 |
 | Home | Contact Us | FAQ | Search & Site Map | Link to Us |
 | Sign In | Join | Other 45 Sites in Network |
Medical Forum / Diseases and Disorders / Sinusitis / March 2005I just don't understand - How can this be normal
I've been to every doctor in town. Now I've even been to Mayo and still they say my sinuses look normal and there is nothing that can be done. Yet I feel horrible. My sinuses are constantly draining crap all day or closed up so I can't breath at all and sometimes both if you can believe that. How the hell can this be normal. I feel like a sinus monster of some sort. I just don't understand??? How can my sinuses be normal with all this trouble?? David Sacramento, CA > I've been to every doctor in town. Now I've even been to Mayo and still > they say my sinuses look normal and there is nothing that can be done. [quoted text clipped - 3 lines] > monster of some sort. I just don't understand??? How can my sinuses be > normal with all this trouble?? Listen to Mayo carefully. They said your sinuses *looked* normal on whatever CT scan or endoscopic examination they did of you. That doesn't mean they *are* normal. I have had two surgeries thus far and each time my CT scan looked normal. I had to find a surgeon who was willing to trust my symptoms and medical history over what the CT scan and other tests showed. And when he did the surgery, he found problems in my sinuses that hadn't shown up well on the CT scan. That was true in BOTH of the surgeries I had thus far. Each time, my surgeon was surprised to find things in my sinuses were worse than the CT scan had indicated. So I suggest you do the same. Keep looking for doctors who are aware that even CT scans have about a 5% rate of false negatives and are willing to disregard the CT scan in order to help you.  SignatureSteven D. Litvintchouk Email: sdlitvin@earthlinkNOSPAM.net Remove the NOSPAM before replying to me. Have you been checked by an Allergist MD? I have those symptoms if I do not take my allergy meds to dry some of the fluid up. I've had days that I felt like a shower was running in my head.( head filled with water) My eyes and nose had water running down my cheeks. The sneezing - 10 times at a time and could not stop them. The mornings are the worst in the Spring and Summer. shirley I've tried everything that I know of. Prick tests and bloodworkup for allergies twice. Food allergies looked for as well. Nothing! >I've tried everything that I know of. Prick tests and bloodworkup for >allergies twice. Food allergies looked for as well. Nothing! Try eliminating dust and mold anyway as mich as possible, Many many people are sensitive to those even if not strictly speaking allergic. > I've tried everything that I know of. Prick tests and bloodworkup for > allergies twice. Food allergies looked for as well. Nothing! Your symptoms are so similar to mine that I keep coming back to the fact that chronic sinusitis is hard to diagnose. There are no 100% reliable tests for it--not even CT scans. I had three ENTs swear that I didn't have chronic sinusitis because the CT scans and nasal endoscopies showed nothing. The only real way to know for sure what is going on in your sinuses is to have the ENT push his endoscope all the way thru your sinus ducts into your sinus cavities. And that is usually done only as part of a surgical procedure. SignatureSteven D. Litvintchouk Email: sdlitvin@earthlinkNOSPAM.net Remove the NOSPAM before replying to me. I feel like I have some sort of thing living in my sinuses. Either bacterial or fungal, that is what I feel. I've been to the best doctors in my area and as well out of the area too. Do I just keep searching to find a doctor that will correctly diagnose me? Is it not enough for my local docs to search further when I keep coming back complaining of the same syptoms? I just understand their thinking! I keep coming back and telling them that I am miserable and they tell me I'm normal! What the hell? I know I'm not normal, my poor wife knows I'm no where near normal. She has to listen to me constantly blowing my nose, sniffing, snorting, spiting in the sink and all the stuff that goes along with it and she never complains but she also knows and sees that what is coming out of my sinuses is nowhere near normal. >I feel like I have some sort of thing living in my sinuses. Very unlikely in your case. More likely you are just sensitive to irritants. So are a lot of us. Also you need to *experiment* to see if the previous hypthesis is correct. Does your nose ever feel better and open up wide and stop draining? E.g if you are sitting by a wide-open window in the right weather? Mine sure as heck does and I have vastly improved my condition by greatly inreasing air exchange with outside air. >Either >bacterial or fungal, that is what I feel. [quoted text clipped - 9 lines] >and she never complains but she also knows and sees that what is coming >out of my sinuses is nowhere near normal. Steroid sprays, and possibly irrigation should largely eliminate those symptoms. Also have a good *internist* check for low thyroid (try to get the actual TSH numeric value and post it here, not just a conclusion), anemia, white blood cell morphology, and fasting B12 level. The internist will know why you want those. Also get enough sleep. This affects your natural corisone level cycle and will reduce inflammation significantly. > I feel like I have some sort of thing living in my sinuses. Either > bacterial or fungal, that is what I feel. I've been to the best doctors > in my area and as well out of the area too. Do I just keep searching to > find a doctor that will correctly diagnose me? Is it not enough for my > local docs to search further when I keep coming back complaining of the > same syptoms? No. You wouldn't keep arguing and cajoling your auto mechanic if he repeatedly failed to fix your car properly. You would just take your business elsewhere, right? The magazine U.S. News & World Report does an annual list of the best hospitals in each department. Here's ENT: http://www.usnews.com/usnews/health/hosptl/rankings/specihqotol.htm Depending on where you live, I would try one of those. SignatureSteven D. Litvintchouk Email: sdlitvin@earthlinkNOSPAM.net Remove the NOSPAM before replying to me. I've heard good things about Stanford. I may try there in a few months. Thanks for everyones replies to my post. David Sacramento, CA On 3/11/05 11:01 AM, in article 1110567684.948737.139980@g14g2000cwa.googlegroups.com, "Dball63" <dball63@yahoo.com> wrote: > I've tried everything that I know of. Prick tests and bloodworkup for > allergies twice. Food allergies looked for as well. Nothing! As a rule, addiction to steroid nasal sprays is rare. Some persons however continue to use it because of the relief it give them, but that's not the same as rebound addiciton you get with Afrin. >I've been to every doctor in town. Now I've even been to Mayo and still >they say my sinuses look normal and there is nothing that can be done. >Yet I feel horrible. My sinuses are constantly draining crap all day or >closed up You do not breathe through your sinuses. You are confused about anatomy. >so I can't breath at all and sometimes both if you can >believe that. That means your turbinates are swollen and has nothing to do with your sinuses. An allergist can help you. >How the hell can this be normal. I feel like a sinus >monster of some sort. I just don't understand??? How can my sinuses be >normal with all this trouble?? I would get a second opinion elsewhere. You would be well advised to go to another place of similar high reputation to Mayo. Otherwise you will find yourself assuming that Mayo's would be the better opinion. Mayo is very conservative about diagnosing sinusitis -sometimes that's good but not always..
|
Reply to this Message |
 Sign In
 Join
 My Latest Posts My Monitored Threads My Blog My Photo Gallery My Profile My Homepage Start New Thread Enable EMail Alerts Rate this Thread
|
©2008 Advenet LLC Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.