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Medical Forum / Diseases and Disorders / Sinusitis / May 2006

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I think I may need surgery - advise needed

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chrisw - 24 May 2006 10:58 GMT
Hi,

I am been battling constant inflammation of my nasal passages for 5
months with no respite. I feel "constant" ear fullness and stuffy nose.
I think my turbinates have become so swollen that nothing brings them
down. Everytime I encounter an irritant, my turbinates swell. Inside or
outside, it doesn't seem to make a difference.

I feel some pain on the right inside of my nasal area which an ENT says
is due to swollen turbinates. I feel that the inside of my right nasal
passage is constantly swollen. I think that my chronic exposure to
dust-mites and dust (which I am allergic to) over the years has
permanently damaged or inflamed my turbinates. In recent months, I have
undertaken all the measures to control dust in my home and bed with no
relief.

I have lots of white mucous and my right nasal passage has constant
PND. Sometimes the inflammation inside gets so bad that I feel like air
just passes straight to my lungs. This is especially the case during
and after exercise resulting in shortness of breathe. This is just not
normal. My right nasal passages does not feel normal. There is
tightness and congestion that goes all the way to my ears.

I have been using Rhinocort Aqueous spray for 3 months and it does not
help. I have tried irrigating with the Neilmed rinse and Grossan
Hydropulse but they seem to make the inflammation worse. I can feel
pain in my right side when irrigating which I have never read happening
to people. After irrigation, I can smell a lingering odor which I think
is the bacterial rot inside which is not draining. I don't get residual
drainage 20 or so minutes after which means that the inflammation is
very bad. I have heard so many good things about irrigation.
Unfortunately, I feel that it just inflames my turbinates even further.

Regarding surgery, is it better to have a somnoplasty by
radio-frequency, a laser cautery or a sub-mucous reduction of my
turbinates. I have read about empty-nose and dry-nose syndrome so I
wish to preserve as much of my mucousal-lining and cilia as possible.
The ENT surgeons here in Australia don't seem to have much sinus
surgery experience. Anyone know of good experienced sinus surgeons in
Sydney, Australia?

Thanks,
Chris
Steven L. - 24 May 2006 15:36 GMT
> Hi,
>
[quoted text clipped - 11 lines]
> undertaken all the measures to control dust in my home and bed with no
> relief.

Have you had a sinus CT scan and nasal endoscopy?  If so, what did these
tests show?

Signature

Steven D. Litvintchouk
Email:  sdlitvin@earthlinkNOSPAM.net
Remove the NOSPAM before replying to me.

august - 24 May 2006 20:07 GMT
>> Hi,
>>
[quoted text clipped - 14 lines]
> Have you had a sinus CT scan and nasal endoscopy?  If so, what did these
> tests show?

Also allergy testing? and allergy shots? If you have known allergies,
surgery won't help much until you get the allergies under control. Have you
tried a short course of strong oral steroids to get the inflammation down
enough so that a nasal steroid will be helpful?    AW
chrisw - 25 May 2006 02:49 GMT
Had the sinus CT scan 30 minutes after the nasal endoscopy with
anaesthetic about 3 months ago. Most probably missed my hyper-swollen
internal turbinates. Otherwise, CT scan showed no sinusitus.

I have had allergy testing. Very allergic to dust mites, house-dust,
cats (I have no cats), cockroaches. Have done just about everything I
can to control dust in my home.  Even when outside, my turbinates get
irritated and swell for no reason.

I may have been too hasty with the surgery call but I'm just tired of
feeling like this everyday. I will give the allergy desensitization a
go. It's just so slow to get anything done down here in Australia.

I have consulted with two allergiests. One recommends oral drops while
the other allergy shots so I need some help deciding which route to
take.
Allergist #1 recommends oral drops which I take for 12-13 weeks along
with a food allergy elimination diet. He says allergy shots are not
entirely safe. I can started in a week.
Allergist #2 told me food does not play a role and that Allergist #1
too alternative and a bit suspect in his methods. Allergist #2 wants me
to go on allergy shots but I need another month before he comes back
from overseas to get started.
Any pointers as to which one I should go for?
Don Brady - 25 May 2006 05:02 GMT
>Had the sinus CT scan 30 minutes after the nasal endoscopy with
>anaesthetic about 3 months ago. Most probably missed my hyper-swollen
[quoted text clipped - 4 lines]
>can to control dust in my home.  Even when outside, my turbinates get
>irritated and swell for no reason.

Well there is mould and pollen in the air outside..

>I may have been too hasty with the surgery call but I'm just tired of
>feeling like this everyday. I will give the allergy desensitization a
[quoted text clipped - 6 lines]
>with a food allergy elimination diet. He says allergy shots are not
>entirely safe.

They are safe enough.

>I can started in a week.
>Allergist #2 told me food does not play a role and that Allergist #1
>too alternative and a bit suspect in his methods.

I agree with #2.

Food can be a factor in nasal allergy, but far more common is airborne
allergens.

