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Medical Forum / Diseases and Disorders / Sinusitis / August 2006

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My continuing saga-need help!

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travmmann - 30 Jul 2006 07:21 GMT
My ENT came back from his holidays after 5 weeks and examined me Post
Op(Mini FSS-widening of Ostia). He said my sinuses had healed "beautifully"
post op. He also said he found normal mucosal fluid,evidence of past sinus
disease,a very serious problem of the thinness of my bone between
sinuses/brain/eye sockets-so thin, he said he was afraid to probe too deeply
there for fear of doing damage(thanks!).He said he did not go near the
Sphenoid with his scope because it was too close to my brain tissue....when
I told him that I STILL have these symptoms:-

OK when I wake up. Then after a couple of hours symptoms start.
  Pressure between the eyes/bridge of nose
  Tinnitus-left ear
  Yellow coated tongue
  Propensity/desire to want to pop ears(sometimes)-although no infection
  Fuzzy/dizzy in the head,mucus drainage(throat only though)
  Sweet sickly smelling sensation in the nasal passages(diseased sinuses?)
             -can only be noticed if resting
  Flushed face-this has decreased-used to be all day but now comes on at
                        about 6pm at night and not as intense.
  I am much better than I was in March-temp/profuse sweating/off my food
                                                                   very
tight band around my head.
  Symptoms ease if I rest.

He said......................................come back and see me in
6months. Could I have an infection that he may not be able to detect e.g. a
viral or fungal infection in the clear mucus/something in the spenoid area?

Kindest personal regards,
Ray The Travellin' Man.....Ray Armstrong your eyes and ears on the Tweed!!
Let's Keep Music Liiiiiiiiiiiive!!!!!!!
travmmann - 31 Jul 2006 10:13 GMT
One more thing I forgot-my ENT specialist has told me to stop doing saline
irrigation and to terminate use of Nasonex or ANY steroid...says he wants
the normal mucosal liquids to do their jobs.

Kindest personal regards,
Ray The Travellin' Man.....Ray Armstrong your eyes and ears on the Tweed!!
Let's Keep Music Liiiiiiiiiiiive!!!!!!!
> My ENT came back from his holidays after 5 weeks and examined me Post
> Op(Mini FSS-widening of Ostia). He said my sinuses had healed "beautifully"
[quoted text clipped - 27 lines]
> Ray The Travellin' Man.....Ray Armstrong your eyes and ears on the Tweed!!
> Let's Keep Music Liiiiiiiiiiiive!!!!!!!
kathywb2001@yahoo.com - 03 Aug 2006 00:37 GMT
Yes, it is definitely possible you could still have a sphenoid
infection!!!  What you describe sounds very similar to my symptoms.  I
have just found out that I have had an infection/and or inflammation in
my right sphenoid for at least 10 years when the first CT scan that I
ever had showed it there.  Nobody bothered to treat me then even though
I had been running low grade fevers off and on for several years before
that and I was having neurological symptoms which showed up on an MRI
as an area of enhancement in a part of my brain that later turned out
to be an area of tissue loss in the same area  on the right side of the
brain (abscess??).  I did see an allergy doctor at Mayo Clinic,
Jacksonville, in 1997 who was the first to suggest that I might have
chronic sinusitis when he did endoscopy and saw purulent drainage.  I
did end up having surgery in 1999 to open up the main ostia and a
partial ethmoidectomy, but only got partial relief.  I have been from
doctor to doctor  (many ENTs) since then and declared sinus free until
a year and 1/2 ago when I was finally diagnosed with allergiic fungal
sinusitis, but still no diagnosis of sphenoid sinusitis.  I have been
on IV antibiotics, antifungals, and prednisone with only a little
relief  (at least enough to not want to die).  I have had to be on
narcotic pain medication (am 58 and never taken before even after
surgeries except for the first couple of days)   I finally sent my CT
scans to Dr. David Sherris in Buffalo, NY.  He was formerly at Mayo
Clinic Rochester and is one of the pioneers in AFS.  To my amazement he
asked me if I had ever had sphenoid sinusitis.  To make a long story
short,  my husband and I traveled to NY 2 weeks ago (11 hour drive from
east Tn)  and he opened up my frontals and my sphenoids.  He said the
right one was almost completley blocked.  When I went back to my local
ENT  (still a 2 hour drive since noone closer even believes me) for the
2nd debribement, he looked at my scans and said he did not see sphenoid
sinusitis.  But then he did the debribement and he had to open up the
right one again and he suctioned all kinds of crap out of it.  I think
he was totally surprized, but now believes me too, and I'm going to
have to have this done again in another week.  He finally admitted that
CT scans sometimes don't show everything  (but Dr. Sherris saw it
before he ever even examined me, so he must have seen something that
others weren't seeing).  I still think there is infection there;  I've
had some really weird bacteria and fungi cultured out;  not feeling a
whole lot better, but at least have hope now since 2 ENTS know what is
going on and it is draining better;  I have a nasty taste (not rotten,
not sweet, but hard to describe that is draining from my sinuses (was
there before surgery also when it would drain, so not from it)  and am
waiting on culture results to see what is in there and where to go from
here. I am on doxycycline and using gentamacin and itraconazole sinus
washes at the present time.
  So if it's been 5 weeks and you are still having symptoms, I would
definitely change ENTs and keep searching until you find an answer.   I
was almost suicidal at one point.  Only by the grace of God, my family,
and a couple of doctors, have I survived this far.

Kathyw

> My ENT came back from his holidays after 5 weeks and examined me Post
> Op(Mini FSS-widening of Ostia). He said my sinuses had healed "beautifully"
[quoted text clipped - 27 lines]
> Ray The Travellin' Man.....Ray Armstrong your eyes and ears on the Tweed!!
> Let's Keep Music Liiiiiiiiiiiive!!!!!!!
tdonline - 03 Aug 2006 02:51 GMT
I have a nasty taste (not rotten,
> not sweet, but hard to describe that is draining from my sinuses (was
> there before surgery also when it would drain, so not from it)

Kathy, I have a weird taste too...it's hard to explain also.  I
beginning to think it's nasal wash that's taken some time to drain out.
It seems to be a stale salty taste/odor.
 
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