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Medical Forum / Diseases and Disorders / Sinusitis / August 2006

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Good sinus doctor in the atlata area

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Ermi - 31 Jul 2006 17:05 GMT
Does anybody recommend a good sinus doctor in the metro atlanta area?

Thanks.
kathywb2001@yahoo.com - 02 Aug 2006 16:50 GMT
Dr. Pugliese is an infectious disease doctor who aggresively  treats
chronic sinusitis in the Atlanta area.  He has offices in several
locations.  He is not an ENT so does not do surgery, ect.  He is more
the type of doctor that will look at your medical records and LISTEN to
YOUR SYMPTOMS.  He uses both antibiotics and antifungals, sometimes IV
if he thinks it is necessary.  You probably wouldn't want to go this
aggresive as a first line approach, but if nothing else helps, he is
very good.  I ended up having to have surgery anyway, but he virtually
kept me alive until then.  There are very few infectious disease
doctors who want to deal with chronic sinusitis patients.

Kathyw

> Does anybody recommend a good sinus doctor in the metro atlanta area?
>
> Thanks.
Susan - 02 Aug 2006 17:08 GMT
> Dr. Pugliese is an infectious disease doctor who aggresively  treats
> chronic sinusitis in the Atlanta area.  He has offices in several
> locations.  He is not an ENT so does not do surgery, ect.  He is more
> the type of doctor that will look at your medical records and LISTEN to
> YOUR SYMPTOMS.  He uses both antibiotics and antifungals, sometimes IV
> if he thinks it is necessary.  

Does he sell his own IV services, or does he refer to the in plan
infusion services of patients' insurance?

Just wondering, because this has been a confounding conflict issue in
Lyme disease treatment, for instance.

Susan
kathywb2001@yahoo.com - 02 Aug 2006 23:39 GMT
My insurance completely covered all of my costs.   I have BCBS  PPO.

> Does he sell his own IV services, or does he refer to the in plan
> infusion services of patients' insurance?
[quoted text clipped - 3 lines]
>
> Susan
Susan - 03 Aug 2006 00:11 GMT
> My insurance completely covered all of my costs.   I have BCBS  PPO.

That wasn't my question.

Who was the infusion service provider?

Susan
kathywb2001@yahoo.com - 03 Aug 2006 00:46 GMT
> x-no-archive: yes

I'm sorry.  I didn't understand your question.  I just thought you
wanted to know if insurance covered it.   My brain is still a little
fuzzy (well actually a lot).  I don't know who the infusion service
provider was.  I'll try to look later and see if I have any of the
supplies or labels left over.  It has been over a year ago since I had
it,

> > My insurance completely covered all of my costs.   I have BCBS  PPO.
>
[quoted text clipped - 3 lines]
>
> Susan
Susan - 03 Aug 2006 00:51 GMT
> I'm sorry.  I didn't understand your question.  I just thought you
> wanted to know if insurance covered it.   My brain is still a little
> fuzzy (well actually a lot).  I don't know who the infusion service
> provider was.  I'll try to look later and see if I have any of the
> supplies or labels left over.  It has been over a year ago since I had
> it,

It's okay, please don't go to extra trouble.

Susan
judy.n - 03 Aug 2006 16:50 GMT
Susan, as a former management person for a medicaid HMO, the way we
handled this was to pay the physician office  services (E&M codes) and
there were infusion companies which we paid separately. IV therapy was
used for outpatient treatment of both acute infections, and we had a
few patients on prolonged treatment for chronic Lyme disease with PICC
lines in. It's more a payor issue. Few MD's are set up to provide
infusions in the office.
 When I worked for a staff model HMO, we gave our infusions in the
office-- it kept costs in house. Now in private practice, we call an IV
therapy company for at home IV therapies.
 As you know, benefits can vary widely.
 The only IV we ever refused (at the HMO) was for a surgeon who had
the nurses in the local ER start his IV's, then made the patients drive
over to his office with the IV in,  pay out of pocket--to the surgeon--
for this, and then ran the cases in his office. That wasn't ok.As a
medicaid provider, our patients were never liable for out of pocket
costs, the provider was the one who didn't get paid if they did
something not covered in the contract.
 I'm out of that world at this point. Just on the other end, trying to
get paid for what I do....
 Judy
> x-no-archive: yes
>
[quoted text clipped - 8 lines]
>
> Susan
Susan - 03 Aug 2006 17:23 GMT
> Susan, as a former management person for a medicaid HMO, the way we
> handled this was to pay the physician office  services (E&M codes) and
[quoted text clipped - 16 lines]
>   I'm out of that world at this point. Just on the other end, trying to
> get paid for what I do....

