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Medical Forum / Diseases and Disorders / Sinusitis / December 2004sinusitis and candida krusei
hi... got sick about 2 yrs ago. was dx'd with chonic sinusitis and had fess surgery. had problems afterwards and was dx'd with CFS. months later was dx'd with lyme disease and had initial good response to abx but faltered (tests for lyme are still equivocal). last MRI (june 04) showed : "right maxillary sinus mucous retention cyst or polyp with evidence of mucosal thickening. left frontal sinus evidence of fluid, additionaly within left aspect of frontal sinus there is an ovoid apparent 1.7 cm mass." my initial paranasal ct was not even that bad before surgery! anyhow... at the time of the MRI i was doing very well with antibiotics for lyme diagnosis and somewhat dismissed the mri. i had an ent appt but was cancelled to do a spinal tap (ouch). then i just forgot about it. in the last month i have had recurring bloody, green mucous discharge. two weeks of ketek mostly cleared off colored discharge but congestion and some unsightly discharge remains. i also suffer from symptoms of fatigue and neuropathy. this week i had a candida pcr (from a lab called MDL in NJ) and was found to have an infection of candida krusei which i am now on voriconazle (vfend) for. my IgG sublevels are very low and am having a repeat immunology exam next week. have many of you sinus sufferers been found to have hypogammaglobulinemia, or CVID as your underlying problem? and have any of you had candida krusei (which is extremely opportunistic) as well? thanks.... zip i was also initially treated by the famous wellington tichenor and then had fess surgery by the also famous dr. vijay anand. >hi... > [quoted text clipped - 37 lines] >and have any of you had candida krusei (which is extremely >opportunistic) as well? I assume you are seeing some kind of naturopath or non-mainstream doctor as your references to CFS, lyme disease and MDL are all suggestive of that. If I were you I would at least get some opinions from within the medical mainstream. don, quick to judgement and misinformed my good man. actually i am now working with a prominent pcp in ny (he is the internist for the yankees, not kidding) as well as many others who are quite respected in their given fields (including big teaching hospitals in ny). i could give you a list of dr's name that would look like an allstar roster. lol. CFS was first diagnosed by my then well respected pcp, who is an idiot in retrospect, because i had the chicken pox right after my fess surgery and never rebounded symptom wise (debilitating fatigue). i know that lyme is often seen or viewed as being an unorthodox diagnosis, especially tertiary or chronic lyme, but it is really fairly common and not all that exotic. if you do a search on entrez pub med (national library of medicine) and enter lyme borrelia you will find out some VERY interesting things. as far as MDL i can't vouch for them, just had testing done there. since you seemed to be well versed with these subjects, have you an opinion worth soliciting? my email was looking for advice with anyone with similar experience, can you relate? and if you can i would appreciate the feedback.... thanks, zip > I assume you are seeing some kind of naturopath or non-mainstream doctor as > your references to CFS, lyme disease and MDL are all suggestive of that. > > If I were you I would at least get some opinions from within the medical > mainstream. >don, > >quick to judgement and misinformed my good man. OK fine I am sorry. I was just trying to see if you were in hands of any quacks. It sounds as if you are not. >actually i am now working with a prominent pcp in ny (he is the >internist for the yankees, not kidding) as well as many others who are >quite respected in their given fields (including big teaching hospitals >in ny). OK. >i could give you a list of dr's name that would look like an allstar >roster. lol. > >CFS was first diagnosed by my then well respected pcp, who is an idiot >in retrospect, because i had the chicken pox right after my fess >surgery and never rebounded symptom wise (debilitating fatigue). CFS is often a missed diagnosis of some more specific problem. After all, it is a syndrome, not a disease. But if you have been seen by prominent doctors, I trust that all relevant tests have been done. >i know that lyme is often seen or viewed as being an unorthodox >diagnosis, especially tertiary or chronic lyme, but it is really fairly >common and not all that exotic. >if you do a search on entrez pub med (national library of medicine) and >enter lyme borrelia you will find out some VERY interesting things. > >as far as MDL i can't vouch for them, just had testing done there. They may be great. I just saw that they specialize in Lyme Disease, CFS etc. which made me aware they are not a general purpose lab. >since you seemed to be well versed with these subjects, have you an >opinion worth soliciting? my email was looking for advice with anyone >with similar experience, can you relate? and if you can i would >appreciate the feedback.... No I wish I could help. Your condition sounds highly specialized. If you are not satisfied with the overall diagnoses you have gotten, I would go to Mayo. They coordinate specialties like *nobody* else, even the major teaching hospitals (which tend to have fiefdoms within them in each specialty). Obviously if you have an immune disorder, you are going to be vulnerable to sinusitis. The real issue may be to understand the immune condition as fully as possible, and to be sure that there is not an underlying cause that has been missed. Also, sinusitis usually has multiple causes in the individual, so I would try to give your sinuses the best air you can (dust free, mold free as much as possible). don, thanks for looking out for my well being and making sure i wasn't in the hands of a quack. i've met a couple but they were easy to spot. and there are a LOT of them out there. right now we are trying to figure out the immunological complex. my results have been mystifying to the immunologist. as of now all immune testing points to my have an autoimmune disease, but i test negative on EVERY autoimmune disease. that's why i was interested in anyone having sinus problems as consistent with CVID, etc. I thought about MAYO but there are so many good docs in ny i never ventured west. but thanks for the tips anyhow, much obliged! happy holidays to you.... zip > >don, > > [quoted text clipped - 52 lines] > to give your sinuses the best air you can (dust free, mold free as much as > possible). > don, <snip> > right now we are trying to figure out the immunological complex. my > results have been mystifying to the immunologist. as of now all immune > testing points to my have an autoimmune disease, but i test negative on > EVERY autoimmune disease. <snip> Not all autoimmune diseases have specific tests that are diagnostic. For those it's the symptoms, blood and urine test results, radiograph results, and a thorough clinical exam that help the physician to determine a diagnosis. -- Lefty >right now we are trying to figure out the immunological complex. my >results have been mystifying to the immunologist. as of now all immune >testing points to my have an autoimmune disease, but i test negative on >EVERY autoimmune disease. To cover other possibilities: Are you on a very unusual diet? Could there be a reason why you would have digestive problems? What is your TSH value? What is your fasting cobalamin (B12) level? Certain types of B-viramin deficiency affect the immune system. my thyroid checks out normal, not sure if i have ever had a fasting b12 test, will have to check records. but thanks for the idea. normal diet, stomach is ok. anyhow i see the immunologist again on tuesday to take some more tests, blah, blah, blah. but i'll let you know if anything significant comes of it. >my thyroid checks out normal Normality criteria have been sharply revised recently. Many labs will report as normal what is no longer regarded as normal. The actual number would be helpful. >, not sure if i have ever had a fasting b12 >test, will have to check records. but thanks for the idea. Many people (especially over 50) have B12 absorption problems that will eventually lead to pernicious anemia and impaired immune response among other things.... >normal diet, stomach is ok. > >anyhow i see the immunologist again on tuesday to take some more tests, >blah, blah, blah. but i'll let you know if anything significant comes >of it. Good. my thyroid checks out normal, not sure if i have ever had a fasting b12 test, will have to check records. but thanks for the idea. normal diet, stomach is ok. anyhow i see the immunologist again on tuesday to take some more tests, blah, blah, blah. but i'll let you know if anything significant comes of it. |
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