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Medical Forum / Diseases and Disorders / Sinusitis / March 2005

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Does anyone know what I mean, or am I just normal with no problem but my mind?

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Mike - 11 Mar 2005 02:22 GMT
I have read the FAQ, and read many posts, but I wanted to talk about my
specific example, I couldn't find anything concrete..

I have been living with what I guess may be chronic sinusits for a few
years now.. I talked to a MD every year about it, with really not much
help.. I thought I was just being overreactive.. A couple years back I
went to an ENT, he had me do some allergy blood work, took a sinus
X-Ray (not CT) and said my sinuses are normal, no allergies, my
symptoms are probably just something to live with.

I am fed up now and don't want to.. Just had my physical and my md
suggested Nasalcrom (i've been given flonase samples and scripts in the
past, or rhinocort, but I never took them, I would rather deal with the
symptoms than take steroids for life)..

So here are my symptoms.. Am I fine, or does someone out there know
what I mean and suffer the same? And what have you done to fix it that
has worked? If you can reply here and to my email address that would be
great...

Symptoms:

Real minor facial pressure, I only noticed it after reading the FAQ and
posts here, just thought it was normal.

Ears - My ears don't really feel congested, but they feel stuffy.. In
other words, if I block my nose and blow through my nose, my ears feel
horrible (as expected), once I swallow and clear they feel better, but
I still don't feel as clear as they should.. Every day I have a moment
of clarity when for some reason my ears have "popped" and I actually
feel like I can hear for the first time (its like washing your
windshield after driving 15 miles with a little dirt/salt on it, you
could see before but now it's amazingly clear). Hearing tests are
normal, the otoscope the Family MD does with the blowing of air and all
reveals nothing abnormal. When I am not snorting, trying to clear my
nose into my throat so I can feel like I am getting better air, I am
constantly opening my mouth fast and wide (I must look like a fool) to
try and clear my ears.

Also Ears - Whenever I yawn or close my eyes tight, or sometimes just
swallow iwth my eyes closed, I hear this "wooshing" sound in my head,
from both ears it seems.. I liken it to putting very deep seashells
tightly to each ear, sounds like blood flowing.

Nose - I wake up every morning with a stuffy feeling, but I can blow
and blow and blow and all I get is a couple dried up tiny pieces of
darker green mucos.. Not runny at all.. Throughout the day I am
constantly clearing my nose backwards, blowing it isn't effective, but
if I "snort up" (someone knows what I mean i hope, basically I clear my
nose backwards into my throat) I actually get more.. For lack of a
better descriptor it feels like all of my snot is backed up above my
nostrils, so it is stuffed but blowing it doesn't do anything.. what I
can produce into my throat is greenish or yellowish.. has been for
years.. I feel like I can't get great breath in my nasal airway.. that
sucks when running and makes me overtired.. I hardly ever sneeze..

Sinus Areas - I can percuss the areas around my sinuses all day and I
don't feel any real pain or pressure.. I have a constant pressure
throught my face (under my eye orbits, and around the cheekbones in
front of the ears) but it is such a low pressure (maybe 2 on a scale of
0 to 10) that I feel stupid complaining about it. Every so often I do
get a sharper pain along the sinus areas, almost like a quick sting
that can water my eyes, but that is less common.

Mouth - Chronic bad breath.. I can drink plenty of water and water
only, eat nothing but bland foods, and I still have a nasty taste in my
throat and bad breath.

Mouth - I wake up and can tell I've had post nasal drip quite often,
and I snore a bit lately, (not sure if related).

Head - I feel like I have head pressure constantly, but really low
grade like the face pressure. .I feel like my jaw is always clenched,
but it isn't.

The biggest pain in the butt is the ears never seeming fully open, and
the nose never seeming fully open.. I can breathe through the nose, but
it just doesn't seem like its enough.. If I block one nostril, I can
inhale lightly slowly through it, but exhale even slower, like I have
an upper blockage..

Sorry so long, but man this is getting annoying! The Doc just gave me
NasalCrom, told me much more safe than a steroid, not as effective, but
he asked me to give it 3/4 weeks (that is time to peak effect of
cromolyn sodium apparently). I will, but someone out there must
understand me..

