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Medical Forum / Diseases and Disorders / Sinusitis / November 2003

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My sob story --- can anyone help?

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Charles Stanton - 09 Nov 2003 23:05 GMT
Here is my story……the best I can explain it….

My problems occur after I catch a bug.  My definition of bug is as
follows:

I get a mild sore throat.  Sore throat seems to last for 2-4 days and
then my nose jams up really bad.  It feels clogged, then swollen, then
dry, then I get post nasal drip then it goes back to dry, then it
feels swollen again, etc….  There are times when I think I am
completely better (I even cancel my ENT appointment), then I wake up
the next day dry as ever.  I get in the shower and the dryness goes
away but then I get swollen to the point where I have to lay down
because I'm so dizzy.   In other words, it just lingers and lingers
for weeks and months at a time.  My mucous may be discolored for days
1-4 but for the next 6-8 weeks it is clear but I still feel like crap.
 The strangest thing to me is that it varies so much throughout the
day.  I could feel great for 2-3 hours at a time and then my nose will
either get so clogged (or sometimes so incredibly dry) that I have to
literally sit down or I'll fall over.   I would say that I am
generally better of mid-day and late evening.  Early morning and early
evening are the worst ??????  It's as if someone is dangling a carrot
in front of me and I feel almost 100% better just to feel like garbage
in another hour or two.

I am not always like this.  It only happens when I catch something.
I've gone 10 months without anything and then caught some bug and I'm
on week #7 of feeling like above.

Here is what gives me some relief:

1-    Eating?  For some reason when I'm eating my nose problems seem to
disappear.  I feel almost "normal"
2-    Exercise – Same thing but I tend to be very dry when I exercise
3-    Irrigation – Usually feel OK for 5-10 minutes after irrigation…this
goes away as well.  Also, worth mentioning……I've seen some posts
saying that water comes out of the nose 20+ minutes after irrigation.
I've been irrigating for 2+ yrs. & I don't think this has ever
happened to me.  After irrigation, I blow my nose gently or sometimes
I just let the water drip out --- it all seems to come out 10-15
seconds after irrigation.  Don't know if this is relevant or not.
4-    Nasal Gels – Same as irrigation.  May provide 5-10 minutes of some
relief but not much more.
5-    Going outside – fresh air, especially cool air makes me feel better
(although sometimes it makes me even more dry ?????)  I guess most of
the time it helps though.

Had IT cautery & Septoplasty in Dec. of 2002.  At first I thought this
helped ( I was symptom free for almost 10 months) but now of course I
am questioning it's effectiveness.  The main difference that I noticed
after IT cautery  is that I no longer feel as if I want to shove a pin
in my nose to let air get up there (sounds weird huh).  I remember
feeling intense pressure right above my nose in the center of my
forehead.  I would lie on the couch and rub my forehead for and hour,
I could not bend over to tie my shoes because I would get so dizzy,
I'd feel as if I would pass out.  I no longer have this pressure but I
still have the nose irritation and pretty bad nasal dryness throughout
the day.

I have every drug that there is (Nasonex, Rhinocort, Vancenase,
Astelin, Allegra-D, Muconex etc…).  There are times, when my nose is
in "stuffy" mode that I spray some Astelin and I feel this incredible
tingly feeling in my nose and I feel great.  Of course 15-20 minutes
later my nose gets all dry and irritated and I regret ever spraying
anything in there.   I am therefore reluctant to use any more nasal
sprays because of the nasal dryness.

My 2 prior CT scans showed no sinus disease whatsoever however I did
have enlarged turbinates.  I've had several allergy tests and I am
allergic to nothing.  Vasomotor Rhinitis is probably the best guess
for my condition but it is not chronic and it only occurs after I
catch a bug (which may be a few times a year).

Is there any type of cream, gel that I can use in my nose to provide
some type of a soothing affect?  How do I control the nasal dryness
and the swelling at the same time?  Is there anything else I can do?
Are there any doctors out there that can actually help ….. or is that
a silly question?  Is there any treatment for Vasomotor Rhinitis if
that is what I have?  Thanks very much all!

-Charles
Jim Jam - 12 Nov 2003 05:19 GMT
This is what helped me. Although you seem to have done alot so far. 1)
Use a steam vaporizer in the bedroom about 40- 45% humidity (steam not
cool mist). What type irragation saline you use? Try breathease XL its
gentle and is the best I found. I have been allergy tested and the test
are not always accurate. I put dustmite pillow cases and
mattress/boxspring covers on. Keep carpet vacumned 2 times a week. hepa
filter on vacumn.  De-mite carpet and allergen spray it. Do not go to
high on humidity 50% max. If you dust wear a dust mask. Get a humidstat
to measure room humidity. Air filter at least in bedroom with door
closed when away and filter on high. I had so much dust my hepa filter
was clogged in one month. But i use it on high speed almost 24/7 at
night on low. Now its much better. Down comforters are a no. Wash
sheets, pillow cases  bedding in 135F wash water. weekly. I did all the
above by trial and error and over a 2 month period. It worked great for
me. I started with a sinus infection (yearly) and seen my doctor. I used
Rhinocort, flonase, and zrytec. Now I use only rhinocort in very small
amounts and irragation. It was thick yellow discharge now its clear. And
I feel much better. I would go to a ENT. And also have a checkup to see
if the other problems (dizzyness) are something else. Good luck... Its
not always easy finding out what works, beleive me I know. I spent many
hours tracking what works for me.
Charles Stanton - 12 Nov 2003 13:28 GMT
> This is what helped me. Although you seem to have done alot so far. 1)
> Use a steam vaporizer in the bedroom about 40- 45% humidity (steam not
[quoted text clipped - 17 lines]
> not always easy finding out what works, beleive me I know. I spent many
> hours tracking what works for me.