Judy, some entrepreneurial docs have set up their own infusion services,
which they insist is the only IV service provider that is good enough
for their chronically ill, desperate for treatment patients to use.

IV abx seem to be rx'ed a lot more often, and for longer durations than
these docs.

Susan
judy.n - 04 Aug 2006 13:45 GMT
Susan,
 There are a few physicians who run "Chronic Lyme" practices who do
resort to these practices, which are really all about making money. In
these days of declining reimbursement and third party payors, people
look to all sorts of questionable practices to generate revenue. (Think
of all the laser hair removal centers....)
 It's really too bad, because patients need care and their needs get
lost in this desire to generate revenue.
Judy
> x-no-archive: yes
>
[quoted text clipped - 27 lines]
>
> Susan
Susan - 04 Aug 2006 13:54 GMT
> Susan,
>   There are a few physicians who run "Chronic Lyme" practices who do
> resort to these practices, which are really all about making money.

Yes, that's happened.  BTW, chronic Lyme is real, not deserving of quote
marks, except perhaps in those particular physician's offices.  ;-)

I've learned that there are chronic sinusitis docs augmenting their
income in the same way.

 In
> these days of declining reimbursement and third party payors, people
> look to all sorts of questionable practices to generate revenue. (Think
> of all the laser hair removal centers....)
>   It's really too bad, because patients need care and their needs get
> lost in this desire to generate revenue.

Yup.  The insurance lobby beat the medical lobby for control over how
much health care we get and who gets to go home with all the marbles.

Susan
judy.n - 04 Aug 2006 21:35 GMT
Susan,
 Sorry about the quotes around chronic lyme disease, I do believe
there are prolonged symptoms if the infection isn't treated early
enough, or sometimes even if it is. Spirochetes are nasty. I think
there's controversy about long term IV treatment. (And we know that
meta analysis articles suffer from bias--what studies are included,
etc.)
 I have discovered at least 3 physicians who run practices devoted to
chronic lyme disease. They are never affiliated with hospitals and
their criteria for including/diagnosing patients can be so broad as to
be questionable. The rest of the infectious disease community does not
agree with their approach, and these ID people aren't doctors who
dismiss the long term sequela of lyme disease. I just think these few
doctors practice medicine outside the mainstream, and when I've spoken
to one of them, there were claims of "miracle cures" of problems that
defy cures.
 I hate to both see patients be told that their symptoms aren't real
and the opposite, which are doctors who prey on the desperate.
Judy

> x-no-archive: yes
>
[quoted text clipped - 19 lines]
>
> Susan
Susan - 05 Aug 2006 00:21 GMT
> Susan,
>   Sorry about the quotes around chronic lyme disease, I do believe
[quoted text clipped - 3 lines]
> meta analysis articles suffer from bias--what studies are included,
> etc.)

Judy, I think it's probably also unusual to be bitten by a tick that's
carrying only one infection.  I think it's Krause at U. Conn whose
theory is that babesiosis in particular is behind uncurable late Lyme in
many cases.  Anecdotally, after 3 1/2 years of chronic Lyme that needed
constant abx, my child was cured by a trial of zithromax and atovaquone.

We can't test for the organisms with any reliability, the literature is
full of cases in animals and humans where sx persist even after lengthy
treatment.  There's no controversy here when you talk to researchers
*off* the record.  It's no different than the doc who told you he'd
cured you with surgery, so leave him alone.

>   I have discovered at least 3 physicians who run practices devoted to
> chronic lyme disease. They are never affiliated with hospitals and
> their criteria for including/diagnosing patients can be so broad as to
> be questionable.

