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Medical Forum / Diseases and Disorders / Sinusitis / November 2005good ENT or ID doctor??
I am looking for a good ENT or ID doctor that knows sinuses. I was going to the Univ. of Penn. and my doctor says he can do no more surgically for me so he can't help me anymore. I keep getting sinus infections everytime I go off the antibotics for more then a week I had stenotrophomonas and Pseudomonas aeruginosa cultured from my sinuses in the past 3 months. I need someone to help me fight these infections so they go away or at least more managable. I live in central New Jersey about 1.5 hours from both New York and Philly. If anyone can help it would be great I am lost. > I am looking for a good ENT or ID doctor that knows sinuses. I was going to > the Univ. of Penn. and my doctor says he can do no more surgically for me > so he can't help me anymore. I keep getting sinus infections everytime I > go off the antibotics for more then a week I had stenotrophomonas and > Pseudomonas aeruginosa cultured from my sinuses in the past 3 months. Couple of points: My ENT has told me that recurrent sinus infections like you're describing sometimes mean the infection has deeply invaded the bone (osteomyelitis). In that case, long-term IV antibiotics seems to be the best treatment--but even that isn't a guaranteed cure. Are you doing nasal irrigation? We've had posters on this NG complain that Stenotrophomonas is in their tap water, and that Pseudomonas aeruginosa may be growing in their nasal irrigation equipment. Try replacing all your irrigation equipment. I mean replace it, not clean it. And use only distilled water for irrigation from now on. I don't know any better ENT department than U. Penn in your area. Would you be willing to travel to another part of the country?  SignatureSteven D. Litvintchouk Email: sdlitvin@earthlinkNOSPAM.net Remove the NOSPAM before replying to me. >> I am looking for a good ENT or ID doctor that knows sinuses. I was going to >> the Univ. of Penn. and my doctor says he can do no more surgically for me [quoted text clipped - 17 lines] >I don't know any better ENT department than U. Penn in your area. Would >you be willing to travel to another part of the country? Yes U. Penn is one of the best sinus surgery centers there is, but not necessarily the best in non-surgicil areas. I woudl agree that the original poster should try a different appraoch by going to Mayo Clinic in Rochester Minnesota (or another excellent place) Mayo is great in areas including internal medicine and infectious diseases, which could be involved here. They accept all insurance (I believe they say every single insurance company in the country) and are in a pleasant small town where guest houses or hotels are not expensive... I use a neti pot and boil my water and soak the neti pot in hcl acid every few days. When I first got Pseudomonas aeruginosa a few years ago I started doing this and gave up my water pik. U Penn. is good for surgery but now it does not seem they want to do any more for me. I asked for a referral for an ID doctor there and he gave me a name of a ID doctor that he said knew sinuses but when I called the doctor was not accepting new patients. So I called again and informed them that their suggestion is no good and asked for another, I am still waiting for a reply. > I use a neti pot and boil my water and soak the neti pot in hcl acid every > few days. When I first got Pseudomonas aeruginosa a few years ago I [quoted text clipped - 4 lines] > patients. So I called again and informed them that their suggestion is no > good and asked for another, I am still waiting for a reply. Like I said, you may need to consider traveling to another part of the country. Don Brady is correct that Mayo has great interdisciplinary medicine, but you may want to wait till the spring to visit Minnesota. :-) SignatureSteven D. Litvintchouk Email: sdlitvin@earthlinkNOSPAM.net Remove the NOSPAM before replying to me. Andrea, I tried to send you an email, but it came back 3 times. I'm going to repeat what I told you before. You need to find out what is causing these weird infections. You need to try if at all possible to keep the appointment with the pulmonologist. You can have problems with your lungs and not know it until it has progressed too far to get appropriate treatment. Kathyw I live in the Philly area and have seen 5 different ENTs within the last 3-4 years. I know that there is one that i would NEVER recommend (unfortunatly he was also the first and so he did surgery) but i dont know if i should list his name on the forum. i think though, that all the forum users are educated enough that they would never use this guy. The most recent ENT that i am seeing is the first one to take a culture from my sinuses (nothing grew). I dont know if there are certain rules around listing names and also, as every situation is unique, what was good or bad for me, might not be the case for someone else. what i have found is that these doctors seem to be good at some particular focus and often have trouble "hearing" what the patient is saying. one doctor worked at clearing up my deviated septum and opening up my sinuses -- however this had never been my complaint. another asked me if there was any history of sinus problems within my family. i said "no". within 2 minutes he said to me, "given the extent of the damage and your genetic pre-disposion..." i'll send you a listing of the docs that i have seen off list. |
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