Medical Forum / Diseases and Disorders / Sinusitis / September 2006
Trigeminal Neuralgia
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Harley - 07 Apr 2006 22:45 GMT So - after 10 years of antibiotics, oral steroids, nasal sprays, 2 surgeries, countless endoscopic examinations, allergy tests etc and the last 6 months of work -we visited the ENT consultant today (new one), who has decided that it's not chronic sinusitis, it's Trigeminal Neuralgia and has prescibed a course of Gabapentin and made a follow-up appointment but not for 4 months.
I'm very sceptical; having since looked up this condition it doesn't really seem to fit symptoms. Anyone else come across this and is it worth asking for a second opinion from a consultant neurologist ??? We're in the UK.
Thanks
H
blades49456 - 08 Apr 2006 01:03 GMT You might also want to look into the problem of "cavitations". They aren't detectable by normal methods, only be a special test. It seems they can be the cause of a number of unexplained conditions, though I don't know that that view is generally accepted by dental and medical professionals. -- Bruce
> So - after 10 years of antibiotics, oral steroids, nasal sprays, 2 > surgeries, countless endoscopic examinations, allergy tests etc and the [quoted text clipped - 10 lines] > > H Harley - 09 Apr 2006 19:16 GMT >> Harley wrote: >> So - after 10 years of antibiotics, oral steroids, nasal sprays, 2 [quoted text clipped - 19 lines] > -- > Bruce Have had several dentak examinations & X-rays. None have indicated any problems of a dental nature. But I'll check out "cavitaations" on the web - can't say I've come across this before.
H.
Harley - 08 Apr 2006 04:31 GMT So - after 10 years of antibiotics, oral steroids, nasal sprays, 2 surgeries, countless endoscopic examinations, allergy tests etc and the last 6 months off work -we visited the ENT consultant today (new one), who has decided that it's not chronic sinusitis, it's Trigeminal Neuralgia and has prescibed a course of Gabapentin and made a follow-up appointment but not for 4 months.
I'm very sceptical; having since looked up this condition it doesn't really seem to fit symptoms. Anyone else come across this and is it worth asking for a second opinion from a consultant neurologist ??? We're in the UK.
Thanks
H
Harley - 20 Apr 2006 08:59 GMT Just bumping this back to see if anyone out there has any views !!
H
> So - after 10 years of antibiotics, oral steroids, nasal sprays, 2 > surgeries, countless endoscopic examinations, allergy tests etc and the [quoted text clipped - 11 lines] > > H Don Brady - 21 Apr 2006 01:52 GMT >Just bumping this back to see if anyone out there has any views !! Trigeminal neuralgia is a syndrome (ie. a set of synptoms), not a true disease.
So he is basically saying you have a certain type of pain that involves nerves - well that is probably true.
As to the cause, he may just be saying he is not sure of that, so he is using a more neutral diagnosis.
It could be dental, TMJ. nerve pinching etc.
But it could also just be sinusitis.
What does a CT scan show? This is a crucial question.
>> So - after 10 years of antibiotics, oral steroids, nasal sprays, 2 >> surgeries, countless endoscopic examinations, allergy tests etc and the [quoted text clipped - 5 lines] >> I'm very sceptical; having since looked up this condition it doesn't >> really seem to fit symptoms What are your symptoms?
>>Anyone else come across this and is it worth >> asking for a second opinion from a consultant neurologist ??? I think I would get a second opion from a sinus specialist, if you think that it may just be regular sinusitis..
>> We're in the >> UK. >> >> Thanks >> >> H Ron G - 30 Apr 2006 23:33 GMT I (had) Trigeminal Neuralgia. Usually it is a lifetime problem, from what I was told. Unbelieveable pain. Can't even truly describe how bad it was! I thought about it allot, it seemed like it happened a short while after I had a molar worked on, a cap, on my left side. It got so bad, I went back to my Dentist, he denied it furiously, but I demanded and got, a presciption to an oral surgeon to pull the molar the hell out of my mouth!! Period!! Surgeon tried, 6 shots of novacaine, (conservative) no help on pain, he couldn't even touch it with a utensil or drill. Went back 4 days later for general anesthesia, he pulled it, I woke up, and all the pain was gone. It hasn't come back in 5 years, but the molar right in front of it is "drill sensitive" which means I end up on the ceiling. Luckily, I don't see the dentist that often, so I have a normal pain free life. Trigeminal Neuralgia can be just as horrible as anything you can imagine!