> Allergist #2 wants me
>to go on allergy shots but I need another month before he comes back
>from overseas to get started.
>Any pointers as to which one I should go for?

#2.

#1 sounds to me like an "alternative practitioner."  Does he have credentials
at all?
Murray Grossan - 25 May 2006 05:12 GMT
On 5/24/06 6:49 PM, in article
1148521760.755472.22730@i39g2000cwa.googlegroups.com, "chrisw"
<sanufi@gmail.com> wrote:

> Had the sinus CT scan 30 minutes after the nasal endoscopy with
> anaesthetic about 3 months ago. Most probably missed my hyper-swollen
[quoted text clipped - 20 lines]
> from overseas to get started.
> Any pointers as to which one I should go for?

I wonder if what you have are true hypertrophy of the turbinates? Here the
tissue has swollen out of shape and vasoconstriction - afrin, etc - can no
longer shrink them . If so, since the tissue won't shrink, might as well get
a procedure where the turbinates are shrunk and that takes care of the
problem. Several methods
Submucus resection of the turbinate
Somnoplasty or similar proceduce

There are other methods, depending on the ENT doctor.

Warning: I am a surgeon and not an allergist so of course ....
chrisw - 25 May 2006 11:38 GMT
Hypertrophy of the turbinates? Sounds scary. Dr Grossan, how many cases
have you seen of this? Is surgery successful for these cases?

How does one diagnose this condition? I find that the shower usually
relieves the swelling.
Murray Grossan - 25 May 2006 17:20 GMT
On 5/25/06 3:38 AM, in article
1148553480.209802.193640@i39g2000cwa.googlegroups.com, "chrisw"
<sanufi@gmail.com> wrote:

> Hypertrophy of the turbinates? Sounds scary. Dr Grossan, how many cases
> have you seen of this? Is surgery successful for these cases?
>
> How does one diagnose this condition? I find that the shower usually
> relieves the swelling.

Really it is quite simple. The turbinates are swollen and block the brathing
and fail to respond to normal medication. The person's I see usuallly have
failed to shrink despite allergy desensitization. Its like any tissue -
lower eyelids, obese skin, etc that is permanently swollen out of shape. If
you are sure that the allergy desensitization won't restore the turbinate,
then SMR of turbinate or somnoplasty type procedure is available.
Don Brady - 25 May 2006 04:57 GMT
>Hi,
>
[quoted text clipped - 32 lines]
>radio-frequency, a laser cautery or a sub-mucous reduction of my
>turbinates.

The last in most cases.   Evens till it needs to be done by a skilled surgeon.

> I have read about empty-nose and dry-nose syndrome so I
>wish to preserve as much of my mucousal-lining and cilia as possible.
>The ENT surgeons here in Australia don't seem to have much sinus
>surgery experience. Anyone know of good experienced sinus surgeons in
>Sydney, Australia?

They must be there.

Try researching the astaff at whichever  teaching hospital has the most
expertise in that area.

Surgery might help but you need to do it only after two or three expert
opinions recommend it.
chrisw - 25 May 2006 05:57 GMT
Allergist #1 was a former ENT but is no longer practicing. He suggested
sub-mucous reduction SMR (is this the same as a sub-mucous resection?)
as a quick-fix. He does, however, believe that oral drops plus food
allergy elimination diet will solve my problems. But since he is no
longer an ENT, well who knows.
Don Brady - 25 May 2006 07:10 GMT
>Allergist #1 was a former ENT but is no longer practicing.
You may want to check if he resigned his former surgery practice (if any) at
the time of an investigation or similar untoward circumstances.   I am not
saying that is likely.  It is just something  to check into whenever you come
across a doctor who is no longer practicing in a field of surgery.

>He suggested
>sub-mucous reduction SMR (is this the same as a sub-mucous resection?)

Yes it is the same.   It is not just a quick fix, it would be a very normal
procedure, as Dr. Grossan mentions.  But it needs to be done with care.

>as a quick-fix. He does, however, believe that oral drops plus food
>allergy elimination diet will solve my problems.

Well there's little harm in trying I guess but I personally doubt that the food
allergy hypothesis is that likely in yur case.  It can be on occasion
though....

>But since he is no
>longer an ENT, well who knows.
august - 25 May 2006 19:58 GMT
> Allergist #1 was a former ENT but is no longer practicing. He suggested
> sub-mucous reduction SMR (is this the same as a sub-mucous resection?)
> as a quick-fix. He does, however, believe that oral drops plus food
> allergy elimination diet will solve my problems. But since he is no
> longer an ENT, well who knows.

I've tried both drops with the elimination diet and allergy shots (from
different Drs). The shots are much more effective IMO. Nothing in life is
totally safe but allergy shots aren't high on my list of worries. My ENT Dr
does write you an RX for an epinephrine pen, but I've never had any bad
reaction other than a bit of swelling at the injection site.  The shots are
a significant investment in time and money but for me were worth it.  AW

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