Thanks!!
Don Brady - 11 Mar 2005 03:00 GMT
>I have read the FAQ, and read many posts, but I wanted to talk about my
>specific example, I couldn't find anything concrete..
[quoted text clipped - 5 lines]
>X-Ray (not CT) and said my sinuses are normal, no allergies, my
>symptoms are probably just something to live with.

Ws he Board Certified?  Sinus xrays are no longer used to diagnose sinusitis.
You need a CT scan and interpretation.

Go to a sinus specialist at  a major medical center.

>I am fed up now and don't want to.. Just had my physical and my md
>suggested Nasalcrom (i've been given flonase samples and scripts in the
>past, or rhinocort, but I never took them, I would rather deal with the
>symptoms than take steroids for life)..

There's no reason not to use steroid sprays.  They are absorbed locally.

........

>Sorry so long, but man this is getting annoying! The Doc just gave me
>NasalCrom, told me much more safe than a steroid, not as effective

Go to a real doctor.   There are no risks to steroid sprays.

>he asked me to give it 3/4 weeks (that is time to peak effect of
>cromolyn sodium apparently)

That's fine too.......
Mike - 11 Mar 2005 03:20 GMT
> >I have read the FAQ, and read many posts, but I wanted to talk about my
> >specific example, I couldn't find anything concrete..
[quoted text clipped - 10 lines]
>
> Go to a sinus specialist at  a major medical center.

I am not sure if he was board certified.. I know he was a fellow of one
of the colleges of ENT surgeons. This was 2 - 3 years ago..

> >I am fed up now and don't want to.. Just had my physical and my md
> >suggested Nasalcrom (i've been given flonase samples and scripts in the
[quoted text clipped - 4 lines]
>
> ........
I have heard of other side effects, I realize they are absorbed locally
and therefore don't go systemic as a result of the liver, but I have
heard of issues with tolerance, eye issues, and some effects of some
minor absorbtion, as some is left in the throat to absorb orally.

> >Sorry so long, but man this is getting annoying! The Doc just gave me
> >NasalCrom, told me much more safe than a steroid, not as effective
>
> Go to a real doctor.   There are no risks to steroid sprays.

My doctor is a pretty good doctor. I think the problem is I am being
too disrespectful of my symptoms.. I can go about life, and I have for
a while.. I don't know if I am experiencing normal issues or not, I
don't know what normal is.. Maybe I should ask for a dose pack of
medrol to see what I feel like after 5 days.. My Doc actually told me
the steroids were fine, no risks, but he sensed my apprehension and
suggested the NasaCrom as it was even safer. Not a cortisteroid, but a
mast cell stabilizer.

I just wanted to hear others who know my symptoms.. Especially the odd
nasal draining, the appearance of breathing difficulty through the
nasal airway, and that awful ear stuffiness.

> >he asked me to give it 3/4 weeks (that is time to peak effect of
> >cromolyn sodium apparently)
>
> That's fine too.......
Don Brady - 11 Mar 2005 05:15 GMT
>> There's no reason not to use steroid sprays.  They are absorbed
>locally.
[quoted text clipped - 4 lines]
>heard of issues with tolerance, eye issues, and some effects of some
>minor absorbtion, as some is left in the throat to absorb orally.

Not really according to almost all evidence,

>> >Sorry so long, but man this is getting annoying! The Doc just gave
>me
>> >NasalCrom, told me much more safe than a steroid, not as effective
>>
>> Go to a real doctor.   There are no risks to steroid sprays.

>I just wanted to hear others who know my symptoms.. Especially the odd
>nasal draining, the appearance of breathing difficulty through the
>nasal airway, and that awful ear stuffiness.

Those are just common for anyone with nasal inflammation.   Unfortunately,
details of symptoms are usually not really meaningful.

Everyone thinks that you can discuss it all in terms of symptoms but you cannot
without the CT scans results etc.

It's funny that a lot of people who post here who do not want any substantive
comments about things that they could be missing or misapprehensions.

You need to avoid allergens (dust, mould) too.
Mike - 11 Mar 2005 14:51 GMT
> >> There's no reason not to use steroid sprays.  They are absorbed
> >locally.
[quoted text clipped - 6 lines]
>
> Not really according to almost all evidence,
I'll have to look more into that.. I guess its just programmed into my
head that steroids are bad from the oral steroids people take for
asthma, etc. etc.. What you are saying does make sense though.. I mean
you're pretty much spraying it directly to target tissue and its
affects are local to that tissue, not much left..

