I have had sinus headaches for many years now.  My doctors have ruled
out migrains, cluster, and tension headaches. My headaches are
characteristic of sinus headaches but my ct scans are always
normal...well normal for a person who has had 7 sinus surgeries in the
last 15 years. They began when I was 16.  But during that time they
were caused because of abnormal ct scans so surgery was done.  But
since then my headaches have been caused from something else.  I've
been tossed between ENTs and neurologists for years now, since the
problem seems to border both specialties. The neurologist has put me on
three nerve drugs so far.  First I was on Neurotin, then Depokote, and
then Topamax.  It came to his conclusion that I had a nerosis of the
sinuses, meaning the nerves in my sinuses get irritaed from allergies,
inflamation, etc.... Only happens to about 20% or less of people with
sinusitis and allergic rhinitis. The Neuortin was no good I cant
remember why.  The Depokote made me lose my memory including my name
and my phone number, and the Topamax almost caused me to go blind in
one eye.  I have had enough with nerve drugs.  I am usually fine for
about a month after I stop the nerve drug, but then the headaches start
in again.  Its constant pain every day.  Sometimes dull and sometimes
sharp stabbing pain.  Its usually in the frontal and maxiallry sinus
areas, but sometimes its in the ethmoids and sephnoids.  Regular pain
relivers do nothing.  And stronger pain medicines make me bed ridden.
So I have finally seeked help at UCLA Medical Center.  I have an
appointment with an ENT specialist who deals with facial pain on June
21st.  I hope he can help me because I am at a loss of what to do. I
don't think my doctors understand what its like to be in pain every
single day.