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Medical Forum / Diseases and Disorders / Sinusitis / November 2004

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My wife's condition - update

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Dave - 31 Oct 2004 13:42 GMT
Hi,

A while back I posted a message about sinus conditions my wife is
experiencing.

I'd like to share what we've learned since beginning this process 12 weeks
ago which may or may not help anyone reading this win uncertainties .

After 2 ENT's (one better than the next), we have now been referred to the
"top dog" at the University of Rochester (Strong Memorial Hospital) - Dr.
Papat.

Attempting to make a major long story short, after a biopsy determining a
benign reparative granuloma in her Sphenoid cavity, various CT Scans and MRI
/ MRA's he is fairly certain of 2 things.
1.    The tumor must come out as it is continuing to grow (which apparently
is normal for this type of tumor).
2.    An fungal infection exists.

We go in for complex surgery in 2 days to get this thing out and biopsied
again to ensure nothing else exists that caused this tumor to grow.

Things learned:
1.    Not all ENT's are created equal.
2.    Be your own advocate and demand all the Scans (CT or otherwise)
possible - even if the ENT says "no".
3.    Fungus can be difficult to detect
4.    A benign reparative granuloma can sometime be confused with a
malignant tumor

Hopefully it all goes well Tuesday.  It will be an Image Guided surgery as
the sphenoid is not readily available otherwise.
CanDo - 31 Oct 2004 15:50 GMT
Best of luck and health to your wife. Hopefully the surgery will go great
and she will feel like a new person. She's lucky to have someone like you in
her corner!

> Hi,
>
[quoted text clipped - 28 lines]
> Hopefully it all goes well Tuesday.  It will be an Image Guided surgery as
> the sphenoid is not readily available otherwise.
Dave - 01 Nov 2004 00:15 GMT
Thank you!

> Best of luck and health to your wife. Hopefully the surgery will go great
> and she will feel like a new person. She's lucky to have someone like you
[quoted text clipped - 38 lines]
>> as
>> the sphenoid is not readily available otherwise.
Steven Litvintchouk - 31 Oct 2004 18:44 GMT
> After 2 ENT's (one better than the next), we have now been referred to the
> "top dog" at the University of Rochester (Strong Memorial Hospital) - Dr.
> Papat.
>
> Attempting to make a major long story short, after a biopsy determining a
> benign reparative granuloma....

"Benign" is what we all wanted to hear!  Excellent!

> in her Sphenoid cavity, various CT Scans and MRI
> / MRA's he is fairly certain of 2 things.
[quoted text clipped - 4 lines]
> We go in for complex surgery in 2 days to get this thing out and biopsied
> again to ensure nothing else exists that caused this tumor to grow.

Did he do a culture of the fungus?  How does he plan to treat the fungal
infection?

> Hopefully it all goes well Tuesday.  It will be an Image Guided surgery as
> the sphenoid is not readily available otherwise.

Let's hope and expect that everything will go well, and that your wife
will get her health back--and her old life back.

Good luck.

Signature

Steven D. Litvintchouk
Email:  sdlitvin@earthlinkNOSPAM.net

Remove the NOSPAM before replying to me.

Dave - 01 Nov 2004 00:15 GMT
Thanks for the encouragement.

Signs of fungus appeared on some high-tech scan which is available only in
certain parts of the country.  We are blessed to live in one of those
places.

She has been put on anti-fungal & anti-bacterial meds at this time.

The plan is to remove as much as possible of the tumor from the surgery and
the remainder via meds.

The tumor may need to be treated with radiation should any traces be found
afterwards.

I'll keep you posted.

>> After 2 ENT's (one better than the next), we have now been referred to
>> the "top dog" at the University of Rochester (Strong Memorial Hospital) -
[quoted text clipped - 24 lines]
>
> Good luck.
Pamdomania - 01 Nov 2004 04:37 GMT
>Thanks for the encouragement.
>
[quoted text clipped - 3 lines]
>
>She has been put on anti-fungal & anti-bacterial meds at this time.

Hello,
So who exactly is causing all these blessings?
The antibiotics will make the fungus worse. The
"fungus" is probably an aspergillus fungus ball,
and the zeros are calling it a . . . whatdidgasay?
<snip>
+ + + + + + + + + + + + + + + + + + + +
http://www.biblebelievers.org.au/benjamin.htm
MustRead!  http://WWW.PAMINIFARM.COM
"My people are destroyed for lack of knowledge" Hosea 4:6

 
iamthezookeeper - 01 Nov 2004 12:18 GMT
Dave, so good to hear you found what the problem is and that she is getting
help! Good luck tomorrow and hope she gets relief and all news is good.
Keep us posted, we love to hear success stories! Trudy.
 
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