Here's my history:
I am a 40yo male, and have had what appears to be chronic sinusitis for
~15 years, first dx 6 years ago. I get 1-2 acute infections each
winter, and these usually respond well to Avelox or Augmentin. A CT
scan during an infection 5 yrs ago showed "extensive mucoperiosteal
changes involving both maxillary and ethmoid sinuses with obliteration
of the osteomeatal complexes bilaterally". Allergy tests 4 yrs ago
showed response only to dust mites (I have mite-proofed).
My main difficulty is sensitivity/intolerance of "cold" weather. I
moved to SoCal to avoid the Midwest winters and that has helped a lot,
but anything below 75F is too cold for me. If I get a chill, the rest
of the day I will be tired, feel sick, often a sinus headache, PND
(clear/white) the next day, and it takes a few days or a week to return
to my normal. I can't spend more than an hour in a 70F room before
I'm chilled. I keep my apt at 80F. My head/face/forehead and chest
are the most sensitive areas. I wear a wool hat pulled down to my
eyebrows, nearly all the time. (In a Midwest winter, I wore a full
facemask and 2-3 hats, and still I felt ~sick all winter.) I wear more
warm clothes than anyone I know. No ice water or ice cream, etc.
Other definite triggers: cigarette smoke, car exhaust.
I think there are two issues here: 1) I "run cold" (why?), 2)
something in me (probably my sinuses) gets worse if I get a chill. On
#1, I've asked numerous Drs. and had numerous TSH tests, all normal.
They have no explanation. Any ideas how to find out why, or what
helps?
On #2, for those that have had cold sensitivity, what has helped? Has
surgery made any difference? I plan to see an ENT soon but should I
see a different specialist, too?
My self-care for the past 6 years is:
- 1-2x/day irrigation w/ ear syringe (pulsatile when sx are worse)
- Diet: lots: fruit/veggies, water. minimal: sugar, alcohol, dairy,
caffeine.
- 8-9 hrs sleep/night, 10+ when sx worse
- Moist heat to face 2x/day (also for mebonionitis of eyes)
- Flonase 1-2x/day (preventative, I think it helps)
- Mucinex when sx are worse
I had a number of infections 5-6 years ago and saw 3 ENTs : 2 rec'd
surgery, but Dr. Lanza at Cleveland Clinic (5 yrs ago) did an
endoscope, saw nothing unusual, and was not convinced that sinusitis
was the main cause, so I didn't get the surgery. Since then I've
learned the risks/triggers and can "manage" the problem, but at the
cost of very limited outdoor and social activities. I've gotten a
little worse each year and do not want it to define my life. I'd
welcome (informed) suggestions. Thanks.
Shirley ann - 17 Sep 2006 10:33 GMT
Maybe you should get checked for Lyme disease.
You seem to have a lot of medical problems for your age.
I have a low white blood count and I catch everything that is going
around as i have a low immunity that cannot fight the germs.
I am always freezing in the summer and winter and cannot seem to get
warm. Even if I am indoors. Some days my hands are so cold.
I have been like this since childhood. {I am in my 60's now.}
I've had blood tests checking for thyroid disease and anemia. Nothing
was found.
The only thing that helps me to feel warmer is walking on our treadmill.
That is where I will be in a few hours this morning.
shirleyann
Susan - 17 Sep 2006 17:21 GMT
> Maybe you should get checked for Lyme disease.
> You seem to have a lot of medical problems for your age.
[quoted text clipped - 9 lines]
> The only thing that helps me to feel warmer is walking on our treadmill.
> That is where I will be in a few hours this morning.
Geez, Shirley, I have chronic Lyme and other TBDs, and I don't think
that's what he's described at all.
Susan
Shirley ann - 19 Sep 2006 11:59 GMT
My son in law is in his 40's and has just been diagnosed with Lyme
disease.
He had a lot of tests done, fiu, pneumonia kidney disease too.
He was running a tempature of 105 for 2 weeks, severe pain in his back.
He said the severe pain came on all of a sudden that it took his breath
away.
His symptoms were like that ballplayer that came down with Lyme disease.
He is on Meds for a month, and will have another blood test in a month.
He is hoping that he was diagnosed and on Meds early.
