Medical Forum / Diseases and Disorders / Sinusitis / November 2006
Been Looking For Help
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rocketsman - 05 Nov 2006 18:12 GMT I have been severely affected by sinus disease for over 4 years and am experiencing many of the problems described by your contributors. I have been reading you frequently for the last 4 years and find the information so helpful. I have had 5 surgeries and used every topical and systemic medicine in the books without real improvement. I am UK based but made a trip to see what could be done in a well respected Phila hospital. I am self pay and the day case procedure for a spheno-ethmoidectomy would cost just shy of $50,000.00 plus extra for follow ups. Is there any place less costly? I read Steven L's posts avidly as I have similar symptoms but I've not seen anything from another longstanding poster Don Brady in a while, have you now beaten it Don.
kathywb2001@yahoo.com - 05 Nov 2006 21:11 GMT > I have been severely affected by sinus disease for over 4 years and am > experiencing many of the problems described by your contributors. I have [quoted text clipped - 7 lines] > not seen anything from another longstanding poster Don Brady in a while, > have you now beaten it Don. I'm not Steven nor Don, and respect both of their opinions as well (have wondered where Don is also), although we have different opinions when it comes to approaches to surgery). Have you considered Dr. David Sherris? He was formerly at Mayo Clinic, Rochester and now has established himself in private practice in Bufffalo, NY. I had minimal surgery in late July to open up blocked frontals and sphenoids. He detected this from CT scans that I sent to him and found it when no other ENT was able to do so, and it had been going on for years until I was the point that I was almost suicidal. I think, with the help of finally a good PC doctor near my home (East Tn) and an infectious disease doctor in Atlanta, Ga., who treats chronic sinusitis. I may finally be getting some relief. I don't think the surgery alone would have helped, but with aggresive treatment since then, I am slowly improving. I was really skeptical at first, because I thought my problem was still in my remaining ethmoids, but was despreate and willing to do almost anything at the time. The biopsy report confirmed what Dr. Sherris had prediagnosed as well as the right sphenoid being almost completley blocked at surgery. I'm not expecting to ever be completely well ( still have hope) since I have some other mold hypersensitivity issues as well, and his recommended treatement for that has not worked; but he has at least given me back the will to live. He uses image guided surgery and only widens the ostia so that they can drain better. I know Steven disagrees, but from what I have read, this approach seems to be preferred to the more radical older approaches. You can actually send your scans to him and for a moderate fee, he will read them and send you a report of his findings, and if you decide to have the surgery, he waives that fee. Since he is in an indepedent practice, it might be less expensive. I have really good insurance, so I don't know what the total cost is. ON the other hand, if you know your problem is in the ethmoids and you are refering to UPenn and Dr. David Kennedy (Don's choice), it would probably be worth the money. As I've learned, it doesn't do any good to have money (not that I have that much), if you don't have your health. Dr. Kennnedy would read the scans at one time also if you send them to him and let you know if he thought surgery would help. I don't know if he still does that. I also think there is something similar at Cleveland Clinic in Ohio. So, if you pursured some of these options before coming all the way here, you might better know what to expect.
Good luck!! Kathyw
rocketsman - 06 Nov 2006 21:19 GMT Thanks for your comments Kathy. I did make the journey from UK to Dr K at Upenn.I had scans & a full endoscopic exam.He recommended spheno- ethmoidectomy. I've had all the difficulties most of you get, constant thick drainage, cysts, antral polyps, deviated septum, eustachian problems, nocturnal congestion, pneumonia (x2), bronchitis, concha bullosa, head & facial pain, allergy tests (negative twice), esophagus scoped, reflux medication this disease really takes over your life. Relief is hard to obtain. I use a medication called Carbocisteine, a mucous thinner, it isn't good for that but it does reduce tissue reaction to mucous attack. Incidentally only 1/5th of the 50 grand is Drs fees , the rest is hospital and not even a nights stay! With travel from the UK and all associated costs those sphenoids are worth their weight in diamonds.
judy.n - 07 Nov 2006 16:14 GMT The problem in the US is that insurance negotiates discounted fees from doctors and hospitals. They pay a fraction of the retail cost. The retail cost is only charged to self-pay patients. I found that a patient without insurance was charged over $2000 for an ultrasound test to rule out a deep vein thrombosis by the hospital, while reimbursement to insurance was around $200. However, when I have an uninsured patient in the community, I use free-standing private radiology groups, and they charge a low fee if the patient pays up front in cash. You might want to negotiate with the hospital--they do it for insurance companies, and work out payment plans for indigent patients. My ENT tells me he gets around $300 for a typical FESS done in a surgicenter. When I went to Boston, the physician fee was $15,000---outrageous. Fees also vary by location. Here in Rhode Island, doctors move across to Massachusetts because insurance reimbursement is 20% greater. This is the US healthcare system.... Judy
> Thanks for your comments Kathy. I did make the journey from UK to Dr K at > Upenn.I had scans & a full endoscopic exam.He recommended spheno- [quoted text clipped - 8 lines] > rest is hospital and not even a nights stay! With travel from the UK and > all associated costs those sphenoids are worth their weight in diamonds. Steven L. - 08 Nov 2006 13:14 GMT > The problem in the US is that insurance negotiates discounted fees from > doctors and hospitals. They pay a fraction of the retail cost. [quoted text clipped - 13 lines] > 20% greater. > This is the US healthcare system.... I've often thought what we need in America is the medical equivalent of EBay: An ENT will post that he has a one-time holiday special offer: a sphenoidectomy for a starting bid of only $500, and let patients bid on it. Whoever has the highest bid gets the surgery.