Best----- Ron
> Just bumping this back to see if anyone out there has any views !! > [quoted text clipped - 15 lines] > > > > H
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Don Brady - 01 May 2006 05:04 GMT >I (had) Trigeminal Neuralgia. Usually it is a lifetime problem, from what I >was told. [quoted text clipped - 8 lines] >Went back 4 days later for general anesthesia, he pulled it, I woke up, and >all the pain was gone. Do you think that this something other than infected pulp?
If was the latter, would killing the pulp (root canal treatment) have had the same effect? Or had you already had that done earlier?
>It hasn't come back in 5 years, but the molar right in front of it is "drill >sensitive" which means I end up on the ceiling. [quoted text clipped - 4 lines] >Best----- >Ron Ron G - 08 May 2006 04:10 GMT > >I (had) Trigeminal Neuralgia. Usually it is a lifetime problem, from what I > >was told. [quoted text clipped - 22 lines] > >Best----- > >Ron Hi-- I think the dental work that he did, either got my jawbone, and Trigeminal nerve infected, or the work on the molar was putting pressure on the trigeminal nerve itself, as it runs down the jawbone.
Oddly, when I walked in (by surprise) to get the oral surgeon referral, there were no patients, office closed, and there was a plumbing crew there replacing all the piping in his dental office. Cleaning piping and everything. He actually tried to stand physically in the way to hide it from me. Moving as I moved to hide it. Told me harshly to get out of his Dental work area. Strange.
It had been destroying my life for about 3 months, I was absolutely getting desperate, it was so bad. They had me on Tegritol pills, which was messing with my mind even to my having to limit my driving to a minimum. They put me in a Cardiac ward for 4 days, because they thought the jaw pain was a heart attack in progress.No one (Doctors, Dentists, Neurologists, Oral Surgeons) wanted to believe it was my molar, so I doggedly went ahead on my own. They told me that the decision to pull the molar was my personal decision, they disagreed, but it would be pulled out by him, only with my written permission so he would not be charged with pulling out a perfectly good molar, for insurance coverage, if any.
They had said it would be a lifetime thing, pain, Tegritol and all, but he (Oral Surgeon) would remove it, if nothing else to humor me, but I had to sign papers as a waiver for him.
But he saw something was wrong when 6 shots didn't even touch the pain. Then he changed sides, and became an ally for me. He set me up for general Anesthia so he could even touch the outside of the molar with a dental utensil. Yes, things were that horribly bad, absolutely no exaggeration.
But, the minute that molar came out, the pain was gone.They were very! surprised when I went to their next appointments, and told them that the molar, and the horrible pain, were gone.
When I had a partial teeth dental put in many years later, the dentist was trying to grind on the molar which was in front of the one I had took out. I went thru the ceiling with Trigeminal pain. He was startled with a "What's going on here, Strange?"
For whatever reason, it looks like that molar's roots must be near to the Trigeminal nerve.
That's why I think it was either physical pressure or infection from the dentists office. Especially with the hiding of the plumbing/cleaning work.
Best--- Ron
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Don Brady - 08 May 2006 06:16 GMT >I think the dental work that he did, either got my jawbone, and Trigeminal >nerve infected, or the work on the molar was putting pressure on the [quoted text clipped - 42 lines] >That's why I think it was either physical pressure or infection from the >dentists office. Especially with the hiding of the plumbing/cleaning work. Well, congratulations on taking charge and resolving your problem despite incorrect medical advice!
Joey Evergreen - 30 Sep 2006 23:17 GMT Ron, I was recently left w/ neuralgia after root canals. Had a very bad yr of pain and dental work. Actually it took them 7mo. to diagnose it. They said to take lyrica for a couple months & it should go away. Well I don't like to take meds so I have been not chewing (soft foods only), lots of ice packs, stuff like that. I have some level of pain all the time. However it's been over 2 mo. & the pain is still there. Should it go away? Possibly I have other root canals he didn't do right & in getting them fixed might help? or hinder? Do you have any suggestions? THanks.
>> >I (had) Trigeminal Neuralgia. Usually it is a lifetime problem, from what I >> >was told. [quoted text clipped - 52 lines] >Best--- >Ron
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