There's no question that this happens, and with sinusitis, too, BTW.
But the doc who treated my child, and my doc, both are affiliated, both
got paid our negotiated insurance rate, and both dx and tx chronic TBDs.

The science behind the issue doesn't change just because some cash
hungry opportunists got involved.

 The rest of the infectious disease community does not
> agree with their approach, and these ID people aren't doctors who
> dismiss the long term sequela of lyme disease.

Uh, yes, they do, if you're a patient. I've heard them say that if they
even think a family member has been bitten, they give them 4-6 weeks of
doxy.  You can't get treated if you have the damned tick attached, if
you're not family!  What they say, and what they practice clinically are
two different things.  The IDSA guidelines are total political crap.

 I just think these few
> doctors practice medicine outside the mainstream, and when I've spoken
> to one of them, there were claims of "miracle cures" of problems that
> defy cures.

Uh, Judy, I haven't found any superior qualities within the mainstream.
What I've found is academically affiliated docs and researchers saying
off the record that their careers are in jeapardy if the treat and even
publish truthfully about chronic TBDs.

>   I hate to both see patients be told that their symptoms aren't real
> and the opposite, which are doctors who prey on the desperate.

The mainstream docs are equally predatory, but what they're protecting
is their careers, not wanting to fall out of stop.  Docs like those we
use in my family are secure enough, and well read enough to reject both
camps, the opportunists and the IDSA.

Susan
judy.n - 05 Aug 2006 19:53 GMT
Susan,
 I found my first case of babesiosis this year: I'm back in a private
practice where patients can actually afford to get labwork done--vs.
the inner city community clinics. I found that the rheum person
wouldn't help me, so I called upon ID. I think it's vastly
underrecognized--there was a recent article in our local paper about
how common it is, but they said it was usually self-limited in healthy
people.
 I think we agree about the health care system and how messed up it
is.
 I spent a few years in academia--I had idolized it from afar--and it
nearly killed me. I've also been personally harmed by national experts
and helped by local doctors who "think outside the box".
 So, "do no harm" just isn't the standard anymore, if it ever was.
That's why we have to learn and advocate for ourselves and find the
people, like our allergists, who hang in there with us.
Judy
> x-no-archive: yes
>
[quoted text clipped - 59 lines]
>
> Susan
Susan - 05 Aug 2006 20:22 GMT
> Susan,
>   I found my first case of babesiosis this year: I'm back in a private
[quoted text clipped - 4 lines]
> how common it is, but they said it was usually self-limited in healthy
> people.

Mazel tov!  :-)

I think it's not only underrecognized, but finding it on a smear or any
other lab is apparently rare past the acute febrile stage. My child
never tested + (though TBDs weren't looked for til after 6 mos. misdxed
with mono), but we suspect that babesia are what caused the early
enlarged spleen.

>   I think we agree about the health care system and how messed up it
> is.

Sistah!

>   I spent a few years in academia--I had idolized it from afar--and it
> nearly killed me. I've also been personally harmed by national experts
> and helped by local doctors who "think outside the box".

That's my point; the chronic Lyme docs who're just quietly taking care
of their patients without setting up infusion services, etc. are staying
below the radar, fearing prosecution or just wanting to do their jobs.
It's easy to label all of those on the activist side of the debate as
quacks with so many visible medical miscreants.  But they exist in all
cases of chronic diseases where mainstream medicine isn't working, not
just Lyme.  The difference is how much insurance money and unscientific
thinking is guiding the Lyme mainstream.

>   So, "do no harm" just isn't the standard anymore, if it ever was.

Exactly.  Now it's "do no harm that the rest of the community isn't
doing."  :-(

> That's why we have to learn and advocate for ourselves and find the
> people, like our allergists, who hang in there with us.

We are so on the same page.  My allergist strives to emulate Osler for
real, not just in fantasy, as his father did.  Fortunately for me (not
for him!) he says he can't afford to retire.  :-)   I think his dad
practiced until they carried him out of the office.

Susan
 
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