He is a jogger, hiker in his spare time.
shirleyann
Susan - 19 Sep 2006 14:39 GMT
> My son in law is in his 40's and has just been diagnosed with Lyme
> disease.
[quoted text clipped - 8 lines]
>
> He is a jogger, hiker in his spare time.
I'd sure want those meds for at least 6 weeks. The tests aren't
clinically reliable in detecting disease or its progress, so he should
stay very focused on his symptoms.
The OP didn't have the symptoms you describe.
Susan
Susan - 26 Sep 2006 13:58 GMT
> My son in law is in his 40's and has just been diagnosed with Lyme
> disease.
[quoted text clipped - 8 lines]
>
> He is a jogger, hiker in his spare time.
Shirley, if his disease is that disseminated, one month may just piss it
off. I'd make darned sure to get at least 6 weeks, to cover a
replication cycle of the borrelia if it were me. Has he been tested for
coinfections? Very common for a single tick bite to transmit multiple
diseases.
Hope he gets well.
Susan
Susan - 17 Sep 2006 17:20 GMT
> Here's my history:
> I am a 40yo male, and have had what appears to be chronic sinusitis for
[quoted text clipped - 8 lines]
> moved to SoCal to avoid the Midwest winters and that has helped a lot,
> but anything below 75F is too cold for me.
Have you had your thyroid checked, particularly your free T3?
If I get a chill, the rest
> of the day I will be tired, feel sick, often a sinus headache, PND
> (clear/white) the next day, and it takes a few days or a week to return
[quoted text clipped - 11 lines]
> They have no explanation. Any ideas how to find out why, or what
> helps?
Yeah, see a doctor who understands how worthless a TSH test is for
diagnosing failure to convert T4 to free T3. Make sure you're not
eating a highly insulinogenic diet, and that you're getting selenium,
200mcg per day in your multivitamin.
Susan
davidsd28@yahoo.com - 26 Sep 2006 07:07 GMT
Thanks, Susan and Shirley. I've been reading up on the TSH/FT3
question... sounds like I should see an endocrinologist to check into
that part of it.
Does anyone else have any experiences with sinusitis and cold
sensitivity? It would help to know how my experience fits in with
others with sinusitis.
Thanks, David
Laurie - 14 Oct 2006 03:59 GMT
> Thanks, Susan and Shirley. I've been reading up on the TSH/FT3
> question... sounds like I should see an endocrinologist to check into
[quoted text clipped - 5 lines]
>
> Thanks, David
David,
I have the SAME problem. I've been researching it forever and yours is
the first post I've seen with the same symptoms! When I have sinus
problems, the SLIGHTEST breeze or movement in the air, especially
coldness, causes my face to hurt. There are times that even when I'm
walking, the air rushing against me causes the pain. I have to wear a
scarf around my nose and mouth in cold weather and sometimes at work,
in the airconditioned office, I have to face my chair in a different
direction. Stores are the worst! Their air conditioning seems to blow
right on my face and I have to leave after a short while. There are
times, hwoever, when warm air does same thing. basically, any type of
air blowing even gently on my face causes pain. I've been treated for
Trigeminal Neuralgia but this is different (TN is HORRIBLE; sinus pain
a different but still bad).
I wish I had a solution to both our problems!
Murray Grossan - 14 Oct 2006 17:27 GMT
On 10/13/06 7:59 PM, in article
1160794758.710531.229590@k70g2000cwa.googlegroups.com, "Laurie"
<laurie3333@yahoo.com> wrote:
>> Thanks, Susan and Shirley. I've been reading up on the TSH/FT3
>> question... sounds like I should see an endocrinologist to check into
[quoted text clipped - 23 lines]
>
> I wish I had a solution to both our problems!
When you have allergies, your "thermostat is crooked" . In other words, with
allergy you easily get chilled, and going into an air conditioned room will
cause sneezing and hacking. If you have allergy it is important to carry
some sort of jacket so that the air conditioning vent doesn't start the
allergy cascade. Esp in AM on getting out of bed - avoid this by hot tea
BEFORE you get out of bed.
Foul odor, crusts in the nose indicates that the nasal cilia are not
functioning. It is important to discuss with your doctor about restoring
normal cilia flow, esp after surgery. The longer the cilia are stagnant, the
more chance for additional infection.
Murray Grossan, M.D.
Www.grossan.com