What about worsening of effects? Start using them, and then you have to
use them becasue without them the symptoms seem even worse?

> >> >Sorry so long, but man this is getting annoying! The Doc just gave
> >me
[quoted text clipped - 14 lines]
> It's funny that a lot of people who post here who do not want any substantive
> comments about things that they could be missing or misapprehensions.

> You need to avoid allergens (dust, mould) too.

Thanks for the tips on the allergens, I guess I never paid much
attention to them because of the allergy tests I had from the ENTs
orders (those weren't skin tests though, just blood tests) I'll be more
careful there.. I will also ask for a CT. I definitely want comments
about things I could be missing or misapprehensions, I want to get
better. I guess I wanted to make sure I wasn't overreacting to how it's
supposed to be, that was my main reason for posting in terms of
symptoms.. They are all mild, but together they are a big pain in the
rear, and I feel like. I don't want to waste my docs time, an ents time
etc. etc. if its really nothing..
Steven L. - 11 Mar 2005 15:29 GMT
>>>>There's no reason not to use steroid sprays.  They are absorbed
>>>
[quoted text clipped - 20 lines]
> What about worsening of effects? Start using them, and then you have to
> use them becasue without them the symptoms seem even worse?

There is no rebound effect.

Having said that, it's important to diagnose the problem, not just
relieve the symptoms with steroid sprays.  Because the problem can get
gradually worse while the steroid sprays mask the symptoms.

> Thanks for the tips on the allergens, I guess I never paid much
> attention to them because of the allergy tests I had from the ENTs
> orders (those weren't skin tests though, just blood tests)

Blood tests aren't precise as to the specific allergens.  You need to
get skin tests.

So far, I'm not impressed with the medical treatment you have received
from your physician(s).  I think you need to start elsewhere with a
whole set of new doctors, not try to convince your existing doctors to
give you CT scans and skin allergy tests.

In my experience, you can't talk a doctor into changing his methodology.
 But you can always walk out of his office.

Signature

Steven D. Litvintchouk
Email:  sdlitvin@earthlinkNOSPAM.net

Remove the NOSPAM before replying to me.

Don Brady - 11 Mar 2005 16:44 GMT
>So far, I'm not impressed with the medical treatment you have received
>from your physician(s).  I think you need to start elsewhere with a
[quoted text clipped - 3 lines]
>In my experience, you can't talk a doctor into changing his methodology.
>  But you can always walk out of his office.

I agree completely with Stephen.  "A man convinced against his will - is of the
same opinion still..."
Don Brady - 11 Mar 2005 16:42 GMT
>> Not really according to almost all evidence,
>I'll have to look more into that.. I guess its just programmed into my
>head that steroids are bad from the oral steroids people take for
>asthma, etc. etc..
Yes oral steroids are a totally different story.

>What you are saying does make sense though.. I mean
>you're pretty much spraying it directly to target tissue and its
>affects are local to that tissue, not much left..
>
>What about worsening of effects? Start using them, and then you have to
>use them becasue without them the symptoms seem even worse?

That very much applies to Afrin (you become addicted after more than afew days)
but not at all to steroid sprays. You can stop at any time with no worsening.

>Thanks for the tips on the allergens, I guess I never paid much
>attention to them because of the allergy tests I had from the ENTs
>orders (those weren't skin tests though, just blood tests) I'll be more
>careful there..

Lots of people are sensitive to dust and mold without necessarily being
allergic......

> I will also ask for a CT. I definitely want comments
>about things I could be missing or misapprehensions, I want to get
[quoted text clipped - 3 lines]
>rear, and I feel like. I don't want to waste my docs time, an ents time
>etc. etc. if its really nothing..

I do not think they are so mild as to ignore them at all.  Many (inclusing me)
started like that and then our sinuses gradually block up over the years until
surgery is necessary.   You want to avoid that if you can.

It's quite possible that a CTscan would show thickening of the sinus linings
already.    And also maybe not.  Waters view X-rays deliver almost zero
indormation by comparison - they just show one of the sinuses.
 
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