 Signature Steven D. Litvintchouk Email: sdlitvin@earthlinkNOSPAM.net Remove the NOSPAM before replying to me.
Steven L. - 07 Nov 2006 14:55 GMT > I have been severely affected by sinus disease for over 4 years and am > experiencing many of the problems described by your contributors. I have [quoted text clipped - 5 lines] > just shy of $50,000.00 plus extra for follow ups. Is there any place less > costly? I would rather have a great surgeon in a cheap hospital than a mediocre surgeon in the most expensive hospital.
I had my second surgery (ethmoidectomy and revision antrostomy) done by Dr. Eric Stein.
He's affiliated with Mass Eye & Ear Hospital in Boston, but I didn't have to travel there. He was willing to do the surgery at my local hospital, Lowell General Hospital (because he has an office in Chelmsford, not far from there).
http://www.lowellgeneral.org/splash/
Their care was surprisingly good for a less well known hospital, and the whole bill (including anesthesiology) came to less than $6,000. I guess that's the trick: find a great surgeon and persuade him to operate on you in a cheap hospital. :-)
So I can't believe they would charge you $50,000.
Wherever in the States you choose to go, don't forget to include the cost of room and board. You can't have sinus surgery and go flying back to the UK the very next day. Air travel and damaged sinuses don't mix. You need lots of time for your sinuses to heal; if you developed a post-operative sinus infection (a frequent complication), it wouldn't be advisable to go flying across the Atlantic till it heals. Can you afford to be in the States for an extended period if necessary? Even the costs of an extended-stay hotel (which tend to be cheaper than the usual amenity-intensive hotels) are going to mount up.
 Signature Steven D. Litvintchouk Email: sdlitvin@earthlinkNOSPAM.net Remove the NOSPAM before replying to me.
Steven L. - 07 Nov 2006 14:57 GMT > I have been severely affected by sinus disease for over 4 years and am > experiencing many of the problems described by your contributors. I have [quoted text clipped - 5 lines] > just shy of $50,000.00 plus extra for follow ups. Is there any place less > costly? I would rather have a great surgeon in a cheap hospital than a mediocre surgeon in the most expensive hospital.
I had my second surgery (ethmoidectomy and revision antrostomy) done by Dr. Eric Stein. He's affiliated with Mass Eye & Ear Hospital in Boston, but I didn't have to travel there. He was willing to do the surgery at my local hospital, Lowell General Hospital (because he has an office in Chelmsford, not far from there).
http://www.lowellgeneral.org/splash/
Their care was surprisingly good for a less well known hospital, and the whole bill (including anesthesiology) came to less than $6,000. I guess that's the trick: find a great surgeon and persuade him to operate on you in a cheap hospital. :-)
So I can't believe they would charge you $50,000.
Wherever in the States you choose to go, don't forget to include the cost of room and board. You can't have sinus surgery and go flying back to the UK the very next day. Air travel and damaged sinuses don't mix. You need lots of time for your sinuses to heal; if you developed a post-operative sinus infection (a frequent complication), it wouldn't be advisable to go flying across the Atlantic till it heals. Can you afford to be in the States for an extended period if necessary? Even the costs of an extended-stay hotel (which tend to be cheaper than the usual amenity-intensive hotels) are going to mount up.
 Signature Steven D. Litvintchouk Email: sdlitvin@earthlinkNOSPAM.net Remove the NOSPAM before replying to me.
Becca - 14 Nov 2006 02:35 GMT > I have been severely affected by sinus disease for over 4 years and am > experiencing many of the problems described by your contributors. I have [quoted text clipped - 7 lines] > not seen anything from another longstanding poster Don Brady in a while, > have you now beaten it Don. Don, in September, I had surgery in Mexico because it is less expensive, but the care I received from the doctor and the hospital was fantastic. I went across the border from Brownsville, Texas to Matamoros, Mexico. The surgery was $2,300 for everything; the doctor, anesthesiologist, hospital.
Here is the information. If you are interested, I will find the email address of his assistant, Melissa. She speaks English very well, unfortunately the receptionist does not. If you call the office, ask for Melissa.
Dr. Rolando Hernandez Telephone 011-52-868-813-2767
Ave. 5ta. No. 217 Altos Zona Centro H. Matamoros, Tam. 87300
I stayed at a hotel in Brownsville and I walked across the border. For more convenience, there is a Best Western hotel, almost across the street from his office.
Becca
rocketsman - 14 Nov 2006 19:59 GMT Hi Becca, Its good to get new info all the time. Can you tell me what surgery you had?
Becca - 19 Nov 2006 22:23 GMT > Hi Becca, Its good to get new info all the time. Can you tell me what > surgery you had? I had the FES.
Becca
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