Thanks very much for your post.  I do irrigate with Breathe-Ease XL.
Feels pretty good for about 5 minutes but then it wears off quickly.
My main problem is that I can go to 10 different locations and there
is no ryme or reason as to how I feel at each.  For example, I can go
to a dusty construction site, indoors with dust and crap all over the
place and feel like a million bucks.  Then I come home and my nose
will dry out and clog up.  Other times, in the same situation my nose
is fine in my home.  Sometimes at work it happens, sometimes it
doesn't.  In other words -- there is no reason for it.

Also, there is no infection for the past 7-8 weeks.  There is no
discharge, no sinus pressure, no sore throat etc...  Several visits to
different ENT's and they confirmed no infection.  The nasal sprays
only seem to dry me out more -- I've tried em all :(

I just find it so strange that I can be so close to 100% better for so
many hours and then all of a sudden I'm back to where I started from
within a 5 minute period.  Dry, congested and just feeling crappy.

I guess I'll keep searching -- thanks again for your feedback.
Can do - 12 Nov 2003 15:34 GMT
"Charles Stanton" <charles39847@yahoo.com> wrote in message

> Also, there is no infection for the past 7-8 weeks.  There is no
> discharge, no sinus pressure, no sore throat etc...  Several visits to
[quoted text clipped - 6 lines]
>
> I guess I'll keep searching -- thanks again for your feedback.

I've always believed that sinus infections can remain dormant for years, and
during those years can cause much misery, either to the immune system, or
through outright flare-ups of sinus infection. To me, if you don't get the
anti-bacterial agent to the correct area of the sinuses,  through
irrigation,  the infection will live to see another day.

It's why I do an "upside down" peroxide irrigation, whether I know for sure
I'm infected or not. It works for me.

Here is an interesting quote for you:

http://www.onlineallergycenter.com/sinusitis/

==> "Sinusitis

I find that once you have sinus infection you will probably ALWAYS have the
sinus infection. Whenever the soft tissue lining the sinus cavity swells up
(secondary to allergy or a rhino virus) the "drain hole" will swell shut and
the pressure builds up. When the pressure forces the vascular interface back
from the surface of the sinus tissue your old friend the sinus infection
arises from its dormant state and starts to have lunch...on you.

Antibiotics are foolish in my view unless there is a "bloody" discharge. The
reason I say that is because bacteria that live on the surface of the mucus
membranes lining the sinus cavity cause the sinus infection. The antibiotics
are carried around the body in the bloodstream. There is no blood flow in
the sinuses...they are hollow caves in your head. So how can the antibiotic
get to the infection? It can't. Doctors mistakenly (in my view) prescribe
antibiotics because they "help" the condition. While it is true that
antibiotics "help" in that they relieve the symptoms, they do so because
they have an anti-inflammatory effect on the sinus tissue which allows the
sinus to resume normal drainage, the pressure is thereby relieved and the
infection becomes dormant once again...until the NEXT TIME the tissue
swells. Then... "It's baaaaaaack"..... " <===
Charles Stanton - 12 Nov 2003 21:26 GMT
> "Charles Stanton" <charles39847@yahoo.com> wrote in message
>
[quoted text clipped - 43 lines]
> infection becomes dormant once again...until the NEXT TIME the tissue
> swells. Then... "It's baaaaaaack"..... " <===

That is very interesting.  Let me ask you this though -- if my sinuses
are completely clear on a CT scan and I really have no pressure
anywhere in my sinuses and totally clear drainage is it still possible
that I have a prolonged infection.  The reason that I find this so
interesting is that I only feel this way after and infection,
therefore, I think there is a possibility that the infection is still
"hanging on".

Is it possible to have just an infection in my nose and not my
sinuses?  Would this upside down irrigation work for me if it's just
in the nose?

How about all this nasal dryness -- is it possible that this upside
down irrigation method would make it more dry?

Thanks much.
Can do - 12 Nov 2003 22:22 GMT
Charles Stanton, you said: "That is very interesting.  Let me ask you this
though -- if my sinuses are completely clear on a CT scan and I really have
no pressure anywhere in my sinuses and totally clear drainage is it still
possible that I have a prolonged infection."

I don't know. I am not a doctor. I've discovered an irrigation procedure
that treats my sinuses. I've had multiple yearly sinus infections for
decades. One of the things that motivated me into trying to discover a
method to get peroxide and baking soda deep into my sinsuses, is what I read
on the Internet when I did a Google search for:  Dormant Sinus Infections.
The articles said that infections can remain dormant, or hidden, in the
sinuses for long periods of time. I thought that might be my problem. When I
discovered an "upside down" irrigation method, that finally solved my sinus
infection problems, I wanted to share the information with others. But, once
again, not being a doctor I can't say if it will help a particular person,
or harm him.

Your question is more for an expert like Dr. Grossan.

You said: "Is it possible to have just an infection in my nose and not my
sinuses?  Would this upside down irrigation work for me if it's just in the
nose?"

I used to have a hospital resistant infection in my nostrils and not my
sinuses. I used to treat it, for years, with a triple antibiotic salve on a
Q-Tip. If I forgot to treat it, I would get very painful pimples inside my
nostrils, which would eventually attack my sinuses if I didn't take care of
it.

You asked: "How about all this nasal dryness -- is it possible that this
upside down irrigation method would make it more dry?"

It is possible that my upside down irrigation might make your condition
worse. You would need to check with a doctor before considering using it.

Regards, and best of health!
ENTconsult - 13 Nov 2003 02:51 GMT
In addition to using Breathe.ease XL for irrigation, it is best to use it
several times a day as a spray to keep the nose moist and the cilia happy.
Murray Grossan, M.D.
http://www.ent-consult.com
http://www.hydromedonline.com
 
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