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Medical Forum / Diseases and Disorders / Sinusitis / July 2005

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Bob West - 04 Jul 2005 01:19 GMT
I have been reading this newsgroup everyday for about 7 years now.
Received lots of information. Some worked others didn't. But I am still
suffering with chronic sinusitis. I had two sinus surgeries during the
last 7 years. I also suffer from sleep apnea. Between the apnea and
sinusitis I feel very fatigued, no energy and tired all day. My ENT
doctor wants me to go to University of Pennsylvania in Philadelphia for
a check up by the specialists. I am willing to go. The information that
I am requesting is there any one in this group that has been there and
can they recommend a Doctor. If I go I would at least like to see the
best there is. Maybe one with sleep apnea as well as sinusitis
experience. Thanking you in advance.

Bob West
Don Brady - 04 Jul 2005 02:31 GMT
>I have been reading this newsgroup everyday for about 7 years now.
>Received lots of information. Some worked others didn't. But I am still
[quoted text clipped - 7 lines]
>best there is. Maybe one with sleep apnea as well as sinusitis
>experience. Thanking you in advance.

Dr. Kennedy is most famous but you would probbaly not be able to see him as ha
has cut back his load.

But it is one of the very best centers of excellence in sinus surgery there is
anywhere and there are quite a few famous surgeons there.

See http://pennhealth.com/Wagform/MainPage.aspx?config=provider&P=PL&S=OTO 

>Bob West
loxaluck - 06 Jul 2005 12:44 GMT
I went.  didnt get to see dr Kennedy.  saw a dr. Chui.  I'm sure these guys
are good but i think i spent about 5 minutes with the dr. and got nowhere.
he looked at my yr old cat scan - stuck the scope in my nose and told me to
get together with an allergist, as my primary concern is persistent,
unrelenting nasal drip(or something).  he didnt think that there was
anything that he could surgically do for me (i wasnt asking that
specifically) that hadnt already been attempted with 2 previous surgeries.
he thought that the hole that i had in my septum could not be repaired and
that it was not the cause of my primary problem.  I was unhappy with the
visit, i had expected to get more tests - (like for AFS) but was rushed on
out of there.  i imagine that many will see this and think that i must be a
hypochondriac, which i never fully dismissed (although several other
surgeons did) but whatever i do have actual physical measurable symptoms.
i do intend to see an allergist/immunologist/whatever again even though i
had spent a yr on shots with no noticable improvement.  all symptoms are
different though and maybe you will find value in the UofP visit.  good
luck.
Don Brady - 06 Jul 2005 19:28 GMT
>I went.  didnt get to see dr Kennedy.  saw a dr. Chui.  I'm sure these guys
>are good but i think i spent about 5 minutes with the dr. and got nowhere.
[quoted text clipped - 3 lines]
>anything that he could surgically do for me (i wasnt asking that
>specifically) that hadnt already been attempted with 2 previous surgeries.

They are surgical specialists there, so if a non-surgical solution is
appropriate, you probable are indeed better elsewhere.

They are (usually) great at surgery, and it is good to know at least that you
do not need surgery.

I think that Chui is well known.

> he thought that the hole that i had in my septum could not be repaired and
>that it was not the cause of my primary problem.  I was unhappy with the
>visit, i had expected to get more tests - (like for AFS

Only a few places think that AFS is a major factor, and U. Penn is not one of
them.

> but was rushed on
>out of there.  i imagine that many will see this and think that i must be a
>hypochondriac,

I do not think so for a moment.

Chronic post nasal is a very serious problem that you need to solve.

Check immune status, thyroid, B12-vitamin levels, diet, white blood cell count.

>which i never fully dismissed (although several other
>surgeons did) but whatever i do have actual physical measurable symptoms.
> i do intend to see an allergist/immunologist/whatever again even though i
>had spent a yr on shots with no noticable improvement.  all symptoms are
>different though and maybe you will find value in the UofP visit.  good
>luck.

It is a place for an opinion on surgery.

If you want a more all-round approach, I would suggest Mayo.
loxaluck - 07 Jul 2005 20:52 GMT
Thank you very much.  i sure do appreciate it. i will set up an appt with
my general practioner to discuss the things that you have mentioned and
exhaust all those possibilities as well as a visit to an
immunologist/allergist before i set up a Mayo appt.

greg
 
 
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