. That is > the only thing that works, but once off it the polyps come back. Oral steroids and steroid nasal sprays are two completely different treatments. I think it was Prednisone I was taking orally, when my polyps first started getting bad. I only went through that treatment once and that was enough. The nasal sprays like Nasacort, Nasonex, Flonase mentioned in the previous post worked very well for me, no side effects or complications but I have no insurance and can't always afford a regular supply of the stuff at almost $100 per little spray bottle, about a month's supply. So look into the sprays if you haven't already. On 12/28/06 12:54 PM, in article pan.2006.12.28.20.53.58.940538@edithh.org, > Thank you, And yeh... i have been down the oral steroid road. That is >> the only thing that works, but once off it the polyps come back. Polyps may return because of use of salicylates or because here is purulent material in the nose. One reason pulsatile irrigation often reduces the return of polyps is the removal of infected material. Hi - I know exaclty what you are going through. I can now breathe clearly and no polyps have returned after my surgery. My specialist Dr Amin Javer is now treating me with pulmicort irrigation. I irrigate twice a day and my nose has been clear for 2 months now with no other meds. I was also on sporanox and ampho b and prednisone. This new method is working wonders. Suggest you google his name. > Hello, > [quoted text clipped - 13 lines] > > Alex On 12/30/06 6:57 PM, in article 1167533823.523919.301870@n51g2000cwc.googlegroups.com, "ic4paws@hotmail.com" > Hi - I know exaclty what you are going through. I can now breathe > clearly and no polyps have returned after my surgery. My specialist Dr > Amin Javer is now treating me with pulmicort irrigation. I irrigate > twice a day and my nose has been clear for 2 months now with no other > meds. I was also on sporanox and ampho b and prednisone. This new > method is working wonders. Suggest you google his name. This has been written about and is valid. What dose of pulmicort are you using to how much saline. Nasocort AQ is also the same thing. I have used the pulmicort treatment off and on for the past year. It works great. I use .5 respule with 30 ml of saline. > On 12/30/06 6:57 PM, in article > 1167533823.523919.301870@n51g2000cwc.googlegroups.com, "ic4paws@hotmail.com" [quoted text clipped - 10 lines] > > Nasocort AQ is also the same thing. my polyps were getting pretty bad when I started seeing my new allergist. My ENT Dr wanted to do surgery, but admitted that they start growing back in the recovery room. I use one pulmicort respule and mix with 8 cc's of saline. It draws up into a 10 cc syringe (no needle). I lay off the end of my bed to invert and slowly release the saline/pulmicort into my sinuses. I inhale slightly to get the solution into my upper sinus. I lay forward for 10-15 minutes and then let the solution drain into the sink. Don't blow yet. Give it another 10 minutes or so. Cram a bit of kleenex up to catch the drips. Now blow. I did this twice a day and it shrunk the little suckers down to where they can't be seen. I am sure that they will return, but it has been 6 months so far, and nothing. I feel a lot better. dave > I have used the pulmicort treatment off and on for the past year. It > works great. I use .5 respule with 30 ml of saline. |
Reply to this Message |
 Sign In
 Join
 My Latest Posts My Monitored Threads My Blog My Photo Gallery My Profile My Homepage Start New Thread Enable EMail Alerts Rate this Thread
|
©2008 Advenet LLC Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.